I went to the MS specialist today. He said that the second MRI revealed lesions that the first did not show... so I have MORE lesions. I didn't even think about asking how many... I ordered more blood and this is to rule out Lupus, Sjorgens, and something else I can't remember. He said if these things come back negative than I have MS. I looked up Sjorgens and based on the fact that my Eye Dr. keeps telling me that my eyes are not producing tears... (the oil glands being stopped up) and that would be why my eyes constantly bother me and why I they seem blurry... this should be interesting.... I still have no doubt that I will test negative and my problems are MS... Fibro too... funny I am believing that when they flare... first the Fibro due to the cold weather... then the MS due to warm weather...
On a good note he said I WAS NOT HAVING strokes!!! My glass is half full!!!!!!!
HUGGS, Belinda
OOPS HE ordered more blood... not me ...LOL
Oh Belinda, I am so sorry! And it must be so hard, not knowing! How long must you wait for test results? But it's good that he's testing to rule out the other auto-immune illnesses. And I have read that the treatment for MS is much better now than it used to be.
I think that all of us with fibro secretly wonder whether we may also have an auto-immune illness, since they usually go hand in hand with fibro. Perhaps fibro is the pain caused by these "hidden" illnesses?
I'm glad you are here for us to talk to. No matter what your test results, we are here to listen to you and offer support
Many hugs to you, my friend,
Petunia
Petunia I go back on the 19th. Tests should be back in a week but they got me in as soon as they could. I am just thankful that I did not give up when my GP and Rhumy were telling me it was not MS... Well it may not be but none the less it isn't just Fibro either. I hate it when they don't listen to me... I know my body best and I know my mind and emotions and they have no idea what I have been dealing with. I try to explain even wrote the stuff down and had them add it to my records... but the next appointment I guess that didn't matter...
My glass is half full no matter the results... they can begin treating me properly. I still have Fobro. Nobody has said any different... but I also have something else.
Huggs, Belinda
Belinda,
It makes me both mad and sad to hear of how your former doctors treated your problems. I cannot stand or understand doctors who are not willing to listen and then explore. What if you do have MS and they had sent you home with no treatment? You would have had significant worsening of the symptoms and probably irreversible damage done. Not acceptable!!!
So, the 19th, huh? Well, I hope it goes by quickly for you. You do seem to be a strong woman so I think you will handle what is hounding you. I'm just really sorry that fibro had to throw you another curve ball (yeah, I do think auto-immune stuff is tied in with fibro.) Feel free to grab me if you need help.
Hugs and hope,
Petunia
Many a member has joined us here, Belinda, and then migrated to our lupus or sjogren's communities on diagnosis. I hope you get a diagnosis soon, so that you can get the most appropriate treatments, whatever your condition may be.
Not having strokes is very good news, and I am glad about that.
I know when I am waiting for major test results I can never wait. I usually end up calling the doctor's office (if need be repeatedly. lol) to get the results.
Good Luck,
Kim
So true, so true!
shmoots1 said:
I know when I am waiting for major test results I can never wait. I usually end up calling the doctor's office (if need be repeatedly. lol) to get the results.
Good Luck,
Kim