2022-04-29, Friday - 17% - Only new tendency was adding .2g GABA Friday evening as I was getting pee pain, meaning low or high serotonin, plus doing a little deep breathing. Is that the way?
Sleep 70%
Energy (FM + MCAS) 17%
Suppleness 80%
Alertness 90%
Feeling Well - night 70% - day 70%
Ache 30%
Local Pains 5% (unrest in the evening, so a bit of short gentle yoga)
MCAS (except energy) 15%: sinuses a bit.
Self-treatments >1h/d - 1h of Yoga Nidra
Chinese acupuncture 2.5h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 8h35, up 5x (55'), +1h Yo.Ni = 9h35 OR 9h35, up 6x (1h25) ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: ?70%/3 ❌. I'd been thinking that to decide if I'm feeling well enough to stop sleeping further it might be helpful to stretch around a bit upon awakening. But today I realize that I'm feeling well in the warmth of the bed, unwell getting up after 8h35, then good again during and after 1h of Yoga Nidra, but getting up after 9h35 I again feel unwell, nauseous & cold. But a little more restored. Which is a bit strange, cos when I get up at night, I scale my feeling well at "70%", however praps that's how I feel while getting up, but better while lying down??
warm shower p0 Sleep 23:10- (bit stressed at first )
0:30 10’ 80%/2 p0 st1 sip fw1’ cream gel (A4)
2:00 5’ 70%/2 p0 st1 sip fw1’ air cream gel nostrils & stomach nauseous slightly
4:15 5’ 70%/3 p2 st1 sip fw1’ air cream
4:50 5’ 70%/3 p0 st1 sip fw1’ air cream sinuses & stomach nauseous slightly, now ear plugs, HWB#2.
5:25 30’ 70%/3 p0 st1 sip fw1’ air cream gel (ear plugs) slight reflux, awake → 6.
-8:40
9:10-10:10 Yo.Ni.
Sum: 50+8h40-(10+5+5+5+30=)55’ = 9h30-55’ = 8h35, up 5x (55’), +1h Yo.Ni = 9h35 OR 50+10:10-(10+5+5+5+30+30=)1h25 = 11-1h25 = 9h35, up 6x (1h25)
ACTIVITIES (aim: 40%) ➔ ACHE: 70%/2.
phoning with boss = work, was fairly short (33’) & pleasant, but 3 different & difficult areas & strenuous ➔ 50%/5)
. So good that I hadn’t done too much else. I’m slightly freezing, so HWB at 16:00… TT
4:0 with long break, plus talking in between strenuous
ACTIONS ➔ PAINS: neck? GI: 5:30 slight reflux. jaw? p1 at 13:55.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
. Sinuses a bit all morning.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - No better since yesterday #14 28th.
Praps try at least these:
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. Leg Pain & Stiffness Acupressure Points - YouTube
Didn’t, but simple breathing and adding a little GABA improved me overall in the evening, so that’ll be the direction for the next days
SELF-PHYSIO (click for details) focus on: Neck massage gadget: 0x3'. RR? ❌. 1h of Yo.Ni to get sleep up, bit of added yoga & back exercises. 3rd HWB at 16:00
Combine: next? RR!!
facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. Leg Pain & Stiffness Acupressure Points - YouTube
What about increasing D3? Or adding rupatadine again?
Supps Apr 27th (~24): Supp costs:~277€/m (Apr 14th) CHANGED: 1 passiflora, 0 extra Ω3, theanine often 2 again now, but pine bark 1. Put on all other antihistamine supps again regularly, incl. for sleep luteolin and 0-1 passiflora. EGCg is out atm. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, P-5-P, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of Apr 27th (24): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, 0P5 27mg, Pf 1.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” 0PF Cr#1 0mal#1+2 0P5P (0Se) PQQ 0xΩ3 & Qc. Meal: DAO.
/22:00 A3 “21:00” 1PF#1 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:30 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” 0 PF#4
/08:40 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:40 B4 “07:00” 0xEGCg + Fev/MSM + Sily
?11:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO
?11:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:50 “19:00”
/20:15 + GABA .2g
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
No more antihistaminey stuff for a while! (Not changing this overview for a few days, until I’m sure it’s OK.)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today: Someone mentioned Mickel Therapy, something I’d seen mentioned a few days ago. I’ve watched and read up it’s a form of talk therapy touted in England by David Mickel, with high claims and normal prices for talk therapy for ‘lumped together fatigue disorders’ ME & CFS & FM. The main website has been given up, and nothing about it seems convincing of its worth, neither the documentary on BBC Alba (= Gaelic parts with subtitles, nice to hear that) ME: The Toxic Tiredness (Part 2) - YouTube, nor the critical comments below it, nor review and comments here ‘ME – The Toxic Tiredness’ programme on BBC Alba – both parts now available to watch | The ME Association.
Quote from the video "The doctor says that he thinks the problem I have, and the reason I still have this illness is that I don’t have enough “me-time”. ME: The Toxic Tiredness (Part 2) - YouTube.
This I think, like is also said by other docs in the vid, is something we can get in any talk therapy. If Mickel himself says in it that he has the hypothesis that it’s about coming to terms with emotions that are causing a hypothalamus problem, then the hypothalamus part is indeed very much a hypothesis, whilst the talk therapy can help some of us. I’ve been using it as a nice extra, had to shop around to find someone right for me tho. Maybe with Mickel therapy we have people who at least are heading in the right direction.
So - I would on second thoughts agree to recommend trying it if that seems to fit. Here it says how much it costs and how long it takes Mickel therapy - MEpedia Staging and here it give a rough overview how it works / doesn’t work Mickel Therapy - Intuitive Health
Lessons in self-care #290 Motivation to work a bit has grown, but not enough to actually do much today, but praps tomorrow or once energy is up a bit more.
Reasons to be cheerful #294 Good talk with boss.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…