2023-03-23, Thursday - Energy seemed to have 100% energy and slowly push thru some of the sick and feverish feeling without any more backlash than if I’d’ve rested. But this is still some kind of exhaustibility, so “for doc’s sake” my “fatigue” (they don’t know my 15 types) is still max. 20% (table tennis mate’s now also got CoV, other’s got another virus, the women are chicken about cold and wet, so I’m not playing and getting garden ideas done instead).
Sleep 90% / Feeling 70%-ish / nausea 0%, fog 10%
Need to decrease “feeling 85%ish” yesterday to 60%.
Successes:
My cough is not dry, it’s caused by thick phlegm, and reacts to posture change and temperature change, esp. cold, so small heat would be the way, maybe a mini hot water bottle to stop getting into a sweat.
And cos everything else I try has disadvantages, just making sure to glean and swallow the phlegm seems best. Sure I wanna stop it coming, but I can’t think of a way except a hot water bottle without exacerbating stomach or bladder problems.
New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.
At X = 19:00 a self-care gate comes down curbing further web work. (
)
Bed 23:30-8:30/9:00.()
Gulp supps better, and a gulp after carrots.
Note thoughts and emotions (ACT) ()
Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (?80%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10-30%), depression 0
Triggers & resulting Symptoms
JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.
JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.
SLEEP (click for details): 6h22, up 5x (28'), all deep ✅ ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 70%/2 ❌. No sweat, but damp30% (confirmed by my wife), feverish. 'No' more allodynia10%. Bladder pain OK, p10-20%. Longer sleep stints of 1.5h. New pain right wrist, massager helped. Tea trea salve on a sore inside my mouth. For the record: not enough for stomach pains to sleep disturb from it.Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.
A3? teeth? cold shower? p0? Sleep 1:50 Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
3:10 5’ 70%/3/15% p2 st3 sip fw1’ cough/ deep/ air/ A5 plugs0 cream0 gel0 HWB#0
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) Put on a 2nd pair of trousers and a long sleeve over the T-shirt, cos geting cold.
3:40 5’ 70%/3/15% p2? st3 sip fw1’ cough/ deep/ air/ A6 plugs0 cream// gel0 HWB#0
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%). Still a bit cold, at the same time an inkling of damp…
5:10 5’ 70%/3/15% p1 st3 sip fw1’ cough/ deep/ air/ A6 plugs0 cream/ gel0 HWB#0
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%). No sweat. No allodynia. Bladder pain OK. Longer stints.
6:32 5’ 70%/3/15% p1 st3 sip fw1’ cough/ deep/ air/ A7 plugs0 cream/ gel0 HWB#0
(nostril/s0% sinuses0% headache0% sore throat10%, nausea0% stomach0% stools0 loose%). No sweat, damp30%, feverish. No allodynia10% Bladder pain OK. Longer stints.
8:10 8’ 70%/3/15% p1 st3 sip fw1’ cough/ deep/ air/ A8 plugs0 cream/ gel0 HWB#0
(nostril/s0% sinuses0% headache0% sore throat10%, nausea0% stomach0% stools0 loose%). No sweat, but damp30% (confirmed by my wife), feverish. ‘No’ more allodynia10%. Bladder pain OK, p10-20%. Longer sleep stints of 1.5h. New pain right wrist, massager helped. Tea trea salve on a sore inside my mouth. For the record: not enough for stomach pains to sleep disturb from it.
-8:40 B1-4 ‘ in sun, stools loose%
Sum: 8h40-1h50-(5+5+5+5+8=)28 = 6h50-28 = 6h22, up 5x (28’), all deep
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2 
, 1h gardening ➔ 70-80%/2 / (TT 0,), mails ➔ 85%/2 , moving ➔ 75-85%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0%, but after cabbage problems, till I cycled a bit longer , appetite better from cooking today for a change (), esophagus: carrots extra works, gotta be careful with parsnips, had to get them out today, cos I didn’t feel like waiting /, pee pain: 5xp1-2 /, lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white () - need to remember both a bit tho, but much less, esp. now it’s a bit warmer I spose.
Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 23rd + 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.
Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: fdMar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.
Treatments
Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.
The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.
SELF-PHYSIO (click for details): 94'
white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 1x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 2x3’, daylight lamp/sun 6x5’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart 2x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.
ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).
REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.
What-when-details: Updated Jan 8th.
OK-ish
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:
The day's supp-compartments (8', plus 10' making capsules), Jan 8th
Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.
Development
‘Research’ today: No.
Lessons in self-care #613 Good compromises today. Getting 4 bags of natural stones was too much, but another Worth-It!
Reasons to be cheerful #656 Buxus better, protected moss, collected natural stones, quite a few important mails, lots of good “old” music (2000s), and prettifying my “veggie space” in not very much time… That’s >6 reaons to be cheerful!
Simplified #62 Did up my veggie space, so even my wife found it pretty (didn’t let on tho, just grinned…)
Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food apparently minus broccoli…
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read