JayCS’s Fibro Blog

2022-12-11, Sunday - Energy 18% → 10% / Sleep 90% / Feeling 80%-ish / nausea 0-20%, fog 10%

Successes: :trophy: Some of the protein stuff seems OK.
:zap: Learnt: :student:
New Habits: :new: (6th: 6 less)
:ambulance: 5’ worry time (:white_check_mark:) 5’ plan time (:white_check_mark:), 1-2h me time (:white_check_mark:)
:ambulance: Back: More exercises (:white_check_mark:) hanging :white_check_mark: massager (:white_check_mark:) HWB (:white_check_mark:), typing lying on front (:white_check_mark:)
:ambulance: B-supps after getting up, then back, teeth, praps shaving. (:white_check_mark:)
:ambulance: Use daylight lamps more now it’s darker. :white_check_mark:
:ambulance: Try taking my antihistamine at 18:00. (:white_check_mark:) (earliest: 19:50)
:ambulance: Bed earlier. :cross_mark: (watching a Nutcracker version)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-20(-40)%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (82 → 90%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) → MCAS / histamine:
Today: “10%” altogether = 18% energy for under 45’, then white lips & pale face
Night ‘histaminey’ problems: 8:00-?10:00 (with +.25g GABA): nostrils 5% nauseous 0-20% stomach 0-20% sinuses 0% headache 0% sore throat 5-20%.
Day condition: Nausea 10%, white lips 30%, pale face 30%, “ill ache” off and on 0%, sliding around indoors (stiffness, fatigue & nausea) 10-20%, cold intolerance (cold shower yes, but long johns day and night, plus hoodie at night) 30%, sore throat 20-60% from cold feet in the evening.
Jab#3 development:
Nov 17th 15:00 breaking down ‘ill’.
Nov 18th, directly before getting up, energy suddenly down from 20 to 10%.
Nov 20th: energy and well-feeling picked up again, despite often overdoing it a bit.
Nov 23rd: Before I was winning at table tennis all the time, from now clearly losing all the time, except 29th. But ~20% energy is there for up to 45’, then I break down with green-grey face & white lips thru activities incl. socializing.
Dec 2nd-4th: Winning TT, playing easily, 5 games (with break, very cold), since then 4-5 games every day, winning most.
Dec 6th: 1.5h appointment, 2.5h grandchild, 2x40’ garden (slow), TT moderate.
Dec 7th-8th: Losing TT & energy, but praps cos of too little sleep? However burning tongue from white beans = histamine…
Dec 9thff: TT winning again.
Treatments: Antihistamine, and extra GABA from Nov 29th.

SLEEP (click for details): 9h01, up 4x (32'), all deep. ✅ ➔ Feeling 80% well, Ache 2-3 of 7 ✅, getting up: 80%/2 ✅. Nostrils 5% stuffy 100% of the night, but nausea, stomach, sore throat 20%.

A3 teeth cold shower p0 plugs Sleep 0:10- Why not 21:00? Watched a “Nutcracker” adaptation.
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
1:45 10’ 80%/3-2/15% p0 st1 sip fw2’ deep air clay plugs CLAY cream HWB# 2
(nostrils5% nauseous0% stomach0% sinuses0% headache0% sore throat30%)
3:15 7’ 80%/2/15% p2 st1 sip fw2’ deep air plugs out cream A4?
(nostrils5% nauseous10% stomach10% sinuses0% headache0% sore throat40%)
5:15 5’ 80%/3-2/15% p0 st1 sip fw1’ A5 deep cream HWB#3
(nostrils5% nauseous20% stomach20% sinuses0% headache0% sore throat20%)
7:45 10’ 80%/3-2/15% p0 st1 sip fw1’ deep cream Kind short of pulling esophagus & stomach pang when twist-stretched, I think from the medicinal clay, similar to the psyllium? hang/fall → feverish
(nostrils5% nauseous10% stomach10% sinuses0% headache0% sore throat20%)
-9:43 80%/2/15% p0 st1 sip fw1’ deep cream
(nostrils5% nauseous20% stomach15% sinuses0% headache0% sore throat20%)
9:45 B1-4 ‘ in sun, stools firm
Sum: 9h43-10-(10+7+5+10=)32 = 9h33-32 = 9h01, up 4x (32’), all deep.

ACTIVITIES (aim: 40% energy)ACHE: ➔ TT 3:1 & garden ➔ 80%/2 :white_check_mark: esophagus block and then music rehearsal ➔ 70%/2 :cross_mark:, service ➔ 50%/4 :cross_mark:, rest ➔ 60%/3 :cross_mark:
ACTIONSPAINS: except GI :white_check_mark:, esophagus: quite a block :white_check_mark:, pee pain: 0xp1-2 :white_check_mark: lower back unrest :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Last focal seizures: Dec 11th: 1x (11:35 cry kid, did clay reduced GABA?) Nov 21st: 2x.
Last esophagus blocks: Dec 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th.
Jaw: Hardly & seldom pain since Nov.

Treatments

Bloods at cardio Dec 9th: Waiting for results.
Alternative health practitioner Dec 6th: Trying out all her protein suggestions.
Online course ACT (acceptance and commitment therapy) starting Oct 24th.
Chinese Acupuncturist - Session #32 on Nov 4th., after 14 days :white_check_mark: “Energy still pretty stable at 20%, despite jab-nausea…” so session #33 indefinite.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 2h03 (RR: 0)

white_check_mark: airing 3x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth 2x2’, HWB 4x3’, breath exercises 3x1’, Y. Nidra 0’, massage gun 10x3’, daylight lamp 30’, plantar/calf stretch 5x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 5x1’, yoga/stretching 3x1’, sun x5’, hang 2x1’. hunchback-pillow ’, wart x1. neck 1+ x1’, RR:
Combine: next?
:x: neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 27th (45 supps): Supp costs:~421€/m (27th): 2nd: order B2! and eleuthero etc. 27th: 0 eleuthero for a time. 22nd: Try less psyllium at night in almond milk: then pectin? 20th Checked & corrected the pill amounts per tub now that I'm simplifying the system for preparing them.... still differences. Nov 19th: Pill intakes now in tubs. Nov 19th: Vit.C not with copper I found a note, so Cu in the evenings and vit. C the meals before till I get that sorted (4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th). Nov 24th: B2 3x500 (max 1.5g)! 24th: B3/Niacin/nicotinic acid powder1.2, 1.2, 1.0g (evening less). 7th: Check fisetin. 4th: Energy better since restarting quercetin & feverfew. New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn. Nov 27th: 0 eleuthero

REGULAR as of Nov 27th (45 supps: R-ALA .2g, aloe vera juice 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, vit. B2 3x400mg, vit. B3/Nia 2x0.8+0.6g, vit. B5/Panto: 1-3x.5g vit. B12 1x5mg/4m, vit. C up to 3x2x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 2mg, vit. D3 20.000 IE = 500mcg, + vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, Ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 0x2, Feverfew (fev) .4g (+.2g MSM), Fisetin (fis): 0x196mg. GABA (Ga): back to 3x0.3g+2x.6g=2.1g, ginkgo (Gi) 3x168mg, Glutamin (gltm, glu): 0.6g, Glutathione (gltt) 4x250mg, Hononkiol (Hon) (2%)x2x.4g=16mg, huperzia (hup) 1x0.2mg, Luteolin (lut) .2g, Ω3 1x5mg, Magnesium Glycinate (Mg gly) 2x50mg, Malate (Mg Mal) 2x45mg, Threonate (Mg threo) 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, P5P (= vit. B6) 0x27mg, Levagen±PEA 1x0.4g, Psyllium (Ps), passiflora (Pf) 3x.35g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, Rutin (ru): 1x522. SAM-e (Sa) .1g, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), L-theanine (The) 2x.2g (+.15g polyphenols), TMG: as much as B3.

What-when-details: Updated Nov 20th.
EARLIER!
“16:15” preparing pills
“18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
“18:30” myo-inositol (try → every evenings) + teeth
“19:30” A2=12+1 B2#1 "2"xvB3 B5#1 2Cr#1, PF#2, Qc#1. Cu .3gGABA CoQ10 (oil) TMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monk’s fruit. Cu with amino acids (to counteract high dose vit. C, but not together with vit. C?: 0(?)
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
21:00 “20:30” pre-A3 agigenin 1h before bedtime + teeth
0 “20:30” chamomile
/22:00 “21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
/1:45 “0:00” psyllium / medicinal clay 1 cps.
/?3:15 “2:00” A4 300mg GABA + teeth
/5:15 “4:00” +0.25 GABA
9:45 B=11/ ’ in sun “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM + Sily +2The Back exercises. Soak seeds.
? Teeth.
/10:55 Meal ’ in sun. aloe.
/10:30 ’ in sun C=23/ with meal: vit.B2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 TMG#2 alpha-GPC 0x2xEleu Hup 2gly PEA Rutin = 23. (vit.D3 1/wk)
/12:50 “after muesli” C5 2xglutathion
0 xylitol
0 nux
0? teeth
12:50 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
15:25-16:10 “14:00” 0 Meal ’ in sun +aloe
15:25 “14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
0 “after lunch” D3+ 2xglutathion
0 +xylitol
0 “16:15” teeth
0 “16:15” preparing pills: 5x to encapsulate.
0 “16:15” nux
19:40 A1 “18:00”
19:40 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4, Rs#2, Ro#2
20:00 myo-inositol
20:10 Eat + 0 aloe + 0? PQQ+Ω3
21:00 A2 + apigenin & 22:10 heating down 22:00 teeth
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 20th

Pf: 1A1+1A2+1A3, vB2: A,C,D. vB3: 0,7gA2,0,8gC3,0,8gD3. vB5: A,C,D. vC:0A2+3C3+3D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: 2x"C5", 2x"D3+" (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2xMgMal, Luteolin. MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: alpha GPC. 0x2xeleuthero. huperzia. C2: 2Gly C3:PEA+Ru, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
TALLIES - correct Nov 25th:
A1=6+1 Pf#1 Qc1#1, Lut, 2MgMal, MgThreo… + myo-inositol + (DAO?)
A2=12+1 vB2#1 "2"xvB3, vB5#1, 2xCr#1, Pf#2, Ga#1, Hon#1, Cu, Q10, TMG#1 + Rup.
+Ω3/PQQ/aloe +monk’s +apigenin
A3=5 Pf#3, Ga, Gltm, Hon, Qc#3
A4=1 Ga
B=11 Qc#3, Ro#1, Rs#2, ALA, 2xSa, 2Th, EGCG, Fev/MSM, Sily + (DAO?) = 11/
C=23 vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 alpha-GPC 0x2xEleu 2xMgGly hup PEA Rut = 23, -2 eleuthero. -1 huperzia. = 20/
C5=2 2Gltt
D0=2 Ell, Gi + (DAO?)
D=15 vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3
25th: -vB5#3: so only 14/
D3=2 2Gltt
E=4 Ell, Qc#4, Ro#2, Rs#2.
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
ToDo: RSM webinars on fibro on Oct 10th, fatigue on Oct 25th, lipids Nov 15th, supps on Dec 2nd - still need to get round to that and the MCAS summit before that.
Lessons in self-care #504 I’ll probably need to keep it down a bit more tomorrow.
Reasons to be cheerful #538 I may have ended in shambles after esophagus and playing music, but table tennis & gardening in the morning was good.