PG, I LOVE THAT!!
YOU ARE NOT ALONE! YOU HAVE ALL OF US STANDING HERE BEHIND YOU, SUPPORTING YOU, GENTLY URGING YOU ON AND SENDING LOVE!
It sounds really horrible of your brothers but who am I to judge them or you. I would write a letter to each from your heart, as you can. Plus send cards and letters to your mother from your heart. I do it to all, your brothers. the friends who have slowly got more involved in their own lives or have their own pain that maybe you do not know about. It might open a few doors and it will not hurt.
I keep writing your mother just post card, notes and home made cards if you can to remind her how hard you tried and how much you love her. I am sure it gave her great pain if she heard what your brothers said to you. As I am sure it hurt you too.
One thing I know in this life, that only love and forgiveness really matter.Ha two things lol! Forgiving ourselves for being sick, others not understanding, and even the cruel ones. I hope that this Holiday Magical Time you will find all the people who do still love and care about you! Also try to remember what gave you so much Joy and passion in life...no you might not be able to do it as well...but try. those things make life so much wonderful! One thing we still have that many others do not is HOPE! It is very possible that just as mysteriously your body got this disease it can just as mysteriously go into remission! '
I wish you reconnect just with one of your old friends and go out and enjoy some laughter and fun! It is the magic time of year....so who knows it is possible!! All my love to you....and again you are never alone...this support group and so many other great ones too...i am trying to find some in distance countries...very cool! you take care, spread the love!
Thank you for that, Petunia Girl. I hadn't seen that one before. A lot of it also applies to Ehlers Danlos Syndrome so I'm going to hang onto that in case I need to show it to someone. I was diagnosed with fibro before I was diagnosed with EDS. I was going to say something else but lost it lol. *hugs*
Susan W
Hi Penelope, *big big gentle hugs* I feel your pain. You have to do what's best for you. If they can't take that you need to take care of yourself then that's their problem. It's really hard, and not fair to you at all, but you have to take care of yourself first. I didn't listen back when I was working and ended up hurting myself more. I have Ehlers Danlos Syndrome but fibromyalgia is often a part of EDS. The pain does make us need to stay in bed often, but that's ok.. Somehow society has given most people the idea that female people are supposed to take care of everyone else, That's just not always possible. There are a lot of wonderful people on this group and many are awesome listeners. Thank you for posting and sharing.
big air hugs again
Susan W aka waters
ariestit, Here are a couple links about SSDI. You may have the first one but the others are tips to help. Also, if you can write a letter to your Congress people, senator and/or representative to (federal or state or both) it can help. If they mark your file as congressional interest it can get reviewed sooner sometimes.
http://www.ssa.gov/disability/
http://www.disabilitysecrets.com/
http://www.disabilityhappens.com/tips-on-getting-ssdi-benefits.html
http://www.ssdrc.com/disabilityquestions4-43.html
http://en.wikipedia.org/wiki/Social_Security_Disability_Insurance
Hope this helps
Susan/waters
THANKS FOR THE INFORMATION KNEW ABOUT ONE BUT NOT THE OTHERS AND WRITING YOUR US AND STATE SENATORS AND REPS HAVE A GOOD DAY EVERYONE
Arie,
i feel horrible for you because I DO feel what you feel, or have. I have considered giving my dog back to the Human society, but I know he is keeping me alive. I promised him I would take care of him, and he'd be frightened if I abandoned him. I'm not saying you did that. That's just what keeps me taking care of him. It's so sad, but funny, if I died, it would take until i didn't pay my rent for my landlord to come find me! Otherwise, no one would.
A cold front just moved in and i did a mental body scan to find a place that doesn't hurt. It's my nose and my lips...yay.
At leasti I have SSDI to count on, even if it isn't enough. I will send good thoughts your way for you're financial problems. I feel a little better mentally today. Having all of you out there understanding and being the caring people you are who, through your own pain and stress, reach out to others to help.
It warms my heart.
A BIG THANK YOU again to everyone. I'm better today emotionally, thanks to all of you. I just needed someone to hear me. And it shows what kind hearts you all have, helping others through your own pain and suffering. i will try to do this also. Pay it forward.
BAD pain today so back to bed. If I can untangle all the electrical cords from my blanket, heating pads, etc! without tripping and breaking my neck. I don't know about you all, but I'm very clumsy and usually covered in bruises :)
warm hugs,
P
Hey there Penelope. You're not alone in your aloneness. I'm in a very similar situation. Do you have any pets? Are you a tv/movie fan? Both of these things have helped me tremendously.
jenni
What a wonderful reply.
No one realizes the cost that this condition has on us,and sadly this current society does not care for anyone who is not flying high. It is a sad reflection of our society that it does not look after folk who have largely worked their guts out most of their lives, but who now have this condition. A condition that society’s researchers have yet to understand. This is not our fault.Barb
Allergic
I support everything that you have said. Kind thoughts. barb
Penelope, I am so over joyed at the out pour of support for you… Your post has touched so many… We are so fortunate to have each other !! And reading that others feel the same and also have lost family and friends just really shows the magnitude of what living with fibro can do… The dr’s don’t have a clue !
It warms my heart to know that so many care !!!
Thank you all for sharing !!!
Hugs & blessings
My friends dropped like flies when I could no longer do things or help them at work. When I had to stop working suddenly, it was like I no longer existed. I never thought this would happen between my best friend and me. We did everything together. I guess she just got tired of me being sick.
3 years ago this man started mowing my yard. I did not pay him any attention. One day I came home while he was doing it and thanked him. Well, he asked me out about a month later. I didn’t think he was interested or anything. Those ideas had left my mind a long time ago. I had been single for 19 years and planned to remain that way. Mother said he was, but I just said she was being silly.
3 years later we are still together, and he is my rock. I went through some of my hardest times single. I had my parents, but they were older and go to bed at 7:00 pm. I have done a lot of healing from surgeries alone and depressed.
I am so sorry you are going through this all alone. Miracles do happen. My Tim found me when I had not been looking 4 a long time. I am also bipolar which makes me really easy to live with.
Today I got Botox injections for my migraines. He threw in some extra at my worse trigger point sites. Now I am hurting terribly. Must go but I wish you the best and felt the same from 2005-2009.
I forgot to mention I have always had inside dogs who sleep with me. They give me a lot of comfort and joy. I can’t sleep with anyone as I can’t stand anyone touching me.
Take care Penelope.
Penelope,
Wow, you really touched a nerve here! Look how many people were moved by your words! 352 views! Don't ever doubt your ability to interact with people.
You know, it's amazing how quickly we all are to perk up once we know that someone hears us. There is nothing wrong with us emotionally or socially or morally - only physically.
Penelope, I hope you come back here to talk with us and to update us on your situation. I so hope you can get more responsive people in your life and/or get more out of your family.
I'm really really glad to hear you sounding so much better today. Ah, as for the pain...please, pass the electric blanket!
Thank you tricky and petunia. The support I’ve received has given me new strength. 
that is so true...love happens when you are not looking for it! you are so very lucky!
Yes Penelope, I am clumsy now. With the stiffness from sitting for too long or in any one position for too long and it is hard to get up, then I have to get my bearings/my balance b efore I can start walking..........no it's waddling first and then it becomes walking.
Great fun!!!
Warm hugs sound good to me so I'll send some back to you!
Rachel
That’s exactly how I am. you have described my situation, clumsy,stiff,stiff,stiff,balance hassles,pain, amazing, you’d think that the medical profession would be able to validate it,there are millions of us across the globe. Just saying. Barb
Well, I have been away in the city roday and it was too chilly to leave my cats out all day. I would never do that this time of the year. As soon as I got in the door they looked at me and I said, Sure you can go out for an hour. So out they went. Just now I let them back in and two of them have big stories to tell me. Ciarra wants me to play with her, that means throwing whatevershe brings me. Pickles, my 10 and 1/2 year old male who is a Siamese cross jumps up on my shoulders and rubs my head and tells me very personal love stories. My cats shower me with unconditional love so they are so very important to me. Without them I would be depressed.