Every doc I've seen here does not "believe in" FMS, understand any of the symptoms or other conditions that come along with it, much less that it creates pain. I am beyond frustrated. Have been in tears so many times. Would leave the state, but I live on disability so can't afford to. Even thought of ending it all as an alternative to getting any kind of healthcare. So I need a knowledgeable, compassionate doc and hopefully one that takes medicare + ahcccs.
Liz don't feel like you are alone most doctors do not understand unless they have it too! I have fibro-my-algia along with psoriatic arthritis anyone who is healthy hasn't got a clue! Most health issues come with other problems not by themselves.
I consider my arthritis as the primary issue there for if I get this treated it will help the fibro-my-algia as a side affect.
People are very sight feel oriented fibro is hidden except for the protruding nerves and inability to function because of intense pain, I feel for you much I am a guy but want to end it sometimes too the pain is horrible !
Wow, I was just thinking that too-ending it all. I'm glad you wrote! Yes, it gets really old being in pain and it makes everything harder and more complicated, doesn't it. I get tired of feeling 80! But we can do this. We ARE doing this.
I get it--people look at us, and we look ok...no arms falling off or 1/2 a leg, etc. so they just don't understand the fact we are in sometimes horrible pain.
Doctors and the disability people think my arthritis is primary also. Mine isn't psoriatic though. I know that's bad, too. I kind of think my fibro is primary, because I didn't even have a diagnosis of arthritis until after my fibro diagnosis, by the same doctor, upon further testing. It seems to me like the fibro aggravates the places where I have arthritis.
Hang in there!