JayCS’s Fibro Blog

Symptoms & Treatments
631

2021-12-28, Tuesday - only 45’ cycle-walk & 20’ shop: with energy: 2 “full” spoons! :wink:

Triggers & resulting Symptoms

SLEEP (click for details): 8h21, up 2x (50') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, waking up too.

No fw! lbu: belly tensing? No half-sitting on sofa!
alternating shower p0 Sleep 22:45-
1:27 35’ 80%/2 p0 st1 drink fw1’ 6
5:10 15’ 80%/2 p0 st1 drink fw12’
7:56
-End
Sum: 1h15+7h56-(35+15=)50’ = 9h11-50’ = 8h21, up 2x (50’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 90%/1 :white_check_mark: (of 20%)
ACTIONS ➔ PAINS: :white_check_mark:

Treatments

Supps to CHANGE: Wash capsule machine…:face_with_monocle:

SELF-PHYSIO (click for details): 99' ✅. 08:15: RR 122/80 (60)

:white_check_mark: plantar/calf stretch 5’, twist-stretch 10’, cold shower (5’), loins 2’, marionette-hang 1’, hand-exerciser 3’, HWB 3’, RR 10x2’, Timing, AuTr 4’, hunchback-pillow 15’, palpate 1’, belly 2’, back 4’, left foot on/under right knee/cross-legged 20’, teeth 2x2’, yoga/stretching 10’,
:x: neck 1+ 4’, jolt-jump 1’, neck 2 3’, gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, workout 7’

23-24 Supps: PLANNED/TAKEN TODAY (click for details): NEW/IRREGULAR/CHANGED: Sr has been 3x1 for a few days, haven't always adjusted it. Left out Pf#4 and NAC#3 at night. Maybe repeat that, I need to get my relaxers down and my energy up. Nd 0 Arg, B3, Ri: 0 today. Pe & Ps 0 (23 REGULAR: B2 1x.1g, B12 5mg/2m, C 2x.5g, Cr 3x1g, D3 1/w, Ga: ~2g(4), Gi2, Gu:~1.2g(4), Ma3x2, Nc: 2.5g(5, incl. 2x1/night), Ω3, P5:1, Pf4, Pq1, Q10 2x1g/d, Qc 2x.5g/d, Rs2, Ro2, Sa1, Se1, Sr 3x1x125k, The.2g, Zn1)

Abbreviations resolved under blog references
What-when-details: Updated Dec 3rd (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho/0Se PQQ Ω3 = “PfCr Ml P5Ro Pq.Ω3”
/21:25 A3 “21:00” PF#2 .6 GABA&.4glu#1 NAC#1 = "PF+.6GaGlu+Nc
/02:00 A4 “23:00” PF#3 .3 GABA&.3glu#2 = “PF+.3Ga/Glu”
/(05:25) Srp B1 “01:00” 0PF#4 0NAC#2 SRP#1 = “PF+Nc+Sr2”.
(0 B2 “03:00” 0mumijo#2 (teeth))
B3 “07:00” (30’) Q10#1 quercetin#1 resveratrol#1 SAM-e1, “Q1QcRsSa” + ?NAC#
B4 “Up”: 2xNADH#?
/10:45 MEAL! C1/2 “+30’=Meal” Cr#2 .6GAB#3,the2,gink#1, NAC#2,Zn=B2,C,Cr.GaThe Gi n’AC/Z
/10:55 C3 “08:00” .1gB2,.5gC#1, NAC#3+ “B2CNc”. Nut > grain-Meal:
/12:55 C4 “11:00” (+2h/) ma#3+4 Nd#? SRP#2 — MlNdSr (1st meal till: ?)
0 D1 “13:00” Pectin and/or psyllium with meal, no other supps.
?/ D2/3 “15:00” .5gC#2,Cr#3,.3GA#4/glu#3,gink#2,mal#5+6,NAC#5, “C.Cr.GiGa/Gu.MaNc”
?/20:00 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#2.Q10#2.Rs#2,SRP#3.
“Nd&Q1QcRsSr2”
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK?
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)

The day's 16 compartments (10', plus 5-10' making capsules)

Arg: Capsules? Pf: A1+3+4+B1, (0 Nia+) B2:A1+C2 C:C2,D3 Cr: A1+C1+D2, Ga: A3,a4,C1,d2, Glu: A3,a4,d3, Gi: C2,D3, (0Gly: A1+C2+C3), Mal: A2+C4+D3, Nc: A3, B1,C1,C3,D2, Q1QcRs: B3,D4 Sr2x: B1,C4,D4. SINGLE: A2:P5/Ro, B3:Sa C2: Th+Zn.
(A2:0Se)(A2:Ω/Pq:meal), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe).

Development:
Jab-sfx:
Research-search today:

  • Stabilized R±ALA is the best form, found & ordered a product, fairly cheap.
  • To improve my movements I looked at Alexander technique & Feldenkrais & similar videos and found only a few:
  • Not worth it: Bob & Brad Top 3 Things you should try if you have Fibromyalgia (Based on Science), 2017.
  • Slightly interesting: Body Stiffness in CFS/Fibromyalgia - Just Another Distraction Trick by RecoverFromCFS (Moscow
  • Feldenkrais Demonstration for Fibromyalgia Patient by Centre 4 Health (AUS) - this video is really worth watching firstly for how Ren describes her symptoms and experience with her neurologist (UK), but also to see how gentle, listening & understanding physios should be working with us, similar to the way my osteopath worked with me. Lovely & soothing just to watch. However if I’d’ve stayed with my osteopath, I wdntve got a s far as I got with my acupressurist.
  • Another video sort-of-recommendation (but you can just read the following): 8 Types of Fibromyalgia Pain by Nic Baker , 2016. He talks about each of us having a different set of 3 or more of the following pain types (‘knots’), which I can go along with:
    A. Too much of something 1. Floating pain, 2. Heavy pain with gut issues, 3. Worse with stress or sitting, 4. Worse in morning or from injuries,
    B. Too little of something: 5. Low energy and back pain, 6. Hot at night with irritability, 7. Feels like menopause, 8. Winter is coming.
    Looking into these I’d prefer to call “1. floating pain” local pains alternating between parts of the body, due to invisible ‘injury’ & ‘harm’, 2-5 I’d split up into 2 types each, no idea why he lumps them into one. I wouldn’t’ve called the “too low” ones apart from back pain ‘pain’, so these come extra for me. And yes I do have all these 12 and a lot more. (Not sure about menopause, but something analogue. Cat with wry smile :smirk_cat:) Mine as you can see are different.
  • The 3 Stages of recovery in ME/CFS/Fibromyalgia by The Optimum Health Clinic
  • a brililant one I can learn from: How to get up from the floor (after a fall) - McGyver style

Lessons in self-care #175 Keeping all my spoons full.
Reasons to be cheerful #184 A sense of normality
Reasons to be cheerful #185 Realizing how many techniques I already have to move better.