I dread the nighttime!

I am so miserable. My nuroapthy in my hands and feet are so bad I wish for death every night. No I say that you may think I am suicidal but is am not. Just wishing death would come and I would find peace. . It is 2 I the am here band I have to make it. Few more hours. …! Will tell my dr about it later today .

Oh, ascarlettrose, I am so sorry you are having this kind of pain/sensation. I am hopeful that you got some good information and help from your doctor.

My own foot pain has not been happening lately. I don't know why. I just know that for a couple of years it was awful. Before I was diagnosed with fm I had such bad pain and numbness in my feet and lower calves of my legs. I was sent to a neurologist and he could not find any nerve damage. This surprised me because I was sure I would have nerve damage. I was trying to connect the symptoms to the back surgery I had a couple of years earlier. I had my L5-S1 disc replaced and fusion at that level. While they were in there they cleaned calcification off of as much of my spine as they could get to. I've got to tell you I was so disappointed by the neurologists findings, or lack of them, that I just felt defeated. I wanted a concrete answer to what it was and did not get one. The odd thing is, now I have it infrequently.

I'm trying to be encouraging. This may be something that comes and goes. I hope you do find an answer though. It's always helpful for us emotionally to know why something happens.

Kitty

An update that is hopefully more coherent than last night. The Dr Said I was going through a bad Lyrica withdrawal and we has to get the dosage back up quick. She increased the dosage and gave me something to help me sleep will this gets back to the correct levels. Took me off the Vicodin and back on the Tramadol. Of course the pharmacy was out and had to order the medicine. So I will update in few days if the BEAR has returned to a kitty cat. It was so bad I walked in the DR office and she said oh my goodness what is wrong you look so miserable. That is all it took. I cried like a child in front of my dr. She was so sweet and just gentle rubbed my back until I calmed down and let me stay in the room after to compose myself, that and I told her if the patient in the waiting room did not stop talking I fear I would strangle him. She said that was part of the withdrawal and for me to stay and compose myself and she would put him in a room before I left. I just am so unbelievably greatful for her kindness.
Scarlett

I also have lower back issues. Don’t remember the disc numbers without having to pull up my papers and I have a stenosis. But my nueropthy started before my back injury. Hope you get answers right now I am just looking for some relief, I am sure I will get back to wanting to know why. Hugs,
Scarlett

Scarlett Rose,

That was such a moving post. It shows just how much the pain really does affect you. No one should ever doubt you if they hear that story. I'm just so glad to hear that you have a really decent doctor who listened, sympathized and then sprang into action. And I had no idea that withdrawal from Lyrica could cause neuropathy in your hands and feet, although it makes sense. Oh, you poor dear, your struggle sounded horrid! Thank God that your doctor knew what was going on! To think, that's the actual level of pain you have when the Lyrica doesn't intercept it. That's AWFUL!!! Truly awful. We're so fortunate that we do have some drugs to help us out because I can't imagine living through this in our mother's day.

I hope you're doing better now. And your doctor's kindness was very touching. Bless her a thousand times over again.

Hugs and support,

Petunia