How you can help research into fibromyalgia - online research study

Ben's Friends has been approached by the University of Colorado School of Medicine who are conducting an online research study investigating treatment preferences in people with fibromyalgia.

Further information on the research study, which entails completion of an online questionnaire, can be found in the attached document.

To participate in the online study: https://ucdenver.co1.qualtrics.com/jfe/form/SV_4MYVo08m8cyK2G1

To learn more about the non-profit that started your Fibromyalgia community:Ben's Friends

Thank you.

Ben Munoz and your Moderator/ModSupport Team

7-FMSResearchStudy.doc (56.5 KB)

Thanks for posting!

Done

Completed the survey

Done!

Thanks for posting I'll take the survey!

UPDATE - JUNE 17

We have heard from the University of Colorado Medical School that our amazing Fibro community has generated over 100 recruits for this valuable research project. Thank you to those of you who have already participated.

If you haven't yet taken part then please take a look now. Your responses will help inform and shape the future treatment of fibromyalgia.

Ben Munoz and your Moderator/ModSupport Team

Done! Thanks for posting.

Okay all done even though I don't live in the USA!!!

I just completed my study :)

This is great. I can even do it from bed. Thank you. I have already tried a clinical with AZ State University about 8 years ago. It's nice to see what is new and has been learned. I tried a local support group to no avail. The others were newbies with this condition and I felt like a teacher. Since I was diagnosed in 1996 so much more has been learned. But 3 months ago I fell down a flight of cement stairs and feel like I am back at the beginning. Now I take it day by day and live downstairs because my balance is not good.

Hurting yourself like that takes more time to get over when you have fibro. And the disease also lends itself to causing a balance problem. Try to take it a little slower ;) <3

Mikry said:

This is great. I can even do it from bed. Thank you. I have already tried a clinical with AZ State University about 8 years ago. It's nice to see what is new and has been learned. I tried a local support group to no avail. The others were newbies with this condition and I felt like a teacher. Since I was diagnosed in 1996 so much more has been learned. But 3 months ago I fell down a flight of cement stairs and feel like I am back at the beginning. Now I take it day by day and live downstairs because my balance is not good.

I've finished the survey thank you for passing it along.

Thank you all for participating in this study.

Of course. I've been meaning to get back to the site but I've been distracted by a cross country move. It took everything out of me. Between moving and making my house wheelchair accessible I'm about brain dead. I'm starting to feel more together. Thank you for the opportunity. I'll look into the other links.