Hi gang it's SUZYQ.on Monday June 22 I started feeling very fatigued and no appetite.I didn't know what was causing the problems.I first thought it might be fibrous so I took 1 Tylenol every 6 hours and 2 Motrin every 4 hours.I stopped taking it on Thursday July 2 because I felt so bad.I called the primary Dr and stated the problems and said I didn't know if it was thyroid or fibromyalgia causing it so I asked if he could order a thyroid stimulating test and a vitamin d test.the vitamin d was normal but I was told I went from HYPOTHYROID low thyroid to HYperthyroid high thyroid and the thyroid dosage was changed from 125 mgs to 100 mgs.I took it for 1 week and my sister Beth called.She asked how I felt I said no better. She said it should be working by now .I said its only been 1 week.She said if I were you I'd call the Dr.I called my other sister CARA the next day.She's a former CMS and worked in a multi doctor practice,Phoenitians and now a nuclear imaging tech at a heart center.She said she agreed with Beth.I called the Dr again and made an appointment with the primary Dr yesterday Monday July 20.I was weighed,Blood pressure and pulse taken 6 times with a machine.The nurse asked why I was there.I said 2 reasons extreme fatigug and no appetioe but I eat.The Dr came in asked how are you and I replied.Not good very tired and no appetioe but I eat.He placed a pulsed on my finger and said your pulse is high.It was 106 I replied 've been busy walking the dog and getting ready to come to the Dr.The pulse dropped after he started .He looked in my throat and felt my neck.He listened to my heart and lungs sitting up and lying down.He asked if I was sleeping yes I replied and said I sleep from 9-9:30pm to 5-6am.He asked if I had any other symptogs like aches,pain,trouble with urine and bowels.I said no.He said you were here last year with the same thing and you weighed 159 then and 146 today.He asked how far I could walk and u said 1 block.He said if you were sitting in a chair at home,watching tv at home,slaying in bed, riding in a car would you Falk a sleep.I said at home I would fall asleepa but riding in a car I wouldn't because I would be talking to the person driving.He said he would ORDERED blood tests and To call tomorrow which is today July 22.I looked at the orders he ordered a chem panel,a metabogic panel, thyroid ,HYPOTHYROID,dilate,and B12.I talked to my aunt a nd she said it could be a cyclicel thing because I had it last year.When I was in school every tear just before Christmas I would get a cold I outgrew it.Does anyone have ideas what it could be could it be fibromoalgia or something else?I'll let you all know when I get the test results.Thanks gang I'm so glad to be part of this group.I'm sorry I haunt be online and greeting all our new members.Ilk try to do what I can to greet and wish Happo BIRTHday to all I can.Thanks everyone. SUZYQ
Hi Suzy, I am really sorry to hear you have been having such a difficult time. I am sending you lots of positive thoughts and hugs, please keep us updated on how you are doing. Hugs, Michelle
Hi . Sending you good thoughts for your well being that you can get some help for the symptoms you are having.
HUGGGGGGGGGGS
Suzie
HI gang it's SUZYQ,
I went to the Dr on Monday July 20 the Dr ordered 27 tests I called the Dr on Tuesday the next day and was told that all the tests were normal except for the thyroid stimulating hormone and the glucose they were both high.I'm having a A1C blood test tomorrow Thursday July 23 and depending on that result I could have a sleep apnea test.I lost weight from this time last year I weighed 159 and now I weigh 146.That's why the A1C and maybe the sleep apnea because of fatigue.I'll let everyone know when I have the latest test results. Thanks gang!
Hi SuzyQ! I am sending warm thoughts your way, as you must be pretty confused by the contrasting diagnoses. I wish I knew what to say! Please let us know how you make out, Suzie. I am very curious about your situation.
I guess that poor sleep could affect your appetite. And quite honestly, I feel that fibro can too. I go through cycles of lack of hunger then times where my appetite is ramped up. Another thing that can affect appetite is a stomache ulcer. Feels like you've swallowed a block of concrete. Also, kidney stones can make you feel nauseous and lose your appetite.
I hope you can establish the cause so you can work out a solution.
Good luck, Suzy!!!
Thanks Petunia Girl
I'm not sure if I'm having the sleep apnea test the Dr said we'd discuss having it.If the A1C and sleep apnea tests are normal I'll have everything faxed to my rheumatologist NP Kathleen Voelkner and have her look at it.I have a regular appointment in August.I googlet FIBRO.the symptogs and weight loss and fatigug are some of the symptogs.If everything is normal he'll tell me to see Kathleen.I'll let you know when I have results.have a GOID day!
Hi it's SUZYQ,
I called the Dr yesterday July 23 and received the A1C test results.It was 5.3 normal is 5.7.I asked if the Dr wanted to order the sleep study.The nurse said he had left for the day.I called this morning Friday July 24 he has morning hours on Friday if hrs there.The office was closed because his answering service answered the call.I said I'd call Monday.Have a GOID day and weekend everyone!
I CALLED THE DRS OFFICE TODAY TUESDAY JULY 28 AND WAS TOLD THE DR HAD ORDERED A SLEEP STUDY.ITS ON TUESDAY SEPTEMBER 15,2015 AT 8:30Pm.THE TEST IS OVERNIGHT.I'M STILL CONTINUING MY THYROID TESTS UNTIL THE LEVELS ARE BETTER AND I FEEL BETTER.THANKS GANG HAVE A GOOD EVENING!
HI GANG It's SUZYQ I'M GETTING WORSE.I CALLED THE DR TODAY FRIDAY AUGUST 7 and told the nurse Sue I'm still tired,fatigued,no appetite but eat.Now on Monday August 3 I went to sleep at 7pm and woke up on Tuesday August 4 at 7am.I told her I go to sleep 9-10pm and wake up 5-6pm.I also went to sleep Wednesday at 8pm woke up Thursday at 6am went to sleep at 7pm.I'm too tired don't have the energy to wash and moisturize face,glass and brush teeth,or wash dishes at night.I also WAIT 2-3 days before walking down 2 long halls to the mailbox and don't want to cook even simple things.I have another Dr. Appointment Monday August 10 at 1pm.Have a good evening and weekend gang!
Hi it's SUZYQ I went to the Dr on Monday August.10th.I told the nurse Sue and the Dr I'm still having the same symptoms but it's getting worse.He examined me again,Looking in my throat,at my eyes,Listening to my heart and lungs ,asking questions.He looked at the chart and said all your tests are normal and you don't have any physical symptoms like hard to breath,pain,digestive issues.He said when I told him it's not that I don't want to be at all my usual activities its I can't.He asked what would happen.I said I'd be very tired,fatigued and exhausted.He said why don't you go back to work.I said I can't I'm too stiff and I have fibromyalgia.My girlfriend Joan said she's on disability.I said I asked you to sign my disability papers and you DoD.I hired an attorney and I went with affidavits from Joan and my firmer supervisor Diane stating I couldn't work.I went to the hearing and the 've expert testified I wasn't able to do any job including a desk job.He said are you depresses I replied no.He said you may be depressed and nit know it.I want you to do 2 things take this Effexor and take 4 walks each day.I said I'll take my dog Heidi for 6 walks and 1 walk to get the mail each day.I'm to come back on September 9.I also told him I was having all the records copied to take To my RHEUMATOLOGY NP next Tuesday
He said have her write my a letter.I replied I will. Have a GOID day I'll let you know what happens next week.
Hi it's SUZYQ,
I went to see my RHEUMATOLOGY NP Kathleen Voelkner on Tuesday August 18.She walked into the expansion and said how are you?I replied I'm sick and need answers.My best friend Joan and I explained in detail what had happened since June 22.She looked at the lab results and all the doctors notes.She did an exam and asked many questions.Joan was very concerned because I have given up a lot of my activities and cooking because of the fatigue.Her diagnosis is when the thyroid went from hypothyroidism to HYperthyroid it caused a fibroblasts.That's why I'm so tired weak,tired,lost 14 lbs,no appetite but I eat.The primary doctor ordered a sleep study and prescribed effector.Kathleen said to have the separatist and keep taking the Effexor.She also prescribed aromatherapy from September 1To November 17at the local hospital.I told her I liked the warm water exercise in the pool.I gave her a big hug and said thank you I knew you would have the answer.It'll take time but I'll get better.She also ordered 3 blood tests:ALDOLASE S. MAYO LAS, CREATINE KNASE TOTAL,ELECTROPHORESIS W/TOTAL PROTEIN SERUM.I have the test results for the.CREATINE KINASE TOTAL.The normal range is 40-198 and mine 70.The tests are for muscle weakness.If they are abnormal it indicates muscular dystrophy or another muscle disease.I'll get better and I can come and talk with the FIBROgroup.Have a GOID day!