JayCS’s Fibro Blog

Symptoms & Treatments
1001

2022-11-07, Monday - Energy 25-15-20% / Sleep 85% / Feeling 80%-ish

Learnt: :student: Jab ingredients…
ToDo:
:ambulance: 5’ Worry time, 5’ plan time, 1-2h me time. :face_with_monocle:/:white_check_mark:
:ambulance: 15’ max. without sleeping. :white_check_mark:
:ambulance: Try keeping eyes open as long as possible.:face_with_monocle: :white_check_mark:
:ambulance: Stop sitting on hard surfaces. :white_check_mark:
:ambulance: Back exercises evening and short at night. :white_check_mark:
:ambulance: Set alarm to limit longer night breaks. :white_check_mark:, but didn’t work well.
:ambulance: Find if/how palpitation acupressure works. :white_check_mark:, may have worked.
:ambulance: Use eye mask & dark room more if I’m late. :white_check_mark:
:ambulance: Roll out mat 2xd for back exercises. :face_with_monocle: :white_check_mark:
:ambulance: Xylit powder after meals for teeth! :white_check_mark:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (30%), depression 0

Triggers & resulting Symptoms

Jab#3 2022-11-07 at 12:10. Symptoms…:
12:33 dizzy, slight nausea (slight pain under right hip and in back?), weaker heavier, (post nasal drip, possibly from B3 though)
12:40 & 13:450 slight frontal sinus burning, nothing to mention yet.
13:05 white lips, head “turning”
13:37 sore throat starting up, nausea stronger despite nux vomica at 13:20.
13:50 sore throat back down from HWB. Fog30%.
14:00 slight headache from touch (pulled back from it).
14:04 very itchy eyes, or is that from eye cream?
14:07 nausea better (not moving around), but still burping, so I think it’s a gut reaction.
14:25 fog25% and nausea40%
14:38 itchy left cheek:creamed both, then better.
15:00 First meal, hoping the nausea gets less, but doesn’t first. Watching for histaminey symptoms. 15:40 no nausea, no burping.
15:50 esophagus block severer than usual, from mozzarella after taking pills, is there a mast cell involvement as well after all. Now I’m knackered from that, so anything else that happens now can be that too.
16:17 left arm starting to ache. Fog20%
16:30 itchy eyes starting up again, altho not eye cream. Gua Sha :white_check_mark:
17:40 after a short slow cycle-walk and shop nausea starting up (2h without and only B3-symptoms, hardly anything from the jab).
18:42 oral temperature 37,0 (this morning my frontal temperature was 36,3°C and in the last weeks the oral temperature was between 35,8 and 37,0) Nausea40%.
Reading up that of course nausea, fever & tiredness are typical normal short term side effects, so all this is just to track how long they actually continue in my case.
First summary: First side effects after 20’: dizziness, nausea, fog, weaker, heavier, white lips (my wife saw). Other alternating symptoms like small local pains, itches and sore throat I’m managing to treat and get down again quickly. Watching for differences, tackling everything that comes up with zero tolerance as long as I can instead of avoiding triggers…
This first day could all just be “normal” vaccine side effects. Fatigue, fog, white lips started, but improved again, only nausea is remaining, and I’m just pushing thru, since energy is OK.

SLEEP (click for details): 8h26, up 6x (1h41), 8h deep. 🧐 ➔ Feeling 80-90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 20% stuffy 20% of the night.

A3 cold shower p0 Sleep 23:25- Why not 21:00? nervous. ear plugs?
Memos: Lower Back: Back exercises in short stints, 6 free/chair, twist-stretched. backstretching. Yoga & hanging. massager. teeth
0:40 5’ 90%/1/10% p0 st1 sip fw1’ deep air A4+Rupatadin. nostrils20%
1:30 10’ 85%/1/10% p0 st1 sip fw5’ deep air nostrils5% teeth
3:05 20’ 85%/1/10% p0 st1 sip fw1’ deep air nostrils5%
4:43 43’ 90%/1/10% p0 st1 sip fw1’ deep air alarm2x10’ psyllium 6-2long.
5:52 13’ 80%/1/10% p0 st1 sip fw1’ doze ear plugs stomach burn from psyllium, but eating no problem for lipids? Ate a little, but surprisingly didn’t help well - seems I should stop the psyllium again.
7:45 10’ 90%/1/10% p0 st1 sip fw7’ deep air
-9:32 9:35 B1-4 0’ in sun stools firm
Sum: 35+9h32-(5+10+20+43+13+10=)1h41 = 10h07-1h41 = 8h26, up 6x (1h41), 8h deep.

ACTIVITIES (aim: 40% energy) ➔ ACHE: Just the jab, plus short slow cycle-walk and 10’ shop ➔ 60-80%/2 :white_check_mark:/:x:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Anti-histamine 4h before the vaccine.
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Got the remaining bloods when at the cardio for my jab, and my B3 is 3x the max., which is OK, but B2 is deficient now, so need to check that!
Online course ACT (acceptance and commitment therapy) starting Oct 24th.
RSM Webinar on fatigue on Oct 25th.
Chinese Acupuncturist - Session #32 on 4th., after 14 days :white_check_mark: Energy the last 2 weeks was 25% this and last weekend, but 15% Tues-Fri this week.
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th, doubt she’ll be able to help. But doesn’t matter, cos I can learn, understand and remember just by explaining to her. And it’ll be fun getting her confused. :rofl:
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 86'

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 4x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, plantar/calf stretch 6x1’, acupressure 2x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 5x1’, yoga/stretching 5x1’, sun 2x5’.
Combine: next?
:x: hunchback-pillow 20’, neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 4th (42 supps): Supp costs:~340€/m (Nov 4th). CHANGED: Fisetin and Olive Leaf Extract have run out Nov 7th, not sure if I'll be able to see if it makes a difference cos of jab#3. Trying psyllium at night from Nov 5th on, may need to switch to a pure form cos of my teeth. +Cu again for 8 weeks from Nov 4th, cos - in August, forgotten October, needed to counteract ++vit.C. "A1" is now (since Nov 2nd) just sleep stuff except acids, and earlier, at 19:00 or 18:00: Magn. malate & threonate, luteolin and passiflora. Got quercetin and feverfew again today, Nov 4th, after about a week - praps energy going down was that? Ordered Levagen+-PEA now, cos seems 1.75 more bioavailable. Ordering luteolin in 1-2 weeks. Increased B3/Niacin/nicotinic acid powder from Nov 1st on to 0.5, 0.5, 0.4g (evening less), now +0.1. Nov 4th: Results of B1, 2, 3 and 6 not there yet, probably get them on Monday (7th), whilst B12 is sky high, so I can space the B12-jabs out for months again. New idea: Creatine. Praps trying ATP again, encapsulated, since my phosphate is deficient. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Nov 4th (41 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 400mg, B3/Nia 2x500+400mg, B12 1x5mg/4m, C 2x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, NADH 0x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
0 Added a 0.25 GABA?
/19:50 “16:15” preparing pills
/19:40 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
/19:50 “18:30” myo-inositol (try → every evenings) + teeth
/20:30 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0-1P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 400mg B2 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C)
Meal -21:00 ’
/23:00 x21:20 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/23:00 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon
/0:40 “23:00” A4 300mg GABA + teeth + Rupafin.
/5:00 Psyllium - > stomach ache)
/09:35 B1-4 0’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 5’ in sun 10:35-10:55 Teeth
/10:55 0’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/10:55 “after muesli” C5 glutathion
/13:55 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
15:00 “14:00” 0 Meal ’ in sun
15:40 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
16:00 “after lunch” D3+ glutathion
->16:40 “16:15” teeth
“16:15” preparing pills
/19:40 18: 0 in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 4th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today:
Looking at the vaccine ingredients here I’m surprised firstly that the Pfizer contains neither PEG (the Moderna does), nor latex (neither of these nor J&J do), so I don’t know why my allergists tested for these. The 3 lipids mentioned aside from cholesterol are only noted by their long names, the short names are ALC-0315, ALC-0159 and DSPC, to be found on wikipedia as “adjuvants”.
Lessons in self-care #472 No TT before the jab, and of course not after.
Reasons to be cheerful #488 Energy quite good, despite again less sleep…
Reasons to be cheerful #489 Even more balcony blossoms today, plus bought one new one, Cyclamen, purple blossoms.