2022-02-09, Wednesday - 25% - hunting MCAS: Doesn’t help much now being pretty sure it’s that, but it puts a name, or rather: idea to all my oversensitivies
Triggers & resulting Symptoms
SLEEP (click for details): 7h24, up 4x (41') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up early: 80%/2 🧐. MCAS: Early morning: belly ache at 3, sinuses, tongue/mouth, stomach ache at/after 5:15.
No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 23:15-
0:55 5’ 80%/2 p0 st1 drink fw1’ A4
2:50 18’ 80%/2 p0 st1 drink fw10’ B1+2 air HWB. Bit belly-ache
5:23 15’ 80%/2 p0 st1 drink fw1’ air. Sinuses: Cold wash face 8x. Burnt tongue: cold chamomile tea.
5:52 3’ 80%/2 p0 st1 drink fw1’ severe belly ache, tea praps worse. No almond milk, so 5 almonds. More dozing/self-nidra than sleeping.
-7:20
Sum: 45+7h20-(5+18+15+3=)41’ = 8h05-41’ = 7h24, up 4x (41’)
ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Preferred less sleep. ➔ 80%/2. Quite OK, and it an only have been the antihistamine (rupatadine) allowing me to play 6x table tennis, then buying food and doing a bit of housework and cooking. So it seems while it might be making me tired and maybe not improving mouth burning and itchiness, it is decreasing my pain.
"HOW DO I LOOK?" OK 
, tired - my wife pointed it out, but then I saw it, my eyes are slightly more closed. Also managed more of an affectionate look.
ACTIONS ➔ PAINS:
Treatments
Docs: Sorted out further MCAS diagnostics with GP, taking bloods tomorrow. He supported taking the rupatidine for 1-2 weeks if I tolerate it.
WHB (3 rounds) 
RIBOSE:
SELF-PHYSIO (click for details): 2h ✅.
cream fc/ey/hd/ft 4x1’, airing 7x2’, cold shower (10’), teeth 3x2’, HWB 2x3’, breath exercises 2x4’, hunchback-pillow 15’, AuTr 15’, loins 2’, marionette-hang 10’, faceTime 5x1’, Timing, left foot on/under right knee/cross-legged 20’, plantar/calf stretch 4’,
calendula/tea tree 2x1’, breath-hold 12’, palpate 1’, belly 3’, back 12’, hair, neck 1+ 2’, neck 2 4’, twist-stretch 5’, yoga/stretching 5’, jolt-jump 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’,
: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, temperature 5’, nux vomica 1’.
Supps (1st: 29): Supp costs: ~371€/m. CHANGE: Playing around with NAC in the early night: at "3:00", and vit. C in the morning. Carnitine's gone bad, get new. No Srp left, but stopping it for a while, it's so expensive, and I'm not at all sure of it. RIBOSE!? PLANNED/TAKEN TODAY: click for details:
Abbreviations resolved under blog references
ZERO: C 0x2x.5g, NAC Nc: 0x2.5g(5, incl. 2x1/night), Nd, Arg, B3, Rib, Pe, Ps, Se. (REGULAR (28): ALA .2g, B2 2x.1g, B12 5mg/2m, Cr 3x1g, DAO before meals, D3 1/w, EGCG: 250mg EllagicA: Fev/MSM: .2g Ga: ~2g+(4), 3Gi, Glu:~1.2g+(4), Hon, Luteolin .2g Mg Gly 2x2, Mg Ma1x2, Ω3, P5:1, Pf4, pine bark 2x.5g, Pq1, Q10 2x.1g/d, Qc !4x.5g/d, Rs2, Ro2, Sa1, Sily, 0 Sr 3x1x125k, The.2g, Zn1)
What-when-details: Updated Jan 20th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 mal#1+2 P5P/2Rho(0Se) PQQ Ω3 + 0Immun. DRINK! DAO! & Qc (slp! GI?)
/23:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 (0NAC) & Lut (slp!) & Qc (slp! GI?)
Chamomile tea.
/00:55 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid,
/02:40 B1 “01:00” PF#4 0SRP#1
/02:40 B2 “03:00” +ALA+2x pine bark, (teeth) (+1NAC)
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM
/10:00 MEAL! C1/2 “+30’=Meal” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn (0NAC) 1xHONOKIOL! DRINK! DAO! + 1 vit. C. (meal was at 9:30)
/10:00 C3 “08:00” 0x.5gC#1 2The2 (0NAC), taking Qc#2 to 19:00
0 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
1x DAO (D1) “13:00” 0psyllium
/17:15 D2/3 “15:00” 0x.5gC#2,Cr#3,!.6GA#4/0glu#3,gink#3,gly#3+4, 0NAC#5 DRINK! Taking Qc#3 to 21:00
/18:40 D4 “17:00” (“meal/acids+2h”) Nd#?.Qc#4.Q10#2.Rs#2, 0SRP#3.
eve:
“18:00” Prepare: 1) Complete & C changed supps. 3) Complete ##. 4) Tally irreg. 5) Remove “v” 6) Cut template 7) Save this 8) Paste 1x & unhide & paste 2nd (+1 to date and ##). BATCHES OK? Close 2nd TAB!
(Nov 4th: 18:00 vitamin B12 5mg methylcobalamin s.c.; next: Jan 4th.)
The day's 16 compartments (10', plus 5' making capsules)
Arg: Capsules? Pf: A1+3+4+B1, B2:A1+C2 0x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly3x2Mal: C4+D3, A2 Qc: A2.A3.B3.D4 (not C3.D2) Q1&Rs:B3,D4 Sr0x: B1,0C4,0D4. SINGLE: A2:P5/Ro/0Immun., B2: ALA+0x2! pine+NAC! A3: Luteolin, B3:Sa B4: EGCG&Fev/MSM&Sily C2:Zn&Hon&C C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(0x2C:C2,D3) (A2:0Se), (B2:0mu), (B4: 5NADH if nec.) (D1:0Pe). (0 Nia+) (0Nc: A3, B1,C1,C3,D2)
Development
Jab-sfx/MCAS: Early morning: sinuses, tongue/mouth, belly ache at night, stomach ache, slightly itchy. What I’d completely forgotten on the symptom list which occurred to me before my allergologist gave me the MCAS questionnaire was BREATHLESSNESS, which I’d had thru fibro pre-jab, and now more again in the longest part of the jab sfx. It’s not in the questionnaire, but I’ve seen it on symptom lists.
The allergologist prescribed the antihistamine rupatadine (as ‘Rupafin’), supposedly non-sedatory, but somnolence may be one of the side effects. I took it at 10:00, my sfx atm are itchy skin (altho last shower was 11h ago) and a burning tongue. My GP agreed to try it, for about 1-2 weeks now to take the brunt off the jab. At 11:00 and at 12:15 unchanged, but tired and pressure in head, eyes feel and appear glazed, but I haven’t been airing. Table tennis: 6 games, no Ache!!!, even after 6 games, shops, bit of housework. Itchy & burning all day, praps a bit less itchiness in the late afternoon, more again in the evening, but very tired since taking it, altho that might’ve been from not enough sleep.
Research-search today:
Looking at my doctor’s reports, the centre for rare diseases had found slightly increased alpha-fodrin autoantibodies which had lead to a suspicion of Sjögren’s. Having another look at this, I’ve found that it is mainly used for Sjögren’s, not Lupus, however in this Hannover study from 2007 was also strongly associated with sicca syndrome.
IgA 3 of 4, IgG 2 of 4. I’m interested in my alpha-fodrin autoantibodies levels atm, so that’d be something for the next bloods.
Also slightly interesting: Increased Basophils, strongly: S-TPO-AK (MAK), S-IgG4, decreased Lymphocytes (CD wonky; also Aug20), but both basophils & lymphocytes OK Sep20.
Basophils are a type of leukocyte (white blood cells) first thought to be identical with mast cells, so have to do with immune defence.
I keep seeing higher glucose, not sure, maybe ask doc.
Added to my count of 19-20 points in the questionnaire, which is enough already, any of the following test results would add to that:
- inflammation or too many mast cells biopsy of upper and/or lower GI tract.
- too much bilirubin (0 Jul20 & Aug20), gammaGT (0), GPT (+), GOT (+) (however both no longer in Nov before the jab, so I asked to repeat them), cholesterin (aha! +1), unless transaminase GOT is increased 10x or M. Meulengracht is present,
- too much tryptase (esp. >2x), chromogranin A, heparin / factor VIII / fibrinolysis-parameter.
- leaving urinal N-methylhistamine (esp. >10x),
So I’m now up to about 21.
Burning mouth I’ve seen here can be caused by B-complex-deficiency esp. B6, but I’m supplementing that and eating healthy. My feeling that it might be more from almonds I can’t find.
Lessons in self-care #218 Again did what I felt was most important, fun & workwise.
Reasons to be cheerful #225 MCAS: end of a quest? End of an odyssey?
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…