JayCS’s Fibro Blog

JayCS · December 19, 2021, 11:45am

2021-12-19, Sunday - jab-sfx probably worsening due to a histamine reaction

v3: Probably building up a belated allergic reaction to the jab.
v2: 15:05 - Ribose doesn’t seem to be helping either (9 supps for energy/fatigue…)
v1: 12:50 - jab-sfx worse since last Sunday, trying D-Ribose now

Triggers & resulting Symptoms

SLEEP (click for details): 7h33, up 4x (43'), plus 40' Yoga Nidra 8h13 ✅, but ➔ Feeling 80% well, Ache 2 of 7 ❌🧐

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 00:05-
01:47 8’ 80%/2 p01 st1 drink fw6’
03:25 25’ 80%/2 p01 st1 drink fw4’ itchy skin - maybe this isn’t new, it’s the “burning torso” symptom.
05:34 5’ 80%/2 p01 st1 drink fw3’
07:05 5’ 80%/2 p01 st1 drink fw1’ itchy
-08:21 14’ 80%/2 p01 st1 drink fw1’ itchy
40’ Yoga Nidra
Sum: 8:16-(8+25+5+5=)43’= 7h33, up 4x (43’), plus 40’ Yoga Nidra 8h13.

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: resting all day except a 30’ cycle-walk ➔ 60-70%/2
ACTIONS ➔ PAINS: My torso skin is becoming more & more itchy, with small bumps appearing.

Treatments

THERAPIES: I’d best analyze how acupressure has been developing in the last few months
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 118' ✅.

Timing, AuTr 50’, hunchback-pillow 10’, cold shower (6’), plantar/calf stretch 5’, twist-stretch 15’, palpate 1’, belly 3’, back 7’, teeth 2x2’, yoga/stretching 5’, left foot on/under right knee/cross-legged 5’, neck 1+ 4’, hand-exerciser 3’
loins 2’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, red heat 3’,

23-24 Supps, 9 of them for energy/fatigue/exhaustion/ATP: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Ri 1.3g... Arg, B3, Nd: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:25 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/23:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:05 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:50 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/08:20 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/09:40 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/10:40 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/10:40 .5g RIBOSE (no fx)
/12:40 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
/12:40 .3g RIBOSE
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:05 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/17:30 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
/17:30 .5g Ribose
/17:30 vit.B2.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D3, Q1QcRs: B3,D4 Sr2x: B1,C4,D4
SINGLE: A2:P5/Ro/(0Se)(Ω/Pq:meal), (B2:0mu), B3:Sa (B4: 5NADH) C2/3: B2+Th+Zn. (D1:Pe)

Development:
Jab-s fx worse again at Day 19 compared with Day 12 (sfx-numbers see above or details):
1-4, 6: Fatigue/Ache. Shuffling, breathless, shaky, sighing more.
5/10/11/14/15/16: Feverish.
5/17: Skin irritation. Now the whole time, not just bouts.
12/13: Sometimes a bit nauseous.
18: stiffness.
21: sometimes better.
Remained OK: sleep/tiredness 7/8, sore throat 9, brain fog 19, sore muscles 20.
This made me look at the expert recommendations again:

One doc recommends:

50 to 75 mg Benadryl: An antihistamine for hives/urticaria (German: Nesselfieber), which I seem to have = allergic/autoimmune? Instead I could try: Probiotics, “cleaning” gut; cooling creams & gels, Apis mellifica (Honigbiene) or Urtica urens, aloe vera cream, vinegar, tea tree oil, calendula, cold showering?, gut, own blood, ear acupuncture,
1200 mg NAC: Taking 2.5g/d already.
40 mg famotidine: To decrease stomach acid. Not the problem.
800 mg quercetin: Taking 1g/d already.
1g vit C: Taking 1g/d already
200 mg riboflavin: Taking ,1g, so doubling now.

Klimas’ page is interesting because she’s making me think this is a belated allergic reaction.
recommends things I am already taking: ascorbic acid, B6, N-acetylcysteine (NAC), Omega-3’s, riboflavin, SAMe, quercetin,
as well as things I’m not taking yet:
an antihistamine (like above),
alpha lipoic acid: that’s one I could get.
diamine oxidase enzymes (DAO): no medical evidence & hard to get.
luteolin: sounds good, but again hard to get.
natural sources of theophylline like green and black teas: tough sfx when pure, and I dislike tea …

Details of jab-sfx-list

exhaustion: Worse for longer than ever with just FM, +30%-30%= “0” on Day 19.
some energy, but depletes quickly: Same as 1 - hardly energy.
little strength, arms/hands often heavy: Same as just FM, +60%+0%.
Ache different to fibro: Same as 1, +0%, i.e. unchanged. = 0%
showering less unpleasant than Day 12: +10%+30%
every movement usually feels difficult or bad, +40%-30% so back to +10%
Sleep OK now +100%
still tired, but not nec. dead tired, +80%+0%
Strong sore throat for 7 days, until getting it gone by: Worse than just FM. +100%+0%, i.e. 0
permanent heat (electric blanket, 5th pair of (woolen) socks, long johns inside, hot water bottles at night). Much worse than just FM, +20%+10%
Otherwise usually extremely cold feet, hands, lips often white. Much worse than just FM, +20%+20%
Usually slight nausea: Much worse than just FM, +20%+70%
if I move: more: Much worse than just FM, +30%+70%
feverish-ill usually, a bit different to fibro, longer, not influenceable, Much worse than just FM, +40%+0%
worse from slight movement, even more from slight strain, Much worse than just FM, +30%+20%.
actual “fever” of 1°C higher than usual (36,5°C instead of 35,5) Not in FM at all, -10% cos 36,6°C today. ±0%
Burning “skin” over the whole torso (partly legs) sometimes, then for several hours: Not in FM at all, +100% (but comes in bouts, so may still return). -40%: skin irritation itchiness, tiny pulstules.
stiffness more: Like just FM before GABA etc., +40%-20%.
brain fog more: Like just FM before GABA etc., +40%+0%.
“sore muscles” in backside more: New, +60%.+10%
Sometimes better for a few hours (often evenings, different to fibro) or half a day. Like FM, +50%, slightly getting more. -30%
In the first few days:
local pain (upper back, hands): still gone 0% → 0%, 100%-10%.
headache: still gone, except during the “almost-cold”. (COVID-symptom) 100 → 100%
3 focal seizures: still gone. (not a COVID-symptom, but possible jab-effect) 100-> 100%
“burnt tongue”: returned once, but gone. (not a COVID-symptom) 100 → 100%

Research-search today: Re-read how to alleviate the jab-sfx…

Lessons in self-care #157 Creaming my skin or getting it creamed alleviates the itch a bit.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 20, 2021, 8:05am

2021-12-20, Monday - dead slow, but still getting things done with “eyes half open”.

v2: 17:00 3g of Ribose cos so fatigued… no help.
v1: my supp-costs at the moment: 330€/m …! All for the drain or what would I be without them?

Triggers & resulting Symptoms

SLEEP (click for details): 8h56, up 5x (50') plus 17 = 9h13 ✅, but ➔ Feeling 70-80% well, Ache 2-3 of 7 ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:15-
00:05 3’ 80%/2 p1 st1 drink fw1’ HWB
01:45 3’ 80%/2 p1 st1 drink fw1’
02:45 3’ 70%/3 p1 st1 drink fw1’
05:00 38’ 70%/3 p1 st1 drink fw16’ Better when up a bit… 6
07:00? 3’ 80%/2 p1 st1 drink fw1’
-08:01 08:40-08:57 = 17’ (70%/3 p1 st2)
Sum: 1h45+8h01-(3+3+3+38+3=)50’ =9h46-50 = 8h56, up 5x (50’) plus 17 = 9h13

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Waking ➔ 70%/2 . Out for 4x10’ (doc & shops): ➔ 70%-60%/2 fatigued, body & brain , shop once more 1x10’.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?70%/2)
ACTIONS ➔ PAINS: itchy 3 of 7, but paperwork & mailing helps ignore it.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: Doc said histamine is a good idea, but too close to the hols, so in the new year.. My wife asked “You what?!”, but I doubt it’s worth the effort.*
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 93' ✅, back in the evening, I hope.

twist-stretch 10’, Timing, AuTr 30’, hunchback-pillow 10’, cold shower (6’), neck 2 3’, yoga/stretching 5’, hand-exerciser 3’, HWB 3’, left foot on/under right knee/cross-legged 15’, teeth 3x2’, loins 2’,
plantar/calf stretch 5’, palpate 1’, belly 3’, back 7’, neck 1+ 4’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, red heat 3’,

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Ri 3g (tsp), Nd, Arg, B3: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:05 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:45 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/08:40 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/10:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:00 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:30 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/16:25 2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/16:55 Ribose 3g (slightly heaped tsp)
/19:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
->19:30
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D3, Q1QcRs: B3,D4 Sr2x: B1,C4,D4
SINGLE: A2:P5/Ro/(0Se)(Ω/Pq:meal), (B2:0mu), B3:Sa (B4: 5NADH) C2: B2+Th+Zn. (D1:Pe). Add a Dec 19th: 2nd B2 somewhere…

Development:
Jab-sfx: Big fatigue & somewhat burning skin are most prominent again, feverishness too.
Research-search today:
My supps cost 336€/month at the moment
Most expensive: 84€/m - ultra-high/-quality dose of serrapeptase (“serrétia”)
27€/m: omega 3 microalgae: .
25€/m: PQQ
25€/m: ubiquinol (double-dosed atm, otherwise 13€)
20€/m (36€/m): NAC powder to self-encapsulate vs. ready-made capsules. These def. help me.
18€/m passiflora
15€/m resveratrol
15€/m magnesium malate (same amount of glycinate’d be cheaper at 12€, splitting 13,50€)
14€/m ginkgo biloba
13€/m arginine (but not taking it yet)
11€/m rhodiola rosea
The rest, cheaper ones together cost 65€/m: B2, P5P, B12, carnitine, D3, GABA, glutamine, NADH, quercetin, ribose, SAM-e, theanine, zinc.
Cheapest are: B12 (s.c. every 2 months), D3, GABA, glutamine & zinc = 10€/m.
Not taking: ALC (20), B3 (2), mumijo (7), selenium (4). It can stay that way.
Conclusions?? Serrétia is probably not worth the money - unless it really does save my tooth, like hoped for. I can’t actually see anything else I can do without. Praps ginkgo & magnesium.
Pity I have to pay for it all myself and it’s not even tax-deductible. That’s only possible for things that need to be prescribed…:
Last year I paid 300€ altogether for supps, because none of them were working. Now I’ve found quite a lot that are definitely working & increasing my quality of life.
This year Jun-Sep21 it was about 100€/ on average, just Oct-Dec got so expensive. Altogether praps 1300€.

Financial stuff about getting supp-costs back (via prescription, tax & insurances)

But health for me only starts getting tax-deductible at 2000€, so only happens if it stays so high or I’d have to start paying my acupressure costs myself.
And one of my 50% insurances wouldn’t pay anything for the supps, the other would, so I’d get 50% back. But that may be more complicated via the online pharmacies which sell for between 20% and 45% off. At least I’ve never thought about sending them a prescription, which I think is possible.
But how much of these would my GP prescribe at all?

Lessons in self-care #158 Building up self-confidence, don’t want any more advice from my acupressurist, at most questions or suggestions.
Reasons to be cheerful #170 Managed to have a look into a newly developing music track.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 21, 2021, 5:20pm

2021-12-21, Tuesday - keeping every movement slow & short. GI/wind:

praps zinc after not eating well this morning.

Triggers & resulting Symptoms

SLEEP (click for details): 8:57, up 3x (1h30) ✅, but ➔ Feeling 70% well, Ache 2 of 7 ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:30-
00:08 25’ 70%/2 p0 st1 drink fw15’
02:30 8’ 70%/2 p0 st1 drink fw 2’
04:54 57’ 70%/2 6 p0 st1 drink, afterwards seemlingly just dozing… but… bit long for that.
-8:57
Sum: 1h30+8h57-(25+8+57=)1h30 = 10h27-1h30 = 8:57, up 3x (1h30)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE:
Interestingly much easier to do my back exercises before sleep after alternate showering than in the mornings… ➔ 70%/2 .
Today I originally had 5 things to do (3 appointments) - bit by bit I sorted them all out and now only had my music production lesson - forgot to do yoga nidra before, but managed to squeeze a few minutes in between. ➔ 70%/2
Carried on with music production after, even singing a bit, despite the strain. ➔ 70%/2
Then met with mates for 10’, plus shop 10’, both and the getting there was exhausting, tough to walk, hard to think 70%/3 .
ACTIONS ➔ PAINS: , GI in the evening: wind - why? Ate little at “noon”. Bit of belly ache at night 0:35

Treatments

THERAPIES: Acupressure tomorrow , gonna talk straight again.
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 112' ✅.

twist-stretch 10’, cold shower (7’), Timing, teeth 1x2’, palpate 1’, belly 3’, back 7’, plantar/calf stretch 2’, AuTr 20’, hunchback-pillow 15’, left foot on/under right knee/cross-legged 40’, yoga/stretching 5’,
neck 1+ 4’, jolt-jump 1’, neck 2 3’, loins 2’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, red heat 3’, hand-exerciser 3’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd 0, Arg, B3, Ri: 0 today. Pe & Ps 0. (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:35 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/02:30 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/09:00 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/09:45 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/09:50 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/12:05 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
Didn’t eat properly at 10:00, so doing it at 12:35, done - Drat, I’d still been eating a bit at 10:30.
D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:45 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:20 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Everything same, esp. skin still, but slightly better with cream. Movement-fatigue still max.

Research-search today: Looking for citable links for old fibro-cause-hypotheses I found most interesting:

https://www.fmperplex.com/2016/08/30/most-fibromyalgia-research-is-worthless/

Lessons in self-care #159 New walking technique: Just very slow, not nec. shuffling can be OK, altho shuffling maybe keeps the nausea down more.
Reasons to be cheerful #171 Loving listening to great music.

My blog references, e.g. abbreviations, supp chart/overviewx
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 22, 2021, 11:41am

2021-12-22, Wednesday - Acupressure… hmmm… thinking of a break

Analyse acupressure in the last months: Not too good a record… Let’s see how it goes today. OK, but no real improvement after.

Triggers & resulting Symptoms

SLEEP (click for details): 8h27, up 3x (1h21) ✅, but ➔ Feeling 70% well, Ache 2-3 of 7 ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:30-
00:50 35’+40’ 70%/2 p0 st1 drink fw3’ bit of reflux, elbow. 6
05:05 3’ 70%/3 p0 st2 drink fw1’
07:30 3’ 70%/2 p0 st2 drink fw1’ HWB
-08:18
Sum: 1h30+8h18-(1h15+3+3=)1h21 = 8h18+9=8h27, up 3x (1h21)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 70%/2 fatigued & shaky . Acupressure ➔ 70%/2. 2 shops ➔ 70%/2. Grandchild ➔ 70%/2. All slow, with rest.
ACTIONS ➔ PAINS: GI: reflux at night, enticed me to take a longer sleep break. Hardly any pains otherwise.

Treatments

THERAPIES: Acupressure… she was much gentler now. Not bad, better after, like after rest, but as yet not anything like brilliant, like it used to be.
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 79' ✅.

plantar/calf stretch 3’, twist-stretch 20’, Timing, hunchback-pillow 5’, cold shower (6’), yoga/stretching 2’, neck 1+ 4’, hand-exerciser 3’, AuTr 15’, palpate 1’, belly 2x3’, back 2x7’,
loins 2’, left foot on/under right knee/cross-legged 5’, teeth 3x2’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, red heat 3’,

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd0 Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:55 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/02:05 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/09:00 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/09:55 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:00 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
0 12:40 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/16:25 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:25 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Skin praps slightly better, but certain spots worse. Better Tuesday evening (19:00 supps?). Exercising again easier than in the mornings, praps cos of the stretching at the kitchen table in the evening.
Research-search today:

Lessons in self-care #160 Acupressure easy, taking pressure off, taking a break.
Reasons to be cheerful #172 Grandchild was fun, I hardly moved, but could interact quite well, played with & all around me, hiding me, then seeking me…

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 22, 2021, 6:25pm

2021-12-23, Thursday - jab-sfx still bad on Day #23 , but so many fun things to do without moving!

Just realized I’d been leaving the original positive tick behind sleep the last few days. The problem I think is I’m sleeping well, but feeling bad in the breaks and after them - so how do I rate that?? I think I have to change it into , but put a tick before to rate the long sleep with few short breaks…
v2: 14:30 not good, fatigue, Ache, burning. even sitting at the table to eat needs cortisol stress - which feels OK, but will rob me further.

Triggers & resulting Symptoms

SLEEP (click for details): 9h20, up 3x (35') ✅, but ➔ Feeling 60% well, Ache 3 of 7 ❌, very difficult getting up

No fw! lbu: belly tensing? No half-sitting on sofa!
no alternating shower, praps later p0 Sleep 22:20- HWB
01:01 25’ 70%/2 p0 st1 drink fw23’ - part shower only at 21:00 shows that I don’t nec. need a cold shower before sleep, at least not atm: 2.5h stint! GI better now, but very itchy → cream & thirsty → drink.
04:37 5’ 70%/2 p0 st1 drink fw1’
07:25 5’ 70%/2 p0 st1 drink fw2’
-08:15
Sum: 1h40+8h15-(25+5+5=)35’ = 9h55-35’= 9h20, up 3x (35’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: At night ➔ 60%/3. Cold showering - didn’t help, back exercises very difficult , I’d say that was going to acupressure yesterday. ➔ 60%/3, resting ➔ 70%/3, 30’ cycle-walk ➔ 60%/3
ACTIONS ➔ PAINS: Quite a few GI: wind problems in the evening (why?!), OK at 01:00, praps helped by HWB. Better Thursday, wind started again in the afternoon.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: Acupressure: No help. Several things she said weren’t helpful either, nothing dramatic, but there are no more suitable ideas coming from her side.
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 95' ✅.

Timing, HWB 3’, AuTr 5’, hunchback-pillow 10’, cold shower (7’), palpate 1’, belly 3’, back 7’, teeth 2x2’, left foot on/under right knee/cross-legged 30’, twist-stretch 15’, plantar/calf stretch 7’, yoga/stretching 3’,
neck 1+ 4’, loins 2’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, red heat 3’, hand-exerciser 3’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd 0 Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:25 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/21:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/01:05 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/04:40 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/08:30 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/10:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:00 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:00 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:10 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Still big fatigue & Ache (rhino). At night the skin burning got more again.
Research-search today:
Having a closer look at fibro-girl’s livingsmarterwithfibro pages: On her sleep page she cites a study using 11mg of zinc in the evenings, I’m taking mine in the mornings.
The only other really good thing I found is her good take on the GI-sfx of D-ribose, which I’ve put here:

The rest of her site isn’t my style: I have to read a lot I already know, to find hardly anything I don’t, so it’s not effective reading for me. The amount of “adverts” is OK and she seems nice.

Lessons in self-care #161 Didn’t get distracted once I’d decided it’s time not to play any more.
Reasons to be cheerful #173 Grandchild helped me encapsulate, opened the capsule & once filled put them in the appropriate box.
Reasons to be cheerful #174 So much fun without moving, watching atm “TV” things I’d recorded, a brilliant modern classical piece (Offertorium by Gubaidulina), interesting things, exhilerating.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 24, 2021, 7:22am

2021-12-24, Friday - the Light is Coming, I’m Happy

v1: tired.

Triggers & resulting Symptoms

SLEEP (click for details): 8h26, up 6x (59') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, waking up: ➔ 80%/2 🧐, don't feel like getting up 🧐

No fw! lbu: belly tensing? No half-sitting on sofa!
0 alternating shower p0 Sleep 22:45-
00:20 15’ 80%/2 p0 st1 drink fw12’
00:50 32’ LBU!! (due to not cold showering before bed!) 6. p0 st1 drink fw 1’
03:00 3’ 80%/2 p0 st1 drink fw2’.
03:51 3’ 80%/2 p0 st1 drink fw1’. HWB
05:26 3’ 80%/2 p0 st1 drink fw1’.
07:26 3’ 80%/2 p0 st1 drink fw1’. Thirsty all night. doze/AuTr
-8:10
Sum: 1h15+8h10-(15+32+3+3+3+3=)59’ = 9h25-59’ = 8h26, up 6x (59’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: starting out ➔ 70%/2, after getting up (80%/2), doing quite a bit in overdrive in the flat in the evening and early night, mostly ➔ 80%/2
ACTIONS ➔ PAINS: GI better.

Treatments

THERAPIES: Nothing at all positive from the acupressure.
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 40' ✅.

left foot on/under right knee/cross-legged 10’, twist-stretch 10’, Timing, AuTr 10’, hunchback-pillow 10’, cold shower (0’),
plantar/calf stretch 5’, palpate 1’, belly 3’, back 7’, neck 1+ 4’, loins 2’, teeth 3x2’, jolt-jump 1’, neck 2 3’, yoga/stretching 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, red heat 3’, hand-exerciser 3’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Reduced Sr to 3x1 today. Nd? Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:35 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:35 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:35 B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/08:15 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/09:00 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/09:50 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/12:40 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:45 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/19:15 D4 “17:00” (“meal/acids+2h”)
Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2: 0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx:
Movement outside: Always having to use a bike without a middle bar, which also is buffered. Can be my walker, but like others I’ve seen (e.g. someone with MS), cycling is easier than walking.
Movement inside: Very slow. Sometimes on hands and feet. I’ve been starting to realize this is getting closer to wheelchair.
Most important is to keep my stance: Head up, brain awake, no under- and no overstatement, whatever anyone thinks. No longer just what my body tells me.: Keeping UNDER the sweet spots now, as my experience shows. If I do this, I can feel completely well and normal in many moments - while sitting, even while moving slowly. May sound strange, but this is such a blessing, and I just need to focus on this more and use & expand on this. When esp. my wife & friends express empathy, that’s nice of them, but I mustn’t let this pull me down in any way. It’s more about building on what I still can do. And I want to concentrate more on keeping moving, not sitting too/as long if not necessary. That’s my next target. I also want to start doing all self-treatments every day. Both means I need to change my priority order, not quite sure how yet, I’ve been meaning too quite a while, but I can’t get my head round it yet. Somehow I need to first do things to keep/get my body “running”. Then as soon as possible to do lots of short small tasks in my room & the flat. Then back to body. And lastly of all: computer stuff, when I shouldn’t move any more (before I can’t), so later & a bit less resting, more “breaks from resting”… (I need a good image for this…)

Research-search today:

Lessons in self-care #162 Not particularly self-disciplined, but doing things & so far so good…
Reasons to be cheerful #175 Maybe not my first happy Christmas alone, but my wife phoned & told me where to look for a present and the rest of the time I did lots of nice things.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 25, 2021, 12:18am

2021-12-25, Saturday - A VERY HAPPY DAY from me to you

v7: 15:20 Talking to my wife I did tons of very gentle stretches, feels good for body & lungs. Together with 3h+ of yoga nidra, I’m managing a lot of self-treatment as planned.
v6: 11:30 waking up: overactive, overdoing it, but so f*ing what! It’s Christmas, and I’ll use the energy to get back to self-discipline.
v5: 10:05 swhirled around the flat, everything clean, feverish from overdoing it, back to bed for “nidra-sleep”.
v4: 9:10 much too short sleep and in brain overdrive - get back to bed, mate!
v3 7:00 Idea about getting my elbow done myself using youtube.
v2: 1:40 It came as it had to. Due to writing so close before sleep, my brain is in overdrive - it’s finished what I was thinking about, but now it’s suddenly hooked on a completely different topic regarding work - in Germany people are jumping on the bandwagon of making everything more digital. I was working digitally long before everyone else was and still see the same problems for interactivity: modern software is still primitive and superficial. So what needs doing if we are gonna go this route is to grapple with the software, rate it and make constructive suggestions how it has needs to change. Example: People (e.g. in online services) are using a webpage where everyone can write some words or short sentences about a topic (“What are you looking forward to today?”) and the software doesn’t order the words in any sensible way, it just keeps increasing size if the quantity changes and changes the position. What’d be necessary here is a semantic analysis in combination with linguistic software to quickly deepen the brainstorming into a mindmap. So easy to do un-digitally with human brain power! The quantity seems to fascinate people, but fogs over the lack of quality, even worse than badly used presentation software… OK, got that out of my system now. I’ll be contacting people about this. Next: Yoga Nidra…
But: v1: Nothing to read yet. Lost “all” self-discipline in favour of writing loads of deeply philosophical blurb on fibro

Triggers & resulting Symptoms

SLEEP (click for details): 5h53, up 4x (12') = 5h41+1h22=7h03 ❌, but ➔ Feeling 90% well, Ache 1 of 7 🧐 ✅, waking up: overactive, overdoing it, but so f*ing what! ✅ It's Christmas, and I'll use the energy to get back to self-discipline.

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 01:20- brain hyperactive.
Try again with yoga nidra 2:00-
2.40 3’ ?90%/1 p0 st1 drink fw 1’ still yoga nidra
3:21 3’ ?90%/1 p0 st1 drink fw 1’ yoga nidra
5:08 3’ ?90%/1 p?1 st1 drink fw 1’ yoga nidra
07:10 3’ ?90%/1 p?1 st1 drink fw 10’ tennis elbow idea
07:53 Hypering again, so I’m not sure whether to use yoga nidra or
-End
Sum: 7h53-2:00 = 5h53, up 4x (12’) = 5h41, much too short and in overdrive get back to bed, mate!
10:05- AuTr/Nidra
10:58 3’ 90%/1 p0 st1 drink
-11:25 1h25-3=1h22, 5h41+1h22=7h03
5h53, up 4x (12’) = 5h41+1h22=7h03

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Still overdoing it, a bit tensed up again, after yoga nidra was good. ➔ 80%/2 . Rest of day similar, after lots of exercises and a 30’ cycle-walk ➔ 80%/2 .
ACTIONS ➔ PAINS: . My elbow tendons are hurting a bit outside, not inside (esp. at night, disturbing sleep a little sometimes), that seems to be tennis elbow, not golfer’s/climber’s elbow. What my acupressurist has been doing was late and not helpful, I need a good exercise: epicondylitis / epicondylosis. I like Kristie Ennis’s, Dr. Jo and Burke shows a lot in a short time. Maybe wringing something out can replace a flexbar.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: I want to try to replace what the acupressurist has been doing by even more stretches / exercises.
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 6h02 ✅✅✅. Loads of yoga nidra instead of sleep.

AuTr 3h+, cold shower (7’), hunchback-pillow 10’, yoga/stretching 80’, plantar/calf stretch 5’, palpate 1’, belly 2x3’, back 2x7’, left foot on/under right knee/cross-legged 10’, marionette-hang 10’, loins 4’, teeth 2x2’, neck 1+ 5’, HWB 2x3’, hand-exerciser 3’, twist-stretch 20’, neck 2 3’,
Timing, jolt-jump 1’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’,

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd1 - maybe helped. Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/21:05 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/00:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/01:05 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
? B1 “01:00” PF#4 NAC#2 SRP#1+2 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/09:00 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/12:50 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/13:10 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-
D3
Meal:
/15:15 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#3+4 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/16:55 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:55 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,Sr#5+6. “Nd&Q1QcRsSr2” >19:1 5
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Cortisol from reduced sleep helping move better, but managing to slow down again at midday, I hope in time.
Research-search today: After writing stuff about how the psychology of change can help us, I found in a similar vein:

Lessons in self-care #163 Stopped hypering in time,
Lessons in self-care #164 nidra-sleep might even be better than real sleep, who knows…
Lessons in self-care #165 Managing to exercise a lot.
Lessons in self-care #166 Changes once in a while help test where I’m at: Not cold showering caused lower back unrest last night, doing it again tonight (well at least alternate warm-cold) stopped it from happening.
Reasons to be cheerful #176 Bit of cortisol is nice once in a while.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 26, 2021, 7:07am

2021-12-26, Sunday - learning to adapt & adjust

v4: Learning to move, see Lessons in Self-Care #170ff
v3: 16:00 5… lessons in self-care and 6… reasons to be cheerful today!
v2: Plan to move a bit more regularly is off to a bad start this morning. But a long-legged breakfast tray over my electric blanket is a brilliant help for placing my laptop!
v1: 08:05 getting up is a bit strange, tired eyes, maybe due to taking the 1:00 supps at 5:00

Triggers & resulting Symptoms

SLEEP (click for details): 7h49, up 3x (51') +35' = 8h24 ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, waking up: ➔ 80%/2 🧐. HWB often helps, incl. with stuffy nose, but sometimes overheats me, like towards the end today.

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:40-
22:30 3’ 80%/2 p0 st1 drink fw1’
01:40 45’ 70%/2 p1 st1 drink fw35’ HWB
04:50 3’ 80%/2 p0 st1 drink fw1’
-07:20 80%/2 p0 st1 drink fw1’ HWB +35’ doze
Sum: 1h20+7h20-(3+45+3=)51’ = 8h40-51’ = 7h49, up 3x (51’) +35’ = 8h24.

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 70%/2 most of the day. However I’m getting used to the Ache, it’s just I can hardly move. I’m happy, but I haven’t got the energy to feel it too much.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2)
ACTIONS ➔ PAINS: , GI problems (esp. wind) has stopped again the last few days , without me being able to find out what caused them .
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: Having a look at the few things my acupressurist said on Wednesday, there was nothing helpful amongst them,
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 2h11 ✅. Trying back exercises 'first thing' again for a change was extremely strenuous, even with breaks. I've even decided to reward myself with "more minutes" for the same amount of exercise, cos it's gotten so tough. My wife suggested doing them gentler, but my back muscles need them this tough, so I just have to do more breaks.

twist-stretch 30’, yoga/stretching 35’, hand-exerciser 3’, Timing, cold shower (6’), teeth 2x2’, jolt-jump 1’, HWB 3x3’, AuTr 2’, hunchback-pillow 5’, left foot on/under right knee/cross-legged 20’, palpate 1’, belly 3’, back 12’ .
plantar/calf stretch 5’, neck 1+ 4’, loins 2’,neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: I've been cutting the serrétia-serrapeptase by half in the last week, haven't always noted that, but have changed the amount as from the day; immediately reducing my costs by 34€/m...🧐. Nd 1, again not the slightest effect. Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/23:35 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/04:50 (forgot) B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/07:25 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/09:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/10:05 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/12:50 incl. Nd C4 “11:00” (+2h/) ma#3+4 Nd#1 SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/16:30 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/19:35 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Fatigue = movement tough again, but “fighting” against the “resistance”. Feverishness OK today.
Research-search today:

Lessons in self-care #167 I’m putting a breakfast tray to very good use we found on the wayside a few weeks ago. As I now always need an electric blanket over me when sitting leant against my sofa, it’s hard to arrange it around my laptop on my lap so it doesn’t overheat. I just found myself looking at it and thinking: That’d be good. It’s a bit cumbersome as I have to change my leg position every 5 minutes (to stretch my loins and relieve my tailbone). But I’m sure I’ll get used to it.
Lessons in self-care #168 Wondering about the height, I saw it was possible and tried to increase the leg length: Now my laptop is where it should be, about the height of my neck - brilliant! One of the knobs for the length is overwinded, but I’ll fix that
Lessons in self-care #169 As my laptops are getting even more important - almost all-emcompassing - in my life, I’m spending more time on optimizing my ‘workplace’, i.e. learning & using new browser functions, e.g. to rearrange the various areas of ‘work’.
Lessons in self-care #170 Comparing myself to a girl I know in a wheelchair from a CoV-jab I don’t think that’d help me at the moment, as wherever I could bring myself or get brought to I wouldn’t have enough energy etc. to do anything there. So I spose I could say: Not even a wheelchair would help me. Who said fibro won’t put me in a wheelchair…?
Lessons in self-care #171 Hmm, as I often have to use my hands/arms to place my legs somewhere it does have a touch of someone helping someone in a wheelchair, just I’m helping myself. Never seen this that much apart from people who are very severely disabled, which I spose I am, at least for a time.
Lessons in self-care #172 Based on #171, I’ve developed a new way to improve walking: Using my hand to flick my legs forward, if they are strong enough, which they usually are. (Altho Nordic walking sticks don’t generally help me, as my arms also get fatigued quickly then.)
Lessons in self-care #173 Compared to someone ‘bed-ridden’ I’m using my own idiosyncratic ways of doing anything and everything possible instead of just giving up. The suggestion of my acupressurist that my body may need the rest of a bed is not right for me at all.

Reasons to be cheerful #177 When I look at my encapsulating stuff, I remember fondly how cutely my grandchild helped me on Wednesday, opening capsules
Reasons to be cheerful #178 I’m so grateful the web allows not just to read newest stuff, but also being able to interact and thus learn new things faster.
Reasons to be cheerful #179 Got nice new woolen socks from Christmas. Who’d’ve thought I’d ever be so happy about SOCKS FOR CHRISTMAS. “Old age” .
Reasons to be cheerful #180 Comparing my condition now to Vujicic or Hawking, my radius seems extremely reduced and still I have the power of the web at my fingertips, plus I can walk a bit too, praps not as well as Vujicic, I’m not sure. But I’m a little bit of hero too.
Reasons to be cheerful #181 Got a massage pistol for Christmas, wow, I hope that’ll do some good.
Reasons to be cheerful #182 Listening to my own tracks, I’m exhilerated about all I’ve managed to compose and the messages of the songs.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 26, 2021, 7:10pm

2021-12-27, Monday - lots of rest, then at 16:00 a longer cycle-walk was quite OK!

Bit of a fright when I heard that my grandchild (Wednesday) had tested positive, but my wife and I tested negative. I feel like not seeing anyone live, am plugging video conferences instead now.

Triggers & resulting Symptoms

SLEEP (click for details): 8h00, up 4x (25') ✅, and ➔ Feeling 80-(90)% well, Ache 2 of 7 🧐, waking up: 80%/2 🧐. Hot water bottle continually now, found a way to make one better at night. (Much preferred to electronic possibilities.)

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 00:30-
01:50 5’ !90%/1 p0 st1 drink fw1’
03:10 5’ 80%/2 p0 st1 drink fw1’ 2nd HWB
05:15 5’ 80%/2 p0 st1 drink fw1’ sore throat → Umcka calendula 5th pair of socks
07:35 10’ 80%/2 p0 st1 drink fw1’ stuffy nose → find HWB again, air, change blankets, i.e. colder, but with HWB on feet and elsewhere. Is losing the HWB the reason for both?
-08:55
Sum: 8h55-30-(5+5+5+10=)25’ = 8h00, up 4x (25’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: up, and resting a lot ➔ 80%/2, at 16:00 a long cycle-walk was quite good, even at energy to tidy my room afterwards, but slowly, well paced ➔ 90%/1 .
ACTIONS ➔ PAINS: bit of elbow & loins, so gotta keep up the stretching.

Treatments

Supps to CHANGE: Wash capsule machine… (getting boring ain’t it.)

SELF-PHYSIO (click for details): 107' ✅.

plantar/calf stretch 5’, twist-stretch 15’, AuTr 2’, hunchback-pillow 10’, cold shower (6’), drink more , palpate 1’, belly 3’, back 12’, neck 1+ 2’, loins 2’, left foot on/under right knee/cross-legged 25’, teeth 2x2’, jolt-jump 1’, neck 2 1’, yoga/stretching 5’, marionette-hang 10’, 3xHWB 3’,
Timing, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, hand-exerciser 3’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd 1 at 18:00 for a change. Arg, B3, Ri: 0 today. Pe & Ps 0 (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x2x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/23:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:30 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:50 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
?/09:10 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/11:25 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:55 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/18:00 C4 “11:00” (+2h/) ma#3+4 Nd#1 SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/13:55 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Slightly better today. Hard describing what it mainly is, I spose a mix of stengthlessness, fatigue, Ache and stiffness. Placing and throwing my limbs & torso helps quite a bit. But don’t want to make it too easy for them. My wife had a serious talk with me, trying to think what to do and expressing her feeling of powerlessness, so I decided to have another think & look what the docs say, which only brought me back to praps try ALA…:
Research-search today: Looked for ALA (alpha-lipoic acid, not the omega 3 alpha-linolenic acid), once again a tough nut, cos the R+ form is much more bio-available, according to this study, but may need to be stabilized, at least according to this manufacturer. So I’m confused what to do now. But there are several companies offering stabilized R-ALA, so I’ll continue that.

Lessons in self-care #174 I need to more wary about meeting people!
Reasons to be cheerful #183 Wow, “sports” possible today - 1h slow cycle-walk and tidying up my room…

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 28, 2021, 8:23pm

2021-12-28, Tuesday - only 45’ cycle-walk & 20’ shop: with energy: 2 “full” spoons!

Triggers & resulting Symptoms

SLEEP (click for details): 8h21, up 2x (50') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, waking up too.

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:45-
1:27 35’ 80%/2 p0 st1 drink fw1’ 6
5:10 15’ 80%/2 p0 st1 drink fw12’
7:56
-End
Sum: 1h15+7h56-(35+15=)50’ = 9h11-50’ = 8h21, up 2x (50’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 90%/1 (of 20%)
ACTIONS ➔ PAINS:

Treatments

Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 99' ✅. 08:15: RR 122/80 (60)

plantar/calf stretch 5’, twist-stretch 10’, cold shower (5’), loins 2’, marionette-hang 1’, hand-exerciser 3’, HWB 3’, RR 10x2’, Timing, AuTr 4’, hunchback-pillow 15’, palpate 1’, belly 2’, back 4’, left foot on/under right knee/cross-legged 20’, teeth 2x2’, yoga/stretching 10’,
neck 1+ 4’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, workout 7’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Sr has been 3x1 for a few days, haven't always adjusted it. Left out Pf#4 and NAC#3 at night. Maybe repeat that, I need to get my relaxers down and my energy up. Nd 0 Arg, B3, Ri: 0 today. Pe & Ps 0 (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/21:25 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/02:00 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/(05:25) Srp B1 “01:00” 0PF#4 0NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/10:45 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/10:55 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/12:55 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
?/ D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
?/20:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,SRP#3.
“Nd&Q1QcRsSr2”
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx:
Research-search today:

Stabilized R±ALA is the best form, found & ordered a product, fairly cheap.
To improve my movements I looked at Alexander technique & Feldenkrais & similar videos and found only a few:
Not worth it: Bob & Brad Top 3 Things you should try if you have Fibromyalgia (Based on Science), 2017.
Slightly interesting: Body Stiffness in CFS/Fibromyalgia - Just Another Distraction Trick by RecoverFromCFS (Moscow
Feldenkrais Demonstration for Fibromyalgia Patient by Centre 4 Health (AUS) - this video is really worth watching firstly for how Ren describes her symptoms and experience with her neurologist (UK), but also to see how gentle, listening & understanding physios should be working with us, similar to the way my osteopath worked with me. Lovely & soothing just to watch. However if I’d’ve stayed with my osteopath, I wdntve got a s far as I got with my acupressurist.
Another video sort-of-recommendation (but you can just read the following): 8 Types of Fibromyalgia Pain by Nic Baker , 2016. He talks about each of us having a different set of 3 or more of the following pain types (‘knots’), which I can go along with:
A. Too much of something 1. Floating pain, 2. Heavy pain with gut issues, 3. Worse with stress or sitting, 4. Worse in morning or from injuries,
B. Too little of something: 5. Low energy and back pain, 6. Hot at night with irritability, 7. Feels like menopause, 8. Winter is coming.
Looking into these I’d prefer to call “1. floating pain” local pains alternating between parts of the body, due to invisible ‘injury’ & ‘harm’, 2-5 I’d split up into 2 types each, no idea why he lumps them into one. I wouldn’t’ve called the “too low” ones apart from back pain ‘pain’, so these come extra for me. And yes I do have all these 12 and a lot more. (Not sure about menopause, but something analogue. Cat with wry smile ) Mine as you can see are different.
The 3 Stages of recovery in ME/CFS/Fibromyalgia by The Optimum Health Clinic
a brililant one I can learn from: How to get up from the floor (after a fall) - McGyver style

Lessons in self-care #175 Keeping all my spoons full.
Reasons to be cheerful #184 A sense of normality
Reasons to be cheerful #185 Realizing how many techniques I already have to move better.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 29, 2021, 9:06am

2021-12-29, Wednesday - losing patience: If all this stuff, acupressure & supps ain’t getting me upwards, why the heck do it?! Starting to stop feels just as good, if not better! (I’m keeping night supps up tho, as nights are good at the mo.) So much self-treatment just along the way, like a cat stretching…!

v1: to increase cortisol: less passiflora, more magnesium bisglycinate -

Triggers & resulting Symptoms

SLEEP (click for details): 7h55, up 2x (65') plus 1h30 yoga nidra/AuTr/sleep ✅, but ➔ Feeling 80% well, Ache1 of 7, inlcuding waking up 🧐

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 00:00-
01:30 60’ 80%/1 p01 st1 drink fw1’
05:30 5’ 80%/1 p01 st1 drink fw1’
-08:00 80%/1 p01 st1 drink fw1’
08:30- yoga nidra/AuTr / sleep .10:00
Sum: 8h-(60-5=)65 = 7h55, up 2x (65’) plus 1h30 yoga nidra/AuTr/sleep

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: resting ➔ 90%/1 , as soon as I start to move more ➔ 80%/2 , out for a 45’ cycle-walk was OK ➔ 80%/2 , but didn’t feel like more then.
ACTIONS ➔ PAINS: Everything good, even elbows getting better from the stretching I feel.

Treatments

THERAPIES: e.g. acu, psy, doc, dx ?
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 2h29 ✅✅ - didn't even realize I was doing so much, it's all along the way, like a cat "stretching".

hunchback-pillow 10’, Timing, cold shower (7’), RR 5x2’, palpate 1’, belly 2’, back 10’, teeth 3x2’, HWB 3’, shaking dance 1’, twist-stretch 20’, AuTr 40’, neck 1+ 4’, loins 4’, left foot on/under right knee/cross-legged 10’, yoga/stretching 10’, hand-exerciser 3’, plantar/calf stretch 5’, neck 2 2’, jolt-jump 1’,
gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, breath-hold 11’, workout 7’

Left out a heck of a lot of supps today, not noting it all yet, can't even be bothered, they can kiss me goodbye for a time and have to PROVE THEIR WORTH!!: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: 3rd day with 3x290mg passiflora instead of 4x, now also trying magnesium bisglycinate again at daytime. Not sure about taking Qc in the mornings, as it's also for sleep, so taken it one more time, but from now on 2x in the evenings (watch for GI). Nd? Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/21:20 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:25 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/02:35 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
0 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/11:10 B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
0 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
0 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
0 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
0 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/17:25 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Thinking about (@Rosella’s) abbreviation “script” I recalled “The Script: Hall of Fame” which I’ve played and sung myself in a small informal context quite a few times… a wonderful inspirational song. We with FM & CFS are definitely already in the Hall of Fame.

Jab-sfx: Little bit better today.
Research-search today: Carried on with the glossary, probably continuing that the next few days.

Lessons in self-care #176 If I’m tired of all the it’s time to stop it and weigh what’s been good and what hasn’t. I’m maybe more impatient than most and I haven’t changed anything for quite some time. I spose I should be keeping up stuff for inflammation and lipids, but I can’t be that bothered, as the time would’ve been up, if I’d’ve been capable of going to the dentist’s.
Lessons in self-care #177 Narked, cos the parents didn’t tell me before they came that grandchild had contact with CoV-postive kids. Don’t they give a damn?!?! Got really got worked up. Everyone else is flabbergasted by this naivité.
Reasons to be cheerful #186 Finding good music, good informative, helpful videos, was out a bit, good day, I like being angry once in a while - don’t often get a chance nowadays, as I’m generally well-balanced and even-tempered - different as a depressed, unloved, desperate teenager.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 30, 2021, 8:15pm

2021-12-30, Thursday - increased fatigue & stiffness today I’d think due to decreasing supps yesterday. So praps increasing serotonin, i.e. GABA next? But got the ALA, so I’ll wait for the fx of that first.

Triggers & resulting Symptoms

SLEEP (click for details): 7h48, up 3x (1h35), + 20+1h30= 9h18 ✅, ➔ Feeling 80% well, Ache 1 of 7 🧐, after "getting" up too.

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p?0 Sleep 0:55-
03:03 35’ 80%/1 p1 st1 drink fw1’ song
05:30 30’ 80%/1 p1 st1 drink fw1’ song
06:55 30’ 80%/1 p1 st1 drink fw1’ 6
-08:58 80%/1 p1 st1 drink fw1’ air + 20’
8h58-55 = 8h03-(35+30+30=)1h35 = 7h48, up 3x (1h35), + 20+1h30= 9h18.

20’ 09:50-11:20 = 1h30.

Sum:

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: resting OK, but a 5’ walk to the nearest shop & back ➔ 70-60%/3 , I’m guessing it’s reducing the supps.
ACTIONS ➔ PAINS: , lower back not too good, need to increase stretches for that.

Treatments

Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 109' ✅. Just seen in a TV-programme the calf stretching whilst sitting down is also good for veins and back, not just for plantar fasciitis.

plantar/calf stretch 5’, twist-stretch 10’, AuTr 30’, hunchback-pillow 10’, cold shower (6’), neck 1+ 4’, loins 2’, left foot on/under right knee/cross-legged 30’, shaking dance 1’, HWB 3’, hand-exerciser 3’, yoga/stretching 5’,
Timing, breath-hold 11’, palpate 1’, belly 3’, back 12’, teeth 3x2’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, RR x2’, workout 7’

BACK TO 'NORMAL', SINCE REDUCING SEEMED TO HARM RATHER THAN HELP: 23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd 0 Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:20 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/?23:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/03:10 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
0 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/09:50 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/12:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/12:30 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/14:45 ALA#1
/14:45 C4 “11:00” (+2h/) gly#3+4 instead of ma#3+4 0Nd SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/17:05 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/19:50 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
Ate at 20:05 by mistake and got stomach ache: From the supps??
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: My sleep stints are generally longer now, more like 3h than 2h.
Research-search today: Pretty much finished editing the FMA UK glossary yesterday, now fine-tuning, then looking for things to add.
In a German TV programme, odysso, a doc (Kati Thieme) said she found out that massaging (or electrically stimulating) the baroreceptors in the neck, reducing too high blood pressure, can improve FM pain - again something for a subgroup.
Reasons to be cheerful #187 I was chugging along on my bike, pleased that my speed was quite OK. Then I thought I’d try to keep up with a guy next to me at the next traffic lights. He was gone before I could even think about starting up. Then I was overtaken by another bike - a woman even. I started realizing that my “fast” as very much adapted to my momentary state. Which isn’t bad. Unless I’d try to do something dangerous in traffic, which I don’t (any more).

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 31, 2021, 4:31pm

2021-12-31, Friday - strange sleep: long break, then very long stint; from ALA & pine bark?? Dull mind & body all day.

Triggers & resulting Symptoms

SLEEP (click for details): 9h34, up 4x (2h13) (✅) (ALA?), but ➔ Feeling 90% well, Ache 1 of 7 ✅, waking up: 80%/2 🧐

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p?0 Sleep 22:55-
01:25 5’ 90%/1 p0 st1 drink fw1’
03:35 25’ 90%/1 p0 st1 drink fw20’
04:20 1h40 90%/1 p0 st1 drink fw1h10
at 7:42 my work alarm got me awake a bit, but didn’t get up.
08:45 3’
-10:42
Sum: 1h05+10h42-(5+25+1h40+3=)2h13 = 11h47-2h13 = 9h34, up 4x (2h13)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Showering, mainly warm, at 22:40 ➔ 60%/4 , resting all day ➔ 60%/3
ACTIONS ➔ PAINS: GI: Stomach ache while eating after taking enzymes 15’ before, later wind, later stool. Slight headache and cold feeling.

Treatments

Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 109' ✅.

plantar/calf stretch 2’, twist-stretch 15’, Timing, AuTr 20’, hunchback-pillow 15’, cold shower (5’), palpate 2x1’, belly 2x3’, back 2x12’, neck 1+ 4’, neck 2 3’, yoga/stretching 5’, left foot on/under right knee/cross-legged 5’, HWB 3’,
loins 2’, teeth 3x2’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, hand-exerciser 3’

EVERYTHING BACK TO NORMAL... 23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Nd? Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/01:30 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
/03:35 +.2g ALA, .475g OPC
(0 B2 “03:00” 0mumijo#2 (teeth))
/11:20 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/12:35 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/12:50 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/15:10 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:40 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
->17:40 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Showering at 22:40 was painful and cost a lot of effort.
Research-search today: When to take ALA isn’t that easy, most help here: I’d only read to take ALA away from meals, now I’m looking at the nitty-gritty and it’s much more complicated…: Insomnia can be a side effect (that might explain the 1h40 break… but not the 4h40 deep sleep stint after that… but It can improve blood pressure and blood flow, maybe that was it? So in mornings better with meals if you didn’t need that, also with L-carnitine it can improve alertness and brain fog, one study (by Mhadavi, 2021) shows dose dependency … enhanced endurance & strength during exercise … can make you tired with higher doses by increasing glucose uptake and decreasing blood sugar (maybe it’s high for me, as 2nd time, last yesterday midday) … that’s all from the un-winder.com about ALA before bed, they say: praps.)

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · December 31, 2021, 11:23pm

Whether this year will be a good year we’ll have to see, but it can be a Happy New Year - 2021 was Happy for me, and I’ll make 2022 Happy too, as best I can.

2022-01-01, Saturday - HAPPY New 2022! v5 15:50: Itchy skin from the .3g ibu. Trying Wim Hof’s breathing exercise again, about time to get out of this rut!

v4: 12:35 Wife wants me to try ibuprofen … done… (.3g)
v3: 12:10 First vit.D3 with K2. OK-ish up to now. I’ve been getting confused with the date the last few days (“2012”) - let’s see if I can get used to 2022 quick. 2022. 2022. 2022.

2022

v2: 10:40 Again after ALA & pycnogenol a sleep break, then a long 3h deep sleep stint (slight GI).
v1: 00:20 OK-ish in the evening after resting all day, so stayed up till now - to - well not quite…, resting a lot ➔ 60%/4. Now to bed quick! All the Best for a Happy New Year

Triggers & resulting Symptoms

SLEEP (click for details): 8h55, up 3x (50') ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, waking up: ➔ 90%/1 ✅

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 00:45-
3:09 5’ 80%/2 p0 st1 drink fw1’
5:30 5’ 80%/1 p0 st1 drink fw1’
6:55 40’ 90%/1 p0 st1 drink fw1’ 6
-10:30
Sum: 10h30-45-(5+5+40=)50’ = 9h45-50’ = 8h55, up 3x (50’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Resting still good, but walking in the flat 2’ ➔ breathless 80%/2 , back exercises were OK (slow & with breaks) ➔ 80%/1, but lying turning my neck 10-15’ wasn’t ➔ 70%/2. 12:10 Bit feverish till resting again. Short 10’ visit, with 2x10’ cycle ➔ 70%/2, resting ➔ 80%/1.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2)
ACTIONS ➔ PAINS: My pee pain is rare nowadays (afternoons) - watch that . GI: Bit of stomach pain after the ALA, but manageable . Yesterday’s slight headache & dulled head is gone . Also started getting hungrier again yesterday evening after having little appetite the last 2-3 days .
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Ibuprofen .3g at 12:35 (after/during breakfast). Sightly itchy skin - legs could be something else (a different pair of trousers), arms probably not.

Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 2h55 ✅. RR 15:15 125/78 (63) ✅

twist-stretch 20’, (Timing,) hunchback-pillow 15’, cold shower (5’), teeth 1x2’, yoga/stretching 25’, HWB 3’, palpate 1’, belly 3’, back 12’, plantar/calf stretch 5’, left foot on/under right knee/cross-legged 45’, breath-hold 12’, RR 4x2’, jolt-jump 3x1’, shaking dance 1’, cream 5’
AuTr 2’, neck 1+ 4’, loins 2’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, workout 7’, hand-exerciser 3’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: ADDED ALA+ pycnogenol for the 3rd day running. First Saturday vit.D3 with vit.K2(-MK7) - let's hope 🧐. Not sure of the dose, as I'd been taking 20.000IE every week and now (with the K2) it says only every 20 days. I think I'll still keep to weekly, even if that may increase the potency, as I know of quite a few people who deliberately (need to?) overdose. And just seen this also contains some quinoa. Try ALA+pycn earlier, at 23:00 or A3, 2h after evening meal. Nd? Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:45 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/23:45 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/03:10 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
/05:30 +ALA + OPC
(0 B2 “03:00” 0mumijo#2 (teeth))
/10:45 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/11:55 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/12:05 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/12:05 vit.D3 (Saturday): First time with K2(-MK7)!?
/14:55 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:50 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:05 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Yep. Wim Hof may have helped be active a bit longer.
Research-search today: Nope.
Reasons to be cheerful #187 Over the decades, I have become capable of keeping my spirits up, being Happy deep down inside, good tempered, good humoured, whatever happens - such an asset.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · January 2, 2022, 5:35am

2022-01-02, Sunday - Exercise amount great, rhythm getting back to normal.

v4: 17:25 long slow cycle - intense breathing exercise & during.
v3: 15:40 Meals & supps all wonky, but getting there (4h late!).
v2: 12:30 Using massage gun (got it for Christmas) successfully.
v1: 6:30 Trying ALA earlier and passiflora after that smashed up my night up to now, altho self-discipline after going to bed late yesterday was also part of the problem. Yoga Nidra?
2 seiz

Triggers & resulting Symptoms

SLEEP (click for details): 7h48, up 5x (2h19) ✅, ➔ Feeling 80-90% well, Ache 1 of 7 ✅, evening meal too late, too awake after till 12, ALA then first, instead of at least once passiflora, still awake, then when I finally got it at 1 woke up every hour till 5, taking passiflora & amino acids every time, but to no avail, then after a repeatedly extended break of in effect 2h05 the last stint was again longest, 2.5h...🧐

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 6 Sleep: 1:15-
2:30 5’ 90%/1 p1 st1 drink fw1’ → A1,2
3:30 3’ 90%/1 p1 st1 drink fw1’ → A3
4:35 3’ 90%/1 p1 st1 drink fw1’ → A4
5:05 2h05 90%/1 p1 st1 drink fw1h10 → B1 -6:25 HWB & more-7:11
8:52 3’ 90%/1 p1 st1 drink fw1’
-11:22
Sum: 11h22-1h15-(5+3+3+2h05+3=)2h19 = 7h48, up 5x (2h19)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 80%/1 , long slow cycle with intense long breathing exercise before and a short intense one during ➔ 80%/1 , (10’ spontaneous talk with an acquaintance ➔ 70%/2, but breathing after.) Still OK right till bedtime, apart from hurting tired.
ACTIONS ➔ PAINS: Hands, hurt whilst cycling, esp. right, but that started before.

Treatments

THERAPIES: e.g. acu, psy, doc, dx ?
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 3h36... ✅. Doing lots. Massage gun. Breath-hold (60'', 110'', 90'. Cream.'

twist-stretch 20’, massage gun 20’, plantar/calf stretch 10’, yoga/stretching 25’, hand-exerciser 3’, jolt-jump 2’, HWB 3’, AuTr 40’, hunchback-pillow 25’, cold shower (6’), loins 2’, neck 1+ 4’, palpate 1’, belly 3’, back 12’, left foot on/under right knee/cross-legged 20’, breath-hold 1x12’+3’, cream 5’
Timing, teeth 3x2’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, RR x2’, workout 7’,

Night supps after ALA first went completely wrong, so back to normal tonight. Focal seizure at about 22:00, 2 yesterday or the day before (noted unter "sleep" I think I remember)... so watch out for serotonin/GABA...! 23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: ALA, pyc, Nd 0 Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
Actually I forgot D4 till 21:05…
0:00 +ALA + pyc
/02:35+22:00 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se +/22:00 PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/03:30 0 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
Funny: ALA is not working at all like expected, as I’m waking up every hour…
/04:35 0 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/06:25 0 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.

(0 B2 “03:00” 0mumijo#2 (teeth))
/12:00 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/13:00? MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/13:40? C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/15:40 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/17:30 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
“Midday meal” -18:20
/20:20 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” meal → -21:05
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
This was meant to be in yesterday’s entry: My wife is getting so upset how bad I look (I don’t nec. agree, but I’ve often got blue-white lips) that she wants me to try ibuprofen - so here goes, .3g at 12:30. Watching for GI & skin… - GI was OK, except for a severe esophagus block at 22:00. Skin was itchy all day after taking it, but not too bad.
Jab-sfx: Better: Less Ache, less fatigue, less tiredness, less stiff, more energy, less cold (less electric blanket, cold showering easier) esp. afternoon & evening - The ALA and/or pycnogenol of the last 3 days? Or the WHM breathing and/or Ibuprofen today? Or several or all of the above? Sunday: Same. Do breathing 2x before praps taking a 2nd .3g ibuprofen.
Research-search today: Nope, just various thoughts on various forums.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · January 3, 2022, 6:48pm

2022-01-03, Monday - not much self-discipline, but managing 2h of activity, and self-treatment still OK

Triggers & resulting Symptoms

SLEEP (click for details): 8h42, up 3x (56') ✅, and ➔ Feeling 80-90% well, Ache 1 of 7 ✅

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 23:00-
02:00 5’ 80%/1 p0 st1 drink fw1’ ALA. drowsy/overheated,
02:50 6 45’ 80%/1 p0 st1 drink fw1’
6:00 6’ 90%/1 p0 st1 drink fw1’ HWB
-8:38
Sum: 1h+8h38-(5-45-6=)56’ = 9h38-56 = 8h42, up 3x (56’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: 25’ shop ➔ 80%/1 and 45’ housework & washing/drying hair ➔ 70%/3
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2)
ACTIONS ➔ PAINS:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: After texting my acupressurist that I don’t need any appts right at the moment, she asked back what the plan is. I think she’s not keen on losing me, but…
Supps to CHANGE: Wash capsule machine…. Keeping ALA + pycnogenol at around 3:00 seems OK, if I brace myself for a longer break directly after. If this doesn’t get better after 2 more days, I may have to change it to daytime.

SELF-PHYSIO (click for details): 87'... ✅. Lazy: no breath-holding exercise...

plantar/calf stretch 5’, twist-stretch 10’, Timing, cold shower (5’), AuTr 10’, hunchback-pillow 10’, left foot on/under right knee/cross-legged 10’, HWB 2x3’, palpate 1’, belly 3’, back 12’, teeth 2x2’, marionette-hang 10’, jolt-jump 1’,
neck 1+ 4’, loins 2’, neck 2 3’, yoga/stretching 5’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’, hand-exerciser 3’, cream 5’, massage gun 20’

Swapped morning and afternoon amino acids, but they're actually pretty similar I've found. 23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: ALA + pycnogenol: again short stomach stabs, but sleep OK: again a longer break directly after them, but then 2 long stints of 2.5h. Now going to swap them for the mumijo at "3:00" Nd 0. Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/21:00? A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se +/22:00 PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/02:05 +ALA/pycnogenol
0 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
0 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
/08:40 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
ONLY C1, but D2+3 instead of C2+3! 12:05 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
0, praps D2+3 instead of C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/14:40 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
15:30 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/16:00? So C2 instead of D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:45 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2”
Still forgotten C3, so I’ll take that with the next A1…
-19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Haven’t had to sit-lie quite as much, even without ibuprofen and without breath-holding again. But doing more than 1h of activity is a little challenging. Not enough to stop tho.
Research-search today: Writing more on an pretty inactive German forum at the mo, (after other English forums the last 2 days), and learning (and acclimatizing) a little bit. Still want to put my treatment list there, but since no-one anywhere

Reasons to be cheerful #188 A little more “life” in the sense of activity today… But not particularly self-disciplined, so obviously doing what I want, which is OK as long as what I need doesn’t get too overbearing - which it obviously isn’t getting…

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · January 4, 2022, 2:45pm

2022-01-04, Tuesday - Histamine? DAO? Cytokines?

v3 19:20 Researching for the cytokine connection between FM (reduced), EoE (get secreted) and vaccines (storms of them are wrongly expected). Also connection to cryotherapy.
v2: 17:05 Cardiologist made sure the jab-sfx are not my heart and also suggests histamine due to the skin problems in between.
v1: GP suggests not trying a 2nd jab & taking the (rare) DAO blood level, but thinks neither antihistamines nor ibuprofen would be right - if at all aspirin for it’s slight anti-inflammatory effect (of course I’m taking 10+ anti-inflammatory supps already… edit: that’s 13 at the moment…)

Triggers & resulting Symptoms

SLEEP (click for details): 8h42, up 4x (45') ✅, and ➔ feeling 80% well, Ache 2 of 7 🧐. ALA worked out tonight, taking it with other night supps and drinking a lot to prevent stomach hurt and managing to prevent one longer sleep break ✅

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 23:30-
0:59 25’ 80%/1 p0 st1 drink fw1’ A4
4:05 5’ 80%/2 p0 st1 drink fw1’ B1+2
6:20 5’ 80%/2 p0 st1 drink fw1’
6:45 10’ 80%/2 p0 st1 drink fw1’ Nidra
-8:57 80%/2 p0 st1 drink fw1’ sore throat
Sum: 30+8h57-(25+5+5+10=)45’ = 8h42, up 4x (45’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: rest, phoning dentist to put off today’s tooth appointment to next week, GP, resting, eating ➔ 70%/2. Cardiologist
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2 ?)
ACTIONS ➔ PAINS: Often sore throat in the last 1-2h of sleep, can’t see why, I got up warm with warm feet today. Neck & elbow good, I think the stretching is paying off. Esophagus block in the evening, “first bite” - might be the pattern, and not as I’d been thinking what I’m eating or how cold it is.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: I discussed histamine as part of the FM-jab-sfx-recommendations with my GP today. He held against it that this would fit if I had more skin and less fatigue problems, as it only helps the mast cells in the skin, and would make me even more tired. What he did think of was DAO, which was on their list too, I remembered - albeit also for histamine type reactions. As this is a (rare) genetic problem and there’s a lot of GI problems in my family, he offered to check that blood level, altho he’s not at all sure about it. Curious, I agreed. When people like him ask me for my symptoms I tend to forget the “little ones” like the increased esophagus blocks that I’ve had today and the past few days - they don’t hurt as much, but happen more easily, more often and longer & harder than pre-jab (usually after get the food out several times now, instead of only once, if at all).
Regarding a 2nd jab he like always said: hard to know; but suggested that omicron might be better than a 2nd jab. My wife was glad to here this, as she is also faltering on this.
My cardiologist made sure the jab-sfx are not my heart and also suggests histamine due to the skin problems in between.
So I’m just wondering if esophagus isn’t histamine as well, i.e. revisiting Eosinophilic Esophagitis… so here goes some research-search… (below)
e.g. acu, psy, doc, dx ?
Supps to CHANGE: Wash capsule machine…

SELF-PHYSIO (click for details): 123' ✅.

Timing, AuTr 20’, hunchback-pillow 15’, cold shower (6’), teeth 3x2’, breath-hold 12’, plantar/calf stretch 6’, loins 4’, twist-stretch 20’, neck 1+ 4’, left foot on/under right knee/cross-legged 30’.
palpate 1’, belly 3’, back 12’, jolt-jump 1’, neck 2 3’, yoga/stretching 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, RR x2’, HWB 3’, workout 7’, hand-exerciser 3’, cream 5’, massage gun 20’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: ALA + pine bark went well, Nd 0, Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:05 C3 (vit.C+NAC, not B2, probably earlier)
/20:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se +/22:00 PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = “PF+.6GaGlu+Nc
/1:00 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/04:10 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
/04:10 B2 “03:00” +ALA+pycnogenol
(teeth)
/09:30 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/11:00 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,Cr.GaThe Gi n’AC/Z
/11:00 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:00 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:45 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:25 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. ¢"Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Body warmth back again, less electric blanket, less HWB bottle starting Sunday, more yesterday, same today. Is the changed esophagus block really from the jab or just similar time?
Research-search today: Revisiting Eosinophilic (o)esophagitis, due to me remembering the connection of histamine with the esophagus.
2015: The Role of the Environment in Eosinophilic Esophagitis - PubMed, 2018: Biological Therapies for Eosinophilic Esophagitis: Where Do We Stand? - PubMed - saying that “none of the biologicals studied so far in EoE have been highly effective, many demonstrated some histological benefit, especially those that targeted the Th2 axis. Therefore, the future for biologicals is promising as the pathophysiology of EoE is better understood, clinical assessment tools are validated, identification of patient subsets that respond best to biologicals is made, and dosages of biologicals are optimized.”
Interesting the cytokines they talk about are IL-4, IL-5, and IL-13: “The mechanism by which food allergens trigger EoE is thought to be a T helper type 2 (Th2) reaction, resulting in secretion of the cytokines IL-4, IL-5, and IL-13. IL-5 induces eosinophil production and trafficking to the esophagus, and IL-13 induces esophageal epithelial cells to secrete eotaxin-3, which drives eosinophil chemotaxis and activation.”
Looking those up “in fibro” brings up Unique Cytokine Signature in the Plasma of Patients with Fibromyalgia, saying: “Upon examination, patients with FMS exhibited a marked reduction in TH2 cytokines such as IL-4, IL-5, and IL-13. The finding of this pattern of altered cytokine milieu not only supports the role of inflammation in FMS but also may lead to more definitive diagnostic tools for clinicians treating FMS. The TH2 suppression provides strong evidence of immune dysregulation in patients with FMS.” Strange, I always thought IL-6 was the most important. But it says “such as”. Now here having FMS I’d have a reduction of these cytokines, if I had EoE these cytokines would be secreted due to a rare form of food allergy… Getting confusing. Don’t know where to look now…
A seeming previous connection with cytokines was the cryotherapy that helped a lot off and on 2020, got really good, but decreased again in 2021. However the study I’d once found and linked here mentioning it is small and just talks about changes in cytokines, not that helpful: Serial whole-body cryotherapy in fibromyalgia is effective and alters cytokine profiles - PubMed

EoE: 2019: Altered esophageal histamine receptor expression in Eosinophilic Esophagitis (EoE): implications on disease pathogenesis - PubMed

Looking further at EoE they often mention elimination diet, like here Challenges and updates in the management of eosinophilic esophagitis - PubMed. Problem is I don’t want to have to eat even less varied… I had identified some things, but it’s not at all clear at the moment what it is I’m eating that might be increasing it.

But OTOH cytokines and vaccines? The expectation seems to be of people getting cytokine storms, the official answer that this is not proven the case. But that would mean vaccines would tend to increase cytokines.

Reasons to be cheerful #189 Bit chaotic today, but effective.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries (& add to blog-summary); finishing off the treatment list…

JayCS · January 5, 2022, 11:29am

2022-01-05, Wednesday - Getting my head around histamine and cytokines: I’ll probably have to try the low histamine diet.

v1 11:50 bad today, so put off a meeting and tooth cleaning. But a great opportunity to see if breath-holding helps, and if not ibuprofen. Now looking at an antihistamine diet…
ALA at night obviously hasn’t helped (unless taking it together with other supps is reducing effectivity, but that isn’t a meal, so I can’t imagine that).

Triggers & resulting Symptoms

SLEEP (click for details): 8h23, up 3x (50') + 26' = 8h49 ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, waking up: ➔ 70%/3 ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:55-
1:35 5’ 90%/1 p0 st1 drink fw1’
3:55 10’ 80%/2 p0 st1 drink fw1’
5:00 35’ 80%/1 p0 st1 drink fw1’
5’ 90%/1 p?1 st1 drink fw1’
-8:08 Massive painful pee urge, feverish, nauseous
8:32 Nidra -8:58 = +26’
Sum: 1h05+8h08-(5+10+35=)50’ = 8h23, up 3x (50’) + 26’ = 8h49

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Why so bad today?: Yesterday twice docs & 20’ shop, but together only 2h, nothing strenuous or exciting apart from getting air under the mask, all didn’t seem too much, esp. in the evening ➔ 70%/3.
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS: . Lower back pain and difficulty walking by the evening , maybe due to forgetting back exercises in the morning, but quick long torso twist-stretching, some yoga and doing the back exercises in the evening seemed to have brought it down fairly well . Everything else OK except mask-breathing . Esophagus pain/cramp gulping 3 capsules (for the first time, up to now I’ve always been able to swallow 4 and even sometimes up to 8 capsules without problems .
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES: Put off dentist’s tooth appointment, deciding on whether I try teeth cleaning tomorrow, based on how today’s appts (GP & cardio go) e.g. acu, psy, doc, dx ?
Supps to CHANGE: Wash capsule machine… ALA & pycnogenol harmed less tonight. However neither they nor the breath-holding exercise seemed to have helped as much as the last few days. Was it the ibuprofen after all? Hmm, not keen on repeating the skin problems, but…

SELF-PHYSIO (click for details): 3h35... ✅✅✅.

twist-stretch 35’, cold shower (6’), palpate 1’, belly 2x3’, back 2x12’, massage gun 10’, Timing, hunchback-pillow 15’, AuTr 26’, left foot on/under right knee/cross-legged 35’, teeth 2x2’, yoga/stretching 5’, breath-hold 11’, RR 4x2’, HWB 2x2’, cream 5’, temperature 5’, hand-exerciser 3’, plantar/calf stretch 5’, neck 1+ 2’, loins 2’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’,
neck 2 3’, gums 2x30’’, V ‘, mirror 2’, workout 7’,

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: ALA/pycnogenol sfx are getting better, but not helping, but I'll definitely continue them. Nd 0 Arg, B3, Ri: 0 today. Pe & Ps 0 (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se +/22:00 PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:45 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/01.35 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/03:55 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
/03:55 B2 “03:00” +ALA+pycnogenol
(teeth))
B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/11:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:45 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:30 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
→ 14:00 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/17:00 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/19:40 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx: Praps not tolerating showering anymore (I still do it, but it hurts, even the warm bit, and just wondered whether doing it is right or worth it) and praps even not tolerating the acupressure anymore is actually the histamine and mast cells. What’d I have to eat for “antihistamines”?
“Woke up” with a massive painful pee urge, reminding me that I may be sleeping deeper since the jab, but it’s the same unhealthy burning oppressed feeling all might (esp. in face - forehead and eyes) as with melatonin or CBD, plus feverishness & sometimes nausea) just not as hard to come out of it and get awake. The pain (after-pain) of the urge, like when often going to bathroom nowadays, remains with fatigue for half an hour afterwards. No sore throat.
After about 3 better days back down again. Opportunity to check what may have helped or not…
With 35,9°C (or 35,4°C??) not the slightly increased temperature of late (36,6°C). RR 130/80 OK too.
But a flu-feeling in head (forehead, eyes, nose)
Mask-breathing is still a big problem since the jab, as well as the breathlessness. I get attacks ‘needing oxygen’. Despite doing breath-holding in between.
Research-search today:
Having a look at an antihistamine diet cos of the above, incl. mast cells
I’m pretty sure my allergologist checked for histamine last summer, but here it says that docs usually don’t believe in an intolerance, yet the diet may make a difference. Hope it’s not as bad as a lectin-free for me… So, here goes!:

Of the (few) things that I have not yet had to eliminate, antihistamine would mean a restriction on olives, avocado, dried fruits, walnuts and cashews, legumes, , vinegar, (mushrooms I can hardly eat anyway) yoghurt (& cheese), chocolate, yeast, bread needs to be gluten-free (non-celiac gluten sensitivity may be due to histamine intolerance).
first no nuts & legumes (soy, beans, peanuts) dairy for 2 weeks at all, then slowly back.

So whilst the other big one, a lectin-free diet, would for me mean only eating nuts, here on an antihistamine diet I would luxuriously be allowed my gluten-free muesli with water (ugh…), but no nuts or dried berries, apples and (most of my 10) veggies (esp. broccoli - and broccolini whatever that is, brussels sprouts, cabbage, zucchini), I could go back to gluten-free bread (ugh too).
Also: DAO enzymes are blocked by many meds, such as aspirin.
Aloe vera is good and I like it and have it.
YMMV… as ever.

My wife laughed at me when I suggested I might be working again next week. I can’t trust myself on that, I need her feedback.
Regarding the expert recommendations (“alpha lipoic acid, ascorbic acid, B6, diamine oxidase enzymes (DAO), luteolin, N-acetylcysteine (NAC), Omega-3’s, riboflavin, SAMe, quercetin, and natural sources of theophylline like green and black teas”) I’m also adding all 4 antihistamine things I don’t yet take and am research-searching…:

**Histamine (not necessarily cytokine/autoimmune) connection? - up & beyond the forefront of research once again… **

ALA , also added pine bark, ~5x at night, so it’s away from all food. Tonight showed that that improvement hasn’t held.
luteolin is in broccoli and someone had suggested raw broccoli anyway, so I’m starting that.
theophylline is in cocoa beans, i.e. I’m eating a bit more dark chocolate (70-80% cocoa), but actually cocoa contains amines similar to histamine too…Now I understand why Klimas says tea, and not dark chocolate.
Yesterday I discussed histamine with my GP and also mentioned it to my cardiologist (who checked that my heart is OK) because of the skin burning & itching and the histamine connection in the jab-sfx list: As antihistamines increase tiredness we dropped the idea of taking them, but he offered to check a histamine enzyme called DAO , which could if necessary be supplemented. And that’s the 4th piece of the puzzle on the list above I was missing, I hadn’t been able to find it to buy…
As he mentioned antihistamine food I’ve had a look: My heart sunk seeing it in the radical form means stopping a lot of my main nutrients: nuts, soy, olives, dry fruits, chocolate, gluten & yoghurt. I’d be left with only meagre veg, apples, gluten-free muesli/bread for 2 weeks, and could then slowly add some nuts.
I also asked about the ibuprofen my wife was urging me to try, but he reminded me of the GI complications with that and diclo, suggested aspirin as NSAID instead. However it’s on the histamine negative list along with many other meds…
In the evening I had another esophagus block upon starting to eat (almost daily at the moment), reminding me that histamine may be related to eosinophilic esophagitis (EoE) . I never seemed to fit, but another pointer to histamine.
Maybe irrelevant offshoot: important details about cytokines (broken down a bit)…
That research-search also brought up the cytokines IL-4, IL-5 and IL-13 being secreted in one EoE -study - reminding me of cytokine changes as a FM-biomarker (e.g. used by Gillis in his daring so-called “FM/a test”). Looking those 3 up showed an FM-study with those reduced . Cytokines have always got me confused, so at last I’ve now clarified: IL 6 and IL-8 belong to the pro-inflammatory ones and may be too much in FM, whilst 4, 5 and 13 belong to the anti-inflammatory ones and may be reduced. However this is all not well-proven, the studies are too small & hard to compare. (So Goebel’s autoimmune study in July/Aug21 found a different / more complex possibility using IgG directly). (IL stands for interleukin: -leukin as in leukocytes, the white blood cells, which are responsible for immune defense, and were originally thought to be the main producer of interleukins.) Looking up EoE and FM, a page on redorbit on an easier level suggests the cause connection is via GERD (which I have under control), plus autoimmune factors (= the above) and as treatments corticosteroids, which is out of the question, and a proton pump inhibitor plus elimination diet for the hyperacidity, which is unncecessary.
But what have vaccines and cytokines got in common? CoV itself can cause a cytokine storm, i.e. increase pro-inflammatory cytokines , like IL-6, - but vaccines don’t, but not saying that they can cause too little cytokines. Wikipedia suggests that that means pro-inflammatory cytokines, esp. IL-6, and under “research” that taking nicotinamide (B3, niacin) and magnesium can help. Magnesium I’d reduced a bit of late and B3 I’d stopped cos I wasn’t sure of it and the itchy flush was annoying. (NSAIDs also help according to one study). But it’s not evident that my jab-sfx are due to too much IL-6 etc.
Specifically looking for decreased anti-inflammatory cytokines like IL-4, -5 and -13 in vaccines I’ve found a German/Dutch study, 2021, on europepmc “The BNT162b2 mRNA vaccine against SARS-CoV-2 reprograms both adaptive and innate immune responses”, via news-medical.net. It expands the obvious that vaccines change the immune system - actually nothing vaccine-critical, altho used that way. It’s pre-print, so not peer-reviewed yet, but 23 researchers involved and reading thru the “whole” study any obvious flaws aren’t visible to me. Also on ScienceImmunology from Jun21 “COVID-19 vaccine side effects: The positives about feeling bad”, suggesting that it’s very increased anti-inflammatory IFN-1 which causes a lot of the immediate sfx in young females, as opposed to what they say in the introduction “As with other vaccines, these effects can, on rare occasion, be the result of delayed-onset, local allergic reactions.”

So: The apart from as yet unclear immune modulation, the vaccine like all vaccines seems to increase histamine in a belated allergic reaction (may be associated with EoE, if I have that at all). So continuing the histamine route,

1. the DAO blood result and if decreased taking the enzyme might help,
2. a low histamine = histamine elimination diet for 2 weeks might be worth the effort. I’d need a dietitian/nutritionist mid-term tho. Seems the diet wouldn’t increase tiredness like antihistamines do.

Lessons in self-care #178 Putting off both appointments is sensible, even tho I cdve forced it.
Reasons to be cheerful #190 At least now after a day of research I’m more confident about cytokines, and that they don’t need to be in the forefront.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Oct/Nov-Summary (& add to blog-summary); finishing off the treatment list…

JayCS · January 5, 2022, 10:24pm

2022-01-06, Thursday - waiting for DAO result; low histamine diet on ice…

v4: 17:30 Successor of my sleep lab psychiatrist was impressed and completely out of her depth with my problems
v3: 14:10 jab-sfx = histamine intolerance, allergic? DAO-level being checked, diet would decrease QoL, my GP says…
v2: 22:35: Nope, ALL except 2 of my 25 jab-sfx-symptoms as well as 4 more I hadn’t seen clearly before can be explained by histamine intolerance…
v1: 22:05: well, I’d have about 10 histamine intolerance symptoms etc…

Triggers & resulting Symptoms

SLEEP (click for details): h ✅, but ➔ Feeling ?70% well, Ache ?2 of 7 🧐, waking up: ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 00:25-
2:10 1h25 90%/1 p0 st1 drink fw55’ 6 overactive brain (due to research)
4:43 3’ 90%/1 p0 st1 drink fw1’
7:07 3’ 90%/1 p0 st1 drink fw1’
-7:50 52’ 90%/1 p0 st1 drink fw40’ overactive brain HWB -8:42- → Yoga Nidra
-9:58 = 1h16
Sum: 7:50-25-(1h25+3+3=)1h31 = 5h54, up 3x (1h31) +1h16 = 7h10
OR 9h58-25-(1h25+3+3+52=)2h23 = 7h10, up 4x (2h23)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ ?70%/2
(e.g. cycle , TT = , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

THERAPIES:

Going to therapy would take the 1-2h of activity I have on that day and the following - I just don’t have the time and energy for that.
My GP recommended not to do a low histamine diet, cos it’d decrease my quality of life too much, just wait for the DAO result and then taking it as a supp if it’s reduced. However what if it doesn’t or doesn’t help??
The successor of my sleep lab psychiatrist was impressed and completely out of her depth with my problems, e.g. which docs to consult or direct ideas on histamine intolerance as jab-sfx (like: NAC, vit. C/ascorbic acid & theophylline blocking DAO, the enzyme needed to decompose histamine, so why should I take them together to decrease histamine??)
Supps to CHANGE: Wash capsule machine… Up next: Try leaving off NAC and vitamin C, cos of the DAO contradiction, that I’m sposed to be taking them, but according to studies they decrease DAO…

SELF-PHYSIO (click for details): 3h40 ✅.

twist-stretch 25’, cold shower (7’), yoga/stretching 5’, hand-exerciser 3’, loins 5’, plantar/calf stretch 4’, HWB 3’, hunchback-pillow 30’, AuTr 1h16, palpate 1’, belly 3’, back 12’, neck 1+ 8’, left foot on/under right knee/cross-legged 30’, neck 2 3’, shaking dance 1’, cream 4’,
Timing, teeth 3x2’, jolt-jump 1’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, breath-hold 11’, RR x2’, workout 7’, massage gun 20’, temperature 5’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Kept up ALA + pine bark. Nd 0. Arg, B3, Ri: 0 today. Pe & Ps 0? (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/21:15 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se +/22:00 PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:45 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/00:25 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/02:50 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
/03:25 B2 “03:00” +ALA+pycnogenol
(teeth))
/10:00 B3 “07:00” (30’) Q10#1 0quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/11:00 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/11:30 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:25 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/17:35 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
->19:35? D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Try stopping C, NAC & theophylline (tea/cocoa)
Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx:
Research-search today:

OK, my jab-sfx apparently may be caused by histamine, so here comes a symptom comparison:

All the flu-like and similar-to-fibro symptoms fit…:

Also the bouts of feeling well.
Skin: itchy, burning, showering & therapy very unpleasant.
Fatigue: exhaustion, exhaustibility, movement, short breathed, stiffer.
Chronic pain: ache from too much movement, sore muscle, e.g. in backside sometimes.
Fluey: Congested nose, sore throat, feverish-feeling, headaches sometimes.
Cold/heat: Usually cold, but then very suddenly terrible heat.
GI: Nausea. Esophagus blocks (similar to eosinophilic esophagitis).
Only thing I can’t find is burnt tongue (unless “burnt mouth”) or seizures (caused by antihistamines or low levels of histamine).
OTOH 4 symptoms I hadn’t seen before are the strange bouts of feeling well, the congested nose when I feel “histaminey”, the sudden bouts of overheating and the increased & changed esophagus blocks while eating.

So: it does seem to be a belated histamine reaction, but not local, like some studies suggest.

Looking at the studies etc. (needs to be re-arranged better)

For histamine, verywellhealth recommends copper - haven’t tried that yet. One of the symptoms they name and I keep having esp. when also feeling overheated and itchy & burning is: a “congested nose”. A histamine challenge may also help diagnose an intolerance. Symptoms may be reduced by 3-4 weeks.
Paleoplan says 14-30 days. Further symptoms I have are nausea and fatigue.
Healinghistamine lists chronic pain, difficulty regulating body temperature, as well as the skin problems like itching mentioned already, also acid & IBS (IBD) even tho I have that under control, B12 which is usually a bit too low unless I supplement, shortness of breath, brain fog, skin on fire (eye problems?)1
Amy Myers MD might be a more reputable exact source, however a functional doc talking about leaky gut.
This study from 2020: Histamine Intolerance: The Current State of the Art says histamine intolerance is now accepted.
Vaccine/FMS-experts
Mast cells in FM

HISTAMINE / Antihistamine Links: Symptoms fit; diet or take DAO? If DAO needs to be increased, why is taking vit. C and NAC and theophylline recommended by Klimas, altho they decrease it?

German wp
low histamine diet
low Histamine diet
low histamine problems: cocoa butter instead of chocolate??
German - diet
German Unverträglichkeit
Amy Myers MD https://www.amymyersmd.com/article/histamine-intolerance/#Common_Symptoms_of_Histamine_Intolerance
State of the Art: Like diclo (so what about aspirin and ibuprofen?), NAC and vitamin C reduce DAO: why shoud I take them together according to Klimas? Histamine Intolerance: The Current State of the Art Also: Longer diet than 4 weeks doesn’t increase it’s success. 5.4.2: TAKING DAO: Porcine DAO activity values ranging from 0.04 to 0.20 mU/m. … Specifically, the germinated sprouts of certain edible legumes have been pointed out as interesting sources of DAO enzyme. … Moreover, certain inflammatory bowel diseases that limit enzyme secretion or some DAO-inhibiting drugs have also been identified as possible causes of DAO deficiency. … Research is currently also being made to identify new sources of DAO enzyme, especially of plant origin, due to its higher catalytic capacity and other potential productive and commercial advantages.
DAO-supplement could help: Histamine Intolerance-The More We Know the Less We Know. A Review - PubMed
DAO:
DAOVET didn’t help: Veterinärmedizinische Universität Wien Forschungsinformationssystem VetDoc
Nichts über DAO-Einnahme, nur Diät, sonst seriös: Wenn Essen krank macht
wpd Diaminoxidase – Wikipedia
Luteolin
On healinghistamine and on a German site it says theophylline blocks DAO. I then don’t understand why I should be supplementing it according to Klimas, as DAO is necessary to get histamine down??
Same goes for vitamin C and NAC according to another study. So I’m stopping them.

Relationship of histamine to cytokines: Study “histamine-mediated cytokines”: Altered esophageal histamine receptor expression in Eosinophilic Esophagitis (EoE): implications on disease pathogenesis - PubMed

EoE, eosinophilic esophagitis would relate my esophagus blocks to histamine and cytokines.

EoE and FM (opera) via GERD/autoimmune: Eosinophilic Esophagitis and Fibromyalgia - Redorbit
Mayo Clinic Eosinophilic esophagitis - Symptoms and causes - Mayo Clinic
EoE Diagnosis and Treatment 2020: Diagnosis and Treatment of Eosinophilic Esophagitis
Role of environment The Role of the Environment in Eosinophilic Esophagitis - PubMed
Biological therapies 2018: Biological Therapies for Eosinophilic Esophagitis: Where Do We Stand? - PubMed
EoE Update 2020 new treatments coming up: Challenges and updates in the management of eosinophilic esophagitis - PubMed
(2020:) New Perspectives in Food Allergy - PubMed
German wikipedia: Eosinophile Ösophagitis – Wikipedia

Cytokines: Studies differentiating pro-inflammatory IL-6 and IL-8 from anti-inflammatory IL-4, IL-5 and IL-13; no storms in vaccines, but storms in CoV, FM

Pfizer/BioNTech changes innate & adaptive immune response 2020 (D, NL) The BNT162b2 mRNA vaccine against SARS-CoV-2 reprograms both adaptive and innate immune responses, see also Research suggests Pfizer-BioNTech COVID-19 vaccine reprograms innate immune responses = Europe PMC
Vaccine Immune response (immediate) AAAS?
No cytokine storm thru vaccines: What do we know about the mRNA vaccine and cytokine storm?
Also: You asked, we answered: Are people who have gotten the COVID-19 vaccines at greater risk for cytokine storms? | Nebraska Medicine Omaha, NE
Cytokine storms thru CoV: The cytokine storm and COVID-19 - PubMed
Cytokine storms CoV 2020: Cytokine Storm in COVID-19: The Current Evidence and Treatment Strategies
Cytokine storms wp: Cytokine storm - Wikipedia
Cytokine differentiation (MS) 2016: The use of immune modulating drugs for the treatment of multiple sclerosis
Cytokines differentiation FM comorbid with SS study 2021: Higher Risk for Sjögren’s Syndrome in Patients With Fibromyalgia: A Nationwide Population-Based Cohort Study
Cytokines FM - Goebel’s study is specifically NOT cytokines, it’s trying to circumnavigate them: Study Suggests Something in the Blood is Causing Fibromyalgia - Health Rising
Cytokines in FM 2016 - differentiation Neurobiology of fibromyalgia and chronic widespread pain
Cytokines in FM 2014 - Unique Cytokine Signature in the Plasma of Patients with Fibromyalgia
Goebel is not cytokines: Fibromyalgia likely the result of autoimmune problems -- ScienceDaily
Cytokines FM study: Serum proteome profiles revealed dysregulated proteins and mechanisms associated with fibromyalgia syndrome in women
Cytokines FM comorbid with AS study: Patients With Ankylosing Spondylitis Are Associated With High Risk of Fibromyalgia: A Nationwide Population-Based Cohort Study
Cytokines: Interleukins: Interleukin - Wikipedia
(Cytokines not improved by exercise study Plasma Cytokine Levels in Fibromyalgia and Their Response to 15 Weeks of Progressive Resistance Exercise or Relaxation Therapy)

CoV Vaccines: don't weaken the immune system, can have belated !local allergic reactions, first jab start getting effective after 3 weeks

Vaccines don’t weaken the immune system: No scientific evidence for claim by pathologist Ryan Cole that COVID-19 vaccines weaken the immune system - Health Feedback
Allergic reactions AAAS As with other vaccines, these effects can, on rare occasion, be the result of delayed-onset, local allergic reactions.
Effectiveness 36.8% 3 weeks after 1st dose Waning of BNT162b2 Vaccine Protection against SARS-CoV-2 Infection in Qatar Estimated BNT162b2 effectiveness against any SARS-CoV-2 infection was negligible in the first 2 weeks after the first dose. It increased to 36.8% (95% confidence interval [CI], 33.2 to 40.2) in the third week after the first dose

FM update: STILL TENDER POINTS 2021! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8068842/
This daring clinic “can heal everything, FM, EoE, whatever…” Eosinophilic Esophagitis Sufferer Greatly Improved - The Goldberg Tener Clinic

Lessons in self-care #178: Let my mind get carried away last night, which was to a good end, but need to catch up with more sleep tonight.
Lessons in self-care #179: Did nothing much except the 2 docs today.
Reasons to be cheerful #190: I feel very self-advocating & self-efficient now I understand cytokines better and am pretty sure of the histamine intolerance.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · January 6, 2022, 9:41pm

2022-01-07, Friday - record amount of self-treatment

v3: 18:10 sorted stuff out, talked & laughed a lot. (but behind the laughter I do feel weepy every now and then)
v2: 14:50 1st Wim Hof breathing (WHB). (DAO not there yet.)
v1: 22:40 Showering 2’ so I can sleep better is torture…

Triggers & resulting Symptoms

SLEEP (click for details): 8h51, up 5x (59') ✅, but ➔ Feeling 80% well, Ache 3 of 7 ❌, waking up: ➔ 70%/3 ❌

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:50-
1:13 11’+9’ 90%/1 p0 st1 drink fw1’ massage gun (LBU from half-sitting??) & HWB
3:20 21’ 80%/2 p0 st1 drink fw1’ nose congested
5:30 3’ 80%/3 p0 st1 drink fw1’ nose congested
07:18 10’ 80%/3 p0 st1 drink fw1’ torso skin hurting
8:13 Nidra 27’
-8:40
Sum: 1h10+8h40-(20+21+3+10+5=)59’ = 9h50-59’ = 8h51, up 5x (59’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: medium hard getting up, 1.5h cycle/walk/talk outside in cold ➔ 60%/3 , but quite good considering the length and having forgotten my long johns, and worthwhile. Rest, then WHB#1: ➔ 80%/2 Rest, 30’ phone 70%/3 WHB#2 ➔ 80%/2.
ACTIONS ➔ PAINS: . The unpleasantness of showering makes me whine & moan a little, tonight quite a bit. Afterwards itchy hurting skin, also at night → creaming. Itchy, slightly burning skin at daytime skin & food block → jab-sfx.

Treatments

THERAPIES: Decided/agreed on a longer break from acupressure.
Having sent the a load of bills (since April) to my 2x50% insurances, the first is questioning the ozone injections & the acupressure from Oct-Dec and praps the psychotherapy. Let’s see if I can convince them… But even if I didn’t get all that paid for, it was worth it. And that plus the supps is less than the extra money I got due to being able to work a bit. Plus most of it would be tax deductible.
Supps to CHANGE: Stopping NAC & vit. C to see if it affects the sfx (via DAO), despite the recommendations. Wdnt say it’s better, but that might be the WHB
Embarrassingly, I need more extrinsic motivation for the Wim Hof breath-holding (WHB), so here comes my tally with trophies:
14:48 1x3 rounds: , 19:50 1x3 rounds (both ➔ 80%/2)
Also keep forgetting to take aloe vera every day, so it’s wasting away in the fridge:
15:30 200ml
(bit of a lot, but needs to be drunken soon I think.

SELF-PHYSIO (click for details): 4h38 ✅ (mostly while talking or typing). RR 21:20 140/75; 36,2 °C, both a bit higher than usual.

twist-stretch 45’, plantar/calf stretch 15’, cold shower (6’), Timing, AuTr 25’, hunchback-pillow 20’, palpate 1’, belly 3’, back 12’, neck 1+ 8’, loins 2’, left foot on/under right knee/cross-legged 40’, teeth 2x2’, yoga/stretching 25’, breath-hold 2x12’, HWB 3’, hand-exercisers 12’, cream 5’, massage gun 10’, 21:20: RR 4x2’, temperature 5’
jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, workout 7’,

23-24 Supps: PLANNED/TAKEN TODAY (click for details): Just realized at "07:00 it's been saying 0quercetin, altho I've been taking it all the time... NEW/IRREGULAR/CHANGED: STOPPED NAC & VIT.C!! Nd? Arg, B3, Ri: 0 today. Pe & Ps 0. (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 0x2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 0x2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/20:40 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/22:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6/GaGlu+Nc
/01:15 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/03:25 B1 “01:00” PF#4 NAC#2 SRP#1 = “PF+Nc+Sr2”.
/03:25 B2 “03:00” +ALA+pycnogenol
(teeth))
/08:00 B3 “07:00” (30’) Q10#1 quercetin resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
0 B4 “Up”: 2xNADH#?
/09:30 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/09:30 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/13:30 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
/15:20 D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
/18:10 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#1+2.Q10#2.Rs#2,SRP#3. “Nd&Q1QcRsSr2” >19:15
eve:
/20:40 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development: Money matters - yes & no.
Jab-sfx: Generally unchanged, could do a little bit, no food block.
Research-search today: Just tying up loose ends.

Lessons in self-care #180 Important meet-up was worth the pain after.
Lessons in self-care #181 Need to self-motivate more for WHB & aloe vera
Reasons to be cheerful #191 Lots of laughter on the phone and watching Big Bang Theory today.

My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

Topic		Replies	Views
∑ JayCS's Fibro Blog - summary Complementary Therapies	1	892	May 15, 2021
Unsure this is Fibro...needing reassurance Symptoms & Treatments	6	2331	April 1, 2016
Diagnosed 3 months ago Introductions	3	2494	July 22, 2016
Spotlight on our member: JayCS from the Living with Fibromyalgia community General	1	196	July 8, 2022
Let's Welcome JayCS from Cologne! General	21	343	October 15, 2020

JayCS’s Fibro Blog

2021-12-19, Sunday - jab-sfx probably worsening due to a histamine reaction

Triggers & resulting Symptoms

Treatments

2021-12-20, Monday - dead slow, but still getting things done with “eyes half open”.

Triggers & resulting Symptoms

Treatments

2021-12-21, Tuesday - keeping every movement slow & short. GI/wind:

Triggers & resulting Symptoms

Treatments

2021-12-22, Wednesday - Acupressure… hmmm… thinking of a break

Triggers & resulting Symptoms

Treatments

2021-12-23, Thursday - jab-sfx still bad on Day #23 , but so many fun things to do without moving!

Triggers & resulting Symptoms

Treatments

2021-12-24, Friday - the Light is Coming, I’m Happy

Triggers & resulting Symptoms

Treatments

2021-12-25, Saturday - A VERY HAPPY DAY from me to you

Triggers & resulting Symptoms

Treatments

2021-12-26, Sunday - learning to adapt & adjust

Triggers & resulting Symptoms

Treatments

2021-12-27, Monday - lots of rest, then at 16:00 a longer cycle-walk was quite OK!

Triggers & resulting Symptoms

Treatments

2021-12-28, Tuesday - only 45’ cycle-walk & 20’ shop: with energy: 2 “full” spoons!

Triggers & resulting Symptoms

Treatments

Triggers & resulting Symptoms

Treatments

2021-12-30, Thursday - increased fatigue & stiffness today I’d think due to decreasing supps yesterday. So praps increasing serotonin, i.e. GABA next? But got the ALA, so I’ll wait for the fx of that first.

Triggers & resulting Symptoms

Treatments

2021-12-31, Friday - strange sleep: long break, then very long stint; from ALA & pine bark?? Dull mind & body all day.

Triggers & resulting Symptoms

Treatments

2022-01-01, Saturday - HAPPY New 2022! v5 15:50: Itchy skin from the .3g ibu. Trying Wim Hof’s breathing exercise again, about time to get out of this rut!

2022

Triggers & resulting Symptoms

Treatments

2022-01-02, Sunday - Exercise amount great, rhythm getting back to normal.

Triggers & resulting Symptoms

Treatments

2022-01-03, Monday - not much self-discipline, but managing 2h of activity, and self-treatment still OK

Triggers & resulting Symptoms

Treatments

2022-01-04, Tuesday - Histamine? DAO? Cytokines?

Triggers & resulting Symptoms

Treatments

2022-01-05, Wednesday - Getting my head around histamine and cytokines: I’ll probably have to try the low histamine diet.

Triggers & resulting Symptoms

Treatments

2022-01-06, Thursday - waiting for DAO result; low histamine diet on ice…

Triggers & resulting Symptoms

Treatments

OK, my jab-sfx apparently may be caused by histamine, so here comes a symptom comparison:

All the flu-like and similar-to-fibro symptoms fit…:

So: it does seem to be a belated histamine reaction, but not local, like some studies suggest.

Looking at the studies etc. (needs to be re-arranged better)

2022-01-07, Friday - record amount of self-treatment

Triggers & resulting Symptoms

Treatments

Related Topics