SUE, Thank you. When I get to a doctor I will ask about Deplin. Maybe the antidepressants were so hard on me because I was young. They were giving me pills that weren’t even approved for people under 18years of age… I will look more into dplin. Promise. I always like that saying… I also like to think of the brighter the light the darker the shadow. That maybe we were given this to see more in life. People who had everythng given to them and never felt much pain can’t not detect and feel all the even small pleasures in life like we can. Saying there is no pleasure with pain. So int the saying the brighter the light the darker shadow, the shadow is or pain and the light is our pleasure and happiness. So maybe at the end of this crazy fibro road we encounter great happiness. A state of which an average person could not understand.
I know, I was always an avid reader, but now, even some of the long discussions are hard for me to read, and to grasp. I talked to my Rheumatologist about it, and he said it's from the chronic pain, and he lumped the sleep problems, difficulty with comprehension, retention, attention span all in that one answer of 'chronic pain'!
I miss reading so much, but I can read a chapter 10 times and not be able to tell you what it was that I read. Then I'll ask my husband the same question 10 times a day, after a while he just shakes his head! DUH!! Luckily, I can usually keep track of the active members here!
Hope you have a good night, time for me to brush my teeth and crash!
You might want to look into applying as an adult child since your disability started before you turned 22.
Miranda, they told me that’s what I was applying for. That they’d just add me back with my mom because I was getting some ssi with my mom before because she’s disabled and I was a “dependent”… They made it sound so simple yet the proccess is not simple at all. No different than just applying for ssi regularly…
I'm doing alot of of work on that for myself right now. It's by no means an easy or instant thing, but from what I understand a different application and is based off of your parents work history and not your own, so not having worked should not have disqualified you. It was just a thought.
I understand Miranda just feel like the lady who the application did something wrong. She was a real witch. I think the whole time she was applying me for regular disability then at the end says “oh, you use to get ssi with your mom, then Ill apply you for that too”… I’m thinking isn’t that why I’m here…
It sounds like she did from everything I understand. It might be worth another call to the disability attorney. This website has been helpful for me, especially his blog. http://www.ultimatedisabilityguide.com/
Im definitly going to look into it. Thanks for your help maradia.
Yay I kicked butt today woop woop. Took girls out for food and film and had a great day:-) I got my ribose this morning and felt great all day, no tramadol required. I don't care if I am pooped tomorrow cause I am happy today. I truly hope you and others had a good day today too. One thing about us fibro peeps is that we don't take healthy days for granted, healthy days are happy days:-) hugs Max x
Thats very true bubbles! I'm happy you had such a great day.
Nat,
Yeah, I know exactly how you feel because the thought has definitely crossed my mind at times, when I've been terribly ill from fibro. But there are people on here who've had it for 30 years, and I'm sure that there wasn't much for treatment 30 years ago. I honestly try to put the fear of dying from it in the back of my mind because living with it is hard enough and consumes most of my energy.
I seriously do wonder if you also have lupus, given what you've told us. I hope the Medicaid comes through soon so you can get to a doctor and see what's what. I don't know how lupus is treated but I'm sure there are meds for it and they are different than fibro meds.
Thanks for sharing with us. I know that we don't like looking at the worst case scenario with fibro but sometimes we do think about it and need to talk about it. And you raised a very good question about it.
I hope you can get a handle on the pain. Good luck, Nat!
Hi. I feel this way all the time. Its so scarey. And, with all the crazy symptoms of fibro I can't help but think that maybe I have something else that is worse, but just unnoticed because it all just gets chalked up to being fibro pain. I'm glad I'm not the only one.
I know it can be very scary hopefulfhol... Fibro is being diagnosed so easily now (and often to people who dont even have fibro) when just a few years ago hardly anyone wanted to acknowledge fibro much less diagnose it. Lupus, Multiple Sclerosis, ect.. All have very similar if not identical symptoms as fibro and are "difficult" to diagnose.. So my question is that now that fibro is being diagnosed so often, is it making it more likely for them to miss something that could be more serious?????? That to me is very serious because when you have fibro you're told you're healthy. With these other conditions, you are not healthy. Both have the same symptoms but from what we're told not the same outcome... I believe that there are good doctors out there that do or will rule these things out to make sure it's fibro. On the other hand, when you're like me with only medicaid (which I dont even have at the moment) you only have a few doctors to choose from that take your insurance and they are usually just GPs not specialists.. A good majority of these doctors will hear you say wide spread pain and then diagnose you with fibro and then leave it at that. Couldn't that basically cost us our lives? I just feel like somethings not being done right.... It's most likely it's just fibro but just try to rule out anything else that's all I can think of. Thanks for the reply HOPEFULFHOL you're definitely not alone.
Wish you all the best, Nat (BN)..
Thank you RATTLED. I agree we all have different results with different kinds of treatments... We are warriors! :) xo
,Nat (BN)
Kelli,
I'm not sure what meds are given for lupus or sjogrens but if you have one or both disorders, it's certainly possible that the meds would help you feel some better.
That being said, have you been doing things that may have precipitated your flare? I ask because I tend to overdo things and then end up feeling miserable, and sometimes it seems like forever. If you're like me and overdoing it, please try to slow down a bit. Since my son has arrived and helped me with my job for the summer, I've finally started to feel halfway human again, instead of roadkill. So it IS possible to sometimes ease the symptoms a bit if you're doing things that are simply too much for you to do. What you could do 3 months or even 3 weeks ago may no longer be what you can do today. It's a hard lesson to learn, very humbling, but I'm learning it.
The rash under your eyes that turned black truly sounds concerning. Perhaps you should you contact your doctor about it? I've never heard of a rash turning black, so my first inclination would be to go to the doc.
I do hope you feel some better soon. Maybe this will be a short-lived flare. It happens.
Meanwhile, feel free to come here to unload as much as you need to. And please, if you truly get desperate and feel that you can't handle it any longer, please please call the hotline for help: 1-800-273-TALK. Or nudge me or someone else on here (by sending us a personal chat message) and we'll be there for you. Fibro should NOT be able to take every last piece of us. Stay with us and let us help you to feel a bit better and more like yourself again. You're still there, you're just worn down by the pain and fatigue.
Gentle hugs because I know it hurts,
Petunia
Hi Nat,
Thanks for your reply too. It is scarey to think of how fibro does mimick other conditions, but (at least in my situation) I was tested for a million things first before I ever got to the Fibro dx. It was a crazy two years of PT, neurology, pain management, Brain and spine consults, chiropractor visits, and a few more. I had mri's done, other testing that i can't even remember the name to, injections, etc. And lots of blood work too. My doctors were none too quick to get to the fibro dx and even then it was like it was just a slapped on dx after everything. I think the symptoms are what really plays with your mind. When pain starts in a new location or something it is hard to know if it is fibro or something else. That is the biggest problem I have with this condition....ie when something new starts to hurt how do I know if its fibro or something else. I recently had my gallbladder out and the DR told me that it was severe and must have been hurting me for a long time. Well, I never hardly noticed it because I was always in so much other "fibro" pain. ???? It is very confusing. Again......thank you for your post because it is good to talk about how you feel. I am so happy to know that I'm not crazy...that you and others like us feel this too and know what it is like to question and wonder. Not that I wish any one of us would feel this way, but you know what I mean....the support is priceless. I'm just really thankful that I have a place to turn when I get questioning so much.
Petunia Girl, I’m sorry I missed your post. Its weird sometimes how the posts are listed… Anyways, I understand how you must think more positive. I try my best to do the same though I’m sure you can understand in my situation it is a bit more difficult for me to do so right now. Lupus, scares me. Because fibro is not deadly but lupus is. And it feels like we think we have it bad with fibro but lupus sounds so much worse. There’s no cure and you’re basically dying inside. Its an auto-immune disease. Your immune system is attacking your tissues and organs… I really hope and pray I do not have it… But I am working on getting the medicaid so I can go to the doc and try to get some better answers… Thanks Petunia girl. Let’s just pray its not lupus. And for kholmes too…
K holmes, I’m sorry you’re feeling so ill. I felt very ill last night but managed to get myself to fall back a sleep… I’m hoping you don’t have lupus or sjogrens. Please let us know on your test results. I know it sounds like I might have lupus but I really hope I don’t. But I definitely need to find out. While I’m waiting I am going to try to keep positivee thoughts. I hope you feel better soon. Keep in touch. Hugs.
Nat (BN)
Hopefulfhol, I am glad you were fortunate to have all the support from your docs. I think all of us can relate to the feeling of being scared when new pains and symptoms apear. I am glad this support is here too and we all play a part. Thanks for playing yours and thank you for your post. Hugs
Nat (BN)