hello every one i was just wondering if any of you have had to give up somthing you loved due to fibro
i used to be a show jumper and love my horses but now i had to give it all up as i dont have the strentgh in the legs and ankles.
and also how dose every one eles excersise as i could do with lossing a bit more weight but every i do makes me in pain for the next 2-3 days afterwards
thanks for reading
nicole - jade xx
i understand what u mean bout mourning loved it so much and i hate not being able to do it any more i cant even walk my dog most of the time now,
lol yer i feel like that with exerscie tbh but do need to loss a little bit of weight lol x
yeh i though that was the case :/ even physio and hydrothariy killed me b4 i was told it was fibro
and i have a jack russle she is 7 months old but i also have a springer spainel who my mum has had to have back as he was to much for me to handle that was the hardest thing to do he had been with me evey day 4 7 years :/
but my partner has a staffie x
Yes I can attest to the loss of things I use to do.I loved to run it cleared my head and just made me feel so good.I enjoyed the outside running on trails. Exercise also is a thing of the past and I definitely need sure to the extra weight gain with taking Lyrica. I’m gonna try yoga and water aerobics.
Hi Nicole Jade!
Wow, I bet you loved this! It is so difficult to give up the things that made us who we were! We can only be glad that we once had the opportunity! It is the only way to look at it and stay sane, well, somewhat sane!
I do hope that you will be able to recover your health enough to at least ride for enjoyment. I haven't ridden in years, but had horses growing up. You have to be very well to care for them and ride. It is also a grand expense to have horses or board them!
I miss being able to be a more active grandmother, I really miss my ability to just ride in the car without excruciating pain!
Hopefully our dear lab rats will keep coming up with wonder drugs that will restore parts of our lives!
Big hus Nicole!
SK
Yes,
I have been drawing for most of my life ( since 5 years old) and I am so tired taking care of my son and keeping the house in order. Every now and then I will do a quick picture to inspire my son but the days of indepth study seem on hold for now.
Oh aries, your feet must really hurt you in the winter! Whew! My heart goes out to you, girl! I miss dancing too, I'm at the age where we went to clubs and had great dance bands, I loved it!
Wow, you actually competed! Bet you were great!
Hi Nicole, I also used to ride and was learning to jump, I love horses and being at the barn, I am absolutely the happiest when I am up on a horse. However since fibro my muscles feel so week, and of course the smallest amount of use causes more pain… Ugh it’s so frustrating that all I can do is go to the barn and talk to the horses, lifting a saddle is impossible … But I am so glad I had the opportunity to begin to learn to jump, I also am very thankful I can go to the barn when ever I want, and it’s filled with beautiful horses, just being there is therapeutic.
As far as exercise… Well they keep saying its the best treatment, so i do go to pool therepy ( warm ), and it does feel so good, but getting ready, driving 25 min, putting my bathing suit on, the pool for 40 min, then getting dressed, driving home… Is all so exhausting, y’all know what I mean ! I was thinking about getting a stationary bike, one that has a back on the seat, but they are expensive, prob would start really slow, like 5 min 3 x a day.
I know it’s hard that we have all given up so sooo much !!! I think it’s so important that we focus on what we can do, we still can do so much just in a different manner, I cant compete in horse shows, but I can ride for fun, or just go to the barn and give the horses snacks.
Hugs & blessings
Nicole Jade, it makes me so sad to read this. What a wonderful hobby it must have been. And horses are such, beautiful wonderful animals. Maybe you can stay involved on the periphery by writing blogs about jumping events or a children's book about it. I hope you can find a way to still integrate that love with your current life.
Nicole Jade, I can really relate to what you're saying. I went out to the mall today with my sister and had to lean on my cane (okay, more like hold my entire self up with it as I kept sinking down.) My ankles feel weak and I felt weak all over today. It's the first time that I thought that the fibro is really winning over on me.
I've given up a lot of driving. I still do drive but used to do it all of the time and loved it. Now I hate to do it if I'm alone, unless it's very local driving. I also used to love going out shopping but barely do it anymore. Same with gardening. Can't bend over to do it. Doing anything seems to be such a chore these days. I just conserve my energy now and try and do a few things that i can do. Like reading and writing and petting my dogs.
I'm awfully sorry you had to give up your springer spaniel. At least you do still have your Jack Russell to keep you company. They are such happy little clowns, I'm sure he'll keep you happily entertained.
Ariestlt, i envy you your past ability to swing dance! I was the original model of the person with two left feet...encased in cement! I know that you can't do it anymore but you must have some good memories of that fantastic time.
Aries, my ex husband kept breaking his feet just getting up in the morning. He had osteo-something or other, probably osteopenia. Is it possible that you have this? I don't think that fibro would be responsible for feet breaking.
My rheumie said that the Y offers classes at a very cheap rate to people with low incomes. Now maybe that just pertains to my local Y but you could check into it as they do offer water aerobic classes.
Hi ariestit
I did the water thing and it made me much worse. So you may have well be saved from more pain. I know we are all different but it is a possibility.
I to have given up everything but I am older and would be retired now anyway, the only thing is that I can’t do this things that I had planned for my retirement.
yes it is a life changing comdition and let’s hope that a cure in just round the corner. barb
Do they have any programs available to help people on limited incomes? i know my Y does. But maybe it depends upon the individual Y.
Apparently osteoporosis is the reason behind repeated bone breaks. Here's an interesting article on it, if you're interested: http://ezinearticles.com/?Do-You-Have-Bones-That-Keep-Breaking?&id=5769757
This question really hits home. I remember going in front of the disability judge and basically saying I used to be somebody and now I’m nobody. Lost my profession, my marriage, my home, my financial stability, my position in the community, being able to ride my bike which I loved. But God has blessed me. I have remarried, together we own a beautiful home, I build up to walking 2 - 5 miles then sprain something and have to start all over again. I have found good support professionals where I now live and life is generally good. But I am not someone anyone can count on and I no longer do big important things that anyone would recognize as such. However, I do listen well, notice little blessings and spend far more time in prayer and meditation than I ever did before. It’s a different life than I imagined but it’s good.
I can see why. I really find the "give them some meds and they'll be fine," approach frustrating. They're just masking the symptoms not treating them. And who knows what's REALLY happening inside of our bodies that no one can yet see? Like in our brains or on a cellular level? And you've got me, I cannot imagine such an arthritis diagnosis, and at 38, no less. Did they tell you what kind of arthritis? For instance, it wouldn't make sense to me that you'd have wear and tear "osteo" arthritis in all bones at that early of an age, whereas perhaps Psoriatic Arthritis might do a number that quickly on you. I don't know about the dropped oxygen levels during sleep either, if it's not a known sleep disorder. Both symptoms seem very excessive to me. But it's discouraging when they stop looking for an answer and just accept the easy short term answers.
Thanks for your input, Barb. It's good to see all different sides of the coin. Now I know that if I try water therapy and I get worse that it truly can happen and it's not just my imagination.
I agree with Ariestlt, I'm sorry that you can't do the things you've wanted to do in your retirement. You've earned them so it's a shame that you can't follow through and do them. I hope you find some that you can enjoy.
This question sure does hit home! I just want to start off by praising God through this whole issue. I have a loving husband who does most of the chores around the house, with the help of our three kids. I had to quit working in Children’s Ministry. That was not an easy descision as I love our church and the families! I can no longer be counted on as my abilities, be it physical or cognitive, can change by the hour. And exercise! I used to be in the gym two hours a day, now I rarely exercise. And when I do I pay for it for several days. I am trying to see the blessings with this condition. And I am certain He will lead me.
Hi everyone 
I have been battling very frequent flare ups that cause me to have to use a cane for quite some time now. Recently the foot that I had extensive surgery on 19 years ago has started giving me tremendous amounts of trouble. I go to a podiatrist this coming Thursday and am expecting them to tell me there is nothing that can be done to attempt to fix the problem. So between the fibro and the foot, I am in the process of losing my ability to work as an LPN (and I have been in college working towards my RN) I am waiting to see what my podiatrist says on Thursday before I go through with changing my major. I have an 11 year old son and a 3 year old daughter. I have a husband that swears he will stand by me no matter what the outcome of all of this but I do have my doubts. I completely understand and sympathise with those of you who have had to give up things that you love due to fibro. I am not able to run and play with my children any longer. I used to force myself but now if I do that I fall and am in so much pain that I can’t move just a little while later. I am going to change my major to something that can be completed 100% online and will allow me to obtain a job with very minimal physical activity however I know eventually I will lose my ability to do that as well. I am just trying to push through and stay as active and independent as possible for as long as possible as I am sure most everyone with fibro and the like generally does. It is a very scary prospect to be 29 years old and walking with a cane and seeing that every day that you are alive puts you a day closer to a wheel chair. I think if it were only fibro, I could deal with flare ups as I have been. But with dealing with both issues now, I’m just not sure how long fighting will last. I’m sorry to dump all of this into 1 post but I really have no one I can talk to that actually understands even half of what I am dealing with on a daily basis. So thank you for reading and I wish all of you the very best <3
Zabriella
I’m sorry to here your story, I can’t imagine how difficult it is to try to study and work and cope with this condition as well as your foot.It must also be so difficult for you to also manage your gorgeous children. It is hard on everybody and difficult to understand. Indeed nothing about all this makes sense. I guess that you are a strong person by reading your discussion above, but nevertheless we all need support, comfort and understanding, and that is just as important for you as everybody else. So look after yourself and trust that the universe has your welfare at heart. of course it does help to talk to someone who knows and this group of wonderful people will always support you as often as you want. So goodbye for now but keep in touch.Take Care Barb
I would have to say that I sooo agree with you "The list is to long to mention"
Very soon where I live there will be mega snow on the mountains and I will be
getting depressed that I can no longer X-Country ski like I so much loved to do.
Now it's just a chore being able to walk in a straight line without tipping over like the old adage 'drunken sailor'.
No more making plans of any kind as I never know if I can keep the commitment due to whatever FM throws my way that day. I think the Fibro Fog is my worst enemy quite often.