I also agree, Number 7 can assists us all. Rare conditions can be extremely isolating. Trying to deal with a rare condition all on our own can drive us crazy. As I’ve said to others 'It’s not that you’re crazy, it’s more that you’re just as crazy as the rest of us".
Just in knowing we are not alone on this journey… PHEW, what a relief …because prior, I really was questioning my own sanity.
Merl from the Modsupport Team
20:40: 2x Mg & 3x passiflora & Ω3 at meal
22:55: 600mg GABA
2:27 600mg GABA & 400mg L-glutamine & "200"mg theanine
FCS#1 23:31-
2:27 5’ 90%/1 p0 drink fw2’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora
4:16-27 11’ 90%/1 p1 drink fw1’ hungry → drink. teeth fw8’ almonds. doze. hungry.
4:54 30’ 6
7:23 4’ p0 drink
-8:26 90%/1
Night: Teeth! RR! fw only notes!
-end. Breakfast while blogging, before exercising!
Sum: 29’+8h26-(5+11+30+4=)50’= 8h55-50’=8h05, plus up 4x (50’)
Ache = also Exhaustion/Tired 
➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 5’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, .
Timing, AuTr ‘, hunchback-pillow ‘, cold shower (10’), palpate 1’, belly 3’, back 7’, workout 7’, twist-stretch 2’, gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
Fibro-work: Night: 0 + ?2h
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
2x400mg Mg malate, 3x290mg passiflora,
20:40 2 Mg & 3x passiflora & Ω3 at meal
22:55 600mg GABA
2:27 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora
4mg Taurine before TT
Lessons in self-care #67 Even a 5/6-day trip an hour away is a big trigger: need to watch myself.
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ 
➲ ↔:⇰↔ →:arrow_upper_right: 
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
20:20: 2x Mg & 3x passiflora at meal
21:45: 600mg GABA & selene & roseroot
2:05: 400mg GABA & 400mg L-glutamine & "200"mg theanine
22:22- 70%/3 (right forehead, stomach)
0:05 3’ 70%/2 (forehead) p2-3 drink
0:11 8’ 70%/2 FCS#1 p3
2:14 3’ 80%/2 (forehead 2) p2-3 drink +400 GABA + 400 glutamine + 200 theanine +1 passiflora
3:38 5’ 80%/2 (forehead 1) p2-3 drink, stiff3->1
4:57 6’ 80%/1 (forehead 1) p0 drink. Ribs left hurt since yesterday TT → arnica cream . (wife) Doze.
-5:23 3’ 80%/1 (forehead 1) dry mouth → gel/lips. hungry → drink. Wide awake.
7:37-9:02 +1h25
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 th drink almonds fw1’ teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h38+5h23-(3+8+3+5+6+3=)28’= 7h01-28’=7h01, up 6x (28’), +1h25 = 8h26 (2h14 break)
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
* Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’) (so tired & weary I postponed it till my first sleep break, and didn’t need a 2nd one, bit of warm beforehand, but had showered due to the Ache in the evening already), palpate 1’, belly 3’, back 7’, arnica cream 3x1’, twist-stretch 12’, thumbnails 4x30’’, gums 2x30’’, neck 1+ 5’, HWB 3’, yoga 3’, loins 3’.
workout 7’, neck 2 1’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, *
Fibro-work: Night: 5’+ 45’ + 2h?
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
(?
)
2x400mg Mg malate, 3x290mg passiflora,
20:20: 2 Mg & 3x passiflora & 0 Ω3 at meal
21:30: 600mg GABA
0:05: 400mg GABA & 400mg L-glutamine & ‘200’ mg theanine +1 passiflora
For taurine amounts I use a ball point pen tip for 5mg and my vitamin C spoon 100mg as an orientation.
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
20:20: !3x Mg & 3x passiflora & Ω3 at meal
23:00: 450mg GABA
2:10: 600mg GABA & 400mg L-glutamine & "200"mg theanine + 1 passiflora
FCS#1 23:00-
2:10 13’ 90%/1 p2 drink Gastritol drink fw10’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora
4:54 3’ 90%/1 p2 drink drink fw1’
6:40 3’ 90%/1 p1 drink drink fw1’ doze
-7:21
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 th drink almonds fw1’ teeth FCS#2? +600 GABA + 400 glutamine + 200 theanine +1 passiflora
Breakfast while blogging, before exercising!
Sum: 1h+7h21-(13+3+3=)19’= 8h21-19’=8h01, up 3x (19’), minus =38’ doze = 7h23
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 6’, … yoga 8’, loins 3’, neck 1+ 3’, neck 2 2’, thumbnails 2x30’’, gums 2x30’’, HWB 3’.
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
workout 7’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’
*Fibro-work: Night: + *
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
20:20: !3x Mg & 3x passiflora & Ω3 at meal
23:00: 450mg GABA
2:10: 600mg GABA & 400mg L-glutamine & "200"mg theanine + 1 passiflora
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
19:50?: !3x Mg & 3x passiflora & Ω3 at meal
23:00: 450mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine + 1x passiflora
23:00 FCS#1 90%/1 0:40-
2:57 6’ 90%/1 p2 st1 drink fw2’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora
3:55 5’ 90%/1 p0! st1 drink fw1’
6:31 5’ 90%/1 p2 st1 drink fw1’ (no forehead ache, no ear plugs, no eye mask) doze
7:13 2’ 90%/1 p2 st1 dry mouth → drink fw1’, ear plugs, eye mask (doze)
-7:50 alarm by mistake. Fly got on my nerves before too…
Sum: 7h10-(6+5+5+2=)18’= 6h52, plus up 4x (18’), minus 35’ dozing.
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 4’, gums 2x30’’, yoga 2’, loins 2’, .
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
workout 7’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
*Fibro-work: Night: + *
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
2x400mg Mg malate, 3x290mg passiflora,
20:20: 2 Mg & 3x passiflora & Ω3 at meal
21:30: 600mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora
Lessons in self-care #69 I’m always looking to twist-stretch or rest in between, however much or little we are doing.
Reasons to be cheerful #68 Things are looking good, even the long cycling didn’t cause too much a backlash.
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
20:20: 2x Mg & 3x passiflora & Ω3 at meal
23:00: 400mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine
23:10 FCS#1 teeth 0:05-
2:42 18’ 90%/1 p1 st1 drink almonds fw8’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora laptop fell down, apparently dead, had to reset.
4:29 3’ 90%/1 p0 st1 drink fw1’ → ear plugs. Freed stuffy nose. dozed a bit first
6:43 3’ 90%/1 p0 st1 drink fw1’ → eye mask. more clothes on.
7:47 4’ 90%/1 p0 st1 drink fw3’ hunchback hurting → small pillow under it. dry mouth → drink a lot. doze.
-8:20 Breakfast while blogging, before exercising!
Sum: 8h15-(18+3+3+4=)28’=7h47, up 4x (28’), minus 10+10’ doze = 20’h
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 20’, gums 4x30’’, thumbnails 2x30’’, .
workout 7’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
Fibro-work: Night: + ?8h (CV/general, not nec. fibro)
What diet works best to control Fibro pain? - #13 by JayCS is what I worked thru yesterday and today.
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
20:20: 2x400mg Mg malate, 3x290mg passiflora,
23:00: 400mg GABA
2:40: 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora
14:25: 100mg? taurine
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
As it’s made from a pulverized tablet it contains filling agent. I could work out.
slightly decreasing more (300 on Aug 4th seemed better), alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, what it does to serotonin isn’t clear.
BTW theanine is partly for DOPAMINE (“opposite” of serotonin, but not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens!
“500mg” taurine adrenalized me all night (4h40 sleep) & day Aug 20th. Praps I’ve found my coffee, as my acupressurist suggested! I’ll start with specks in the mornings, increasing depending on how I feel or need to get up, like next Tuesday at 7:15 for work. And praps it will get a handle on sleeplessness by getting me up, despite little sleep and then letting me get tired again properly after…
BTW I’ve no idea how much mg I’m really taking, as it may be heavier or lighter than the others.
6 Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine),
Seems to excite me, as leaving off magnesium glycinate improved sleep.
Serrapeptase: https://forum.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, https://draxe.com/nutrition/serrapeptase/ Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. Helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.
Vitamin B12 too.
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Lessons in self-care #70 Surprising I’ve been taking magnesium without knowing it was magnesium carbonate and that this might be good for my acid…
Reasons to be cheerful #69 Careless, but wonderful to be up late more & sleep less now! 
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
Symbol & emoji of the week: considering being away from home (only a 1 hour drive away).
3x289 at 20-21:00, magnesium glycinate 0 & now malate 0 improves sleep depth, stints & racing thoughts.
21:20: 0x Mg & 3x passiflora at meal (selene + roseroot with magnesium carbonate & B1)
23:55: 450mg GABA
3:07: 600mg GABA & 400mg L-glutamine & "200"mg theanine
FCS#1 0:05-
3:02 17’ (6) 90%/1 p1-2 bowel movmt. drink fw12’ +600 GABA + 400 glutamine + 200 theanine + 289mg passiflora.
4:39 9’ (6) 90%/1 p0 drink fw5’
6:13 19’ (6) 90%/1 p0 drink fw5’ (nose - only slightly stuffy sometimes the last few days) - seemed a bit dozy…
-8:33 thirsty
Sum: 8h27-(17+9+19=)’= 8h27-45’=7h42, up 3x (45’), minus =?’ doze = h
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, gums 2x30’’, twist-stretch 4’, .
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
workout 7’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
Fibro-work: Night: + 30’ + 3h
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
20:20: 0 Mg & 3x289mg passiflora at meal, selene and roseroot/magnesium carbonate/B1
23:55: 450mg GABA
3:10: 600mg GABA & 400 L-glutamine & “200” theanine +1x289 passiflora
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:55: 450mg GABA
3:00: 600mg GABA & 400mg L-glutamine & "200"mg theanine
FCS#1 23:00-
1:38 3’ 90%/1 p3 st2 drink fw1’
3:04 3’ 90%/1 p1 st2 drink fw1’ +600 GABA + 400 glutamine + 200 theanine +289 passiflora
5:36 5’ 90%/1 p1 st2 drink fw4’ bit of GI due to the amount of AA, drink helped (spread them out more?)
(strange dreams before, about big wheels having broken and in water a small crab-like creature but realistic, not sponge Bob type, without face etc., talking with me, about why I wasn’t helping; and an ex-janitor - OK, that was due to a documentary I’d watched)
7:04 4’ 90%/1 p1 st2 drink fw3’ “racing dreams” again - 0 malate?
7:49 racing, overactive dreams again, tired & sleepy tho… so… one last try 4’ 90%/1 p1 st1 dr fw2’
-8:10 nice staying in bed, hurting to get up, but…
Breakfast while blogging, before exercising! Taurine!
Sum: 1h+8h10-(3+3+5+4+4=)19’= 9h10-19’=8h51, up 5x (19’) (minus 20’ doze = 8h31)
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 8’, loins 2’, .
workout 7’, gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
Fibro-work: Night: 0 + 1h + 3h?
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:40: 450mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine +289 passiflora
9:00? Taurine
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
21:15: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 later due to helping carrying.
22:10: 500mg GABA
?: 600mg GABA & 450mg L-glutamine & "200"mg theanine + 289 passiflora
FCS#1 22:25-
1:15 3’ 90%/1 p1 st1 drink fw1’
2:38 10’ 90%/1 p0 st1 drink fw4’ 600 GABA & 450 L-glutamine & “200” theanine + 289 passiflora teeth → doze, AuTr 32’
3:20 15’ racing thoughts, palpitations (work, carrying) 90%/1 st1 6. → doze, AuTr 25’
4:00 8’ 90%/1 st1 1x289 passiflora, p0 FCS#2 fw1’ Nightmare: bad people in infected animals (horse with hat, guinea pigs)
6:34 3’ 90%/1 p1 st1 drink fw1’
-7:38 (alarm)
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 st1 th drink almonds fw1’ teeth FCS#2? +600 GABA + 400 glutamine + 200 theanine +289 passiflora
Breakfast while blogging, before exercising!
Sum: 1h35+7h38-(3+10+15+8+3=)39’= 9h13-39’=8h34, plus up 5x (39’), minus 32+25=57’ doze/AuTr = 7h37
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 20’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, twist-stretch 30’, .
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
workout 7’, gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
Fibro-work: Night: 7’+ 30’
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
21:15: 3x289mg passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:00: 500mg GABA
2:28: 600mg GABA & 450mg L-glutamine & "200"mg theanine +289 passiflora
4:05: +289 passiflora
8:00 600mg? taurine.
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
21:10: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: 450mg GABA
3:25: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora
FCS#1 22:45-
1:30 5’ scalp itch (forgot hairwash) heartburn → drink/ p0 no IBSD st1 fw1’
3:24 5’ p0 st1 drink fw1’ +600 GABA + 400 glutamine + 200 theanine +289 passiflora
3:59 10’ slight heartburn → drink, walnuts; thoughts, bit hot, slightly nauseous: FCS#2 fw2’
7:26 5’ p0 st1 drink fw2’
-8:30 80%/2 Slight dull cold-like foreheadache, slightly nauseous, like when away from home but only upon waking, so from the night, not the evening: supp time? drink/eat? No stuffy nose. Not cold.
Sum: 1h15+8h30-(5+5+10+5+=)25’= 9h45-25’=9h20, plus up 4x (25’) (minus 30’ doze = 8h50)
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, gums 2x30’’, twist-stretch sleeping “20’”, yoga 5’, neck 1+ 2’, .
workout 7’, thumbnails 10x30’’, neck 2 1’, V ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
*fw: Night: 5’ + 8:30-9:00-11?.. *
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
(? ) 21:10: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: 450mg GABA
3:25: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora
I’ve now sorted the supps coming up by whether they are for sleep (5) or waking up/fatigue/energy (5) or pain (1). This has clarified that the serrapeptase for pain/inflammation is maybe not really up next, unless it’s gonna help with the Ache, which does sometimes feel inflammatory… Ah, OK, that’s a thought, maybe it is then up next, as I’ve got it anyway.
Reasons to be cheerful #70 A colleague with FM/CFS thanked me exuberantly for suggesting amino acids, saying she’s now taking tyrosine and has no brain fog since. 
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:05: 450mg GABA
23:53: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora
FCS#1 22:15-
23:53 4’ 90%/1 p1 st2 drink4 fw1’ +600 GABA + 400 glutamine + 200 theanine
1:05 3’ 90%/1 p2 st1 drink4 fw1’ +289 passiflora
2:40 3’ 90%/1 p2 st1 drink1 fw1’
4:30 3’ 90%/1 p0! (glutamine/theanine?) st1 drink1 fw1’
-6:48 90%/1 p0! st1 drink6 fw2’.
Still tired: doze 7:05-7:45
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 st1 drink almonds fw1’ teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h45+6h48-(4+3+3+3=)13’= 8h33-13’=8h20, up 4x (13’), plus 40’ doze = 9h)
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 8’, gums 2x30’’, thumbnails 2x30’’, neck 1+ 4’, yoga 3’.
workout 7’, neck 2 1’, V ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
fw: Night: 0 + 30’ + 20’ + similar 2h
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
(? )
21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1
22:05: 450mg GABA
23:53: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
20:40: 2x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: !400mg GABA, 1x289 passiflora
23:45: !500mg GABA & 400mg L-glutamine & 289mg passiflora
1:39 "200"mg theanine
FCS#1 22:20-
23:45 4’ 90%/1 p1 st1 drink fw2’ +600 GABA + 400 glutamine +289 passiflora
1:39 3’ 90%/1 p0 st1 drink fw2’ "200"mg theanine
3:56 4’ 90%/1 p0 st1 drink4 fw1’ hot flush due to added duvet.
6:08 3’ 90%/1 p0 st1 drink16 fw1’ getting restless → dozing partly (30’)
-7:18 90%/1 p0 st1 drink16 fw1’ getting restless
? 80%/2? almonds teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h40+7h18-(4+3+4+3=)14’= 8h58-14’=8h44, up 4x (14’), (minus 30’’ doze = 8h14)
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 0’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 2’, neck 2 1’, twist-stretch 4’, .
workout 7’, gums 2x30’’, thumbnails 10x30’’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
fw: Night: 5’ + 5’ + 2h (taurine) + 45’
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Amino Acids for low serotonin / dopamine etc - #4 by JayCS
(? )
20:40: 2x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: !400mg GABA, 1x289 passiflora
23:45: !500mg GABA & 400mg L-glutamine & 289mg passiflora
1:39 "200"mg theanine
Lessons in self-care #71 As always caught between trying to avoid too many sfx & having to overdose to see if something works. In this case the dose that works has too many sfx, I doubt doing something in between like 700mg makes sense. These seizures were comparable to ones I got from amitriptyline and even tilidine (that was much more severe and on the 1st day). I’d given it a chance, built up a bit. Praps I cd resort to 700-1000mg if I ever need a quick short kick… Also seems to habituate, which doesn’t nec make it better for me…
Reasons to be cheerful #71 Taurine’s real party stuff for me… go gaga quickly… 
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
21:00: !2x289 passiflora, 22:40 selene, rosewort/magnesium carbonate/B1 at meal
22:40: !600mg GABA (more to get the seizures down)
2:40: 600mg GABA & !450mg L-glutamine & 289mg passiflora
3:20 !"300"mg theanine & 4th 289mg passiflora
8:02 2x400mg mg glycinate
FCS#1 23:15-
2:36 4’ 90%/1 p0 st1 fw2’ +600 GABA+400 glutamine+289 passiflora, dry mouth → gel/lips
3:20 5’ 90%/1 clavicle → joint oils & stretching, where’s Traumeel? + 200 theanine+289 passiflora. Bit too awake means passiflora 2+1+1 isn’t enough, it needs to be earlier 3+1. stomach burn → drink. cold → all clothes on. doze.
4:50 30’ 90%/1 p0 st1 fw2’ drink 6
6:46 4’ 90%/1 p0 st1 fw2’ stomach ache → Gastritol + drink.
8:02 3’ 90%/1 p0 st1 fw1’ drink10 2x400mg mg glycinate.
-8:24
Sum: 0h45+8h24-(4+5+30+4+3=)46’= 9h09-46’=8h23, up 5x (46’), (minus 20’ doze/AuTr = 8h)
Ache = also Exhaustion/Tired 
➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’', pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Clavicle-join-oils 2’, AuTr 15’, Timing, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, workout 7’, twist-stretch 10’, .
gums 2x30’‘, thumbnails 10x30’‘, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, Teeth!
fw: Night: 5+ 2h +45’ 2h
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
21:00: !2x289 passiflora, 22:40 selene, rosewort/magnesium carbonate/B1 at meal
22:40: !600mg GABA (more to get the seizures down)
2:40: 600mg GABA & !450mg L-glutamine & 289mg passiflora
3:20 !"300"mg theanine & 4th 289mg passiflora
8:02 2x400mg mg glycinate
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’‘-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ 
➲ ↔:⇰↔ →:arrow_upper_right: 
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
22:25: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30: ?500mg GABA (slightly more than usual, slightly less later)
1:05: !500mg GABA & !500mg L-glutamine & !"250"mg theanine & 289mg passiflora
FCS#1 22:45-
1:03 3’ 90%/1 p0 st1 drink fw1’ +!500 GABA + !500 glutamine + !250 theanine +289 passiflora
2:45 5’ 90%/1 p0 st1 drink fw1’ teeth, clothes on. Dry mouth gel.
4:41 3’ 90%/1 p0 st1 drink fw1’ pain pangs 10cm downwards from left elbow, every few minutes. Oils didn’t help. Trigger pointing with Traumeel did. Strange spot.
5:48 39’ 6 6:27
-8:10 +1h43. 400mg magnesium glycinate 9:30 & "300"mg theanine 11:00
Sum: 1h15+5h48-(3+5+3=)’= 7h03-11’= 6h52, up 3x (11’), plus 1h43 = 8h35;
OR 1h15+8h10-(3+5+3+39=)50’=9h25-50’=8h35, up 4x (50’)
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, yoga 9’, workout 7’, twist-stretch 10’, loins 5’, .
gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
fw: Night: 5 + 30’ 2h (theanine)
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
(? )
22:25: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30: ?500mg GABA
1:05: !500mg GABA & !500mg L-glutamine & !"250"mg theanine & 289mg passiflora
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
I was just editing the new entry and an old entry at the same time, like I regularly do, and suddenly I cdnt stop the page from reloading (I was given a choice, but probably moving the laptop on my lap made it choose ‘reload’) which automatically discarded the new entry. Going to ‘drafts’ doesn’t help, as I’d discarded the main post to be able to edit in the other tab.
This means I’ve lost about an hour’s work today (I was just finishing the week’s highlights after updating sleep, supps and some actions), all my Up-Next ideas and tomorrow’s template
OK: keep calm.
It’s never as bad as we think, cos if we do it straight away, memory serves us fairly well.
For tomorrow’s template I’ll use yesterday’s again.
For today’s entry I’ll be able to reconstruct it the important things roughly.
The week’s highlights I can do quickly again from last week’s and memory.
Adding the links of the blog summary and references I can do some time later.
“Up next” will be the most important, but searching thru for a backup I’ve found one a week ago 2021-08-28, so shd be able to reconstruct the rest fairly quickly from memory…
Yes, I know, why don’t I edit the main post outside of the browser? Because it “always” works now… 
OK, here goes…
Symbol & emoji of the week:
500: no help (feverish-tired?), 1g: jittery, = 2x500mg: 3 seizures. 
600mg b4 bed, 600 2h later, +300 at 9:00 to try to improve stiffness & bladder.
300 on demand to improve alertness.
3x289 1-2h b4 bed, not less! +1 after 2h.
0 seemed not to make a difference.
On demand?
, except 5 mi walk & returning home, talking hardest.
. Sitting: turning lower half regularly: still good!
: next times.
than…
(bit of guesswork due to “discarding” the entry by mistake… )
21:00? 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30? 600mg GABA
1:05? 600mg GABA & ?400mg L-glutamine & 289mg passiflora
3:00? ?"300"mg theanine
FCS ?22:30-
…-8:10 300mg theanine at 8:00 and 200? at 9:00…
Sum: not quite sure, see above.
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, twist-stretch 1h30 while sitting yesterday evening, loins 5’, yoga 5’ (y. eve.),
gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, workout 7’, neck 2
fw: Night: 5’ + 2h25
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
(? )
See above
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
Work out how much of the pulverized tablet is filling agent?
Not too high single doses: 300 on Aug 4th seemed better. alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens! So watch out for seizures.
6 Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine),
Seems to excite me, as leaving off magnesium glycinate improved sleep.
Serrapeptase: https://forum.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, Serrapeptase Benefits, How to Use and Side Effects - Dr. Axe Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. Helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.
Vitamin B12 too.
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Reasons to be cheerful #72 Playing TT I got the ball out of a bush and said: “Got it”. But then couldn’t move back out for a while, we laughed our heads off 
Reasons to be cheerful #73 Playing, my grandchild saw I cdnt get up off from the kids’ trampoline well, so shouted “Boys, come here, my granddad can’t get up, come and help.” - and they came and helped. Laughter again. I thought: Great test for a worst case. I cd of course have slowly turned over on my hands and knees and pressed myself up, but Idve needed more than a minute…
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
, 2nd time serrapeptase
21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:15 600mg GABA
0:45: 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:05 "300"mg theanine
FCS ?23:10-
0:47 7’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
2:50 3’ 90%/1 p0 st1 drink fw1’ tea tree oil on foot1’
4:08 3’ 90%/1 p0 st1 drink fw1’ "300"mg theanine
6:05 3’ 90%/1 p0 st1 drink fw1’ Trying to not get up makes me more awake & my body unrestful.
-7:50
?300mg theanine at ?8:00 and 200? at 9:00…
Sum: 50+7h50-(7+3+3+3=)16’=8h24, up 4x (16’)
Learn to stop getting up?
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
// ➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, twist-stretch 5’, yoga 3’, loins 3’.
gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, workout 7’
fw: Night: 5 + 10’ +30’ +10’
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri - this week Friday:
(? )
21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:15 600mg GABA
0:45: 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:05 "300"mg theanine
8:55 "200"mg theanine + 300 GABA (arm & standing pain)
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
➔ ⇄ ⇨➜ ➞ ➲ ↔:⇰↔ →:arrow_upper_right:
↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:
3 passiflora, FCS 23:15-
2:04 5’ 90%/1 p1-2! st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
3:30 4’ 90%/1 p0-1 st1 drink fw2’ + "300"mg theanine
4:54 6’ 90%/1 p0-1 st1 drink fw4’
-7:19 4’ 90%/1 p0 st1 drink fw1’ (dose -7:35 12’)
Sum: 45’+7h20-(5+4+6=)17’=8h05-17’=7h48, up 3x (17’), + doze 12’ = 8h
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 2’, loins 2’, twist-stretch 6’,
neck 2 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, yoga, workout 7’
fw: Night: 5 + 7:45-8:30-9:15 1h30 + 30’ + ?30’
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
(? )
21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
23:15 450mg GABA
2:04 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
3:30 "300"mg theanine
“300mg” theanine with 500 GABA at 7:45
no added 200 theanine later…
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
glutamine/dopamine for stiffness/gait??: Low Dopamine in Fibromyalgia and CFS
Work out how much of the pulverized tablet is filling agent. 300 on Aug 4th seemed better, better not higher at night. Alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens! So watch out for seizures.
Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine).
Seems to excite me, as leaving off magnesium glycinate improved sleep.
Serrapeptase: https://forum.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, Serrapeptase Benefits, How to Use and Side Effects - Dr. Axe Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some as liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. It’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.
Vitamin B12 too.
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Reasons to be cheerful #74 Every time I wake up I keep thinking “still not sleeping” then I get up and am surprised it’s been 1.5-3h again and can sleep again…
Reasons to be cheerful #75 In the mornings I am always surprised how few times I’ve been up.
Reasons to be cheerful #76 My acupressurist asked me to bring some more serrapeptase with me on Friday - seems to have helped her too (pain & inflammation…).
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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