JayCS’s Fibro Blog

2022-04-19, Tuesday - Activity Ability = 15% - 22:30 can’t manage a warm shower 10:50 oversleepy, Achey, feverish… 13:00 Acupuncture more painful than usual, no difference directly after… 18:00 Pushing a heavy wheelbarrow a 100 yards wasn’t bad, but 20:00 TT 2:0 pain 4.

Triggers & resulting Symptoms

SLEEP (click for details): 9h45, up 4x (1h) ✅, but ➔ Feeling 80% well, Ache 2-3 of 7 ❌, getting up: 80%/3 ❌. Sleep still too long & deep.

mainly warm shower p0 Sleep 22:55- HWB
0:32-1:18 45’ 6 80%/2 p0 st1 sip fw1’ air. Deliberately lengthened 5+40, good. But probably needed at least 30’ to get to sleep again. Then LBU started, after stretching and warmth (HWB):
2:50 5’ 80%/2 p0 st1 sip fw1’ air cream LBU: massage gun 3’
5:05 5’ 80%/2 p0 st1 sip fw2’ (intense dreams about coping with sickness)
7:10 5’ 80%/3 p0 st1 drink fw2’ air cream B2-4
-9:40 dry mouth, but nostrils/sinuses etc. OK.
Sum: 1h05+9h40-(45+5+5+5) = 9h45, up 4x (1h)

ACTIVITIES (aim: 40%)ACHE: 70%/3, very unsure if TT :ping_pong: is fitting today ➔ 70-60%%/4 :face_with_monocle:
ACTIONSPAINS: :white_check_mark: neck: stiff :x:. GI: loose :x:. jaw: :white_check_mark:, except from cutting very dry wholemeal bread (not eating some slightly softer slices!)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Still not good :x:. Today, 19th: Around 10 of 40 needles hurt while getting them in, around 4 hurt while in and (other) 4 after getting them out. Sweaty ‘ill’ pressure on head, face, eyes.

SELF-PHYSIO (click for details) focus on: Neck massage gadget: 1x3'. RR? ❌

:white_check_mark: airing 5x2’, cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 3’, breath exercises 2’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 8’ = 51’
Combine: next? RR!!
:x: facetime 2x1’, cold shower (10’), horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (24?): Supp costs:~277€/m (Apr 14th) CHANGED: 0 passiflora, 0 Ω3, theanine down to 1. Still stopping luteolin (anti-inflammatory/antioxidant, sleep, 26€/m.) but put back on all other "antihistamine" (anti-inflammatory) supps, since I still feel feverishly "inflamed", praps slightly worse rather than better.... however nothing directly histaminey. PLANNED/TAKEN TODAY: click for details:

No more antihistaminey stuff for a while!
ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:20 A1/2 “19:00” 0PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:10 A3 “21:00” 0PF#2 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
/22:55 Chamomile tea.
/00:35 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” 0 PF#4
Heating on! Warm shower?
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/10:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:25 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

No more antihistaminey stuff for a while! (Not changing this overview for a few days, until I’m sure it’s OK.)
Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: I’ve beern looking for good videos, conventional and functional, the last few days. Just watching Jacob Teitelbaum 2013 Effective Treatment of Chronic Fatigue & Fibromyalgia - YouTube naming lots of things I’ve tried, a lot unsuccessfully. Him talking quite a bit about ribose reminded me I took some before the gigs on Friday and Monday, but only hyped for those hours, not sustainably at all.
Lessons in self-care #281 Wary of :ping_pong: today… :face_with_monocle:
Reasons to be cheerful #285 Nice to do ‘nothing much’ (watching fibro videos & making notes). (TT fun.)