Hi Everyone! I haven't been around in a while...I apologize.
Such a year of up and down emotions and health issues. I have Fibromyalgia, had it first, way before my Geniculate Neuralgia (GN), Neuropathy, Arthritis and Migraines as I think about it. With each upset of the apple cart this past year my Fibro flared and so did my GN. I had knee surgery, got put in permanent ankle braces, hubby got stents and then went into respiratory failure in August, we were so blessed to get him back okay but both those hospital stays were as hard on me as they were on him. I had a stroke scare and because of that found out that I have a pretty serious case of sleep apnea so now I'm on CPAP and O2. My new insurance has my doctors and myself jumping through hoops for my meds and I already do that with my family as they hate all the meds I am on. I don't see the "way it makes me" like they do. Anyway...I have to be on something that everyone approves of and that works. Having quite the time with all that. So my GP who is also my pain management Dr. encouraged me to see my Neurosurgeon again just to put it on the books for Meridian (ins) We have appealed and appealed to no avail. So I made the appointment and had it two days ago. They want me to try Gamma Knife brain surgery on the injured nerve in my skull again this time with higher radiation values. I will plead my case to the Radiology Oncologist on the 4th of March and if that goes positively then a 2nd try at Gamma Knife will follow shortly after.
I'm flaring like crazy but my hopes are high. They have had loads of success with Gamma Knife on Trigeminal Neuralgia patients since I had my first Gamma knife 2 years ago. My Geniculate Neuralgia is a bit of rare one that they don't know a whole bunch about but they can see the scar on my nerve and I believe they really want to help me if they can. So here I go again my friends. I was going to be happy with pain control via medication but that won't fly with my family and I live under their roof. Insurance co. won't honor the scripts that my doctors write anyway. I will try not to worry about the side effects but deafness and paralysis aren't just little side effects. Sure would be nice to be rid of this 24/7 nerve pain though. I have hope again...yay!
I'm so sorry to hear of all that's been going on. No wonder you've been having flairs. I'm not good with keeping up with people but I want you to know you have been in my thoughts and prayers and I will continue to do so. Please try to keep us informed on how you are doing.
hi i was not able to read the whole post well enough but i see that you are going through a lot of huge stuff and your hubby did too. i am sending you lots of love your way and wishes for all the best. i will read this more slowly later so i can take it in better.
Northwoods, are you on the TN community? You can get great support and information there. There is a link to it in the communities list. Best wishes for your upcoming procedure!
I put this up on the TN community a couple days before I posted it here but I don't use that site as much as here. That's probably why I haven't heard from anyone there.
I sure appreciate yours and everyone's comments and it sure does bolster me up to have you guys behind me. Thanks again my friend.
dancermom said:
Northwoods, are you on the TN community? You can get great support and information there. There is a link to it in the communities list. Best wishes for your upcoming procedure!
Thank you so much Dottie. Means a lot to me to have you guys here. Not able to do much talking about it with the family so far so being able to hash it out here is huge for me. Thank you again and be sweet to yourself today.
Dottie S said:
Hi NorthwoodsG-Ma,
I'm so sorry to hear of all that's been going on. No wonder you've been having flairs. I'm not good with keeping up with people but I want you to know you have been in my thoughts and prayers and I will continue to do so. Please try to keep us informed on how you are doing.
Aw Suzie...thank you so much for the love and good thoughts my friend. I think of you and your hubby often and I hope all is well under your roof. Love always~Laurel
suzie said:
hi i was not able to read the whole post well enough but i see that you are going through a lot of huge stuff and your hubby did too. i am sending you lots of love your way and wishes for all the best. i will read this more slowly later so i can take it in better.
Thank you so much for bolstering me up. It's a special thing to know that I have you all here to talk with me and have you thinking of me during some tough times. I will get through this...with all of your help. PeacenLove Always~Northwoods
Ticklefrom said:
You got this!!!! Thoughts and prayers with you. We will all be here to help support you through this.. come back when you can!!
Thank you so for your kindness Jackie. Very sweet of you. Will keep everyone posted. I am so glad I have you all here...Love Always~Laurel aka Northwoods Jackie S. said:
Hi Northwoods,
Sorry you have been going thru so much stuff! You are in my thoughts and prayers. Please keep us posted on how you are doing.