JayCS’s Fibro Blog

Symptoms & Treatments
1057

2022-12-29, Thursday - Energy 16% / Sleep 90% / Feeling 80%-ish / nausea 0%, fog 20% - losing TT, but slowly moving lots of stuff for 5-6 hours was/is OK-ish.

New Habits: :new: (28th: 1 changed)
:ambulance: 5’ worry time (:white_check_mark:) 5’ plan time (:white_check_mark:), 1-2h me time (:white_check_mark:)
:ambulance: Back: More exercises (:white_check_mark:) hanging (:white_check_mark:) massager (:white_check_mark:) HWB (:white_check_mark:), typing lying on front (:white_check_mark:), but OK.
:ambulance: B-supps after getting up, then back, teeth, praps shaving. :white_check_mark:
:ambulance: Use daylight lamps in the mornings now it’s darker. :white_check_mark:
:ambulance: Try taking my antihistamine at 18:00. :x:. BTW deliberately didn’t take it Wedn. evening.
:ambulance: Bed earlier. (:white_check_mark:) Well, earlier than 2 anyway… :face_with_monocle:
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:) - well I thought of an emotion, that counts as “noting” too :stuck_out_tongue: (my rules…)
:ambulance: Clean tooth space :white_check_mark:
:ambulance: More leg stretches. :white_check_mark:
:soon: Update “supps” below! :x:
:soon: Encapsulate more! :x:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10(-50)%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (84%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%) - half an overripe kiwi was OK, eating late too, up to now, depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) → MCAS / histamine:
Today: “10%” altogether = 20% energy for under 45’, then white lips & pale face
Night ‘histaminey’ problems: 8:00-10:00 (with +.25g GABA):
(nostrils20% nauseous0% stomach0% sinuses0% headache0% sore throat10%)
Day condition: Nausea 0%, white lips 30%, pale face 30%, “ill ache” off and on 0%, sliding around indoors (stiffness, fatigue & nausea) 5%, cold intolerance (cold shower yes, but long johns day and night, plus hoodie at night) 30%.
Tendencies:
Nov 17th 15:00 breaking down ‘ill’.
Nov 18th, directly before getting up, energy suddenly down from 20 to 10%.
Nov 20th: energy and well-feeling picked up again, despite often overdoing it a bit.
“LOSING” 9 days: Nov 23rd to Dec 1st: Before, I was winning at table tennis all the time, from now clearly losing all the time, except 29th. But ~20% energy is there for up to 45’, then I break down with green-grey face & white lips thru activities incl. socializing.
“WINNING” 2nd - 6th 6 days: Dec 2nd-4th: Winning TT, playing easily, 5 games (with break, very cold), since then 4-5 games every day, winning most.
Dec 6th: 1.5h appointment, 2.5h grandchild, 2x40’ garden (slow), TT moderate.
“LOSING” 2 days: Dec 7th-8th: Losing TT & energy, but praps cos of too little sleep? However burning tongue from white beans = histamine…
“WINNING” 9th-14th 6 days: 9th ff: TT winning again.
11th midday, 12th ff: Winning, but overall in bad condition.
13th-14th: Winning easily 4:0, and slow energy for 4h!
“LOSING” 15th-21st… 7 days: 15th: Losing 2:4 and 16th 0:5, maybe doing too much, too little sleep, missed 1 small GABA dose. 17th 1:3, hurting from game 2, despite sleeping more. 18th 2:4, hurting early again.
“WINNING” 22nd to 24th winning roughly 3:1,
NOT SURE: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar),
“LOSING”: 29th 0:3, strong winds draining energy faster, but moving stuff for hours, slowly, fairly OK - but not able to think after.

Treatments: Antihistamine, and extra GABA from Nov 29th.

SLEEP (click for details): 7h04, up x (33'), all deep, late cos of wanting to get supps ordered ✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: ?80%/1 ✅. Nostrils ?20% stuffy ?20% of the night. Without cold shower, HWB unnecessary. Sleep sill deep. Breaks praps slightly more due to leaving off the antihistamine and the cold shower at the same time.

A3 teeth? cold shower0 p0? PSYLLIUM back ex. Sleep 2:05- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
3:35 5’ 90%/1/15% p0 st1 sip fw1’ deep air cream
(nostrils10% nauseous0% stomach0% sinuses0% headache0% sore throat5%)
4:40 8’ 90%/1/15% p0 st1 sip fw1’ deep air cream A4
(nostrils10% nauseous0% stomach0% sinuses0% headache0% sore throat10%)
6:10 5’ 90%/1/15% p0 st1 sip fw1’ deep air cream A5
(nostrils10% nauseous0% stomach0% sinuses0% headache0% sore throat10%)
7:49 5’ 90%/1/15% p0 st1 sip fw1’ deep air cream
(nostrils20% nauseous0% stomach0% sinuses0% headache0% sore throat10%)
9:10 10’ 90%/1/15% p0 st1 sip fw1’ deep air cream
(nostrils10% nauseous20% stomach20% sinuses0% headache0% sore throat10%)
-9:42 B1-4 ‘ in sun, stools firm?
Sum: 9h42-2h05-(5+8+5+5+10=)33 = 7h37-33 = 7h04, up x (33’), all deep, late cos of wanting to get supps ordered.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/1 ➔ TT 0:3 ➔ 80%/5 :x:, moving stuff for about 5-6h all in all ➔ 80%/3 (:x:)
ACTIONS ➔ PAINS: except GI: stomach/gut pains after medium amounts of mild citrus fruits someone’d given us, so I’m reducing that to very small bits :x:, overripe kiwi OK. esophagus: Pills directly before meals works best for esophagus and not feeling too full while eating, generally I’m often spreading meals out to an hour now :white_check_mark:, pee pain: 0xp1-2 :white_check_mark: lower back unrest :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Temperatures above freezing point now are better for finger tips and hand and lip dryness.
Last focal seizures: Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. The few small pangs a few days ago are gone again.

Treatments

Bloods at cardio Dec 9th: Homocysteine a bit high, continue B3 and B2, phosphate not that bad. Leukocytes low! CK, muscular, too high, praps fibro?
Alternative health practitioner Dec 6th+20th: Now ordered most of her recommendations.
Chinese Acupuncturist - Session #32 on Nov 4th., after 14 days :white_check_mark: “Energy still pretty stable at 20%, despite jab-nausea…”, now it’s down from that so often that I tried #33 22nd Dec. Wasn’t worth it: No improvement, sleep too short.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 85' (RR: 0). Shaving with daylight lamp and doing calf/leg stretches = "effective" ;-)...

white_check_mark: airing 5x2’, cold shower 0x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 2x2’, HWB 0x3’, breath exercises 8x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 6x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching 6x1’, hang x1’. hunchback-pillow ’, wart x1. neck 1+ x1’, RR:
Combine: next?
:x: neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 27th (45 supps): Supp costs:~421€/m (27th): 28th Dec: Ordered Practitioner's #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulfur D4, Lycopodium Ø, Berberis Ø), #4) Steirocall comp. (for "arthrosis" & bones) (& umckaloabo), altho I'm not at all sure about any of these. Then 5-MTHF/folate & #7b) Hericium. And rutin. 27th Dec: Ordered another 2000 empty capsules, that makes 1000/m = 33/d (16€/m). 24th Dec: Need rutin (from Big A.) again. Practitioner's #3) following/parallel Bitter herbs, #5) upping pantothenic acid from 2 to 3, #6) instead of getting the glutathion activator of which I'm already taking almost everything in more fitting doses except manganese now new: B9 as 5-MTHF and upping MSM in Feverfew slowly from 1 to 3. But reducing glutathion 4x250 to 1, and before meals like it says everywhere else, not after like it says on this tub. 7) instead of taking Pro Mucosa by Tisso I prefer to add at most biotin (B7) and for the intestines the (fig) enzyme ficin (some say similar to pepsin & trypsin), altho I only reacted to enzymes like NADH & serrapeptase for a few doses, but I already take everything else in it. 8) Received & taking chlorella. Dec 12th I think it was I finally sorted out: Vit.C not with copper, so Cu in the evenings and vit. C the meals before, New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn. Nov 27th: 0 eleuthero

REGULAR as of Nov 27th (45 supps: R-ALA .2g, aloe vera juice 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, vit. B2 3x400mg, vit. B3/Nia 2x0.8+0.6g, vit. B5/Panto: 1-3x.5g vit. B12 1x5mg/4m, vit. C up to 3x2x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 2mg, vit. D3 20.000 IE = 500mcg, + vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, Ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 0x2, Feverfew (fev) .4g (+.2g MSM), Fisetin (fis): 0x196mg. GABA (Ga): back to 3x0.3g+2x.6g=2.1g, ginkgo (Gi) 3x168mg, Glutamin (gltm, glu): 0.6g, Glutathione (gltt) 4x250mg, Hononkiol (Hon) (2%)x2x.4g=16mg, huperzia (hup) 1x0.2mg, Luteolin (lut) .2g, Ω3 1x5mg, Magnesium Glycinate (Mg gly) 2x50mg, Malate (Mg Mal) 2x45mg, Threonate (Mg threo) 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, P5P (= vit. B6) 0x27mg, Levagen±PEA 1x0.4g, Psyllium (Ps), passiflora (Pf) 3x.35g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, Rutin (ru): 1x522. SAM-e (Sa) .1g, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), L-theanine (The) 2x.2g (+.15g polyphenols), TMG: as much as B3.

What-when-details: Updated Nov 20th.
Focus on moving out made me get 2h, then 4h later than scheduled… :sigh:
/“16:15” preparing pills
/“18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
0 5’ empty = praps-worry time.
/“18:30” myo-inositol (try → every evenings) + teeth
/“19:30” A2=12+1 B2#1 “2"xvB3 B5#1 2Cr#1, PF#2, Qc#1. Cu .3gGABA CoQ10 (oil) TMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monk’s fruit. Cu with amino acids (to counteract high dose vit. C, but not together with vit. C?: 0(?)
/Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
/“20:30” pre-A3 agigenin 1h before bedtime + teeth
0 “20:30” chamomile
/“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
/“0:00” psyllium / medicinal clay: Psyllium worked.
/“2:00” A4 300mg GABA + teeth
/“4:00” +0.25 GABA
/B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM + Sily +2The Back exercises. Soak seeds.
/Teeth.
/Meal 20’ in sun/lamp. aloe.
/10’ in sun/lamp C=23/ with meal: vit.B2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 TMG#2 alpha-GPC 0x2xEleu Hup 2gly PEA Rutin = 23. (vit.D3 1/wk)
0"after muesli” C5 2xglutathion
0xylitol
0nux
/teeth
16:30? “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
17:00 “14:00” 0 Meal ’ in sun +aloe
17:00 “14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
0 “after lunch” D3+ 2xglutathion
0 +xylitol
? “16:15” teeth
21:00 “16:15” preparing pills: 5x to encapsulate.
0 “16:15” nux
21:00 A1 “18:00”
21:00 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4, Rs#2, Ro#2
20:55 myo-inositol
Eat + aloe + PQQ+Ω3
23:00 A2 + 21:00 apigenin & 0:25 heating down
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 20th

Pf: 1A1+1A2+1A3, vB2: A,C,D. vB3: 0,7gA2,0,8gC3,0,8gD3. vB5: A,C,D. vC:0A2+3C3+3D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: 2x"C5", 2x"D3+" (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2xMgMal, Luteolin. MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: alpha GPC. 0x2xeleuthero. huperzia. C2: 2Gly C3:PEA+Ru, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
TALLIES - correct Nov 25th:
A1=6+1 Pf#1 Qc1#1, Lut, 2MgMal, MgThreo… + myo-inositol + (DAO?)
A2=12+1 vB2#1 "2"xvB3, vB5#1, 2xCr#1, Pf#2, Ga#1, Hon#1, Cu, Q10, TMG#1 + Rup.
+Ω3/PQQ/aloe +monk’s +apigenin
A3=5 Pf#3, Ga, Gltm, Hon, Qc#3
A4=1 Ga
B=11 Qc#3, Ro#1, Rs#2, ALA, 2xSa, 2Th, EGCG, Fev/MSM, Sily + (DAO?) = 11/
C=23 vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 alpha-GPC 0x2xEleu 2xMgGly hup PEA Rut = 23, -2 eleuthero. -1 huperzia. = 20/
C5=2 2Gltt
D0=2 Ell, Gi + (DAO?)
D=15 vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3
25th: -vB5#3: so only 14/
D3=2 2Gltt
E=4 Ell, Qc#4, Ro#2, Rs#2.
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
ToDo: RSM webinars on lipids Nov 15th, supps on Dec 2nd - still need to get round to that, the fibro webinar transcripts and the MCAS summit before that, as well as reading Murphree’s fibro book, might get a newer edition of that.
Lessons in self-care #526 Focus on moving out is fogging meals, supps & keys etc.
Reasons to be cheerful #562 I looked for 2 things today, for 20’ and for 10’. The first one was in my back pocket, the 2nd in my front left pocket. Feels a bit like someone wearing glasses looking for them… :rofl:
Reasons to be cheerful #563 Good to have got most new supps ordered.
Reasons to be cheerful #564 Fun chucking stuff away & moving stuff, & simplifying in the process.