JayCS’s Fibro Blog

Symptoms & Treatments
743

2022-03-22, Tuesday 8% - bad start, acupuncture brought Ache down to 1, but nothing else :face_with_monocle: Fatigue suddenly less at 20:00: histamine :bangbang:

Triggers & resulting Symptoms

SLEEP (click for details): 9h30, up 6x (30') ✅, but ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 70%/3 ❌

cold shower p0 Sleep 22:45-
0:10 5’ 70%/3 p0 st1 drink fw1’ air cream A4
1:35 5’ 70%/3 p0 st1 drink fw1’ air cream
3:25 5’ 70%/3 p0 st1 drink fw1’ air cream
4:40 5’ 70%/3 p0 st1 drink fw1’ air cream
6:20 5’ 70%/3 p0 st1 drink fw1’ air cream b2-b4
7:45 5’ 70%/3 p0 st1 drink fw1’ cream
-8:45
Sum: 1h15+8h45-(6x5’)30’ = 10h-30’ = 9h30, up 6x (30’)

ACTIVITIES (aim: 40%) ➔ ACHE: Cold shower before bed was really tough, hurting, but very necessary to get the pain down for better getting to sleep. 70%/3. A bit of work and TT :ping_pong: 1:1 took the Ache up from 3-4 to 5 ➔ 60%/5 :x:, Acupuncture brought it down to 1 work ➔ 60%/1) :x::face_with_monocle:. Strangely fatigue down in the evening, which feels histaminey, so plan to drop antihistamine on a verge.
ACTIONS ➔ PAINS: :white_check_mark: neck? GI? Slight headache in the evening (from 19:00?)…
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue suddenly less at 20:00: histamine :bangbang: burnt tongue starting up and sinuses very slightly, probably cos of a bit of a walnut.
Fibro & Touch: Starting to try to get used to touch a bit more, sometimes better than other times. Often I have to rub the part that was touched. Me touching my wife is easier than being touched by her. Short is usually easy. Above 2-3 minutes it starts getting harder.

Treatments

Docs:
Chinese Acupuncturist - next: today, Tuesday 2nd:
I’m not directly tired, but pressure round the eyes all the same, and limbs in tar and heavy.
My overall Ache is similar to the heaviness, immobilizing, so please I’d like to have all the pains back, but be able to move…
My 7th acupuncture session (SE03EP07 :smirk:) just took the Ache of 4 down to 1, but nothing else: Fat lot of use that is…
Spontaneously I started praying during the session, something I haven’t been wanting to do recently, but I think I’ll do it more now: Puts life into a different perspective.
But as I haven’t got the choice to swap pain for heaviness, I’ll focus :microscope: on enjoying :partying_face: not feeling pain, using body scans and mindfulness.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! My eyes and fatigue feels like it's a med! 1x/d DAO 0. RIBOSE didn't help, so I'm stopping it completely. Quercetin for the first time again now, evening 21st. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:55 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:10 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/06:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
0 12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:35 C4+D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Bits’n’bobs for fibro-work again.