JayCS’s Fibro Blog

2022-11-24, Thursday - Energy 17% / Sleep 90% / Feeling 80%-ish / nausea 20%

Successes:
:trophy: Got quite a few things done. But back exercises still not enough…
:zap: Less pee urge since jab#3 - none really at 5:20, altho only up the 4th time!!
:zap: Aloe vera out of the fridge caused esophagus contraction, so it wasn’t the yogurt the other day, it was it coming out of the fridge… →
Learnt: :student: Cold stuff isn’t good for my esophagus, I always suspected it, now I know.
New Habits: :new: (24th: 4 less)
:ambulance: 5’ Worry time (:white_check_mark:) 5’ plan time (:white_check_mark:), 1-2h me time :white_check_mark:
:ambulance: Lower back: More exercises :x: hanging :x: massager :x: HWB :white_check_mark:, typing lying on front :white_check_mark:
:ambulance: Roll out mat 2x/d for back exercises (:white_check_mark:)(:white_check_mark:)
:ambulance: Teeth every bathroom time, 1h after meals, 30’ from nux :white_check_mark::white_check_mark::white_check_mark:(:white_check_mark:)
:ambulance: Find a better way to take pure psyllium at night :white_check_mark:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83?%), insomnia 3 (10%), fog 2 (15%), headache 0 (0%), GI 1 (10%), depression 0
Strangely I seem able to overdo it more at the moment, and not take nausea or pain too seriously, cos energy still seems “OK”.

Triggers & resulting Symptoms

"JAB#3 (2022-11-07)/MCAS/histamine-Symptoms/Triggers/Treatments (click for details): ?"20%" altogether. Trying to improve with +3x0.1g GABA, and definitely keeping up the antihistamine. Sinuses, paranasal and frontal with headache 20% at night & sore throat 15% at night, nausea 0(-10)%, white lips 30-40%, pale face 30/40%, "ill ache" off and on 10%, sliding around indoors (stiffness, fatigue & nausea) 10%, cold intolerance (no cold shower) 40%. Nov 17th 15:00 breaking down 'ill'. 18th directly before getting up energy suddenly down from 20 to 10%. 10th/11th day after the jab." Nov 20th: energy and well-feeling picking up again, despite often overdoing it a bit.

Jab#3 2022-11-07 at 12:00 (H1 2nd gen. antihistamine 4h before it and every evening)
Increasing:
nausea: 0% → 10% before meals, rest quite good today, if I don’t move too fast.
sinuses: 10% → 20% → 5% (headache 0%) (nostrils alternating 20%)
“skating”: 0%-10%
white lips: 30-40%
eyes: 30/40%
specific ill Ache: 10%
cold intolerance: 40%
sore throat: 15%

SLEEP (click for details): 8h12, up 5x (30'), 7h deep. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 15% stuffy 100% of the night.

A3 teeth alternating shower p0 Sleep cream gel HWB#1
23:52- Why not 21:00?
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
0:47 5’ 70%/2/15% p0 st1 sip fw1’ deep air
(nostrils15% nauseous5% Sinuses5% headache5% sore throat5%)
1:25 5’ 70%/2/15% p0 st1 sip fw1’ deep air A4 cream hang1’
(nostril25% nauseous5% Sinuses10% headache5% sore throat15%)
3:05 5’ 80%/2/15% p0 st1 sip fw1’ deep air cream gel HWB#2
(nostril15% nauseous5% Sinuses10% headache5% sore throat25%)
5:20 5’ 80%/2/15% (p0) st1 sip fw1’ deep air PSYLLIUM cream
(nostril15% nauseous5% Sinuses10% headache5% sore throat15%)
7:20 10’ 80%/2/15% p0 st1 sip fw5’ deep plugs
(nostril15% nauseous5% Sinuses20% headache5% sore throat15%)
-8:35 80%/2/15% p0 st1 doze
(nostril15% nauseous5% Sinuses15% headache5% sore throat10%)
B1-4 ‘ in sun, stools firm?
Sum: 8h35+8-(5+5+5+5+10=)30 = 8h42-30 = 8h12, up 5x (30’), 7h deep.

ACTIVITIES (aim: 40% energy)ACHE: ➔ TT 1:3 (but wet) ➔ 80%/4 :x:, rest ➔ 80%/2 :white_check_mark:
ACTIONSPAINS: except GI :white_check_mark:, esophagus (cold aloe vera caused some contraction, so avoid pure cold stuff) :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 (also less pee urge since jab#3, at least at night) :white_check_mark: lower back unrest :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Last focal seizures: Nov 21st: 2x.
Last esophagus blocks: Nov 22nd (from yogurt+supps). Nov 20th:

Treatments

Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th, about 2h per week.
Chinese Acupuncturist - Session #32 on 4th., after 14 days :white_check_mark: “Energy still pretty stable at 20%, despite jab-nausea…”
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): ' (RR: )

white_check_mark: airing 5x2’, cold shower 0x(10’), alternating shower 1x(10’), cream/oil fc/ey/hd/ft 6x1’, teeth 3x2’, HWB 2x3’, breath exercises 4x1’, Y. Nidra 0’, massage gun 3x3’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 2’, back 10’, !!aloe vera 1x1’, twist-stretch 3x1’, yoga/stretching 3x1’, sun 2x5’, hang 1x1’. hunchback-pillow ’, wart x1. neck 1+ x1’, RR:
Combine: next?
:x: neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 19th (46 supps): Supp costs:~426€/m (19th): 22nd: Try less psyllium at night in almond milk: then pectin? 20th Checked & corrected the pill amounts per tub now that I'm simplifying the system for preparing them.... still differences. Nov 19th: Pill intakes now in tubs. Nov 19th: Vit.C not with copper I found a note, so Cu in the evenings and vit. C the meals before till I get that sorted. 14th: Started Levagen+PEA. Nov 14th: B2 3x400 (max 1.5g)! 14th: B3/Niacin/nicotinic acid powder 0.8, 0.8, 0.6g (evening less). 7th: Check fisetin. 4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th. 4th: Energy better since restarting quercetin & feverfew. New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn.

REGULAR as of Nov 18th (46 supps: R-ALA .2g, aloe vera juice 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, vit. B2 3x400mg, vit. B3/Nia 2x0.8+0.6g, vit. B5/Panto: 1-3x.5g vit. B12 1x5mg/4m, vit. C up to 3x2x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 2mg, vit. D3 20.000 IE = 500mcg, + vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, Ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2, Feverfew (fev) .4g (+.2g MSM), Fisetin (fis): 0x196mg. GABA (Ga): back to 3x0.3g+2x.6g=2.1g, ginkgo (Gi) 3x168mg, Glutamin (gltm, glu): 0.6g, Glutathione (gltt) 4x250mg, Hononkiol (Hon) (2%)x2x.4g=16mg, huperzia (hup) 1x0.2mg, Luteolin (lut) .2g, Ω3 1x5mg, Magnesium Glycinate (Mg gly) 2x50mg, Malate (Mg Mal) 2x45mg, Threonate (Mg threo) 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, P5P (= vit. B6) 0x27mg, Levagen±PEA 1x0.4g, Psyllium (Ps), passiflora (Pf) 3x.35g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, Rutin (ru): 1x522. SAM-e (Sa) .1g, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), L-theanine (The) 2x.2g (+.15g polyphenols), TMG: as much as B3.

What-when-details: Updated Nov 20th.
EARLIER!
+0.25 GABA?
0 “16:15” preparing pills
“18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
“18:30” myo-inositol (try → every evenings) + teeth
“19:30” A2=12+1 B2#1 "2"xvB3 B5#1 2Cr#1, PF#2, Qc#1. Cu .3gGABA CoQ10 (oil) TMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monk’s fruit. Cu with amino acids (to counteract high dose vit. C, but not together with vit. C?: 0(?)
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“23:00” A4 300mg GABA + teeth
6:00 1 Psyllium.
8:50 B=11/ ’ in sun “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM + Sily +2The Back exercises. Soak seeds.
9:25 Teeth.
/9:25-45 Meal 0’ in sun, but daylight lamp on.
/10:00 aloe
/9:50-10:00 0’ in sun C=23/ with meal: vit.B2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 TMG#2 alpha-GPC 2xEleu Hup 2gly PEA Rutin = 23. (vit.D3 1/wk) 20th: ONLY 22 IN THERE, WHAT’S MISSING? A TINY ONE?
/10:05 “after muesli” C5 2xglutathion
/10-07- xylitol
/11:10 nux
/13:40 teeth
/13:45 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/14:50 “14:00” 0 Meal ’ in sun +aloe
/15:20 “14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
/16:50 “after lunch” D3+ 2xglutathion
/15:20 xylitol
/19:40 A1 “18:00”
/19:20 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4, Rs#2, Ro#2
“16:15” preparing pills
->19:35 “16:15” teeth
/19:50 myo-inositol
/Eat + 0 aloe + /PQQ+/Ω3
/20:30 A2 + 22:35 apigenin
“16:15” nux
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 20th

Pf: 1A1+1A2+1A3, vB2: A,C,D. vB3: 0,7gA2,0,8gC3,0,8gD3. vB5: A,C,D. vC:0A2+3C3+3D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: 2x"C5", 2x"D3+" (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2xMgMal, Luteolin. MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: alpha GPC. 2xeleuthero. huperzia. C2: 2Gly C3:PEA+Ru, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
KEEP TALLIES UNTIL IT SEEMS CORRECT, which it doesn’t yet…:
A1 Pf#1 Qc1#1, Lut, 2MgMal, MgThreo… + myo-inositol + (DAO?)
A2 vB2#1 "2"xvB3, vB5#1, 2xCr#1, Pf#2, Ga#1, Hon#1, Cu, Q10, TMG#1 = 12
+Ω3/PQQ/aloe +monk’s +apigenin
A3 Pf#3, Ga, Gltm, Hon, Qc#3
A4 Ga
B = Qc#3, Ro#1, Rs#2, ALA, 2xSa, 2Th, EGCG, Fev/MSM, Sily + (DAO?)
C = vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 apha-GPC 2xEleu 2xMgGly hup PEA Ru = 23
C5 2Gltt
D0 Ell, Gi + (DAO?)
D vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 = 15
D3+ 2Gltt
E = Ell, Qc#4, Ro#2, Rs#2.
B12 4-monthly, D3 saturdays.

Development

‘Research’ today: No.
ToDo: RSM Webinar on fibro on Oct 10th, on fatigue on Oct 25th, on lipids Nov 15th - still need to get round to that and the MCAS summit before that.
Lessons in self-care #490 Asked, my wife still believes acupuncture hasn’t helped me that much…
Reasons to be cheerful #518 Another last blossom opened today!