JayCS’s Fibro Blog

JayCS · March 3, 2022, 9:44pm

2022-03-03, Thursday 10% - down, more “histaminey” than before, acupuncture increased the problems.

Triggers & resulting Symptoms

SLEEP (click for details): 9h37, up 3x (15') ✅, but ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 70%/2 🧐. Should've tried warm showering a 2nd time last night.

cold shower p0 Sleep 21:45-
23:55 5’ 90%/2 p0 st1 drink fw2’ A4
2:10 5’ 90%/2 p0 st1 drink fw2’ B1 right nostril → air, nausea stomach → almond milk
4:40 5’ 90%/2 p0 st1 drink fw2’ left nostril/sinus → air, cold wash, nausea → almond milk. Tendons under knees, esp. left → stretches.
-7:36 80%/2 p0 st1 drink fw2’ left nostrils/sinus: From (almond) yoghurt? +1rup! nausea. B2-4 (however are they helping much at all?) +10’
Sum: 2h15+7h36-(5+5+5=)15’ = 9h51-15 = 9h37, up 3x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 70%/3, before the acupuncture and different but just as strong after it, the feeling I’d better not do much, but doing a bit is OK, doesn’t make it worse. But really really knackered, physically, not mentally, right into the evening…
"HOW DO I LOOK?" I can’t really see the pain and exhaustion, my wife can.
ACTIONS ➔ PAINS: Only acupuncture.

Treatments

Docs:
Chinese Acupuncturist By the morning, fatigue had increased a bit again, even more so stiffness and pain. Treatment today was tougher: More needles, longer (20’), some needles hurt quite a bit while putting in, but not once they were in, and not the turning after 10’. Made sure my lower back was comfy with 2 pillows under the sides, my upper back by getting the head end put down. She put heat lamps on feet and belly, just about warm enough. Next time: cushion under hunchback, praps a smaller or no roll under my knees (praps I’d then have less problems with the tendons under my knees) and idealer would be a cotton blanket instead of acrylic.
She also did some cupping (only 7’) which hurt normally, wasn’t as bad as 2 years ago, but has left extremely strong marks on my back - which don’t hurt tho. 16:35 Whoops, now they are itching and burning, maybe shouldn’t’ve thought about it…
Main thing tho: I have been totally Achey-exhausted after the treatment, not just 2 hours like she’s said, but at 16:30 still, not just limb muscles, but bladder too, also stiffer, not just limbs, but my neck. So as was the case with acupressure, she probably did too much this time.
Certain needled spots on hands and feet are also still stinging. Trying breath-holding, but cross-legged sitting hurts more than ever.

Cardiologist:

Factor VIII up: CVD too? Yes, it can become a problem, but doing the sonos regularly is enough.
White Lips? She explains it with my Raynaud’s.
Atorvastatin vs. rupatadine? Didn’t get round to that, because we were talking generally about the many benefits and too high disregard of alternative medicine. But I’ll take it with me to the next appointment in 6 weeks.
(Hyperlipidemia from MCAS is unnecessary/unhelpful to ask, forget it!)

GP - next Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: “Do I talk too medical?” (details on Saturday’s entry)

WHB (3 rounds) +:two: 1’30’’! 1’50’’! 2’! 1’30’’ 1’30’’ 1’30’’ Ah, great, despite not concentrating on it at all! And cross-legged was OK too, once I got started.
RIBOSE: ?

SELF-PHYSIO (click for details): 2h31 ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: R-ALA and new: PEA have arrived, but not taking PEA yet, as that'd be a too big a change and I want to wait what acupuncture brings "first". Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:10 B1 “01:00” PF#4
Heating on! Warm shower?
/07:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:35 B4 “07:00” EGCg + Fev/MSM + Sily
/09:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:15 C3 “MEAL” .5gC#1 2The2 (0NAC)
/12:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:30 “19:00”
/21:05 “21:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: nostril/sinus, slight nausea, 2nd antihistamine isn’t helping. Only better after eating at 14:00

’Research’ today:
It is a grey and developing area but it would not be correct to characterise nociplastic pain as idiopathic pain, according to Chronic nociplastic pain affecting the musculoskeletal syste... : PAIN
“Chronic pain conditions such as fibromyalgia, complex regional pain syndrome type 1, and irritable bowel syndrome are examples of pain conditions, where nociplastic pain is typically present.15 These conditions have documented changes of nociceptive processing in the nervous system,12,17–19 thus precluding the classification of their pain as “pain of unknown origin” (idiopathic pain). The classifier “pain of unknown origin” should be reserved for patients with pain that cannot be designated as nociceptive, neuropathic, or, now, nociplastic and is a label awarded by exclusion.”
However Niki Jones at Footsteps ‘21 asks Irene Tracey about why she apparently calls the 3rd type of pain idiopathic on her site. Queen of Pain - Professor Irene Tracey discusses pain science imaging chronic pain management - YouTube. Can’t find the site she’s referring to. I haven’t seen it anywhere else either.
Since the Klosek, Clauw et al. review is from 2021, so just as new (or maybe written earlier in the year than the interview?) and I also can’t find anything more than this about idiopathic pain: Is this distinction of theirs a new one, maybe not agreed upon by Tracey? My problem tho is that whilst Jones’ question seems clear(?!), Tracey answers saying she prefers to use “simple bins”, but I don’t understand how that explains how she uses idiopathic as a third definition instead of nociplastic. It sounds a bit as if she wants to keep it flexible between nociplastic and nociceptive, but it wouldn’t make sense to make the 3rd definition include the first. It would make more sense if she reserved ‘idiopathic’ for a continuum between maybe all three types. Or I’m just coming to think: is Jones’ assumption wrong, but stands uncorrected by Tracey?
Answer: It is probably “a moving discussion and there will be flexibility in the conversations around it. Idiopathic seems to be to be less applicable and will become more applicable as we have defined nociplastic. I am sure some clinicians will continue to use idiopathic but it may be better to use it as an adjective on the pain type. Idiopathic nociplastic pain when you have not been diagnosed with fibro or other condition that is categorised as you would have idiopathic neuropathic pain that is not down to diabetes or SFN for example.” (DQ from FMA UK)

Lessons in self-care #239 Acupuncture probably overdosed.
Reasons to be cheerful #247 Lots of nice things. Good talk with cardiologist too.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

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JayCS’s Fibro Blog

2022-03-03, Thursday 10% - down, more “histaminey” than before, acupuncture increased the problems.

Triggers & resulting Symptoms

Treatments

Development

Related topics