JayCS’s Fibro Blog

Symptoms & Treatments
763

2022-04-04, Monday 25% - v1: forum stuff, music, a 7’ workout - good day! (Too rainy for :ping_pong:)

Triggers & resulting Symptoms

SLEEP (click for details): 8h16, up 6x (36'), dozing/Y. Nidra the last 1.5h ✅, ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅, music in my brain all the time, incl. not-pressing ideas.

cold shower p0 Sleep 22:50-
23:50 10’ 80%/2 p0 st1 drink fw5’ air cream A4
01:15 5’ 80%/2 p0 st1 drink fw2’ air cream
02:30 5’ 70%/2 p0 st2->1 drink fw1’ air cream nostril: breathing exercises 2x3’
03:40 5’ 80%/2 p0 st1 drink fw1’ air cream nostril skin above right heel burning as if wool: cream.
5:45 5’ 80%/2 p0 st1 drink fw1’ air cream stomach ache nausea, no sinuses, nostrils better. B2
7:12 6’ 80%/2 p0 st1 drink fw3’ air cream B3+B4
-7:42
Sum: 1h10+7h42-(10+5+5+5+5+6=)36’ = 8h52-36’ = 8h16, up 6x (36’), dozing/Y. Nidra the last 1.5h

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2 all day. Doing a lot standing ➔ 80%/3-4 :face_with_monocle:, but I’d be very surprised if not!
ACTIONS ➔ PAINS: :white_check_mark: neck: OK. GI: There was something, something different, but I can’t remember… jaw: OK. Costochondritis from posture, esp. standing while music making? 5 kinds of self-physio inside of an hour. Better in the daytime. 19:35 neck spine hurting a bit.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: 19:35 Burning back when sitting down (skin stretching, is that it?)
Fibro & Touch: OK today.
Covid-danger: Still CoV-negative, like my wife, who’s wary what she’s to expect at work today.

Treatments

Docs:
Chinese Acupuncturist - Tuesday 29th… CoV-break… Effect still holding on and even increasing.

SELF-PHYSIO (click for details) focus on: RR ❌, WHB ❌, FACE ❌ & STIFF ❌. Ah, for once a local pain that really needs to be taken care of, sort of costochondritis to the left of my sternum, round the clavicle, but not the old clavicle pain I used to have. Treated it inside of 30' with massage gun, a bit of heat and stretches, then upon lying down to sleep lying on my hard cushion under my hunchback and also lying stretched out, left arm to the back.

:white_check_mark: massage gun 15’, cold shower (10’), airing 8x2’, cream fc/ey/hd/ft 8x1’, HWB 3’, Timing, teeth 2x2’, breath exercises 2’, hunchback-pillow 15’, back 8’, horse stance 1’, Y. Nidra 1.5h, hair/nails 15’, workout 7’, = 1h30+1h44= 3h14
Combine: next? RR!!
:x: facetime 2x1’, palpate 1’, belly 3’, aloe vera 1’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (26): Supp costs:~326€/m (Mar 15th) CHANGE: PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/22:35 Chamomile tea.
/23:50 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” PF#3
Heating on! Warm shower?
/5:50 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:15 B4 “07:00” EGCg + Fev/MSM + Sily
/10:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
Just wrote this somewhere:
What has helped me all along is “radical acceptance” (as in Acceptance & Commitment Therapy). As I accept where I am NOW (WITH all the pain and annoying symptoms), and am at peace with it, and am happy. So I DON’T (need to) waste energy on * braving the cleft between becoming perfectly healed and my state now, or * comparing my state to others, or * suffering from listening to others, for whatever reason, or * fighting myself or my fibro as in a war.

One of the pre-requisites is praps grieving properly. That took me a week upon getting the fibro diagnosis, a week upon realizing I have severe cardiovascular problems that needed me to take meds (which I’ve managed to get off of again tho), and no time at all realizing I also have MCAS and have had it for decades.

I am a “warrior” only in the sense that I’m a tumbler who never gives up to get ahead. But I am not at war with myself, exactly the opposite. My fibro and my MCAS are just reactions showing my need, showing that what I and others have expected from myself is not right and too much. I am now caring for a person who never got enough care in all his life, who desperately needs my love and care. I am a self-carer.

This opens up much more power to look how to install my new life. This is well paced (usually slow, sometimes fast). But mainly it is a slow steady self-care, watching what is good for me and what is bad for me and implementing it immediately, again: now.

Again another pre-requisite for that is mindfulness, being in my Here and Now.

But at the same time I again now have the power to turn all this into fruit for others, that I can listen to them and give, properly. Not any longer from something I haven’t got, but from something I have.

If you read my posts again, you will not have to read much about pain and suffering, you will see my coping and actively improving my situation all the time.

I don’t think about what people understand or don’t understand and I don’t fog over to enjoy. I tell them it’s nice to be with you, but my time is limited because it will increase my pain. I stop when it gets too much. Or sometimes I endure, if I want to, and that’s OK too. That way they can be sure I know what I’m doing. Since they feel powerless, and they are. Only I have the knowledge to self-care.

You’ve got the bud of peace in yourself already, you’ve written it all over. But you can overcome that war in this moment. “Hug” yourself, “stroke” yourself, be careful, take care, love yourself as thy neighbour. You are so precious. And you can have the blessings you talked about, be thankful and praise for them, every single second. You “just” have to decide to. That can open up peace inside yourself. Peace in paradise is cheap peace. Real peace is learning to be at peace altho the world is at war. And in that peace lies the strength to change whatever is in our power, and that is a lot. Even if only sharing here.

Lessons in self-care #266 I need to exercise more for my lipids, not just for pain :bangbang:
Reasons to be cheerful #271 Caught up with forums quickly. bit of music making, a workout…