JayCS’s Fibro Blog

Symptoms & Treatments
781

2022-04-15, Good Friday 20% - pimping myself up to 30% at 16:00 for the evening ‘gig’…

v6 21:10 Gig successful using my cortisol, maybe supported by the extra supps, a 3rd focal seizure at 20:30; now coming down, see where I land…
v5 16:30 a short walk & jog round the block, 2x200m, now supps that occasionally boost: ribose, NADH… 16:45 another short focal seizure.
v4 14:50 A Wim Hof breath exercise has helped, altho I had a tiny focal seizure whilst doing it.
v3 14:25 Now I’m thinking it may be the colder weather?
v1 9:30: night OK, but not too well - from some music making? v2 11:10 No, this is not 30%, it’s 20%… My gig’s this evening, I’ll be better by then.

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 3x (15') ✅, but ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. I think the Ache may have been down from 2 to 1, whilst I feel OK-ish at night, I'll have a look tonight if it's 90%. But taking passiflora down to zero has been OK, I'd think, as I slept and woke up well.

cold shower p0 Sleep 22:55-
0:35 5’ 80%/1 p0 st1 sip fw1’ air cream gel A4
2:20 5’ 80%/1 p0 st1 sip fw1’ air gel
4:25 5’ 80%/1 p0 st1 sip fw1’ air gel cream stomach ache nauseous: almond milk.
-7:25 5’ 80%/1 p0 st1 sip fw1’ despite annoying itchy scalp, party people; little bit of nostrils, stomach. No sinuses all night. Hardly stiff.
Sum: 1h05+7h25-15’ = 8h15, up 3x (15’)

ACTIVITIES (aim: 40%) ➔ ACHE: Music making: ➔ 70%/3, rest isn’t making a difference. Praps cos it’s a bit colder today, or feels it (but my wife says it is) :cross_mark:. Bad till I went for the short walk, then jog round the block, then supps, hypering to get cortisol up for the gig (service; me with mask on all the time). ➔ 90%/1 :white_check_mark:. See where I now land tonight & tomorrow, praps it’ll end alright. :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck? GI: fairly loose & then liquid & normal at the same time. :face_with_monocle: :roll_eyes: jaw: Only after nuts for 15’. Hardly stiff at all after acupuncture. 9:40 Left thigh pain: massage gun.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:. I’m wondering whether the specks of balsamico vinegar I’ve been using have been making the next day a problem. (Wednesday & now Friday).
Fibro & Touch: :face_with_monocle: Not too keen on touch, feel a bit fragile. Better with cortisol up.
Covid-danger: :white_check_mark: - kept my mask on all the time at someone else’s house yesterday.
Focal seizures at 15:00 and 16:45, first in quite a time. Is this too much or too little GABA, or generally not too good, or the gig stress overdoing it. 16:50 maybe a bit of burnt tongue, so I’ll take added 200mg of GABA. :face_with_monocle: Nothing till a 3rd seizure at 20:30. Edit 17th: Pretty sure that was the acupuncture, and looked at research: decreases histamine, increases serotonin, see conclusion there.

Treatments

Docs:
Chinese Acupuncturist - Not sure - today was a bit of a downer, and I’m :cross_mark:. 14th: seemed good yesterday, but today was quite a trial and tribulation, needing a lot of health engineering. Next: 19th.

SELF-PHYSIO (click for details) focus on: Neck & knee massage gadget, also tried thighs after standing too long. Wim Hof breath exercise (1'30'', 2'15'', 1', 2'00'') for the first time in ages did help. RR? ❌

:white_check_mark: airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 4x1’, teeth 2x2’, HWB 3’, Timing, hunchback-pillow 10’, palpate 1’, belly 3’, back 8’, aloe vera 1’, breath-hold 12’, hair/nails 3’, massage gun 5’, = 72’. twist-stretch 5’ = 77’.
Combine: next? RR!!
:x: facetime 2x1’, breath exercises 4’, horse stance 1’,balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Last of my ten 5mg methylcobalamin B12 injections s.c., 3 months after the last. Maybe getting it checked in a few months to see if it needs further upping then.

Supps Mar 13th (24?): Supp costs:~277€/m (Apr 14th) CHANGE: Trying to stop passiflora tonight as it's the only sleep thing I can reduce...? No wait, let me go down with theanine from 2 to 1. That's now reducing the costs, esp. as I've stopped taking the expensive extra Ω3... PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” 0PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” 0 PF#4
Heating on! Warm shower?
/07:25 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:25 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/16:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#1! +!Ro + ribose.
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

‘Research’ today: Interesting current debate between researchers about more active treatment of chronic lower back pain.
Lessons in self-care #278 Took care to rest a lot, didn’t help, so various treatments: hot water bottle, chamomile tea, breath-holding.
Reasons to be cheerful #282 Worked out well, success (very nice, and not too many mistakes…)!