Starting to feel like Fibromyalgia is taking over my life...Anyone Else feel like this?

I'm in pain 24/7 some days are worse then others which in itself sucks horribly but I also deal with serious depression and anxiety. Now I have this whole other issue. Because of all of the pain meds I take, being intimate with my husband isnt fun anymore, because I dont feel anything. Its not his fault at all but it still sucks. Im also trying to loose weight, I have lost 37 pounds so far ( which of course is a MAJOR struggle with Fibromyalgia) so because I am dieting I dont even really get to enjoy food without feeling guilty. On top of that I have been married 6 years and would like to have a child but Im truly terrified because I wonder, will I be able to go 9 months with out any meds, and How am i going to take care of a child when I am in a lot of pain and Im exhausted constantly. All this stuff is really weighing on me. Does anyone else feel like you are drowning?

Hello,

I can definitely relate to what you stated. My husband and I celebrated our 2 year wedding Anniversary in February of this year and we are thinking about starting a family. I often wonder if I will be able to handle the 9 month pregnancy and then have the energy to take care of an infant after he/she is born. I also struggle with weight loss and it is an uphill battle. The best I felt was in 2013, when I lost 50 lbs in the six months before my wedding, but I felt a lot healthier then. Great job on the weight loss progress so far, 37 lbs in great! : ) My dad put it to be this way and it helped me view my weight loss as a more of a success...he said, imagine you have 37lbs of steak hanging on your body, and you managed to get rid of all that weight that is weighing on your joints, muscles and so on. 37 lbs may not feel like a lot to us, but it is A LOT to our body and we should give ourselves credit for that! : ) One thing that has helped me, is seeing a counselor. I know it isn't for everyone, but it has really helped me with depression and anxiety because I can talk to someone who has an objective, educationally-sound background that can listen, provide supportive feedback and I can "unload" for lack of a better term. I find that seeing the counselor helps me release a lot of the negative emotions I keep inside, and has helped my relationship with my family and husband. Have you talked with your primary doctor about pregnancy planning? I have, and when I talked with him, I found out I won't have to go off all of my medications because, depending on which med, they are approved in pregnancy and studies have been done to show they do not cause damage to a growing fetus. I have found that developing a pre-pregnancy plan has relieved a lot of my anxiety and helps me look at what I can control, and what I can't. A few things I have learned throughout this journey is that Fibro takes a concious effort to be kind to ourselves, pre-planning/anticipating our needs and knowing what we can and cannot handle are so important.

I'm sending hugs your way and I'm here if you want to chat,

Sara

Yea, I have spoken to my pain management doctor and one of them says its fine to continue taking percocet and Flexiril while pregnant just not the Lyrica. I have been slowly going off of the Lyrica. Im just concerned because My mother has fibromyalgia too and while pregnant with my little sister ( she is 6 now) she took alot of pain meds and now my little sister is very behind in school and learning, they havent confirmed it was a result of the pills but still idk, I dont want to harm my child.

On a different note, do you feel like fibromyalgia affects your marriage?

hi I think it is always best to consult a physican about things that have to do with pregnancy and meds to be on the safe side

My take on drugs and pregnancy is to not take any at all. I dont think i would feel that a doctor saying it was fine to continue flexiril and percocet during pregancy was fine.. thats my opinion. all the best

HUGGGGGGGGGGGGGGGGGGs

Suzie

This diagnosis affects every relationship in our lives, but it can be especially hard in a marriage. My husband has always been very supportive, but I know it is difficult for him to see me in pain and exhausted when there is nothing he can do to "fix" it. I started seeing a counselor mostly for myself, but also to talk to someone I trust, other than my husband. I feel a sense of relief after my counseling session, I come home and am able to be the happier, more attentive Spouse that I want to be, because my thoughts aren't so bogged down by everything that comes along with this diagnosis.

Hugs,

Sara


bklynsugarchef said:

Yea, I have spoken to my pain management doctor and one of them says its fine to continue taking percocet and Flexiril while pregnant just not the Lyrica. I have been slowly going off of the Lyrica. Im just concerned because My mother has fibromyalgia too and while pregnant with my little sister ( she is 6 now) she took alot of pain meds and now my little sister is very behind in school and learning, they havent confirmed it was a result of the pills but still idk, I dont want to harm my child.

On a different note, do you feel like fibromyalgia affects your marriage?

Do any of you ladies feel like the pain meds prescribed for you have changed your personality ? I feel like Im so moody and angry a lot and thats not really me. I used to be so chill and fun and now I am easily aggravated and explosive.

Idk what to do. While I know all these medications are not good for me... at this point I have tried everything. I have done so much research and tried many different methods and nothing helps. Truthfully at this point the pain meds barely help, but if i dont take them the pain is unbearable. I constantly feel like I am in a losing battle.

IDK days like today I feel like giving up!

Hi hun I have only recently been diagnosed and this is exactly how I feel… I am 26 and have 2 children one age 6 and the other age 4, it’s really difficult on a daily basis, it’s get up in pain feed kids, dress kids, walk them both all up to school drop one off, bring the other one back till half 12… Feed him walk him all up the road again… Get a couple hrs in between to rest/catch up with housework then pick them both up walk all down the road and back with them cook dinner bath the kids spend a couple of hours with them do their homework with them or reading and put them to bed… Rest and sleep myself till it’s time to do it all over again, I’m struggling too you are not alone I am so glad to have found somewhere I can talk to people that understand!

Hey there. I definitely hear you and understand, often fibro feels like it is taking over my entire life as well. It is very hard to even get up out of bed some mornings, and even harder when I am spasming or having unbearable nerve pain. I do want to say though that I think it is quite the achievement that you have lost so much weight though! It is really hard to lose even a pound sometimes due to fibro and possible side effects of medications. As I am also on a weight loss journey, I am wondering if you have any advice you could offer as to how you lost the weight, how you are dieting and exercising, etc. As far everything else, honestly my motto has become "take one day at a time". We have to take small strides but at least we are moving. Hang in there.

Blessing and prayers