Thanks enuf. That book does sound interesting. I might ask about lyme at my appointment next week. I finally decided I have to try an antidepressant.
I understand completely. I don’t like myself anymore. I’m disappointed in myself too.I feel embarrassed by just having this illness.
Hi I have seen a rheumatologist and he checked for a lot of different autoimmune disorders. He believes in fibromyalgia and said there is no doubt I have that. I have a positive ANA which is high enough that he said there is likely some autoimmune component we just haven’t found yet. I don’t know what hypermobility is. Ill have to look into that and the Luke’s test too. It really does help talking to everyone here who understands. I’m scared that I’m going to get worse and less capable. Imgoing to my Pcp next week to discuss this horrible depression that has come over me.I don’t want medicine but I think I have to try it. Thanks for listening!
LYMES TEST I MEANT. AUTOCORRECT IS DRIVING ME NUTS TODAY
I hope don't mind, I copied and pasted the poem to my facebook page. I often share there because my friends who have it too can learn and my mother who accepts that others with fibro hurt but that I am trying to get attention. Just another aspect of chronic illness
It hurts to see you write that you don't like yourself anymore. I know there are a lot of losses to mourn. This diagnosis really is like the 5 stages of dying. How long have you been diagnosed? I had had fibro for a good 20 years before I got my diagnosis and I was so damaged mentally and physically by the time I found out what was wrong with me that it was like a relief to finally know. I had grieved my losses for years. Now I am looking for peace and some positives.
I am still in a bit of denial with all of this fibro stuff, and am on the same boat as you dawn. I was a gymnast for 12 years, ran half marathons, 10ks and 5ks. I walked, hiked, did all sorts of things outside and now, getting up from kneeling is a chore. I HATE it. I wish that I could channel this negative energy into something that would help me, but I just can't. My 4 year old doesn't understand why I can't play with her on the floor and then spring up as fast as her dad can. My other two kids are a little bit more understanding, although they do get frustrated with me. I am so tired. I continually think that this is karmas way of saying I did something really terrible in my past.
But luckily I found this great online support group because I can see that I am not alone in this battle. I can see that others struggle with the same problems that I do and that God did not strike me out alone. This is my battle. But like the cliche says, it will not define me.
I love this. It brought tears to my eyes.
Well, when you find the old you could you please let the OLD ME know that I miss her too. :) Haha, jk.
I think we just need to learn how to love and accept the people we are, no matter what. I don't think anyone should do all the things that most people do everyday....we all need to slow down and try to enjoy our lives a little. I often get upset at who I use to be compared to me now. That really never gets me anywhere though. I am different from "normal" people, just like anyone with fibro, and going by your own agenda will make life easier. Afterall, you are the one who has to wake up, live with, and go to bed in your body....not them.
I'm glad you liked the poem, soonersmile. It's not mine, I just shared it. Keep it, use it to help yourself.
L-Kitty
Dawn, I'm so glad you liked it. You hang in there. Accepting fibro takes forever, I think. One day is better than the last. One foot in front of the other.
L-Kitty
Didn't mean to make you cry! I'm glad it touched you tho.
L-Kitty
Me too Dawn! (short and sweet), You sound like me. I used to weight train, do muscle conditioning classes, too-high impact step aerobics, yoga and pilates. Now have no energy and know that a strong body that is sick is better off. I miss those "jogger highs." My pain would be completely gone for hours after a one hour step aerobics class only to leave me aching like crazy and lying in bed later (but I looked great) that's all that matters, right? lol No it is not funny. I know that I dealt with the pain better and in fact had less pain than I do now, when I was in shape. What to do?
I have been limited for so many years that when I see people able to do all those things you listed, I am wondering how it is possible for anyone to do so much. I forget that I have the limits and think everyone is as slow and tired as me.