2022-11-09, Wednesday - Energy 15% / Sleep 85% / Feeling 80%-ish
Successes: … …
Learnt: …
ToDo:
5’ Worry time, 5’ plan time, 1-2h me time.
15’ max. without sleeping.
Try keeping eyes open as long as possible. ()
Stop sitting on hard surfaces. ()
Back exercises evening and short at night.
Set alarm to limit longer night breaks.
Find if/how palpitation acupressure works. ()
Use eye mask & dark room more if I’m late.
Roll out mat 2xd for back exercises.
Xylit powder after meals for teeth!
–
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (25%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
Jab#3 2022-11-07 at 12:00. Symptoms…
Night: None. Resting: None. Hoovering for 8’ at 12:55 a bit exhausted, strong nausea and burping, so stomach/gut playing up. 14:00 still. Trying nux vomica ->14:10. Whoops, drank before. 1-2x3-5 glob/d, best 30’ before and after drink/eat. So best later and watch if/when it goes away itself… I think yesterday eating helped and I have been hungry for quite a time. 15:40 no nausea during & after meal, but little energy/stiff. From a bit of anecdotal experiences it sounds as if that is stomach rather than gut.
SLEEP (click for details): 8h04, up 5x (1h27), 7h deep, no sfx. 🧐✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 5% stuffy 20% of the night. No sfx. Antihistamine helping sleep.
A3 teeth 0cold shower p0 Sleep 23:45- Why not 21:00? Prioritizing! And needed Me-Time after everything was late due to phone call 19:00-20:00 and wife need Us-Time.
ear plugs?
Memos: Lower Back: Back exercises in short stints, 6 free/chair, twist-stretched. backstretching. Yoga & hanging. massager.
23:50 50’ 80%/1/10% p0 st1 sip fw1’ deep air A4 radiating LBU->FCS#1 6 HWB#1
1:35 5’ 80%/1/10% p0 st1 sip fw1’ deep air. cold!
2:50 12’ 80%/1/10% p0 st1 sip fw8’ deep air. bit cold.
5:30 10’ 90%/1/10% p0 st1 sip fw6’ deep air
7:50 10’ 80%/1/10% p0 st1 sip fw1’ deep air ear plugs mask B1-4, no sfx
-9:16 doze p0 stools firm?
Sum: 15+9h16-(50+5+12+10+10=)1h27 = 9h31-1h27 = 8h04, up 5x (1h27), 7h deep, no sfx.
Memo: Need to ask mates for coriander
ACTIVITIES (aim: 40% energy) ➔ ACHE: Rest all day ➔ 80%/1 , hoovering 8’ made me nauseous for a few hours, but energy was OK.
ACTIONS ➔ PAINS: except: neck , GI: firm stools urgent at 22:00, then foul diarrhea at 23:35 - what was it that was laxative?? /, esophagus , jaw x5’’ , pee pain: 0xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Anti-histamine 4h before the vaccine.
Touch: Covid: Weather: Indoors Outdoors .
Treatments
Docs:
Took note for the first time that my leukocytes are now considered deficient, not just B2, but at 3.83 which is below 4.0, but not below 3.0. One reason could be B12 or iron being too low, but neither are.
Online course ACT (acceptance and commitment therapy) starting Oct 24th.
RSM Webinar on fatigue on Oct 25th.
Chinese Acupuncturist - Session #32 on 4th., after 14 days Energy the last 2 weeks was 25% this and last weekend, but 15% Tues-Fri this week.
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th, doubt she’ll be able to help. But doesn’t matter, cos I can learn, understand and remember just by explaining to her. And it’ll be fun getting her confused.
3rd jab on Nov 7th…
SELF-PHYSIO (click for details): 1h49
airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Y. Nidra 5’, massage gun 0x3’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 3x1’, sun 3x5’. Yesterday neck 3’ too. breath-hold 11’ (12:05), 12’ (15:55). hunchback-pillow 5’,
Combine: next?
neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Nov 4th (42 supps): Supp costs:~340€/m (Nov 4th). CHANGED: Fisetin and Olive Leaf Extract have run out Nov 7th, not sure if I'll be able to see if it makes a difference cos of jab#3. Trying psyllium at night from Nov 5th on, may need to switch to a pure form cos of my teeth. +Cu again for 8 weeks from Nov 4th, cos - in August, forgotten October, needed to counteract ++vit.C. "A1" is now (since Nov 2nd) just sleep stuff except acids, and earlier, at 19:00 or 18:00: Magn. malate & threonate, luteolin and passiflora. Got quercetin and feverfew again today, Nov 4th, after about a week - praps energy going down was that? Ordered Levagen+-PEA now, cos seems 1.75 more bioavailable. Ordering luteolin in 1-2 weeks. Increased B3/Niacin/nicotinic acid powder from Nov 1st on to 0.5, 0.5, 0.4g (evening less), now +0.1. Nov 4th: Results of B1, 2, 3 and 6 not there yet, probably get them on Monday (7th), whilst B12 is sky high, so I can space the B12-jabs out for months again. New idea: Creatine. Praps trying ATP again, encapsulated, since my phosphate is deficient. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Nov 4th (41 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 400mg, B3/Nia 2x500+400mg, B12 1x5mg/4m, C 2x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, NADH 0x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
/ Added a 0.25 GABA?
/19:00-20:00 “16:15” preparing pills
/19:00 18:00 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
0 5’ empty = praps-worry time.
/19:45 “18:30” myo-inositol (try → every evenings) + teeth
/20:45 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0-1P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 400mg B2 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C)
/20:00-20-45 Meal -20:30 ’ +xylit
/21:40 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/22:00 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon + 0 Rupafin.
/23:50 “23:00” A4 300mg GABA + teeth
0 Psyllium.
/8:00 B1-4 0’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Teeth. Meal 15’ in sun 9:25-40
/9:45 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/ “after muesli” C5 glutathion +0xylit
/11:00 teeth 12:05 breath-holding
/12.10 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/14:50-15:20 14:00" 0 Meal 15’ in sun
/15:10 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
/15:30 “after lunch” D3+ glutathion + 15:40 xylit
/16:35 nux vomica
→ 17:05 “16:15” teeth
/17:45 18: D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
/18:00-18:20 “16:15” preparing pills
A1 “18:00”
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)
The day's 16 supp-compartments (10', plus 5' making capsules), Nov 4th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
Development
‘Research’ today:
Distinguishing hyperaesthesia from paraesthesia - summary in bold type, details after that:
In any case for nerves we can try
1) B-vitamins, and here I’d suggest getting all B-vitamins checked specifically for all of: B1, B2, B3, B5 (see below), B6, B9 and B12 and then taking what you’re low or deficient in, if necessary hyperdosing, in my case B2 and B12.
2) Then good magnesiums - malate (fibro pain), glycinate, threonate (sleep, mind) aren’t laxative in normal dose.
3) TENS unit or other forms of distracting sensations like stroking.
4) Relaxation exercises for de-stressing, incl. anxiety about it, possibly (“good”) counselling/therapy if so inclined. The stress can be cause, or “just” the effect and then again cause.
5) youtube “exercises/treatment” for peripheral neuropathy, circulation, “feline hyperesthesia” (see below) …
6) The vet Dr Becker suggests chiropractic (etc.) for cats, in case it’s muscular, praps possible here too.
7) But for “paresthesia exercises” and “paresthesia treatment” etc. youtube also throws up exercises for pinched nerve, meralgia paresthetica, arm nerve pain… which we can then again put in according to what seems most likely.
#1-7 would be interesting for paresthesia, but #7 not for e.g. the allodynia form of hyperesthesia.
By the way: to get better/more results on youtube you can click on “filter” above left and then on “videos”.
To see if a neurologist can help, deciding it’s probably nerve related is enough, I agree. But as they usually can’t or if we don’t want meds anyway, exact symptom description and likely diagnoses can point us to fine differences. Being precise has made me able to control most of my symptoms without any meds: My (quality of) life saver!
We may be able to identify different triggers and find different forms of prevention and treatment.
Main difference maybe that for paresthesia we can perhaps find localized nerve treatment = exercises.
In the following if anyone’s interested I’ve described in more detail how I’d look for treatments for this aside from B-vitamins as well as good magnesiums, a TENS unit or similar to try to “distract” the nerves (I often have success with just stroking on or next to the body part concerned).
After my recent phosphate deficiency shock, the next shock is vitamin B2 deficiency despite having been supplementing 300x the RDA for a month and 150x before that. Lots to research on that now. I’ll probably have to get it injected. (This has sent me down the “new” rabbit hole that B5 might be good for me incl. my lipids & energy, but also for skin tenderness and (RA/)stiffness…!)
For treatment using youtube if I put “hyper(a)esthesia exercises” in I get things like exercises for “peripheral neuropathy exercises”, “blood circulation”, “how nerves get oversensitive” and “feline hyperesthesia”…
very helpful the short “How To Help Cats With Feline Hyperesthesia | Two Crazy Cat Ladies” - social stressors, nutritional studies), exercise, chemicals, different diet may help (support group type), or long “Why Feline Hyperesthesia is like Raiders of the Lost Ark!” (doc/study: it’s often something else).
As opposed to cats we can try to analyze it more closely, before trying the many routes… But seeing how cats react may “feel” familiar… and treatments types for them may be similar for ourselves.
But if I put in “paresthesia exercises” I not only get peripheral neuropathy, but also numbness and tingling, pinched nerve, meralgia paresthetica, arm nerve pain.
Also I just saw that adjusting the youtube “filters” above left to “video” I don’t get these “also watched” suggestions any more, at last.
BTW looking for “sunburn sensation/feeling” on youtube I only get “sensitive and burning Skin from Anxiety - explained!” This doesn’t start with nerves, it points first to a stress response, which redirects blood inside from the skin, making the nerves react. That can in turn make us worry about it, cos there isn’t any real danger. Or a direct stimulation of nerves by stress. Both in a vicious circle. After panic attacks they’d stop faster than if due to persistent stress. Relaxation and praps therapy/counselling might help, if it’s that. This stress explanation is similar to a central sensitization explanation
I actually find the IASP’s most recent distinctions interesting and useful (although I find the coining of “nociplastic pain” premature).
Dysesthesia for unpleasant abnormal sensations, paresthesia for abnormal sensations, spontaneous or evoked, partly including unpleasant ones (in that sense your diagnosis ?paresthesia would still hold true).
Whilst hyperesthesia is a different world, an exaggerated reaction: they say it’s important to distinguish between
a) touch and thermal sensation,
b) if certain triggers or all triggers,
c) where it’s located,
d) with pain or without,
e) if with pain: hyperalgesia (pain from something painful, but stronger) or allodynia (pain from sometimes even gentle touch, meaning it “jumps over” from touch to pain).
Also it doesn’t as I’d thought refer to the special senses (vision etc.).
Lessons in self-care #474 Good not to move…
Reasons to be cheerful #491 Prioritizing is working, getting my time management good now.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries