JayCS’s Fibro Blog

Symptoms & Treatments
623

2021-12-20, Monday - dead slow, but still getting things done with “eyes half open”.

v2: 17:00 3g of Ribose cos so fatigued… no help.
v1: my supp-costs at the moment: 330€/m …! All for the drain or what would I be without them?

Triggers & resulting Symptoms

SLEEP (click for details): 8h56, up 5x (50') plus 17 = 9h13 ✅, but ➔ Feeling 70-80% well, Ache 2-3 of 7 ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:15-
00:05 3’ 80%/2 p1 st1 drink fw1’ HWB
01:45 3’ 80%/2 p1 st1 drink fw1’
02:45 3’ 70%/3 p1 st1 drink fw1’
05:00 38’ 70%/3 p1 st1 drink fw16’ Better when up a bit… 6
07:00? 3’ 80%/2 p1 st1 drink fw1’
-08:01 08:40-08:57 = 17’ (70%/3 p1 st2)
Sum: 1h45+8h01-(3+3+3+38+3=)50’ =9h46-50 = 8h56, up 5x (50’) plus 17 = 9h13

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Waking ➔ 70%/2 :face_with_monocle:. Out for 4x10’ (doc & shops): ➔ 70%-60%/2 fatigued, body & brain :face_with_monocle:, shop once more 1x10’.
(e.g. cycle :biking_man:, TT = :ping_pong:, meetings/social :speaking_head:, mask :mask:, kids :child:, work ➔ ?70%/2)
ACTIONS ➔ PAINS: :white_check_mark: itchy 3 of 7, but paperwork & mailing helps ignore it.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: Doc said histamine is a good idea, but too close to the hols, so in the new year.:face_with_monocle:. My wife asked “You what?!”, but I doubt it’s worth the effort.*
Supps to CHANGE: Wash capsule machine…:face_with_monocle:

SELF-PHYSIO (click for details): 93' ✅, back in the evening, I hope.

:white_check_mark: twist-stretch 10’, Timing, AuTr 30’, hunchback-pillow 10’, cold shower (6’), neck 2 3’, yoga/stretching 5’, hand-exerciser 3’, HWB 3’, left foot on/under right knee/cross-legged 15’, teeth 3x2’, loins 2’,
:x: plantar/calf stretch 5’, palpate 1’, belly 3’, back 7’, neck 1+ 4’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, red heat 3’,

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Ri 3g (tsp), Nd, Arg, B3: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:05 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:45 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/08:40 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/10:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:00 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:30 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/16:25 2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/16:55 Ribose 3g (slightly heaped tsp)
/19:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
->19:30
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D3, Q1QcRs: B3,D4 Sr2x: B1,C4,D4
SINGLE: A2:P5/Ro/(0Se)(Ω/Pq:meal), (B2:0mu), B3:Sa (B4: 5NADH) C2: B2+Th+Zn. (D1:Pe). Add a Dec 19th: 2nd B2 somewhere…

Development:
Jab-sfx: Big fatigue & somewhat burning skin are most prominent again, feverishness too.
Research-search today:
My supps cost 336€/month at the moment :bangbang:
Most expensive: 84€/m - ultra-high/-quality dose of serrapeptase (“serrétia”)
27€/m: omega 3 microalgae: .
25€/m: PQQ
25€/m: ubiquinol (double-dosed atm, otherwise 13€)
20€/m (36€/m): NAC powder to self-encapsulate vs. ready-made capsules. These def. help me.
18€/m passiflora
15€/m resveratrol
15€/m magnesium malate (same amount of glycinate’d be cheaper at 12€, splitting 13,50€)
14€/m ginkgo biloba
13€/m arginine (but not taking it yet)
11€/m rhodiola rosea
The rest, cheaper ones together cost 65€/m: B2, P5P, B12, carnitine, D3, GABA, glutamine, NADH, quercetin, ribose, SAM-e, theanine, zinc.
Cheapest are: B12 (s.c. every 2 months), D3, GABA, glutamine & zinc = 10€/m.
Not taking: ALC (20), B3 (2), mumijo (7), selenium (4). It can stay that way.
Conclusions?? Serrétia is probably not worth the money - unless it really does save my tooth, like hoped for. I can’t actually see anything else I can do without. Praps ginkgo & magnesium.
Pity I have to pay for it all myself and it’s not even tax-deductible. That’s only possible for things that need to be prescribed…:
Last year I paid 300€ altogether for supps, because none of them were working. Now I’ve found quite a lot that are definitely working & increasing my quality of life.
This year Jun-Sep21 it was about 100€/ on average, just Oct-Dec got so expensive. Altogether praps 1300€.

Financial stuff about getting supp-costs back (via prescription, tax & insurances)

But health for me only starts getting tax-deductible at 2000€, so only happens if it stays so high or I’d have to start paying my acupressure costs myself.
And one of my 50% insurances wouldn’t pay anything for the supps, the other would, so I’d get 50% back. But that may be more complicated via the online pharmacies which sell for between 20% and 45% off. At least I’ve never thought about sending them a prescription, which I think is possible.
But how much of these would my GP prescribe at all?

Lessons in self-care #158 Building up self-confidence, don’t want any more advice from my acupressurist, at most questions or suggestions.
Reasons to be cheerful #170 Managed to have a look into a newly developing music track.