JayCS’s Fibro Blog

2022-11-16, Wednesday - Energy 20% / Sleep 70% / Feeling 70-80%-ish (nausea same, shakiness better. The burning is down, but cold type & stomach symptoms up. Jab-sfx still a lot better than expected, esp. energy.)

Successes:
:trophy: 6 games of table tennis, as effortlessly as possible.
:trophy: Found out how to get my notes & memo apps to self-organize even better.
:zap: “How Are You?” points to the core of our existence, no wonder if we are different that it triggers loads of thoughts and emotions at the same time.
Learnt:
:student: Found an old note that 5-HTP can make you awake more, before it helps sleep - that’s another thing to note in case I try specks again.
New Habits: :new: (15th: 3 less, changed several, 1 more, added marks)
:ambulance: 5’ Worry time :white_check_mark:, 5’ plan time :white_check_mark:, 1-2h me time.:white_check_mark:
:ambulance: Back: More exercises :white_check_mark:, hanging :white_check_mark:, massager. :white_check_mark:
:ambulance: Roll out mat 2x/d for back exercises. (:white_check_mark:)(:white_check_mark:)
:ambulance: Teeth every bathroom time, 1h after meals, 30’ from nux :white_check_mark::white_check_mark::white_check_mark:(:white_check_mark:)
:ambulance: Yoga Nidra if tired after lunch or not tired in evenings (:white_check_mark:)
:ambulance: Never “twist” torso while or after eating :white_check_mark:
:ambulance: Cold shower every time I get lower back unrest. :white_check_mark:
:ambulance: Stop psyllium at night (:white_check_mark:)
:ambulance: Calves: massager​:white_check_mark:, heat(:white_check_mark:), stretches :white_check_mark:, squat :white_check_mark:, arnica :white_check_mark:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (30%), fog 2 (10%), headache 0 (5%), GI 1 (60%), depression 0

Triggers & resulting Symptoms

[details=“JAB#3 (2022-11-07)/MCAS/histamine-Symptoms/Triggers/Treatments (click for details): “20%” altogether. Sinuses, paranasal and frontal with headache 15%, nausea 20%, white lips 0%, “ill ache” off and on 0%, sliding around indoors 0%, burning tongue %, nostril-‘cold’ 30% from 10:10 on.”]
Jab#3 2022-11-07 at 12:00 (H1 2nd gen. antihistamine 4h before it and every evening)
Increasing: GI problems, cold symptoms, cold. Keeping histamine down, so burning.
nausea: 0% → 10/20% off and on.
sinuses: 0% → (headache) (nostrils) Only cold symptoms from 10:10 on.
“skating”: 0%
white lips: 0%
eyes: 0%
specific Ill Ache: 0%
[/details]

[details=“SLEEP (click for details): 7h30, up 4x (1h16), deep 7h. :white_check_mark: ➔ Feeling 90-70% well, Ache 1 of 7 :white_check_mark:, getting up: 80%/1 :white_check_mark:. Nostrils 20% stuffy (& sinuses, headache, nauseous, stomach, whitelips70%) “20%” of the night. 1st regular challenge: not tired cos sleep supps too late cos of starting blog & thermometer too late cos of getting carried away with work & digital supp sorting. 2nd regular challenge: lower back unrest as soon as I lie down despite shower and finding what helps. 3rd regular challenge: nauseous stomach pain, praps worsened by psyllium. Not as challenging for sleep is the sinus burning etc..”]
alternating shower A4 P0 Sleep hang 0:40- Why not 21:00? Not tired, like all the other days. Sorted supp info. Mindfulness.
Memos: Lower Back: Back exercises in short stints, 6 free/chair, twist-stretched. backstretching. Yoga & hanging. massager.
2:05 4’ 90%/1/15% p0 st1 sip fw1’ deep teeth
6:00 10’ 70%/1/15% p0-1 st1 sip fw1’ deep air psyllium#1 nostrils20% HWB#2 Sinuses20% (headache20%) → nauseous20% stomach20% whitelips70% sore throat5% burning5% plugs. cream, gel… doze…
6:30 60’ 70%/1/15% p0 st1 sip fw1’ doze stomach100% → muesli a few mouthfuls. everything else down to 10%, except praps whitelips? More muesli and while I’m eating anyway it: 7:15 C1-4. A’sYoNi10’
7:56 2’ 90%/1/15% st1fw1’ doze → deep A’sYoNi10’
-9:26 : B1-4 ‘ in sun, stools firm?
Sum: 9h26-40-(4+10+60+2=)76 = 8h46-1h16 = 7h30, up 4x (1h16), deep 7h.
[/details]

ACTIVITIES (aim: 40% energy)ACHE: ➔ TT 3:3=6! (mate cheating using puddles ;-P) ➔ 80%/2 :white_check_mark: housework ➔ 70%/4 :cross_mark:
ACTIONSPAINS: except GI: stomach burning 80% :cross_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark: lower back unrest :white_check_mark:/:face_with_monocle:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:, except “cold”-feeling 70%.

Treatments

Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th, about 2h per week.
Chinese Acupuncturist - Session #32 on 4th., after 14 days :white_check_mark: Energy pretty stable at 20%, despite jab-nausea.
Session #33 indefinite. I don’t feel it has to be this week.
Alternative health practitioner: appt. on Dec 6th.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 2h02 (RR: )

white_check_mark: airing 3x2’, cold shower 0x(10’), warm shower 1x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 4x2’, HWB 4x3’, breath exercises 6x1’, Y. Nidra 20’, massage gun 4x3’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 2’, back 7’, !!aloe vera 0x1’, twist-stretch 6x1’, yoga/stretching 2x1’, sun 3x5’, hang 3x1’. hunchback-pillow 5’, wart 2x1.

RR:
Combine: next?
:x: neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 15th (42 supps): Supp costs:~359€/m. CHANGED (15th): 15th: Resuming olive leaf extract, starting Levagen+PEA, ordered TMG on 14th.15th: Special glutathione forms have not been proven better than the normal form, so re-ordered that. Nov 14th: Increasing B2 from 1x to 3x400, cos of the deficiency (max 1.5g)! if that doesn't work (cos of praps SIBO) use the normal riboflavin instead of the R-5-P=FMN-form. 14th: Increasing B3/Niacin/nicotinic acid powder to 0.8, 0.8, 0.6g (evening less). 14th: Need to remember A1 early. 7th: Check fisetin. 13th psyllium at night now in almond milk - praps better pure/organice?: what about pectin? 4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th. 4th: Since quercetin & feverfew energy better. New idea: Creatine. Praps trying ATP again, encapsulated, since my phosphate is deficient. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn.

REGULAR as of Nov 15th (42 supps, + olive leaf, B5, TMG): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 3x400mg, B3/Nia 2x0.8+0.6g, B12 1x5mg/4m, C up to 3x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 0x196mg. Ga: back to 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: 0.6g, Glutathione 4x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract 0-(1)x.75, P5P 0x27mg, Levagen±PEA 1x0.4g, Ps (Pe?), Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin), The 2x.2g (+.15g polyphenols).

What-when-details: Updated Nov 14th
0 EARLIER!
20:00… “16:15” preparing pills
/20:00 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
/20:00 “18:30” myo-inositol (try → every evenings) + teeth
/20:50 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0(-1)P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 500mg B2#1 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C)
/Meal 20:15 ’ +xylit. Back exercises. Soak seeds.
/21:20 “20:30” pre-A3 agigenin 1h before bedtime + teeth
0 “20:30” chamomile
/22:10 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon + 1 Rupafin.
? “23:00” A4 300mg GABA + teeth
1 Psyllium.
/10:15 B1-4 5’ overcast “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 0(-2)xNADH.+Rut. Back exercises. Soak seeds.
temp
Teeth.
/6:45 Meal 0’ in sun
10:00’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 500mg B2#2. 2x eleuthero. 1x hup. 0(-1)OlivLeaf#1
0 “after muesli” C5 2xglutathion
0 xylit
0 teeth
/12:00 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/13:00 gastritol instead of nux
/15:15 “14:00” 0 Meal 10’ in sun
/16:20 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 0(-1)OlivLeaf#2, pine#2. B2#3 cos of severe deficiency.
/16:30 “after lunch” D3+ 2x glutathion
/16:30 xylit.
/18:15 “16:15” teeth
->18:30… “16:15” preparing pills, blog
->19:20 “16:15” nux
/18:30 A1 “18:00”
/18:45 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
/18:50 umckaloabo
/19:35 15’- myo-inositol
19:50 Eat
A2 + apigenin
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 15th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3: 0,8A2,0,8C3,0,6D3. C:2A2+2C3+2D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. myo-inositol (15’ before meal 1x/(2)d) A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B1:0Fis.B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: Bits’n’bobs when interesting supp notes come up out of the archives.
ToDo: RSM Webinar on fibro on Oct 10th, on fatigue on Oct 25th, on lipids Nov 15th - still need to get round to that and the MCAS summit before that.
Lessons in self-care #481 Using notes better to organise even better.
Reasons to be cheerful #509 Magpie & pidgeon let me come near.