I agree with your advice. I recently read a research article on fibro that indicated that after exercising, our muscles remain oxygen deprived. The control group gained oxygen, fibros lost oxygen. Fascinating stuff. I live in smoggy SoCal, and walking outdoors is not an option. The mall is dangerous to my wallet, and I tend to shop, not exercise. I am finding that doing household chores is enough for me.Ah, now if only I could find motivation for household chores.... :)
Susan, house work is hard work and don’t let anyone think differently. My husband just quit his job and I will be after him to work in the yard and the house so I can maybe have some days when I am not totally wiped because I am tryin to do everything.
Hi Scribelle - It's funny that you mentioned you live in California. I was born and raised and moved to Nevada about 13 years ago. I was from the San Fernando Valley. Does this soundfamiliar to you? Also, like you, The Mall is very dangerous for my wallet too. I try to stay away as much as I can. But with all the pain we all go through and what we have to put with, with our Fibro, I think we deserve an occasional trip toe the Mall! LOL I do understand your feelings about doing housework. I love a neat and organized home, but with my FIbro I have had to learn to 'let go' a little bit and not be so picky about it. Thanks for responding! Laurie
Hi Laurie, thanks for your response you are so right about everything. It sounds like my life. When I first get up in the morning it takes a while to move, my whole body doesn't cooperate right away. I have that back thing going so usual I wake up hunched over. I am with you on that exercise, I have bought every machine, done everything and when I do, I am in bed for three days or more. I try to do a little but it's not making a difference yet. Then we are suppose to eat right, when I get home from work I am so tired I don't feel like cooking healthy meals. I try to rest just to shower before going to bed and thats about all I can do and miss work alot from being sick. I came to this website because who better to learn about this than the people who have it, the doctors are sure no help. I have learned more from other who suffer these horrible diseases than I could learn from anyone in me the medical community. I had no idea the discrimination you suffer when you are disabled by a disease. I hope I can be support to you all as well. Thanks for the great welcome!
wow. Thanks for sharing, My nails do that to, I always wondered why. I also have the callus on the big toes and some days smell aspergaus in my urine. I think that inflammation cause all the autoimmune illness. I do not believe that I have 5 separate illness. Cause when one gets worse they all get worse. When one gets better they all get better. I think it is all one thing. I just do not know what that is. I know it is a combo of stress, eating things that my body cannot handle and inflammation.
Walk I must. Some days it is hell, but with my dog forcing me to go on daily walks now I feel long term benefits. Less fibro days, less not being able to move things, less soreness. I have oddly lost my need for three naps a week. I have to look at the long term affects rather then the daily pain at times. Most days I love my walks. I just have to push though the bad ones. On bad days I do walk shorter distances. I have noticed that people with fibro that sit down and stay down seem to curl up a bit, and have a worse time getting up. Walking seems to release the oil that keeps me able to move.
Wow...I have been afraid to ask if anyone else has strong smelling urine. I wouldn't say it's like cooked asparagus but it's really foul quite often. I seem to be constantly giving myself a sponge off down there...and going through baby powder like crazy. I've never mentioned it to my Dr. -- mostly b/c he is SO young and easily embarrassed.
Now I know why....thanks for posting this.
And MBP.....don't you forget your Tundra friend when the trip to Belize takes place!!!!!
Mine don't grow downward but they are getting very deep ridges. If I try to buff out the ridges..then they become too weak. Can't seem to win the battle.
I doubt it( urine infections) has to do with fibro since it is not systemic but can be do to the pills you take for it. You can buy otc test strips plus pills that stop pain and urgency to keep going when you only pass small amount. BUT if last more than day or two get to doctor. Oh, things like condoms, and other birth control can also cause them...plus the rule to go bathroom asap after intercourse.
I have had enough of them to last 2 lifetimes! I had problems with them and kidneys due to SLE ..just drink a lot every day and if you feel it coming on have Cranberry juice at home. Start drinking it as much as you can. That often takes care of it.id
As to your teeth did you get implants? They were over couple thousand per tooth last time i looked and our insurance will not help pay for them. I did see there is another procedure kind of semi permanent denture. I hate my dentures....it was humiliating entire experience...losing of my teeth despite me taking excellent dental care. I cannot eat anything hard or semi hard with them as they hurt. So i really like something else if it affordable. Love any ideas from you or others!
Also about the horses...my hips really hurt but i like to get back into riding...mainly trail. I really just want something like midge mule or pony so if i get out too far and hurt too bad, i can ride back in. But than i was worried about maybe hurt my hips equally as much...so wondering if you have any issues with that.
I think that walking your dogs, small hikes or long ones if you can do them is great! Or any kind of exercise you enjoy...high impacts i would think be too much to begin with for most people. Kind of makes me wonder if your doctor realizes how much in pain we are in.
well appreciate any advice on teeth and horse riding as to my hips. thanks
Naturopaths say that ridges on the nails mean you've been in chronic pain. Interesting right? They have thousands of little signs that doctors don't pay attention to anymore. Doctors just pay attention to what test results say, not what symptoms are.
I think I find a new thing about fibro people every month. Symptoms or quirks that only seem to happen if you have fibro. One is that a blood pressure cuff can be very painful in ppl with fibro. One Dr.uses that as a clue to look for fibro, since only his fibro patients have that issue.