2022-11-20, Sunday - Energy 15% / Sleep 90% / Feeling 70-80%-ish (struggling with fatigue & nausea)
Successes:
Managed an almost pure cold shower again, I think that’s the first time since jab#3.
Again NO trophy: for doing back exercises late…
New Habits:
5’ Worry time (
), 5’ plan time (
), 1-2h me time.(
)
Lower back: More exercises (
), hanging
, massager
, HWB (
)
Roll out mat 2x/d for back exercises. (
)(
)
Teeth every bathroom time, 1h after meals, 30’ from nux
(
)(
)
Yoga Nidra if tired after lunch or not tired in evenings (
)
Never “twist” torso while or after eating
Cold shower every time I get lower back unrest. (
)
Replacing apple psyllium with pure psyllium at night. (
)
Calves: massager(
, heat(
), stretches(
), squat(
), arnica (
)
Reduce chocolate cos of histamine
Drink even more when taking pills. Breaks?
Spit xylite out after rinsing my teeth with it, as it’s a sugar (lipids).
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (15%), headache 1 (50-5%), GI 1 (10%), depression 0
Triggers & resulting Symptoms
JAB#3 (2022-11-07)/MCAS/histamine-Symptoms/Triggers/Treatments (click for details): "20%" altogether. Sinuses, paranasal and frontal with headache 5-20%, nausea 0-60%, white lips 30-50%, "ill ache" off and on 20-30%, sliding around indoors 0-60%, burning tongue 0%, nostril-'cold' 0%, cold intolerance 10% (mainly cold shower possible). Nov 17th 15:00 breaking down 'ill'. 18th directly before getting up energy suddenly down from 20 to 10%. 10th/11th day after the jab.
Jab#3 2022-11-07 at 12:00 (H1 2nd gen. antihistamine 4h before it and every evening)
Increasing: Up and down at the moment.
nausea: 0% → 30% → 14:50 60% 15:40 50%… 16:00 30-0,
sinuses: 0% → (headache) (nostrils)
“skating”: 0%-20%-60%
white lips: 30% -50%
eyes: 60%-80% (“green-white face”)
specific Ill Ache: 20-30%
cold intolerance 10% - managed a cold shower for once at least. Should remember to put that here too.
SLEEP (click for details): 8h20, up x (27'), all deep ✅ ➔ Feeling ?80% well, Ache 1? of 7 ✅, getting up: ?80%/1 ✅. Nostrils ?20% stuffy ?20% of the night.
A3 teeth cold shower! p0 6 Sleep cream 0:30- Why not 21:00?
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
1:40 5’ 70%/3/15% p0 st1 sip fw1’ deep air A4
(nostrils0% nauseous5% Sinuses0% headache5% sore throat5%)
3:10 7’ 70%/3/15% p0 st1 sip fw1’ deep
(nostrils10% nauseous5% Sinuses5% headache5% sore throat10%)
4:55 10’ 70%/3/15% p0 st1 sip fw1’ deep air 2x
(nostrils10% nauseous5% Sinuses5% headache5% sore throat10%)
7:?? 5’ 70%/3/15% p0 st1 sip fw1’ deep air
(nostrils15% nauseous5% Sinuses10% headache20 → 50% sore throat15%) - neck → 30%: massager & HWB.
-9:17 70%/3/15% p0 st1 deep air
B1-4 9:40 5‘ in part-sun, stools firm
Sum: 9h17-30-(5+7+10+5=)27 = 8h47-27 = 8h20, up x (27’), all deep
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80-70%/2-3 ➔ TT 2:2(or 3:1?) (on ice) ➔ 70%/3 , resting ➔ 70%/3
ACTIONS ➔ PAINS: except GI: OK till wind/bloating at 18:00, no idea what that might be. /
, esophagus: Pressure after capsules at 16:00
/
, jaw x5’’
, pee pain: 0xp1-2
lower back unrest
.
Touch: Covid:
Weather: Indoors
Outdoors
. Putting on more, still OK.
Treatments
Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th, about 2h per week.
Chinese Acupuncturist - Session #32 on 4th., after 14 days “Energy still pretty stable at 20%, despite jab-nausea…”
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th.
3rd jab on Nov 7th…
SELF-PHYSIO (click for details): 96' (RR: 0)
white_check_mark: airing 3x2’, cold shower 1x(10’), alternating shower 0x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 3x2’, HWB 2x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 5x3’, plantar/calf stretch 5x1’, acupressure 2x1’, palpate 5’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 1x1’, yoga/stretching x1’, sun (2)x5’, hang 2x1’. hunchback-pillow 5’, wart x1. neck 1+ x1’, RR:
Combine: next?
neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Nov 19th (46 supps): Supp costs:~426€/m (19th): 19th Need to check the pill amounts per tub now that I'm simplifying the system for preparing them, they didn't seem correct.... 19th: Found some more I'd forgotten to take x30 for the monthly cost. Nov 19th: Changing from annoying small compartments to tubs for each time of the day will make me more flexible and stop things from jumping out easily. Nov 19th: Vit.C not with copper I found a note, so Cu in the evenings and vit. C the meals before till I get tat sorted. Nov 17th/18th: Resuming olive leaf extract and normal reduced glutathione, starting TMG (in same amounts as B3), trying pure/organic psyllium at night now in almond milk: then pectin? Adding aloe vera to this list. 14th: Started Levagen+PEA. Nov 14th: Increased B2 from 1x to 3x400, cos of the deficiency (max 1.5g)! 14th: Increased B3/Niacin/nicotinic acid powder to 0.8, 0.8, 0.6g (evening less). 14th: Need to remember A1 early. 7th: Check fisetin. 4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th. 4th: Energy better since restarting quercetin & feverfew. New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn.
REGULAR as of Nov 18th (46 supps: ALA .2g, aloe 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, B2 3x400mg, B3/Nia 2x0.8+0.6g, B5/Panto: 1-3x.5g B12 1x5mg/4m, C up to 3x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 0x196mg. Ga: back to 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: 0.6g, Glutathione 4x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract 2x.75, P5P 0x27mg, Levagen±PEA 1x0.4g, Ps (Pe?), Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin), The 2x.2g (+.15g polyphenols), TMG: as much as B3.
What-when-details: Updated Nov 14th: add B5, TMG, added aloe 18th
EARLIER!
0 +0.25 GABA?
18:50-19:10…21:00…21:30 “16:15” preparing pills
/18:55 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
0 5’ empty = praps-worry time.
/19:30 “18:30” myo-inositol (try → every evenings) + teeth
/21:00 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0(-1)P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 500mg B2#1 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C, not together with vit. C = 0.
/20:00-21:00 Meal 20: ’ 0 xylit. Back exercises late. Soak seeds/ aloe/ TMG/
/21:15 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/22:50 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon + 1 Rupafin.
“23:00” A4 300mg GABA + teeth
0x2 Psyllium.
0 added 250mg GABA.
/9:40 B1-4 5’ in “sun” “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 0(-2)xNADH.+Rut. Back exercises. Soak seeds.
Teeth
10:40-11:05 Meal 0’ in sun (cos of TT). aloe. TMG.
/11:50 ’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 3x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 500mg B2#2. 2x eleuthero. 1x hup. OlivLeaf#1
“after muesli” C5 glutathion
0 xylit
0 nux
/ teeth
/13:50 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/15:05-15:35 “14:00” 0 Meal ’ in sun +aloe
/15:45 “14:15” D2/3 ’ in sun 3x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2. B2#3.
/15:50 “after lunch” D3+ glutathion.
/16:00 xylit,
/16:50 “16:15” teeth
/17:35 “16:15” nux
/17:40 “16:15” preparing pills
/18:40 A1 “18:00”
/18:40 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
myo-inositol
Eat + aloe + PQQ+Ω3
A2 + apigenin
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)
The day's 16 supp-compartments (10', plus 5' making capsules), Nov 15th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B3: 0,8A2,0,8C3,0,6D3. C:2A2+2C3+2D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. myo-inositol (15’ before meal 1x/(2)d) A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B1:0Fis.B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
Development
Optimized the supp infos as from “tomorrow”, now I’m starting with a tub per intake. Corrected a few not so important mistakes, like not taking as much glutathione as I’d actually decided upon.
‘Research’ today: Only bits’n’bobs like deciding against further huperia and alpha GPC.
ToDo: RSM Webinar on fibro on Oct 10th, on fatigue on Oct 25th, on lipids Nov 15th - still need to get round to that and the MCAS summit before that.
Lessons in self-care #485 Managed earlier evening meds.
Reasons to be cheerful #514 Managed more than I thought, moving more, going out more, rather than being indoors helps.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries