JayCS’s Fibro Blog

Symptoms & Treatments
749

2022-03-28, Monday 15% - adjust the % for the last few days according to table tennis? But fairly hard to put it into ONE number, so maybe I’ll leave it at 20 for the last days and today 15, at least somewhere between 15 and 20. For short periods all symptoms are down, but pain comes up same as pre-acupuncture. Bit of research on ADHD and fibro (after also not finding anything relevant about autism and FM)

Triggers & resulting Symptoms

SLEEP (click for details): 7h30, up 3x (25') ✅, ➔ feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌, again too early, cos of not feeling sleepy in the evening, plus again stomache ache.

cold shower p0 Sleep 0:00-
1:30 5’ 80%/2 p0 st1 drink fw1’ air cream
3:50 15’ 80%/2 p0 st1 drink fw10’ air cream. Nostrils fine, but nausea-stomach ache.
7:10 5’ 80%/2 p0 st1 drink fw1’ air cream B2-4
-7:55
Sum: 7h55-(5+15+5=)25’ = 7h30, up 3x (25’)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, supple & fairly energetic, altho due to the CoV-danger I need to go up- & downstairs now, which does lead to leg weakness back at tne top. TT :ping_pong: 2:2 80%/4. Absolutely 0 pain in the first game, very slight in the second, up in the 3rd and 4th (pretty tangible despite the cortisol kick) and together with increasing arm weakness very much influencing my play in the 4th :face_with_monocle:.
ACTIONS ➔ PAINS: :white_check_mark: neck: good. :white_check_mark: GI: stools in evening fairly hard, morning too. Severe belly ache again starting at around 3, but almond milk is enough to calm it down. :face_with_monocle:. jaw: Midday it seemed the small bits of chocolate (very dark) at the end of the meal was the problem, nothing before. Gotta watch that. :face_with_monocle: Standing has got better and walking a lot better due to the acupuncture, but everything is still limited compared to fibro-pre-jab, pee pain is back to zero after having forgotten the GABA.
MCAS/HIT-Symptoms/Triggers/Treatments: Histaminey symptoms well under control even without the antihistamine now. The fatigue is an effect of the jab, but hadn’t been improved by the antihistamine anyway. Slightly nostrils, sinuses and tongue at night.
Fibro & Touch: It’d be OK today, depending on pain level.
Covid-danger: Now airing a lot.

Treatments

Docs:
Chinese Acupuncturist - Thursday 24th/Tuesday 29th: Tell her "Playing 4 games isn’t really “20%” physical activity - I am now able to pick up balls more and move supply, but the pain AND WEAKNESS still start increasing during the 2nd game and I need 1 or 2 breaks or end up pretty weak, futilely aimless. So whilst it is true that the effect of the acupuncture is still there, it isn’t like in the first days where I could really play 4 games without pain. 15% is truer. Sleep is still good, and that and the histaminey symptoms are well under control even without the antihistamine now. The fatigue is an effect of the jab, but hadn’t been improved by the antihistamine anyway. Main side problem, disturbing sleep, is now the new stomach ache and getting to bed too. Still no hot water bottle necessary at night, and sleep still good, even without the antihistamine."

SELF-PHYSIO (click for details) focus on: RR 15x and analysis ✅✅, WHB ❌, FACE ❌ & STIFF ❌. At 17:15-30 my RR was 145/90, despite being fairly relaxed (but reading something... O.o) and able to decrease my pulse from 66 to 61. This again is worrying, and no sense of measuring it when I get up to see if POTS is an issue. But OK, let's do it. Well actually bp was reduced when standing, then higher, as I'd expected, then even after going down stairs and up again completely normal sinking 130-120/90-85, pulse of 60. Sitting down after that: now still down at 135/85

:white_check_mark: airing 6x2’, cold shower (10’), cream fc/ey/hd/ft 7x1’, teeth 2x2’, breath exercises 4’, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’, twist-stretch 5’ = 69’… + 30’ = 129’ = 2h09
Combine: next? 15xRR!!
:x: facetime 2x1’, HWB 3’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: No rupafin, no DAO, but don't feel like further experiments yet. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
0 Chamomile tea.
/01:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/08:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/08:10 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
->18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: In answer to a request for studies about ADHD and fibromyalgia:
I think the results of most of these studies are faulty, as they are simply measuring brain fog and calling it ADHD (the criteria are identical), without checking whether the fibromites had ADHD before the fibro.
I’m not sure what anyone’ll be able to glean from them. …
I’d say they are firstly finding that it’s the case,
secondly that it’s a double whammy, increases symptoms, disability (functional impairment in work/school), depression, substance use disorders (esp. opioids), decreases quality of life.

From pubmed, ordered new to old:
Adult attention deficit hyperactivity disorder in patients with fibromyalgia syndrome: Assessment and disabilities - PubMed 2021
Attention-deficit hyperactivity disorder symptoms and quality of life in female patients with fibromyalgia - PubMed 2021
Childhood and adult attention deficit hyperactivity disorder symptoms in fibromyalgia: associations with depression, anxiety and disease impact - PubMed 2020
Screening for Adult ADHD in Patients with Fibromyalgia Syndrome - PubMed 2018 This is the abstract to the 2017 study I’ve linked to below.
Attention-deficit hyperactivity disorder and impulsivity in female patients with fibromyalgia - PubMed 2018
High frequency of childhood ADHD history in women with fibromyalgia - PubMed 2011

The pointer to the 2017 study comes from here:
Connection between Fibromyalgia and ADHD | Everyday Health
And this is that study https://academic.oup.com/painmedicine/article/19/9/1825/4584482 (see abstract above)
And this is a second paper in the same edition https://academic.oup.com/painmedicine/article/19/9/1825/4584482

Above everydayhealth are actually stating that the researchers do see a difference between fibro fog and ADHD. However I remember reading one full article where the researchers themselves admitted they were no ADHD experts and were just using ADHD criteria.