JayCS’s Fibro Blog

Symptoms & Treatments
1019

2022-11-20, Monday - Energy 15% / Sleep 90% / Feeling 80%-ish (nausea same = 20%)

Successes:
:trophy: Not really.
:zap: Probably.
Learnt: :student: Probably.
New Habits: :new: (20th: 3 less)
:ambulance: 5’ Worry time (:white_check_mark:), 5’ plan time (:white_check_mark:), 1-2h me time.(:white_check_mark:)
:ambulance: Lower back: More exercises (:white_check_mark:), hanging :white_check_mark:, massager :white_check_mark: HWB :white_check_mark:
:ambulance: Roll out mat 2x/d for back exercises. :white_check_mark::white_check_mark:
:ambulance: Teeth every bathroom time, 1h after meals, 30’ from nux :white_check_mark::white_check_mark::white_check_mark::white_check_mark:
:ambulance: Find a better way to take pure psyllium at night. :white_check_mark:
:ambulance: Calves: massager :white_check_mark:, heat (:white_check_mark:), stretches :white_check_mark:, squat :white_check_mark:, arnica (:white_check_mark:)
:ambulance: Reduce chocolate cos of histamine :white_check_mark:
:ambulance: Drink even more when taking pills. Breaks? :white_check_mark:
:ambulance: Spit xylitol out after rinsing my teeth with it, as it’s a sugar (lipids). :white_check_mark:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-30%, stiff ?10%) + spine-pain 3 (?10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (?80%), insomnia 3 (?10%), fog 2 (?10%), headache 1 (?0%), GI 1 (?10%), depression 0

Triggers & resulting Symptoms

[details=“JAB#3 (2022-11-07)/MCAS/histamine-Symptoms/Triggers/Treatments (click for details): “20%” altogether. Sinuses, paranasal and frontal with headache 10-50%, nausea 0-20%, white lips 20%?, “ill ache” off and on 0%, sliding around indoors 0-10%, burning tongue 0%, cold intolerance 40%. Nov 17th 15:00 breaking down ‘ill’. 18th directly before getting up energy suddenly down from 20 to 10%. 10th/11th day after the jab. Sudden intolerance to cold shower I’d forgotten to say, except 19th.”]
Jab#3 2022-11-07 at 12:00 (H1 2nd gen. antihistamine 4h before it and every evening)
Increasing: No.
nausea: 0-10% → 20%
sinuses: 10-50% → (headache 10-20%) (nostrils 10-40%) at night.
“skating”: 0%-10% (also prevents nausea.)
white lips: 20%?
eyes: 0% 20%?
specific Ill Ache: 0%
cold intolerance 40%+ (couldn’t cold shower again)
[/details]

SLEEP (click for details): 8h35, up 4x (25'), all deep. ✅ ➔ Feeling 70-40% well, Ache 3 of 7 ❌, getting up: 70%/2 ❌. Nostrils 10-40% stuffy 100% of the night.

A3 teeth0 alternating mainly warm shower 2p0 Sleep 0:05- Why not 21:00?
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
0:45 10’ 70%/3/15% p0 st1 sip fw1’ deep air A4 cream
(nostrils10% nauseous10% HWB#0 Sinuses0% plugs0 headache0% sore throat0% stools firm0%)
1:45 5’ 60%/3/15% p0 st1 sip fw1’ deep air cream
(nostrils20% nauseous5% HWB#0 Sinuses10% headache10% sore throat%5)
5:00 5’ 60%/3/15% p0 st1 sip fw1’ deep air cream PSYLLIUM gel
(nostrils40% nauseous10% HWB#0 Sinuses20% headache10% sore throat%5)
7:20 5’ 40%/3/15% p0 st1 sip fw1’ deep air cream
(nostrils30% nauseous10% HWB#2 Sinuses50% headache20% sore throat%15)
-9:00 9:05 B1-4 ‘ in sun, stools firm
70%/2/15% p0 st1 sip fw1’ deep
(nostrils30% nauseous10% HWB#0 Sinuses50% headache10% sore throat%15)
Sum: 9h-5-(10+5+5+5=)25 = 9h-25 = 8h35, up 4x (25’), all deep.

ACTIVITIES (aim: 40% energy) ➔ ACHE: ➔ TT 2:2 (ice) ➔ 80%/2 :white_check_mark:, some housework, no shops, no further cycling. :white_check_mark:
ACTIONS ➔ PAINS: except GI: My best bet for yesterday’s wind followed by 2nd-half-diarrhea in the later evening is the broccoli I tried again, but I still think it’s unlikely & am suspecting something was off. :cross_mark: → :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark: lower back unrest :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Focal seizures: Nov 21st: 13:20 fairly sudden & severe, 14:15 similar. That time I was just thinking that taking GABA to relax my bladder muscles to prevent pain does embarrassingly keep having a slight tendency for a few unintentional drops before I manage to go - I’d always been proud I didn’t have that… :face_with_monocle: an aura 3-4h later.

Treatments

Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th, about 2h per week. 21st: At last was able to easily apply taste and smell mindfulness when I ate yesterday between listening and talking with friends a bit with closed eyes cos of nausea, helped distract from the nausea.
Chinese Acupuncturist - Session #32 on 4th., after 14 days :white_check_mark: “Energy still pretty stable at 20%, despite jab-nausea…”
Session #33 indefinite. Praps tomorrow.
Alternative health practitioner: appt. on Dec 6th.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): ' (RR: )

white_check_mark: airing 5x2’, cold shower 0x(10’), alternating shower 1x(10’), cream/oil fc/ey/hd/ft 4x1’, teeth 4x2’, HWB 2x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 3x3’, plantar/calf stretch 5x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 5x1’, yoga/stretching 5x1’, sun 2x5’, hang 4x1’. hunchback-pillow 0’, wart 0x1. neck 1+ 0x1’, RR:
Combine: next?
:x: neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 19th (46 supps): Supp costs:~426€/m (19th): 20th Checked & corrected the pill amounts per tub now that I'm simplifying the system for preparing them.... still differences. 19th: Found some more I'd forgotten to take x30 for the monthly cost. Nov 19th: Changing from annoying small compartments to tubs for each time of the day will make me more flexible and stop things from jumping out easily. Nov 19th: Vit.C not with copper I found a note, so Cu in the evenings and vit. C the meals before till I get tat sorted. Nov 17th/18th: Resuming olive leaf extract and normal reduced glutathione, starting TMG (in same amounts as B3), trying pure/organic psyllium at night now in almond milk: then pectin? Adding aloe vera to this list. 14th: Started Levagen+PEA. Nov 14th: Increased B2 from 1x to 3x400, cos of the deficiency (max 1.5g)! 14th: Increased B3/Niacin/nicotinic acid powder to 0.8, 0.8, 0.6g (evening less). 14th: Need to remember A1 early. 7th: Check fisetin. 4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th. 4th: Energy better since restarting quercetin & feverfew. New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn.

REGULAR as of Nov 18th (46 supps: R-ALA .2g, aloe vera juice 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, vit. B2 3x400mg, vit. B3/Nia 2x0.8+0.6g, vit. B5/Panto: 1-3x.5g vit. B12 1x5mg/4m, vit. C up to 3x2x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 2mg, vit. D3 20.000 IE = 500mcg, + vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, Ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2, Feverfew (fev) .4g (+.2g MSM), Fisetin (fis): 0x196mg. GABA (Ga): back to 3x0.3g+2x.6g=2.1g, ginkgo (Gi) 3x168mg, Glutamin (gltm, glu): 0.6g, Glutathione (gltt) 4x250mg, Hononkiol (Hon) (2%)x2x.4g=16mg, huperzia (hup) 1x0.2mg, Luteolin (lut) .2g, Ω3 1x5mg, Magnesium Glycinate (Mg gly) 2x50mg, Malate (Mg Mal) 2x45mg, Threonate (Mg threo) 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, P5P (= vit. B6) 0x27mg, Levagen±PEA 1x0.4g, Psyllium (Ps), passiflora (Pf) 3x.35g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, Rutin (ru): 1x522. SAM-e (Sa) .1g, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), L-theanine (The) 2x.2g (+.15g polyphenols), TMG: as much as B3.

What-when-details: Updated Nov 20th.
EARLIER!
0 +0.25 GABA?
/17:30 0 “16:15” preparing pills
/18:40 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
/20:10 “18:30” myo-inositol (try → every evenings) + teeth
/21:15 “19:30” A2=12+1 B2#1 "2"xvB3 B5#1 2Cr#1, PF#2, Qc#1. Cu .3gGABA CoQ10 (oil) TMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monk’s fruit. Cu with amino acids (to counteract high dose vit. C, but not together with vit. C?: 0(?)
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
/22:00 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/22:00 “21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
/0:45 “23:00” A4 300mg GABA + teeth
/1 Psyllium.
/9:10 B=11/ 5’ in sun “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM + Sily +2The
9:40 Soak seeds.
/10:05 Teeth.
/10:05 Meal ’ in sun. aloe.
10:05-30 10’ in sun C=23/ with meal: vit.B2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 TMG#2 alpha-GPC 2xEleu Hup 2gly PEA Rutin = 23. (vit.D3 1/wk) 20th: ONLY 22 IN THERE, WHAT’S MISSING? A TINY ONE?
/10:30 “after muesli” C5 2xglutathion
0 xylitol
/11:15 nux
/12:10 teeth
/12:55 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/14:30 “14:00” 0 Meal 0’ in sun
0 aloe
/14:50 “14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
/15:00 “after lunch” D3+ 2xglutathion
/15:00 xylitol
/16:10 “16:15” teeth
/19:00 “16:15” preparing pills
? 16:40 “16:15” nux
/18:50 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4, Rs#2, Ro#2
/19:25 myo-inositol
/19:30 A1 “18:00”
20:00 Eat 0 aloe /20:00 PQQ+Ω3
/20:00 A2
/21:05 A3 + apigenin
/21:00 Back exercises.
/0:50 A4
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 20th

Pf: 1A1+1A2+1A3, vB2: A,C,D. vB3: 0,7gA2,0,8gC3,0,8gD3. vB5: A,C,D. vC:0A2+3C3+3D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: 2x"C5", 2x"D3+" (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2xMgMal, Luteolin. MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: alpha GPC. 2xeleuthero. huperzia. C2: 2Gly C3:PEA+Ru, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
KEEP TALLIES UNTIL IT SEEMS CORRECT, which it doesn’t yet…:
A1 Pf#1 Qc1#1, Lut, 2MgMal, MgThreo… + myo-inositol + (DAO?)
A2 vB2#1 "2"xvB3, vB5#1, 2xCr#1, Pf#2, Ga#1, Hon#1, Cu, Q10, TMG#1 = 12
+Ω3/PQQ/aloe +monk’s +apigenin
A3 Pf#3, Ga, Gltm, Hon, Qc#3
A4 Ga
B = Qc#3, Ro#1, Rs#2, ALA, 2xSa, 2Th, EGCG, Fev/MSM, Sily + (DAO?)
C = vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 apha-GPC 2xEleu 2xMgGly hup PEA Ru = 23
C5 2Gltt
D0 Ell, Gi + (DAO?)
D vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 = 15
D3+ 2Gltt
E = Ell, Qc#4, Ro#2, Rs#2.
B12 4-monthly, D3 saturdays.

…

Development

‘Research’ today: Looking for a precision scale without batteries. Analog or Just kinetic energy aren’t precise enough, so best bet probably a USB-battery-loadable one…
ToDo: RSM Webinar on fibro on Oct 10th, on fatigue on Oct 25th, on lipids Nov 15th - still need to get round to that and the MCAS summit before that.
Lessons in self-care #486 Spending so much time on health at the moment, and hardly energy for more strenuous work, just a few mails now and then…
Reasons to be cheerful #515 Watching our balcony magpie… and most flowers have resisted the first frost period.