JayCS’s Fibro Blog

Symptoms & Treatments
1035

2022-12-07, Wednesday - Energy 22-25% / Sleep 90% / Feeling 80%-ish / nausea 0-10(-20)%, fog 10%

Successes: :trophy: :zap: Learnt: :student:
New Habits: :new: (6th: 6 less)
:ambulance: 5’ worry time (:white_check_mark:) 5’ plan time (:white_check_mark:), 1-2h me time (:white_check_mark:)
:ambulance: Lower back: More exercises (:white_check_mark:) hanging :white_check_mark: massager (:white_check_mark:) HWB (:white_check_mark:), typing lying on front :white_check_mark:
:ambulance: B-supps after getting up, then back, teeth, praps shaving. (:white_check_mark:)
:ambulance: Use daylight lamps more now it’s darker. :white_check_mark: (Mine is cheap, but light enough to make me nauseous and needs only very little electricity.)
:ambulance: Try taking my antihistamine at 18:00. (:white_check_mark:)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) → MCAS / histamine:
Today: “10%” altogether = 20% energy stayed, even 25% in the evening.
Night ‘histaminey’ problems: 7:00-9:00: nostrils 20% nauseous 0-10% stomach 5% sinuses 0-5% headache 0% sore throat 0-15%.
Day condition: Nausea 10%, white lips 30%, pale face 20%, “ill ache” off and on 0%, sliding around indoors (stiffness, fatigue & nausea) 10%, cold intolerance (cold shower yes, but long johns day and night, plus hoodie at night) 20%. 50% sore throat from too cold feet from wrong shoes too long, but better as soon as I put a hot water bottle on them.
Tendencies:
Nov 17th 15:00 breaking down ‘ill’.
Nov 18th, directly before getting up, energy suddenly down from 20 to 10%.
Nov 20th: energy and well-feeling picked up again, despite often overdoing it a bit.
Nov 23rd: Before I was winning at table tennis all the time, from now clearly losing all the time, except 29th. But ~20% energy is there for up to 45’, then I break down with green-grey face & white lips thru activities incl. socializing.
Dec 2nd: Winning TT, playing easily, 5 games (with break, very cold), since then 4-5 games every day, not always winning, but easy.
Dec 6th: 1.5h appointment, 2.5h grandchild, 2x40’ garden (slow).
Treatments: Antihistamine and extra GABA, adding more from Nov 29th.

SLEEP (click for details): 6h57, up 4x (30'), deep 6h. ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 5% stuffy 100% of the night. Too taut, wanting to get things done may be the reason.

A3? teeth? cold shower? p0? Sleep 0:50- Why not 21:00?
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:25 5’ 80%/1/15% p0 st1 sip fw1’ deep air A4 cream
(nostrils5% nauseous0% stomach5% sinuses0% headache0% sore throat5%)
3:30 10’ 80%/1/15% p0 st1 sip fw1’ deep air A5 cream gel
(nostrils5% nauseous0% stomach5% sinuses0% headache0% sore throat5%)
6:10 10’ 90%/1/15% p0 st1 sip fw1’ deep air cream gel HWB#
(nostrils5% nauseous0% stomach5% sinuses5% headache0% sore throat15%)
7:15 5’ 80%/1/15% p0 st1 sip fw1’ deep doze air cream
(nostrils5% nauseous0% stomach5% sinuses5% headache0% sore throat10%)
-8:17 8:50 B1-4 ‘ in sun, stools firm?
Sum: 8h17-50-(5+10+10+5=)30 = 8h17-80 = 6h57, up 4x (30’), deep 6h.

ACTIVITIES (aim: 40% energy) ➔ ACHE: ➔ TT 2:4 ➔ 80%/2 :white_check_mark:, but nauseous from game 2 onwards, dizzy towards the end, directly after garden & yard work ➔ 80%/2 :white_check_mark:, not nauseous.
ACTIONS ➔ PAINS: except GI: heartburn 11:00-13:00 :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark: lower back unrest :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Last focal seizures: Nov 21st: 2x.
Last esophagus blocks: Dec 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th.
Jaw: Hardly & seldom pain since Nov.

Treatments

Alternative health practitioner Dec 6th: I’ve ruled out 2 ideas of hers, the blood group diet (see research) because there’s nothing helpful for me and it makes totally wrong presuppositions, and medicinal clay capsules, at least while I’m taking the additional GABA at night.
Online course ACT (acceptance and commitment therapy) starting Oct 24th.
Chinese Acupuncturist - Session #32 on Nov 4th., after 14 days :white_check_mark: “Energy still pretty stable at 20%, despite jab-nausea…” so session #33 indefinite.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): ' (RR: 0)

white_check_mark: airing 5x2’, cold shower 0x(10’), alternating shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 3x3’, breath exercises 3x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp ‘, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, sun x5’, hang x1’. hunchback-pillow ’, wart x1. neck 1+ x1’, RR:
Combine: next?
:x: neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 27th (45 supps): Supp costs:~421€/m (27th): 2nd: order B2! and eleuthero etc. 27th: 0 eleuthero for a time. 22nd: Try less psyllium at night in almond milk: then pectin? 20th Checked & corrected the pill amounts per tub now that I'm simplifying the system for preparing them.... still differences. Nov 19th: Pill intakes now in tubs. Nov 19th: Vit.C not with copper I found a note, so Cu in the evenings and vit. C the meals before till I get that sorted (4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th). Nov 24th: B2 3x500 (max 1.5g)! 24th: B3/Niacin/nicotinic acid powder1.2, 1.2, 1.0g (evening less). 7th: Check fisetin. 4th: Energy better since restarting quercetin & feverfew. New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn. Nov 27th: 0 eleuthero

REGULAR as of Nov 27th (45 supps: R-ALA .2g, aloe vera juice 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, vit. B2 3x400mg, vit. B3/Nia 2x0.8+0.6g, vit. B5/Panto: 1-3x.5g vit. B12 1x5mg/4m, vit. C up to 3x2x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 2mg, vit. D3 20.000 IE = 500mcg, + vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, Ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 0x2, Feverfew (fev) .4g (+.2g MSM), Fisetin (fis): 0x196mg. GABA (Ga): back to 3x0.3g+2x.6g=2.1g, ginkgo (Gi) 3x168mg, Glutamin (gltm, glu): 0.6g, Glutathione (gltt) 4x250mg, Hononkiol (Hon) (2%)x2x.4g=16mg, huperzia (hup) 1x0.2mg, Luteolin (lut) .2g, Ω3 1x5mg, Magnesium Glycinate (Mg gly) 2x50mg, Malate (Mg Mal) 2x45mg, Threonate (Mg threo) 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, P5P (= vit. B6) 0x27mg, Levagen±PEA 1x0.4g, Psyllium (Ps), passiflora (Pf) 3x.35g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, Rutin (ru): 1x522. SAM-e (Sa) .1g, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), L-theanine (The) 2x.2g (+.15g polyphenols), TMG: as much as B3.

What-when-details: Updated Nov 20th.
EARLIER!
/“16:15” preparing pills
/“18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
0 5’ empty = praps-worry time.
/“18:30” myo-inositol (try → every evenings) + teeth
/“19:30” A2=12+1 B2#1 "2"xvB3 B5#1 2Cr#1, PF#2, Qc#1. Cu .3gGABA CoQ10 (oil) TMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monk’s fruit. Cu with amino acids (to counteract high dose vit. C, but not together with vit. C?: 0(?)
/Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
/“20:30” pre-A3 agigenin 1h before bedtime + teeth
0 “20:30” chamomile
/“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
/“23:00” A4 300mg GABA + teeth
/“4:00” +0.25 GABA
0 “6:00” psyllium
/8:20 B=11/ ’ in sun “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM + Sily +2The Back exercises. Soak seeds.
Teeth.
/8:50 Meal ’ in sun. aloe.
’ in sun C=23/ with meal: vit.B2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 TMG#2 alpha-GPC 0x2xEleu Hup 2gly PEA Rutin = 23. (vit.D3 1/wk) 20th: ONLY 22 IN THERE, WHAT’S MISSING? A TINY ONE?
/9:20 “after muesli” C5 2xglutathion
xylitol
nux
teeth
/14:35 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/15:20 “14:00” 0 Meal ’ in sun +aloe
/15:20 “14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
0 “after lunch” D3+ 2xglutathion
0 +xylitol
19:30 “16:15” teeth
20:00 “16:15” preparing pills: 5x to encapsulate.
0 “16:15” nux
19:50 A1 “18:00”
19:00 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4, Rs#2, Ro#2
19:50 myo-inositol
20:15 Eat + ? aloe + 15:00 PQQ+Ω3
20:15 A2 + 22:00 apigenin & 21:50 heating down 22:05 A3.
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 20th

Pf: 1A1+1A2+1A3, vB2: A,C,D. vB3: 0,7gA2,0,8gC3,0,8gD3. vB5: A,C,D. vC:0A2+3C3+3D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: 2x"C5", 2x"D3+" (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2xMgMal, Luteolin. MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: alpha GPC. 0x2xeleuthero. huperzia. C2: 2Gly C3:PEA+Ru, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
TALLIES - correct Nov 25th:
A1=6+1 Pf#1 Qc1#1, Lut, 2MgMal, MgThreo… + myo-inositol + (DAO?)
A2=12+1 vB2#1 "2"xvB3, vB5#1, 2xCr#1, Pf#2, Ga#1, Hon#1, Cu, Q10, TMG#1 + Rup.
+Ω3/PQQ/aloe +monk’s +apigenin
A3=5 Pf#3, Ga, Gltm, Hon, Qc#3
A4=1 Ga
B=11 Qc#3, Ro#1, Rs#2, ALA, 2xSa, 2Th, EGCG, Fev/MSM, Sily + (DAO?) = 11/
C=23 vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 alpha-GPC 0x2xEleu 2xMgGly hup PEA Rut = 23, -2 eleuthero. -1 huperzia. = 20/
C5=2 2Gltt
D0=2 Ell, Gi + (DAO?)
D=15 vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3
25th: -vB5#3: so only 14/
D3=2 2Gltt
E=4 Ell, Qc#4, Ro#2, Rs#2.
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: Went thru a list of Peter A. D’Adamo’s blood group diets, wrote down everything suggested for my blood group and then coloured green what fits well, what sort of fits orange and what doesn’t fit red, and most was red. Basics are all wrong like my blood group meaning I have too little stomach acid. And the other way round: garlic and onions are two things I tolerate least, but they are either assessed as “good” or “OK”. So any recommendations are rotten in the root.
ToDo: RSM webinars on fibro on Oct 10th, fatigue on Oct 25th, lipids Nov 15th, supps on Dec 2nd - still need to get round to that and the MCAS summit before that.
Lessons in self-care #501 Still managing to keep the balance.
Reasons to be cheerful #533 Pushed thru again today, again slowly, even seemingly 25% energy.
Reasons to be cheerful #534 Taking over the garden bit by bit, realizing what plants are there, what might do them good, learning what does do them good and starting to make a change.