I am new to this site. I am 35 years old and have had fibro for years. I was officially diagnosed in 2012. I am married and I have 5 children. The oldest is 20 and the youngest is 15. I work a part time job and by part time I mean 6 days a month. I struggle with the pain of fibro on a daily basis. Most of my children do not believe that fibro even exist and it is something that I have made up. I do have some support from my husband. I have a twin sister and a niece who suffer from fibro. I also suffer from anxiety and depression. Most days I feel alone in this battle. I am so glad I found this site.
Hello welcome to the group. I’m 34 years old and I have 3 kids. I am home bound with my fibromyalgia. I am so sorry that you don’t have the support from your children. That has to be rough. At least you do have your sister and niece that understand what you are going through. I’m sorry you all are struggling with this. Just know you are not alone.
Hugs~
Brandy
Hi, prncess. Welcome to our community. You are not alone. I am glad to hear your husband is supportive. There are a few informative articles in our Information for Loved Ones and Journal Articles categories you could try sharing with your kids. And it may make that much more of an impact if your husband presented them alongside of you. Also, sometimes children don’t want to believe their parent is ill as it can affect their own sense of stability. I don’t know if this is the issue here, but I wanted to mention. So glad to have you here.
Hugs,
Laurie
I haven't put much thought into why they aren't supportive because they keep telling me I am not sick. It is just in my mind and I just need to tell my mind I am not sick and I will be fine. That is their outlook on things right now. It could be a sense of stability. Along with the fibro I have had blood clots in my legs and lungs, and have been very sick in the past 10 years and they just refuse to believe something else could be wrong with me. I have taken them to the doctor and had the doctor explain to them what is wrong, what to expect and what treatments we are going to try. I have had the same doctor for about 17 years and he is an internal medicine doctor who treats everything wrong with me. I am so glad to hear I am not alone. I have felt alone for years. Thank you all for letting me join.
Hugs,
BaltimoreBaby said:
Hi, prncess. Welcome to our community. You are not alone. I am glad to hear your husband is supportive. There are a few informative articles in our Information for Loved Ones and Journal Articles categories you could try sharing with your kids. And it may make that much more of an impact if your husband presented them alongside of you. Also, sometimes children don't want to believe their parent is ill as it can affect their own sense of stability. I don't know if this is the issue here, but I wanted to mention. So glad to have you here.
Hugs,
Laurie
Brandy, I am sorry you are homebound, I have been home bound for years. if the fibro didn't make me homebound the anxiety and depression did. It is hard to be homebound. I am a very homebody person. I don't like going anywhere. I decided I wanted to work a little so I only work 6 days a month. My sister is my boss so she understands if I can't come to work cause of my fibro and that helps a lot. I am fortune in that department. I am going to see if my sister and my niece will join this group. I think it would help my niece a great deal. Thanks for the welcome.
Brandy said:
Hello welcome to the group. I'm 34 years old and I have 3 kids. I am home bound with my fibromyalgia. I am so sorry that you don't have the support from your children. That has to be rough. At least you do have your sister and niece that understand what you are going through. I'm sorry you all are struggling with this. Just know you are not alone.
Hugs~
Brandy
prncessrenee said:
Brandy, I am sorry you are homebound, I have been home bound for years. if the fibro didn't make me homebound the anxiety and depression did. It is hard to be homebound. I am a very homebody person. I don't like going anywhere. I decided I wanted to work a little so I only work 6 days a month. My sister is my boss so she understands if I can't come to work cause of my fibro and that helps a lot. I am fortune in that department. I am going to see if my sister and my niece will join this group. I think it would help my niece a great deal. Thanks for the welcome.
Brandy said:Hello welcome to the group. I'm 34 years old and I have 3 kids. I am home bound with my fibromyalgia. I am so sorry that you don't have the support from your children. That has to be rough. At least you do have your sister and niece that understand what you are going through. I'm sorry you all are struggling with this. Just know you are not alone.
Hugs~
Brandy
It is so easy to feel alone! No matter how much they love you they will never understand. I feel alone too. I am so glad you found us! God Bless you and I pray that your children will learn to be supportive!
I was diagnosed in 1995. I also have anxiety and depression too. You are not alone!!!!
there are so many of us here to help and encourage you! don't despair! we feel the same stuff you do!
Love and gentle HUGGGSS
Kimberly :)
Welcome! You have come to the right place . I am from UK and not been on here long but have always found this site supportive and friendly. Good luck x
Thank You Lawrence. I have found this site to be very supportive and friendly so far. I think the people here are great. Good luck to you too.
Lawrence said:
Welcome! You have come to the right place . I am from UK and not been on here long but have always found this site supportive and friendly. Good luck x
Thank you Kimberly, I do feel alone so much. I have 5 children and a grand baby on the way. I should never feel alone but I do so much. I don't think they will ever understand. I just hope and pray they never get fibro. It seems like everybody here has been diagnosed forever and it took forever to get a diagnosis from my doctor. Once I got the diagnosis he was on top of treating it.
Gentle HUGS
Kimberly said:
It is so easy to feel alone! No matter how much they love you they will never understand. I feel alone too. I am so glad you found us! God Bless you and I pray that your children will learn to be supportive!
I was diagnosed in 1995. I also have anxiety and depression too. You are not alone!!!!
there are so many of us here to help and encourage you! don't despair! we feel the same stuff you do!
Love and gentle HUGGGSS
Kimberly :)