Finally some validation!!! I still don't know for sure but when you see the best Neurologist in the States and they say it looks like it... then .... They could not get my disc to load so just going by what is in the report... they are sending me to have another MRI done... she said the most powerful MRI in right there in Cullman Al. and that the MRI that I had done was no where near the quality. So that will be another wait to get in there.
Maybe finally I can get answers and treatment that will sort out the warped mess I am in. After I get the final results then I will have them give their diagnoses as to weather I actually have Fibro...
Sometimes you have to PUSH people around to get to the bottom of your illnesses... If somebody had listened to me 6 months ago or even years ago and tested me for EVERYTHING...like I told them... well EVERYTHING would include testing to rule out MS. If they had done this in the beginning when I was screaming for help because something was wrong...then maybe I wouldn't have as many lesions on my brain... even if it is not MS...it is something... and I will know what SOON. It has been a long stressful road to get to this place... I am now thinking about seeking a new GP...as she has tossed me to the curb, stopped listening to me and has become useless. I made my appointment with her for Monday... I will go over the results from the sleep study and the MRI and at that point I will know if I will be keeping her employed as my health care provider or not. The Neurologist who ordered my current MRI and diagnosed my tremors as action tremors who told me my MRI was good and no treatment was needed. FIRED!!!!! I wont be going back to him.
People we know our bodies best... we have to be persistent in getting the care we deserve. Make your Drs run the tests you need to rule out other things... Make them refer you to Drs. who can help you rule things out. The best thing I have done so far was the sleep study...very telling piece of the puzzle...
Good to hear you are probably going to get your diagnosis soon. From what you say, even if it is worst case scenario, at least it will explain what you have been suffering from. I agree with you about your Doc, you have to have a good relationship with them, and if they are not supportive you need to look for another one. Whatever happens, I wish you well.
Anne, My GP was very supportive last year when I employed her. This time around she just seems distant and on one track. when I told her that I do not believe I have Fibro. she then referred me to pain Management... I did say that I could have both but I told her straight up I thought I had MS and requested her to refer me to the best MS Neurologist I knew of... one knows he must be the best when people come from other countries to see him. Only time will tell exactly what is going on inside my head. I know this is not something anyone would want to have but at the same time the symptoms of Fibro. and MS run close together and many people are misdiagnosed. Many people have both. Main thing is to be tested. Fibro. does not have a way to test for it as we all know. MS does.
What is funny is the difference in my Husbands attitude since yesterday...I quit telling him about my issues a while back because he acted like he didn't want to hear me anymore and he was very pissy with me... well now with the reality that I was right and COULD possibly have MS he is different. I remember when I told him I was going to be refered to a Neuro. to be tested for MS. He looked at me any said " now that would be SOMETHING". That comment only showed me that he does not believe people have fibro. he only believes in what can be proven.... Yesterday he said " well I guess you weren't just making it all up". Like I would subject myself to 27 injections all over my body in one year ... Just because!!!!! Don't get me wrong he loves me but he like so many others has to have the PROOF. My support is here in this site...where people understand and can relate to the frustration. I do not need other people to validate my pain or the things I go through. I do not have to try to get other people to understand what is happening to me... I have a place to get things off my chest... to let it out... with people who KNOW.
I just hope I can find a positive attitude once again. I remember being positive...now I am just frustrated. I have so much to say...Sorry for always being long winded...