Your story is heartbreaking and in some ways I know how you feel. I have a sister who is tired of hearing about all my complaints and lately she has said she needs a break so I can only e-mail her. We get very self-absorbed because often life is overwhelming and lonely. I too am short on friends and find it hard to do normal social things. For you I suggest contacting a church of your choice and seeing if they have people who visit at home. Isolation is the worse situation for us. It has been hard for me to find a local support group but you might try making some phone calls. I send you mybest wishes and keep writing to this group. Bailey
Thanks Bailey,
I’m actually doing really good now. And I have joined an all women’s support group. Not just for illness. I’m excited about what will happen in this group. I miss my daughter but the rest of the family and my former friends are not a loss to me emotionally. Im Doing so much better without the stress. I also have been talking on the phone with another new friend who has CFS & Fibro and has been a huge blessing.
I also appreciate everyone here for getting me through a rough patch
Penelope, we are so glad that you are feeling better. Remember that is why Scott, our founder, started this website. You are amongst people who understand and support you and what you are dealing with.
Hi Rachel, I am so sorry. It seems we are in the same boat. My 89 year old father was diagnosed with Neuroendocrine CA last year. The doctors operated and he was CA free, but contracted C-Diff while in the hospital. I took him home, as that was his wish. I took care of him until his death last March. I have two sisters and two brothers, not one of them lifted a finger to help. I really don’t know how I managed, I guess I just drew on the strength I didn’t know I had. So I too am sad and lonely. Any time you want to talk I am here for you. I have been fighting a disability claim for three years. I hired a lawyer after getting turned down three times. My Hearing was tomorrow morning. I could not sleep, so stressed which brought out more pain. I prayed to God last night, asked him for help. I decided to put it in God’s hands. This morning I received a call from my attorney that my hearing had been canceled. The good news is she ruled in my favor, and said a Hearing wasn’t necessary. When I got off the phone, I cried. Then I got on my knees and thanked Him. I am so relieved! Thank you for letting me share with you.
Sending Hugs your way! Leanne
just know that sadly with this condition we suffer, a similar condition, that sadly often results in us being very alone.
but here we can share our thoughts and feelings with others who truly get it, unlike almost everyone else.
stay strong and get fun wherever you can because after all that is what life is about. put sadness and pain away for a few minutes when ever you can. That’s what I do I hope this helps even if only a little bit. Barb
HI LEANNE CONGRATS AFTER BEING. DENIED 3 TIMES YOU DESERVE TO HAVE IT IVE BEEN DENIED 2 TIMES AFTER 2 TIMES I HIRED AN ATTORNEY A FAMILY FRIE D IS ALSO A. ATTORNEY AND SHE RECOMENDED HIM JUST LIKE DRS RECOMEND ANORHER DR IM WAITING FOR THE ALJ HEARING DATE TO BE SET ILL BE NOTIFIED 20 DAYS IN ADVANCE HAVE A GOOD DAY EVERYONE
hi ~ i was raised in the anglican church, but was then born again and Spirit filled. my faith became spirtual at that point. i begain writing and have a book called Solitary Rider with an acknowledgement from Mother Teresa on it. it is available on amazon. i am writing my second book called Walking in the Wings of Glory to show people just like you that Christianity IS a highly spiritual "religion." the organized church is not the church...it is the people of Jesus. if you can switch your way of looking at this, i think it might helo a lot. it is immature people in the church who are judgmental. as they mature, they are filled with the LOVE of Jesus. this takes a long time. so Judge not lest ye be judged. we should not judge the church as it is full of very young Christians or those who have never grown up. i do not debate either...this is just my personal journey. i do better in charismatic churches. the catholic church also has a LOt of spirituality with its mystical tradition. blessings, annie
Penelope
I find that I’m just not very nice to know theses days. Every effort to make another welcome in myhome becomes an overwhelming chore and I can’t wait for them to go. dreadful because I like people but they take up so much energy and I just find that they have no idea how much pain I am in and just how much effort it has taken to make them welcome. In the end I just want them to go because it isn’t worth the effort. I have tried to have people stay for a couple of nights but I find it exhausting and it means that I have to change my schedule to fit them in which means much more pain. I am of course living on my own and getting on, nearly 69 years old. I would like to talk to folk but not all the time. I am housebound and often bed bound. A sorry state really for someone who used to hold an academic position. Still I have this iPad and can communicate through this group which is a real help. My sorry story! barb
Yes, last year, SDI finally recognized fibro as legit disease to be disabled. Now...every time someone like you wins a case...just makes it easier for others who apply!! So every one of who does get SDI does make easier for those following us! Congratulations..
Penelope, You are inspiration for us all....to deal with our problems head on instead of sticking our heads in sand or like me procrastinating. I never used to be one...but over years as my health decreased i am more and more. this year i am going to also push myself out of my comfort zone!
I do feel like you. When I left my job 5 yrs. ago I wrapped myself in misery. Lost all friends and family except my mom. Unfortunately she passed away since. She had fibro too, although when she passed away I wasn't diagnosed with fibro yet. I miss her terribly. I'm so lonely, and at times it overwhelms me. And I've tried getting back in touch, but no one understands that I can't do the things I used to. This spring I adopted an 8 mos. old puppy, and he's perfect. He makes me smile at least once a day, and it helps having something to look after. It gives me a reason to get up in the morning, and that's big. Plus, he's a cuddler. I'll talk to you anytime. hugs Charlie :)
i am sorry to be negative here, but back in the 80's i got hooked into new age things and knew the course in miracles backwards and forwards. the whole thing opened me up to a demonic curse from the witch or satan worshipper who rented my house. it was sheer hell, and i lived in such fear i had to go to a hospital to come off of all of the tranquilizers doctors had put me on. finally, months later, a catholic charismatic group prayed this curse off of me and introduced me to Jesus Who is the ONLY way. that was 27 years ago, and i've had a beautiful life ever since. i never feel alone as the Lover of my Soul is always with me. please be careful because things are not as they seem. marianne williamson talks a lot about love, but she is a deceiver...i lie...the whole movement is. the God of Abraham, Isaac, and Jacob IS LOVE, and i tell you these things out of deep concern and the love of God within me....bless you...
