Thank you for sharing such wonderful stories. I know I’ll be ok. But my headaches and pain get so bad I haven’t been working for a year yet been denied disability. My husband left me and right now I’m just wondering my next move. But your stories made me smile … :). So thank you .,
You all have a blessed day. It’s nice talking to ppl who totally understand.
HI Aloha - you are not alone in falling down. My feet have been so weird lately!! One time I was in the kitchen chopping up some veggies to go along with my dinner. All I did was simply turn my body to the left to get something on the the counter and out of the blue, my feet decided to just not operate. It was the strangest thing I have ever experienced. As I turned just slightly - my feet got totally 'tangled' up and down I went, really hard. I hit the floor with my left hip, which is one of the sorest of my body, went down on my elbow and then my body did this kind of flip, and I hit my head on the wall oppposite of me. Slightly stunned -lasted about 12 hours. Talk about misery!! Despite it all, in the end I was fine, with an exception of an extremely sore hip and a ferocious headache! Take care of yourself!! Love, LAurie
If you can't laugh at yourself, who're you going to laugh at. Your not alone :) Charlie
HI hartnsoull - I love the name you picked out!! I am so sorry about what your husband did. I divorced mine about 10 years ago and I am the happiest I could ever be. Part of the reason I asked him to leave, was his total lack of empathy for what I was going through with my Fibro. There were other things involved to as why I divorced him. In fact - it was during my marriage that I started getting really sick, I do know that being under tremondous stress can start the Fibro problems. Before I was married I was extremely healthy. I participated in running marathons, did pilates, you name it, I was very athletic. I also did some modeling for Macys, which I really and truly enjoyed. It was just so much fun and I made a couple of life-long friendships from those days. When my marriage was over, well........I suffered high blood pressure, migraines, neuropathy (nerve problems), essential tremors of the hands, which I have to this to this day. Then came along the BIG one. Fibromyalgia and other forms of Arthritis. I am a little bitter about all that I got in my marriage - but at the same time, I have my freedom now and try to enjoy what I have, especially my son, daughter, and grandson, Hunter. All of us that are afflicted with Fibro, deserve to be happy and to be pain-free. Fibro is now really getting out in the open. Doctors are starting to pay attention, and I also know, too, the lab work is being done as well. I am confident that there will be something out there for us soon. Hang in there, you have plenty of company on this website to help you out!! Love, Laurie
HI LaDonna - I, too, had great recall as well. I am doing well - but it could be better with out the fibro fog. I guess it comes with the territory - huh?? (Sigh). Whatever are we to do??? LOL The best thing you and I can do right now, is to stay with this wonderful group. I keep telling everyone here how I feel about the group. They must be getting tired of hearing me praise the website!! LOL Well, I am telling the truth! Hang in there. everybody is here to help one another. Love, Laurie
HI Laura - I understand where you are coming from as far as beating yourself up. I think I was Famous for this!! It took along time and some therapy to realize it isn't my fault for being sick. When the kids were little, they were so used to me taking them places and playing with them and just spending quality time with them Then, I got sick and everything changed. My husband had to pitch in and he wasn't happy about it. He had no empathy for what I was going through. He was extremely hard on me and after 28 years of marriage, I divorced him. It was the best thing I could've ever done. He was such a selfish person and everything had to be about him. Laura, be sure though, that you don't try to 'push' yourself through your pain. Its is the worse thing you can do. My nurse told me this and, I did found out my own. I had to retire 7 years ago because of my Fibro, I had no choice, because I suffered chronic fatigue, high blood pressure and so on.. It was a very hard decision for me to make but I just couldn't do the work as well as I wanted. I was a surgical nurse in a vet hospital and just adored all the dogs and cats we had. But there were also requirements to lift heavy animals, and it was getting increasingly harder for me to do this. Standing for fairly long ours in the operating room, was torture for me.I do visit quite often at the vet hospital where I used to work. Sometimes, I am so tempted to go back to work, but I need to be realistic too. I get more sore as the years go on. So, I must take care of myself.Hugs!! Laurie
Thank you Laurie so much ! And all you ladies… I’m so glad I started getting on this site again. Lately it’s been so rough! God bless you all!
I had to laugh at all these posts because they remind me so much of myself. I would tell my husband that I am waddling againwhen my hips hurt bad. i am just learning about this fibro thing and realize how much of that I experience regularly. What I want to know is how long does fibro fog last? I am concerned about my job's. I still work but I am wondering how long I will be able to continue to drive a school bus, or work in the office. I also noticed that I drop things all the time lately. I didn't realize it could be related. I have found that fibromyalgia entails a lot of areas. I have had to come up with ways to keep up with my stuff. I bought a holder for my glasses and have tried to train myself to always put them there when I am not wearing them. My sunglasses are the thing I misplace a lot, along with my cell phone. I have a holder on the wall for car keys, and made extra keys incase I lock them in the car. I don't know how many times I have locked myself out of the house. It would do no good to hide a key outside because I wouldn't remember where I hid it. So my daughter in law, who lives next door, has a key to the house. Its amazing the things we have to do to get thru this crazy stuff. Have a great evening. Sue
hey y'all.. since at the moment my mom n i live by ourselves..she's thoroughly entertained by my goof ups.. it mostly has to do with my slips of tongue..but the funniest part is when i am doing the baking for my business.
especially when i have to return things to its place. the number of times where i've taken empty cartons and almost stuck them in the fridge or mess up a recipe and have to start all over again..hehehee.
its a good thing my food's always edible despite the mixed up recipe ;)
love, arielle
p.s.-i'm only 24.. and my fibrofog is minimal now.. but still gets me everytime!
HI Sue - thanks go responding to my post. Fibro fog comes with the territory when you have FIbro. It doesn't go away, unfortunately. Fibro is a progressive disease, Sue. I have had it for 32 years now. As far as becoming forgetful. I have been known to put strange things in my fridge, when they actually belong somewhere else!! I drop things constantly and seem to lose my keys on occasion. Entering another room with the idea that I need to get something, completely loses me, because I can't remember what I was going into the next room for! My train of thought sometimes just goes out the window! I'll be talking to someone, and in mid-sentence, my train of thought just totally disappears. I used to be able to tell great jokes. but now I forget the punch line. I can't tell you how long you will be able to work, Sue. I had to retire a little early then expected, 7 years ago. because My Fibro was getting pretty bad then. In all this time, I have learned to be patient with my illness and not 'push' through the pain as it could be the worse mistake you could make. Take care of yourself and I am sure that through this website, you will find some really great suggestions and advice. Laurie
Laurie,
Bad day on this end for me. I feel like I've been folded and stuff into a packing envelope I can't quite open. Probably not so funny, but it's perspective. I think perspective and a sense of humor is one of the most important attributes one can have when also afflicted with fibromyalgia.
OK, I just remembered something that used to make me and my ex-wife chuckle, especially on bad days. Whenever she would bitch/moan/complain about my fibromyalgia (now, I say this in a completely respectful way as I personally feel a spouse of a fibro has an absolute right to b/m/c) I would say to her "it is fibro-your-algia" as well, meaning, hey, we're married and if I'm miserable, then you have to be as well (haha).
HI Marc - LOL you are describing some of the days I have. We don't need anyone bitching and complaining about what we go through. My ex-husband did this too. It was part of the reason why we divorced. The other thing that bothered him was, I used to model for Macys?? He didn't like anyone looking at me as I came down the runway. It was so ridiculous, you know?? For some odd reason, that I still can't figure out, i stayed married to him for 28 years. What was wrong with me???? LOL When I finally got out of the marriage, I had a whole host of medical problems, of which one is the fabulous Fibro!! I do love this website though. I don't feel so isolated anymore. It's nice to have people really listen to what I have to say and have been where I am. Take care!! Laurie
I just thought it was me …Sat night I walked under a garage door that wasn’t all the way up and turned around to go back out and walked right into the garage door…My daughter was with me and freaked out because I don’t pay attention…Little does she know I did a month ago with my door…I know am seeing that a lot of the crazy things I do is connected to Fibro Fog…I am glad I can laugh at myself because she is worried about some of the things I say and do…I go to say something and the wrong words come out it is really weird…I never had a clue that it may be from Fibro until I started reading on this sight…Thanks for letting me know I am OK…
Men are idiots. Trust me, I am one. The beautiful blonde whose head I am kissing in my profile picture is my (then 15) now 16 year old daughter. She is an amazing young lady - a junior (year ahead), straight-A student in AP & honor classes, two-sport varsity athlete, on travel a prestigious team and wants to be a doctor working in an emergency setting with a burn-unit specialty. I often wonder how I wound up so lucky to have this amazing child. Then I remember that I have been on disability every day of her schooling. I was there when she got home from school, did homework with her, made sure she avoid the foibles that tricked me up in school.
And THEN I SEE SOME HORNED OUT BOYS LOOKING AT MY BEAUTIFUL CHILD AND I FEEL THE RAGE OF THE HULK! STOP STARRING AT MY KID, YOU HORMONAL FREAK!!!!!!! But then I know, one day, she'll come up to me and ask, "Papa, why were you looking so weirdly at my boyfriend?" and then "Papa, why were you looking so weirdly at my fiancee?" and then "Papa, why were you looking so weirdly at my husband?" and then "Papa, why did you miss when you were shooting at my ex-husband?"
HI Marc - you have a great daughter there! I have two children. Jason, my son is 32 years old and is getting married in September to a beautiful girl, named Casey. He is an aeronautical engineer. My daughter, Kim, is a vet technician and an Anesthesiologist. Divorced (divorced recently) and has an eight year old son, Hunter. You and I have every right to be extremely proud of our kids. Despite all the crap that goes around us, I think you and I did a terrific job with our kids!! I know that you are worried about your daughter getting out in the world and fending for herself AND dating! LOL When my daughter started dating( she is a gorgeous looking woman) her Dad and I were so freaked out about a boy being interested her. But she conducted herself really well and we trusted her and she has never giving me any trouble. So I am grateful. My kids saw me go through the many years of Fibro and other illnesses and I wasn't able to be involved with them as far a physical things to do. But they know that I love them and that's all that counts. Laurie
HI Grammy - don't feel so bad about your minor accidents. I can just be standing there in one spot, minding my own business and all of a sudden my feet get tangled up and down I go! I can't figure out how and why this happened to me. LOL Since my Fibro, I trip a lot too. So I have to really pay attention when I am walking. I bump my head on cupboards all the time too. My speech has been a little affected, I think, with my Fibro. Sometimes, it feels like my tongue is just twisted up and I can't get the words out or the sentence of what I want to say. This doesn't happen that often, but I need to have a sense of humor about it! Laurie
Hey Grammy!!!! don't worry about the walking into the door thingy.. that's become my trademark!!! I walk into doors, open cupboard doors and all the house hold furniture atleast 20 times a day.. and the whole time i am telling myself.. "Walk away from the door, don't bang into it."
Thanks to the fibrofog.. i never do manage to veer away from them..
but it's better now that i'm on the meds..ehhehe..
Laurie,
I'm already freaking out about when she leaves and goes to college. She has coaches stumbling over one another to recruit her to play volleyball in college (She is 6'3" with a 3.9 GPA). I am stumbling over how I am going to see her during her four ears of college.
I may have mentioned that since my current pain cycle started in early March 2013, I have been unable to attend a single basketball or volleyball game where she played. What I have is far more complicated that FM, Oh, how I long for the days of just having FM. I had surgery in July so they could pump narcotics directly into my spinal chord. It's been six-and-one-half months and I have gotten zero relief. I live ten minutes away from her high school and I am unable to drive to, get in and watch the game for more than five minutes before the pain would be unbearable. At that point, I jeopardize my ability to drive home.
The obvious worry for me is what happens if she winds up going to college 500 or 1,000 miles away? When and how would I see her? I know she has to lead her own life, but she an only child, my only child. What the hell am I supposed to do without my four hours of seeing her per week?
I've thought about moving within 30 minutes of her school. She loves the idea. Personally, the thought and expense makes me want to vomit
BOY, DID I DEVIATE FROM THE MAIN TOPIC OF THIS POSTING OR WHAT? ok, here's a joke for the kids.
Knock-Knock.
Who's There?
Cowsay
Cowsay who?
No, no, no. Come on. You know this. Cows say "Moooooo!"
One thing that comes with fibro is a warped sense of humour for me. When I am watching tv I finally figure out I have to do laundry or go get food and once in the room I went to to begin with, I say "now what was I here for?" Worst part 3 out of 5 times I leave without accomplishing my goal so I now have a notebook in my purse, with me at all times and I write note to myself. My issue, I can't blame it on age... it must be the fibro fog but the first time some people who know I have epilepsy have seen these 'episodes' they worry they are epilepsy related and goodness, I hope not. I'll notice some excruciating pain and often my first instinct is not to cry, I have few tears left but instead my reaction is to laugh, not because I find it funny but I've heard laughing helps to bring more cortisone, something us fibromiites lack.
LOL - Marc - don't panic!! Your daughter will be just fine and you will too! I promise! I know that since she is the only child you have, it might be a little harder. 'Letting go' is not easy for parents. When my son, Jason, went into the Navy, he was only 18. It took me about 6 weeks to get used to the idea that he was gone. However, he came home on leave when he could. This is what your daughter will do too. You will get to see her and also you will appreciate her even more while she is gone She sounds extremely responsible and best of all. she loves you. When Jason came home, he started college and became a engineer. As time goes on, you will start to calm down with the knowledge that she IS okay. Once you accept this, 'letting go' becomes much easier. There is always the phone calls that you will get from her as well. I think you are going through 'the empty nest syndrome' (smile). I wrote to my son every day for the 4 years he was in military. I helped to boost his moral too. Your daughter is on the thresh hold of growing up and having the best time of her life in college. My daughter entered college about 600 miles from me. She is extremely responsible just as your daughter is - but yet she had the best tine of her life. Remember Marc, you can write to her, phone her and visit her when she comes home for the Holidays. Letting go will be the responsible thing that you, yourself need to do.. I know it will be hard, But just think for moment, how proud you are for your daughter. She is growing up just as we did in our younger days. Let her go without any guilt that you may be feeling. She will have new friends to make and also, she will be learning to make decisions on her own. This is all about growing up, Marc. She has a wonderful chance to experience the fun part of going to college too. It's a big step for the both of you. But keep in mind that you and your daughter will always be in touch. The fact that you have a close relationship with her is fantastic. This will continue as time goes on. Hug! Laurie