JayCS’s Fibro Blog

2021-08-28, Saturday

Triggers & resulting Symptoms

SLEEP: 7h47, up 4x (28'), (minus 20' doze = 7h27) ↔️ Feeling 90% well, Ache 1 of 7 ✅

20:20: 2x Mg & 3x passiflora & Ω3 at meal
23:00: 400mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine
23:10 FCS#1 teeth 0:05-
2:42 18’ 90%/1 p1 st1 drink almonds fw8’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora laptop fell down, apparently dead, had to reset.
4:29 3’ 90%/1 p0 st1 drink fw1’ → ear plugs. Freed stuffy nose. dozed a bit first
6:43 3’ 90%/1 p0 st1 drink fw1’ → eye mask. more clothes on.
7:47 4’ 90%/1 p0 st1 drink fw3’ hunchback hurting → small pillow under it. dry mouth → drink a lot. doze.
-8:20 Breakfast while blogging, before exercising!
Sum: 8h15-(18+3+3+4=)28’=7h47, up 4x (28’), minus 10+10’ doze = 20’h

ACTIVITIES➔ACHE: Resting/fw all morning ➔ 90%/1, not too long bike ride & walk ➔ 90%/1 (despite the oddysee yesterday & the short night)

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Lying: hunchback pain probably due to the cycling, trying to lie on my back on the soft armchair-bed without a pillow under it, sitting on sofa instead of twist-stretching. Possible that the armchair-bed is helping improve the LBU, compare once I'm back in my own bed. Exercises, phoenix-position and twist-stretching toward the sofa helped. ✅ All the rest good, incl. pose-stiffness, night & day, drinking, eating, loins. ✅ Sitting in the kitchen without my bar stool brought me on to twist-stretching more often while sitting on a normal chair and standing, like at night and on the floor twisted to the sofa. 🧐 I cd reward myself with first a real, then a reduced symbolic self-treatment time until I've internalized it. First trial is suggesting that doing it all the time may be too much, but twisted towards a sofa is always pretty long without sfx...

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 59' ✅, fibro-work ?8h (diet research)

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 20’, gums 4x30’’, thumbnails 2x30’’, .
:x: workout 7’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: + ?8h (CV/general, not nec. fibro)

THERAPIES: Diagnoses / Health / Diets see linked post: Bottom line for me: As I eat mainly raw food it is unprocessed & unrefined, which is again shown as good. Some saturated fats are OK, LDL might not be everything (but then again might be the only indication for CV we have). The arguments for lowering my carbs are not conclusive to me. ✅

What diet works best to control Fibro pain? - #13 by JayCS is what I worked thru yesterday and today.
Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Going down 3↘2 malate hasn't worsened sleep ✅, good that I kept it at that first, cos of the overexerting long bike ride. GI ✅ (not due to supps). 14:30: 100mg!? taurine as an after-midday coffee, due to the fact that I cdnt notice at difference from 30mg the other day. I hope I'll be able to sleep tonight. But first reaction is I feel more tired - wdnt that be funny/strange if that's the taurine. 🧐 I had energy, but was a bit tired (only itchy eyes) all afternoon. Feel tired enough for normal sleep, so I think leaving out the magnesium malate should work, passiflora should do the trick alone.

20:20: 2x400mg Mg malate, 3x290mg passiflora,
23:00: 400mg GABA
2:40: 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora
14:25: 100mg? taurine :face_with_monocle:

UP NEXT: 1) GABA 450+600, malate ↘1x (to see if it's the 2↗4x passiflora alone that is helping). But wait for the taurine-reaction first! 2) 3rd tryptophan: speck 3) 3rd melatonin: speck. 4) 2nd levodopa-fraction trial 5) serrapeptase: careful! Order 6) SAMe? 7) Ribose? 8) NAC? 9) NADH? 10) ALC (or injected?) A) HERBS B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:

A HERBS: Almonds for heartburn, Schüssler

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA 2) glutamine, 3) theanine, 4) tyrosine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

3 Theanine

As it’s made from a pulverized tablet it contains filling agent. I could work out.
slightly decreasing more (300 on Aug 4th seemed better), alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, what it does to serotonin isn’t clear.
BTW theanine is partly for DOPAMINE (“opposite” of serotonin, but not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens!

4 Taurine: adrenalized me, so keep as an upper in the mornings

“500mg” taurine adrenalized me all night (4h40 sleep) & day Aug 20th. Praps I’ve found my coffee, as my acupressurist suggested! I’ll start with specks in the mornings, increasing depending on how I feel or need to get up, like next Tuesday at 7:15 for work. And praps it will get a handle on sleeplessness by getting me up, despite little sleep and then letting me get tired again properly after…
BTW I’ve no idea how much mg I’m really taking, as it may be heavier or lighter than the others.

5 SAMe DUNNO: 400-800mg in the mornings, as stimulating, not much research

SAM-e for Fibromyalgia and Chronic Fatigue Syndrome

6 Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine),

7 Glycine

Seems to excite me, as leaving off magnesium glycinate improved sleep.

Serrapeptase: https://forum.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, https://draxe.com/nutrition/serrapeptase/ Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. Helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.

Magnesium - glycinate yes or no? malate? "60mg" carbonate in the roseroot?

Medications - Other Options - #8 by JayCS

Vitamin B12 too.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!

levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

Lessons in self-care #70 Surprising I’ve been taking magnesium without knowing it was magnesium carbonate and that this might be good for my acid… :face_with_monocle:
Reasons to be cheerful #69 Careless, but wonderful to be up late more & sleep less now! :crazy_face:

Highlights week 16th to 21st.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

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