Hello, I just joined a few days ago. I’ve been diagnosed fairly recently but I think I’ve had it since I was 20. Just trying to find some support and find tips for managing better.
Hi Charlotte,
You've definitely come to the right place for support. I am not on here too much, but when I am I find this to be such a warm, supportive site. You will find loads of info and the moderators are fantastic! On those days you just feel like you have to vent and that nobody understands, you'll find this is the perfect place to find "kindred spirits". It's always nice to talk with people who understand exactly what you're going through.
As far as tips for managing, I can only give you what works for me. I've learned that I need to slow down, slow way down. I left my high-stress, face-paced job and am working from home now. This has made a huge difference in my life. I know it's not an option for all, but I was lucky enough to be able to do it. Naps are huge for me too. If I push myself to hard, I know I'll pay for it for the next few days. Try to find your limit and don't push yourself over it.
Also, I don't know what your doctor has prescribed you, but give the meds a chance to work. Sometimes it takes weeks for you to start seeing an improvement. Try to hang in there while your waiting. I know-easier said than done, but we have all had to go through this.
My biggest tip of all is to be proactive about your health. Sometimes we are so good at fighting for other people, but don't apply the same to ourselves. Find a good rheumatologist, if you don't already have one. If you're not getting the help you need and your pain is not getting under control, find a doctor that can help you.
Big Hugs!
Hi Charlotte
I have found massage and yogi to help. Water therapy has also been really good for me.
I hope you enjoy the group. If you need any help with the site let me know.
Welcome to the group. Lots of support, understanding, and love to be found here.
WARM WELCOME
I’m so glad you have joined us ! This is an awesome group 
everyone shares great ideas about how to best manage fibro
There are lots of great groups to join and friends to connect with , we understand each other better than anyone , this is such an invisible illness and for that we suffer great emotion hurt from family and friends
Hang in there , learning to live with fibro takes time , patience and something we don’t have much of …ENERGY !
Reading through old discussions is a great way to learn, there is a tab at the top left ALL DISCUSSIONS
Everyone is different but two things we all have in common is pain and fatigue, and we understand each other
being apart of LWF has been so helpful !
Hugs & blessings
dee B