My name is Bethany and I currently live in Colorado. I am 22, but most days I feel like I am 80. I was just recently diagnosed, but I believe I have had this for at least 2 years. Lately, I have really been struggle with this disease. It seems like every week I gain a new symptom and I can't find a way to get them under control. I recently had to drop out of school and quit my job, because most days I hurt so bad, getting out of bed is all I can manage. I have felt very lost and alone with dealing with this terrible disease. I'm hoping this group can help me through this!
Hello Bethany and welcome:-)
I'm so sorry to hear that you've been bogged down at such an early age,and with so much on the go.I'm pretty new at this as well. I was only diagnosed barely a month ago but like most,have been suffering for years. It's hard to take...your body turning on you and your mind in constant turmoil wondering how you're possibly going to live with this THING.
All I can say is you've come to the right place. Feel free to ask questions...anything. You will not be judged here and the people are loving and compassionate. The support I've received has been unbelievable.
So don't suffer alone,We're all here to help each other.
Hugs
Welcome to our family Bethany, we're so glad you decided to join us. My name is Susan, I'm almost 67, and have had FMS for 20yrs. I'm so sorry to hear that you've been diagnosed at such a young age. We hope that we can make you feel welcome and help you learn about FMS and ways of dealing with it. There are so many on this list that are very knowledgeable. Again welcome to the group. Ask whatever you need help with, there is always an answer. Sometimes just dumping your anger and sadness to the group helps you feel not so alone. Sending love and hugs! Grandmadaleyx11
It will! Hang in there!
Great advice Chrissy! :-)
Twelve and a half years after coming down with fibro? My gosh, I don't know how you did it, Tina! You must be a real fighter. Good for you! It pays to be a fighter when you have fibro.
Welcome, Bethany! It's great to have you here with us.
I think you will feel right at home here as your symptoms are so similar to ours. I'm sorry that you have fibro and that it's going at you like that. It might take awhile from diagnosis until your doctor finds a medicine that helps to take the edge off. But man, will you be happy when you get the med that takes the edge off!
Believe it or not, if you're getting out of bed, that's good. I mean that it shows that you have initiative and enough get up and go to get up. Because as you can see, this illness is a real STINKER. If it had a smell to it, I'll bet it would be rotten eggs.
I am really sorry that fibro can happen to young kids like you. It doesn't seem fair at all. The one good thing, though, is that you are probably very likely to see a treatment and maybe even a cure in your lifetime. I just read on one site that there is a new nerve pain treatment that is 100 times as strong as Lyrica, which is what's currently used to treat fibro, and you only need to take one hundredth of the dose of the new med. BUT the price is currently very high and I'm not even sure if it's available yet in the US or if it's even out of clinical trials yet. But it will be eventually and the price will even come down eventually.
And in the meantime, you can come here to vent, scream, cry, throw youself to the ground and pound your fists on the cement while kicking your legs (this is starting to remind me of Justin Bieber)...and you get my idea. We're here for you, kiddo.
Hugs,
Petunia
Thank you all so much! I already am feeling more hopeful about my disease. I definitely made the right decision when I join this group. Two days and I already have more support than I could ever ask for! You guys are the best :)
Hi Bethany:
I know I commented on another of your posts, but I also wanted to say something on this one. Welcome. I hope you are able to find support and encouragement here. It is such a difficult diagnosis and it is easy to feel alone. But there are people here and elsewhere who know what you are going through and I hope we can all help each other.
I've recently given up on going back to school to get my masters and I've had to basically quit my job, only about 4 hours a week, and I'm moving back in with my parents :( This whole thing is NOT fun. I've spent quite a few hours writing about this process and have gotten to a place where I'm feeling confident enough to share, just in case you are interested, you may find you don't feel as alone, maybe.
Specifically this post my have some things in common with you: http://dancingintherain-always.blogspot.com/2014/03/my-journey-into-disability-march-2013.html
Hugs,