I was diagnosed about two weeks ago after years of pain shots and surgeries and hospital stays. Couldn’t figure out my headaches … then before fibro I was diagnosed with major depressive disorder, PTSD, gorraphobia (sp), bipolar 2 disorder, and anxiety. I’ve lost 70 lbs in 4 months still losing at a rate of 7-10 pounds a month. This, however is not due to my fibromyalgia. They’ve already checked my thyroid along with others, next thing he is worried it could be is cancer. I’ve put off those tests for 2 months so far due to fear. I’ve had two very major knee/leg surgeries last year. February 27 I had a 7 hour surgerie that kept me from being Allee to walk at all four three months. As soon as u healed my doctor went ahead with what he told me would be the last surgery Dec. 8. After my suppose to be 45 minute surgery that turned into four hours, I went home thinking wow that’s done my doctor said my quality of life would improve and I could walk and play with my3 year old. When I went to the doctor he told me my knee had gotten worse and that hrs sorry if the transplant does not work I will have a third surgery where he replaces half my bone. Then when I shouldn’t be hurting so bad I tell him the issue with not feeling my keg and the slightest touch puts me n tears and pain for hours. He told me it was probably something simple that could be cured with medicine. I any worried then, until the pain doctor seen me and heard my story. He looked and said I KNOW WITHOUT A DOUBT you have fibromyalgia. Okay that scared me but I didn’t even realize how bad until I read up on it which I have for hours. Then it hit me, this pain I’m always in, no matter what they do, will always be there. The next morning I won’t up and I had a miscarriage. I didn’t even know. Ever since I’ve lost it. Oh did I mention right before all this I got engaged to s man I’ve been with fit seven years. This should be one of the happiest times of my life. And six months to plan the only wedding I’ll ever have. I don’t think he gets everything though and I gave him an opportunity to leave call off engagement find someone healthy with no hard feelings. Of course he said he’s here to the end but lately he hasn’t"been here"I asked him to read up on it please he says he has but I don’t know. I feel so alone when I shouldn’t. I’m scared. And can’t work waiting on my lawyer to get back about my appeal for disability.
Thanks for listening I’m lost.
Hi Jessica, I am glad you found this site. I know it can seem overwhelming but it is possible to live a full life with Fibro. It will most likely take time to find a combination of things that work for you. If you haven't already, I suggest you take a look at the Fibro 101 guide as it has good information. Also, the positive pick-me-up category has very helpful tips and stories. I am glad you reached out here and please keep us updated. Hugs!!!
Hi Jessica, you certainly have a lot on your plate at the moment but that doesn't mean it will all be like this for ever. I have only just joined here and been recently diagnosed but it certainly seems a friendly place to chat to people and get support. My pain has already reduced most of the time with medication so, as Auburnm says, it may be a case of finding what helps.
Congrats on your engagement, planning your wedding in the next 6 months will give you a lot of positive things to focus on. That is what you need to do.
I can see you have a lot goin on and a lot to cope with, but eventually you will find meds and other strategies to help you cope better.
Educate your fiance as best you can, show him articles, look at this site. There is a lot of good information that may help him understand better. He sounds like a good man, but like you he needs time to get his head round this.
Thank you all so much. I’m scared and really don’t know where to turn. I smile and try to make things look easy when it’s so hard. The best way to describe it is being feeling like you were jumped by fifty people three way your body feels the next morning is how I feel 24/7 . constant pain no matter what medications. But I’m trying my best. Thank you again.
My heart goes out to you Jessica. I wish I could give you some upbeat support, but I too am lost. Maybe you can find comfort in knowing you're not alone.
I struggle trying to make an effort to change the few things I can because what's the point? Nothing will ever change. I will always be poor, I will always be exhausted, I will always be in pain, I will always be utterly alone because of the previously stated reasons.
At least you have someone who wants to be with you. Maybe talking to him about how scared you are, write him a letter explaining yourself, or couples therapy (which I would suggest to anyone about to get married!). Any way you can to open that communication. The more isolated you feel, the more you will push him away, which will just make things worse, for the both of you. Don't let fibro and all the other crap drive away love!
Jessica I feel your pain. My pain started while weaning my son over 15 years ago. I had been married only three years and was a young, active 38 year old. My wonderful husband will have been by my side for 20 years in June. During this time I have had 10 surgeries, with the latest being a total knee replacement a year ago. You will survive because you have a child who will always need you. It will not be the life you were living or the life you dreamed of living, and there will be bad days you would rather not be living. But it will be the life you have and you will have great days.
Well went to see the doctors yesterday. My surgeon took me off my pain medication because it’s been three months since surgery. Found out that what I thought was a pain specialist was a spine doctor so he can’t prescribe me narcotics, he did however send a list of suggested medicines to my primary Care doctor who will be the one testing my fibromyalgia now. So I have to pay $80 I don’t have to see him. While seeing the sponge doctor I had an emg and MRI. Revealing I have degenerative disc disease two lower discs and one upper disc are bulging hitting my nerves. And with my leg pain there is something with the muscle and nerves I didn’t quite understand he said he was sending tedious to my surgeon and doctor. I feel even more lost now. I was on cymbalta and I forgot to eat for two days. Forgot what I was talking about in middle of sentence. The cymbalta was making me worse. He switched me to lyrica. And I now have to walk with a came. After my test yesterday I barely made it home my fiance had to carry me in and put me in bed at 5 p.m. I was done. I’m getting worse and I’m getting scared. Probably list yen pounds in the last couple days. When can I be normal.
Welcome im sorry to hear how bad things have been for yourself, I feel it has helped me understand this all finally knowing you can you have done all could. To get better hand on heart and for that take some peace from this. It helps me I hope it helps you. There is a lot things you can do and finding your own pain management plan can help, it trial and error It taken me along time but I have some that reduce the pain to make life a little more liveable, enjoyable. Try not to think to far ahead cause you cant climb a mountain dreading every step. You need to take one at time a time little by little. I have put what helps me on my page, hope it helps you also lost a little baby 2 years ago so if you ever need to chat send me message. You never know how strong you are till you have to be, sometime being strong is knowing when to also ask for help. Hope this message finds you feeling a little better there is a lot of hope I feel for us all with Fibro in this day and age loads of breakthroughs. Take care for now