A lot of times I feel ILL… I basically start feeling and some what thinking I’m dying… does anyone else have these feelings? I try not to think much into it but at times I feel lost and scared that I’m slowly dying. That maybe I’m actually very ill and that it might not be known of until its too late… Does anyone else feel this?
It truly does suck! I am off work this week to spend time with my girls and so far I feel too darn pathetic to do anything with them. I feel useless and a sucky mum. I try to keep upbeat and positive mostly but some days I can't beat the blue moods. We are not alone in this crazy wacky world of fibro. I intend on waking up tomorrow with enough positivity and energy to get up and kick the butt of fibro:-) wishing everyone else who is having a bad day the strength to kick some butt too x
Hi BN,
I just read over your profile, and you may want to talk with your Doctor about this feeling, you may need to go back on those meds for depression. You have been through a lot starting at a young age, you may also want to read over the recent post by Megan on Deplin a neutraceutical (healing food supplement) used for depression, also getting good results for things like Osteoarthritis with this. Perhaps you could seek out a more holistic type of Physician who could treat you with something more natural, like the Deplin, but I do think this may need to be done through a health care professional, rather than just grabbing things off the shelf.
You have your whole life ahead of you, to be so young and feel so lost is something you really need to get a hold on, we would very much like for you to be as happy and healthy as you can, as soon as you can.
You're a very wise young woman, I knew that of you immediately. I say all of this to you with a caring heart and much genuine concern. I would like to know that you are being well cared for and feeling much better about life.
Wishing you well,
SK
Oh yes, Beautiful, I do. Horrid, isn't it? I sometimes think, 'Is fibro deadly? Can I die from it? I feel like I am. And I'm too tired to fight it.' Fibro is that bad. I know I feel that bad. I never thought I'd be so battered by an illness. I know how you feel. I'm sorry that your fibro's slamming you so hard.
Are you seeing a doctor? If so, can you make an appointment to see him? Maybe you could get a tweak of your meds so you feel better? Sometimes that's all it takes. Or maybe a visit to a pain doc could help. I really think you could use a look over again to see if anything's changed physically that can be treated.
Please, though, understand that you're not dying. Fibro doesn't kill us. It feels awful but it's not deadly. If you feel lousy, let it be for the time. But remember that you will feel improved again.
Hugs and sympathy,
Petunia
SK, I do not want to take antidepressents. One reason being that since they started me on them at such a young age it made me slow. I was a very bright child until taking all those med and none of them helped me. Also I have come very far in dealing with my emotions. I fell down now because of things I’m going through. I AM only 19 and I feel so old and literally sick. Anybody in this situation would feel down from that. I am so young and feel so ill and I am in bad living situations right now and don’t have money. So this is not something a pill can fix. I know I’ve heard people say “but it can help” but it doesn’t help me. I haven’t seen a doctor in almost a year cuz my medicaid was cut off when I turned 19. I am in then proccess of applying to the new medicade program (which take a bit time). I’m not saying I feel like I’m dying just because I’m over thinking things. I say it because I do. I feel like I have the flu almost everyday. I know this is gross but I always have so much mucus Ill start chocking on it at times and I don’t know if its related but I have a very hard time swallowing things that it will get backed up or if its pills Ill gag and sometimes throw it up or it will have trouble going completely down for atleast a half an hour. My malar rash has become so much worse the last 6months its hideous. I saw sometimes its related to lupus… so I’m in the back of my head thinking maybe I have something more than just fibro that would explain how literally ill I feel. It said that lupus and fibro sometimes apear the same way. But lupus is hard to diagnose. I haven’t been to even a general doctor for a while so I wouldn’t know. But when I do get insurance I’m going to try to find out. SK, I am grateful for you caring and can understand where you are coming from though I’m going to stay away from the antidepressents. People can not rely on drugs to make it through their struggles in life. I made it through all my depression days, now I have to make it through my fibro days. Except my mind is something I can more easily get control of. This illness is more complicated because its physical. We do not even know exactly what it is. Thanks again SK. I hope you can understand my point of view.
Kholmes, I can definitely understand that. I try being positive and do things around the house or exercize and I feel pretty energized, during it I won’t feel any pain at all but then a couple hours later I am in hell and at times can’t even walk. You know you are not those bad things you mentioned eventhough I know it feels that way sometime. Keep your head up. I wish you well.
Nat.
Well I hope tomorrow you have an awesome day. I’m sure you are a great mom and are doing all you can possibly do. Don’t be too hard on yourself you can help what fibro does to you. I hope your daughters understand. Just do your best and make sure to take care of yourself I know how moms like to give so much… Hope you kick butt tomorrow
x Nat.
Thank you Petunia. I know its so awful at times… Petunia, I’m just wondering how do you know fibro isn’t deadly? They don’t even know the actual cause or what’s actually going on with us. Nothing has actually been comfirmed… I’m sorry to sound like gloom and doom. But its the truth…
Hi BN, I know exactly how you feel, and when I was first diagnosed, prior to my treatment plan, I said that to my dr several times " I feel like I am dying " and I often thought I would die and then they would finally figure out just how sick I was… I have leaned from experience that untreated fibro really makes you feel sick. It took a while and many trips to many dr’s to figure out what works best for me. I take Savella, and that has made the world of difference for me, also I had to prove to myself that it was not anything else, so I had an angiogram to r/o heart disease, CT scans and MRI’s of every part of my body. And of course hundreds of blood tests … And finally after a lot of learning how to best manage fibro and implementing these things ex ( supplements , mild exercise , diet changes ) I no longer feel like I’m dying… That’s not to say I don’t feel sick … There is a difference, but with the help of LWF and educating myself on different things I do feel so much better, emotionally, as well as physically.
Please don’t continue to live your life feeling like that, I remember how awful that was, there are treatments that you can explore ( keep an open mind ) if antidepressants didn’t work before it doesn’t mean they may not help in the future.
I hope I made some sense, please feel free to message me if you would like to talk more 
hugs & blessings
dee
Dee I just feel like I keep hearing antidepressents but what I really need is treatment for fibro. When I had medicade last year all it would cover was gabapentin and I tried gabapentin but it gave me bad side effects with my mood so I had to stop it. After that they just offered me naproxen. Soon after that my insurance ended and since have been doing all I can with supplements and try my best to eat good just cant at times when theres no money. I am working on getting this new medicade. Im waiting on papers Im suppose to fax. If I am approved I am going to find a doc and try to get some help for my fibro even though it will probably be a gp since not many docs take medicade.
Well, as far as I know, none of our members have died...and several have kept up with us for at least a year. Okay, I know that's not a great answer. I've been told it's not deadly. And I hope like heck that's true. Because it would be hard to keep up hope if it was deadly. I guess we'll find out since we're probably the first generation of people to be treated for fibro...and I refuse to die anyhow. It's not in my contract and I refuse to be offed by fibro. :-D
I know it's hard but try not to think about the possibility if it's deadly. As far as we know, it isn't. And I think that if we live with hope, we definitely can keep going a lot longer than otherwise.
Take care,
Petunia
Have you applied for disability? It sounds like it might benefit you, although it takes a few years for the med. benefits to kick in. In the meantime, I hope you can get the medicaid back. Something is better than nothing. And I have state insurance and it wouldn't allow me to try Lyrica UNTIL I got an ulcer as a result of taking too many NSAIDS and could no longer take them. So you might have an overriding reason to be afforded another form of pain meds if you've got an issue with taking the gabapentin. I know it gave me a wicked headache each time I took it.
Dear Beautiful,
Yes, I certainly do understand! Thank you for the explanation. Here is some very good info right on track with what you are currently dealing with, that you may find very helpful. . http://www.arnoldehret.org/healthclub/trilogy_1.html
http://www.soyouwanna.com/use-fruit-heal-33224.html .
http://www.amazon.com/gp/offer-listing/0940985101/ref=dp_olp_used?ie=UTF8&condition=used
http://www.amazon.com/The-Grape-Cure-Johanna-Brandt/dp/1570672792
I did not realize the complications that you were having with meds, so thank you for making that clear. I understand that there are many who just cannot tolerate traditional meds, I'm in the 'what ever works club' and I understand being between a rock and another rock as far as income, insurance, and cash flow!
There are times of the year when I suffer terribly from allergies, causing Rhinnitus, and the mucus is so bad it just chokes me, at one time was living in a lovely home but it was in a marshy area and had mold in the basement, thankfully I am now in a mold free home, as it was the cause of many problems. I was a 'croup baby', and it's still something I fight as a great grandmother.
If the above info is of interest, I am glad to offer it, and it's okay if it is not. I surely don't know the answers to everything, but always try to offer anything that may be helpful. Out of everything, I had the best results with the grapes, I have even made the poultices.
Wishing you well,
SK
A few months ago we had a Physician from Australia join the group, John Quintner, MD, a Rheumatologist, and Pain Management specialist. He shared valuable information, this is probably the best explanation of Fibromyalgia that I have read so far.
Okay Petunia. I always do try just comes to mind at times when I feel so sick. Just hope they find something out soon.
x Nat.
Hi Nat,
My heart goes out to you. I feel so bad that you are going through this and without a doctor or any money. Life sure isn't fair is it? I just want to point out that there are members on here that have had Fibro over 20 years and have not died. I don't fear that. What I do think about is having this the rest of my life. I also have hope that maybe in my lifetime they will find a cure! I know you have had bad experiences with anti-depressants and are against them, however the Deplin that SK mentioned is a natural supplement. You should read up on it. With Fibro comes depression it is only natural we would be depressed with all that we have to deal with. I think it very important to get that part under control...you may think your thinking clearly, but depression makes us think negatively it makes our mind wander into gloomy and doomy thoughts. I know I was like that and was totally against taking anti-depressants until my mom talked to me. She noticed a change in me and I was crying and so down about my pain. I did not have a diagnosis at that time...all I knew I WAS IN PAIN and I wanted it to go away. What was an anti-depressant going to do for me in that regard. Well I did try it and it sure did make a huge difference just straighten out the way I was thinking to more positive thoughts. I think when it is possible for you to get to see a doctor you need something to help you with your pain...you absolutely do need help of a Fibro medication. I also tried Gabapentin and I had horrible side effects, but there are other things to test and try. It is a process and you have to be willing to have an open mind to do this in order to get to a better place. I will also say you need to follow what your doctor says and just don't decide to go off a certain medication without consulting with him or her. Trust me I feel for you and know where your coming from...I wish I could come and give you a huge hug and say everything will be okay. Please just take a look and google Deplin you might be surprised. I wrote to ask if it is being sold in Canada. I would very much like if you can keep us posted on how your doing. If in the very least you can come here and feel compassion and understanding. And furthermore I don't feel I come across stupid being on anti-depressants it helped me to get back to being more of the positive person I always was...I realized I needed a little help with that :) I wish that your spirits would lift and you will start to see a light at the end of the tunnel! x Take good care...Virtual hug...Sue (aka Dreamcatcher) Friend me anytime if you like :)
Me too! I hope they give you some solid answers! I really do hope that you find a way to feel better very soon, so you can enjoy your youth! You deserve it!
SK thanks so much for the info. I always love reading into natures healing powers. I will read into it more. Thanks again Sk. I live in a not so clean house either at the moment so maybe that could be part of it like you were saying. I am trying to get out asap just having such a hard time. Thanks for everything Sk.
Oh my that is a lot of pages SK. Lol I made it through about half. Very interesting. Ill have to continue reading later. I start feeling sick when I read to long especially on the phone or computer. Maybe its the light. Thanks SK.
Petunia, I did apply for social security income. I can’t get actual disability because I have not worked for 5 years or more. I was denied and I am at a crossroads as far as if I should file an appeal. I called a disability attourney and they told me that they couldn’t help me right now because the deadline is coming up in a month and they also told me that its going to be very hard for me because of my age and because I’m not receiving any treatment at the moment. So, with the huge possibility of getting denied again and also having to wait 3 more month for just an answer and in the meantime if I got a job would be on a limited earning amount I am lost at what to do because I am very in need of income. There’s cons to either decision I could make…