JayCS’s Fibro Blog

Symptoms & Treatments
746

2022-03-25, Friday 20% - acupuncture success continuing 34h…

v2 16:00 Quite good actually, rest after :ping_pong: 4:0, hardly any histaminey or cortisol symptoms! Keeping it slow ‘n’ easy tho.
Not fatigued, but feverish-tired, then not tired enough to get to bed early… - Is this all the cortisol connection (praps also the same as the people feeling better from jabs or from CoV itself…) :interrobang:

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 2x (15') ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌. Good long starting stint, considering going to sleep took quite a bit and I didn't feel tired... cortisol or no? I think so. Getting up seemed hard, then suddenly wasn't. Amount of tiredness in the evening of 25th perfect.

warm shower (acupuncture) p0 Sleep Hmm, not tired! Cortisol! cream/ 23:35-
2:45 10’ 70%/2 p0/ st1/ drink/ fw2’/ air/ cream/ A4
5:25 5’ 70%/2 p0 st1 drink fw2’ air cream - only slight histaminey symptoms (skin, tongue, sinuses: mainly nostrils → breath exercise) slightly feverish-nauseous.
-8:05 - still only slightly, nostrils, rest down again.
Sum: 25+8h05-(10+5)15’ = 8h30-15’ = 8h15, up 2x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, TT :ping_pong: 4:0, hardly Ache. hardly histamine reactions, hardly cortisol-feverishness :white_check_mark:. Two phone/video calls pretty tough, especially the video one in the evening 1h30.
ACTIONS ➔ PAINS: :white_check_mark: neck: still stiff, but still flexible :face_with_monocle:. GI: Wind at 1 explains pain in upper right abdomen at 20:00. :face_with_monocle:. Keeping jaw/tooth pain down by chewing mainly on the other side, need to use calendula essence again… :face_with_monocle:
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Slowly increasing the risks: No DAO, no antihistamine, instead only acupuncture, eating lots of Cashews twice a day now, at 15:00 tried green beans again for the first time in ages, the only beans sort which seem to be OK for some, altho not that low histamine.
Fibro & Touch: 0.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th: Success in all areas continuing to at least night 25th… without feverish-tiredness.

SELF-PHYSIO (click for details) focus on: RR (POTS?) ❌, WHB ❌, FACE ❌ & STIFF ❌.

:white_check_mark: airing 4x2’, cream fc/ey/hd/ft 4x1’, teeth 2x2’, breath exercises 2’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, neck 1+ 2’, yoga/stretching 5’, “cross”-legged 20’, hand-exerciser 3’, = 78’
Combine: next? RR!!
:x: facetime 2x1’, cold shower (10’), HWB 3’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: STOP rupafin for a while! 1x/d DAO? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:10 Fennel & chamomile tea.
/02:45 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#3
/08:05 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:05 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:05 B4 “07:00” EGCg + Fev/MSM + Sily
/09:35 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:35 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
Forgot C4 yesterday… :roll_eyes:
/13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:05 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

I tried to post this here today, so I’ll save it here just in case it doesn’t get published: My Pfizer-jabs triggered what I now know is MCAS. Thanks to the above info it only took me a 1-2 months to identify it, educate myself and my docs, get the diagnosis confirmed. My oversensitivities were what made me wary about and wait with taking the jabs and these are now revealed as part of MCAS.

The 1st jab took me down from 40% activity level from fibro to 5-10% activity level, despite taking quercetin, vit. C and NAC already. After 72 days I was back up to 30%. Armed with hope, MCAS-supps, an antihistamine and lowered histamine food, I took the 2nd jab. It took 2 weeks for my activity level to decrease again to 5-10%, but most other symptoms are under control better. 6 weeks after the jab my activity levels are still at 10%, but acupuncture (by a Chinese) is managing to get them up to 20% for a time.*
Like the experts above from almost 2 years ago, my allergist recommended me to take the 2nd jab rather than the unpredictable risk of getting CoV. Some people with FM and some people with MCAS may be OK with CoV, but my good feeling for my body, with many more strange diagnoses, tells me that it’s not that easy…

** supps = the A-Team and B-Team recommended by Bruce Hoffman https://hoffmancentre.com/natural-treatments-for-mcas/*

’Research’ today:
Lessons in self-care #257 Did strenuous unphysical things: 2 long phone/video calls.
Reasons to be cheerful #262 Seems to be holding on beyond midday… :face_with_monocle: