New member (my story)

I was first told i had fibro. Four years ago after my car accident in 09. My whole life changed before i was very active worked out 5 days a week walked 3 miles a day 6 days a week played golf, fished, worked in my flower beds everyday, played with my grandkids, went to all my kids sport and school activities. But now i can’t do any of the things i enjoyed or loved doing due to the constant pain everyday. I’ve loss friends and family

I'm sorry, Tina. I hope you find new friends and a new family right here. Wishing you the best!

I feel like i have faile
.d everyone including myself. I at times feel lost and alone like scared my family and what few friends i do have left get mad cause i hurt and can’t do like i ise tpo my own daughter wont let me see or talk to my grandbaby because i hurt all the time. I was in the hospital for a week back in oct. Of last year cause i started having seizures drs. Tryed to say it was all in my head that i was crazy was even going to send me away for awhile till another dr stepped in and said its not in her head that i was havong seizires cause pain was so bad it was sending my body into shock and i woild have them. My memory is so bad i have to have reminders all time im so depressed i can’t sleep im lucky if i get 4 hours a night and that’s not straight sleep I’m up in tears every night and no one understands im frustrated and wish sp many times it would end

Tina, first of all I am going to give you the hotline number 1 800 273-TALK, and I would like you to call it anytime you feel like you are in crisis and need to talk to a real, live person. Second, please just put aside the burden of guilt. You did not choose this situation. You are dealing with too much to also deal with guilt. Just lay it down. Has your doctor discussed anti-depressants with you?

Hi Tina,

Welcome to the group! So sorry to hear about your car accident, I've only been in a few minor ones, the last one I simply could not get over, and it took years from then to have a full diagnosis. Car accidents only take a few seconds to drastically change your life, BUT there is always hope to improve!

The first hope is a good Doctor who first of all believes you, and secondly takes time with you! I believe them to be your lifeline! I agree with Lovett, losing loved ones, or not being believed by loved ones, is the most difficult part of all of this, it certainly gets you down!

Talking to a professional about how this all changed your life is also important, I did for 2 years, and it did me nothing but good! My Chiropractor referred me after I broke down in his office one day. I went to a PhD Psychologist, a lady about my age who was also a mother and grandmother, and it was like talking to a best friend, only she offers many more positive solutions for improving your life by making you more resilient. The phone number given to you by dancermom is a nationwide number, they direct you to a person in your area who can recommend you to someone just like the one I mentioned. They have very impressive resources available to share with you.

Coming here was such a good idea, it's always great to correspond with others who have been through it, going through it, and continue to go through it.

Glad you reached out and posted! Stay strong!

Wishing you well,

SK

Thank u all its nice to know im not alone in this

hi tina. yes i know how hard it is to lose parts of yourself, your life. it is a difficult journey to be on indeed.

sending you much love

suzie xoxoox

Hi Tina,

I'm so glad you found us! We're all here both to learn and to teach. I was just reading my profile to see if it needed updating, and found this that I wrote over two years ago:

Any helpful suggestions for those just diagnosed?

Every day:
1. write a list of everything you'd like to get done that day.
2. Immediately cross half the items off your list.
3. Stand up, touch your toes, stretch your arms over your head, and then sit down again.
4. a. If you feel fine, proceed with your revised list.
b. If you feel a bit sore/tired, cross off half of the remaining items and proceed with your day.
c. If you feel really sore and exhausted, throw away the list, call in sick, and go back to bed.

I suggest you have a look at the current thread "What cures Fatigue?" for more (and probably better) ideas. Sadly, coping with Fibro is not a destination, it's a journey. Welcome aboard, we're a fun crowd!

Hello Tina and welcome to a wonderful group and know now you are not alone. I understand what your saying and how you feel. This is a nasty illness and takes away much of those things that we once loved to do. You need to really listen to your body now, and rest when you can. Do what you can and please try not to overdue it.
Hang in there and don’t give up
Joy

Love love this post!! Thank you :slight_smile:

So good to hear from you, Silicon!

Your suggestions are priceless, you gave me a much needed laugh! I throw away the list quite often!