JayCS’s Fibro Blog

2021-09-03, Friday - 14’!! Theanine later, split taurine doses… - 3 seizures: from the taurine… oh well: magnesium glycinate next…

Triggers & resulting Symptoms

SLEEP: 8h44, up 4x (14'!!), (minus 30'' doze = 8h14) ↔️ Feeling 90% well, Ache 1 of 7 ✅

20:40: 2x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: !400mg GABA, 1x289 passiflora
23:45: !500mg GABA & 400mg L-glutamine & 289mg passiflora
1:39 "200"mg theanine
FCS#1 22:20-
23:45 4’ 90%/1 p1 st1 drink fw2’ +600 GABA + 400 glutamine +289 passiflora
1:39 3’ 90%/1 p0 st1 drink fw2’ "200"mg theanine
3:56 4’ 90%/1 p0 st1 drink4 fw1’ hot flush due to added duvet.
6:08 3’ 90%/1 p0 st1 drink16 fw1’ getting restless → dozing partly (30’)
-7:18 90%/1 p0 st1 drink16 fw1’ getting restless
? 80%/2? almonds teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h40+7h18-(4+3+4+3=)14’= 8h58-14’=8h44, up 4x (14’), (minus 30’’ doze = 8h14)

ACTIVITIES➔ACHE: Work 2 hours went well using taurine to get awake, altho I felt I was overdoing it using cortisol from it ➔ 90%/1, did quite a bit after acupressure, but then my head needed a long break, dumb, slightly zombified, eyes slightly closed...

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Lying with a gel-donut under my SIJ helped, but I have to remove it and back again every 30' ✅, standing OK ✅, loins: not better ❌, sitting OK ✅, stiffness after poses hmm... ✅/❌, cycling: backside hurt ❌, bladder sort of ✅/❌, stool was not the taurine, it was a carrot salad, which I've been eating twice a day and I thought might be off, but my wife said was completely OK. Until she ate some herself.. 🧐 ❌➔ S. boulardii ✅, talking OK ✅, mask-talking at work too, maybe the taurine tho, hope I'll find something similar & better.. ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 33' ✅, fibro-work (fw) 3h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 0’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 2’, neck 2 1’, twist-stretch 4’, .
:x: workout 7’, gums 2x30’’, thumbnails 10x30’’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

fw: Night: 5’ + 5’ + 2h (taurine) + 45’

THERAPIES: Acupressure on neck, but it's only slightly better afterwards. Idea for right knee while walking: Try knees up more.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Spread passiflora more: 2+1+1 ✅, Dozed more after 8h (due to postponing theanine to the 2nd sleep break?) ✅ Not jittery from the taurine due to splitting into 2x500 ✅ GI ✅ However the energy felt like overdoing it / feverish / overriding tiredness and I needed a long rest after doing a lot, tired, however not really fatigued or Achey. ❌ But after several auras and seizures at 15:20 & 19:30, taurine seemed to be the culprit. Researching that, it usually acts opposite (see link in the details to a new post in the amino acids thread), I've decided if it wakes me up (like everyone thinks, altho research contradicts this) then it will also excite seizures in me. 3rd seizure at 22:35, that proves it.

Amino Acids for low serotonin / dopamine etc - #4 by JayCS
(?:arrow_upper_right: :arrow_lower_right:)
20:40: 2x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: !400mg GABA, 1x289 passiflora
23:45: !500mg GABA & 400mg L-glutamine & 289mg passiflora
1:39 "200"mg theanine

Development

Lessons in self-care #71 As always caught between trying to avoid too many sfx & having to overdose to see if something works. In this case the dose that works has too many sfx, I doubt doing something in between like 700mg makes sense. These seizures were comparable to ones I got from amitriptyline and even tilidine (that was much more severe and on the 1st day). I’d given it a chance, built up a bit. Praps I cd resort to 700-1000mg if I ever need a quick short kick… Also seems to habituate, which doesn’t nec make it better for me…
Reasons to be cheerful #71 Taurine’s real party stuff for me… go gaga quickly… :wink: :roll_eyes:

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

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