JayCS’s Fibro Blog

Symptoms & Treatments
798

2022-05-02, Monday - 25%!

Sleep 70% (giant break, chatterbrain, but long and restorative)
Energy (FM + MCAS) 25%
Suppleness 95%!
Alertness 100%!
Feeling Well - sleep 90%, sleep breaks 80% day 80-90%
Ache 20%, but 50% for an hour after the 5th game :ping_pong:
Local Pains 5%
MCAS (except energy) 15% (showering pain, rest OK)
Self-treatments <1h/d, but 6h of Yoga Nidra/sleep is the longest yet.
Chinese acupuncture 2.5h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h40, up 6x (2h08) 🧐/✅, 4h, 2h break, 6h using Yoga Nidra, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/3 2 ✅

warm shower, cold painful p0 Sleep 22:25-
0:50 5’ 80%/2 p1! st1 sip fw1’ air cream gel, nostrils & sore throat slightly A3! chamomile
2:30 5’ 80%/2 p0/ st1 sip fw1’ air cream A4
2:45 1h45 80%/2 p0 st1 sip fw1’ air cream, just thought not, but now pretty much awake, so up., B1 with Pf. 6. ear plugs
4:55 5’ 80%/2 st1 sip fw1’ gel (ear plugs) chatterbrain, so Yo.Ni.
8:00 3’ p0. Still Yo.Ni.
9:47 5’ B2-4 normal stools.
-10:13 ear plugs out, cough, side & thighs hurting a little, no other local pains.
Sum: 1h35+10h13-(5+5+1h45+5+3+5=)2h08 = 11h48-2h08 = 9h40, up 6x (2h08)

ACTIVITIES (aim: 40%) ➔ ACHE: 80%/2, maybe even less :white_check_mark:, even quite a bit of music production, standing :white_check_mark:, and up to the 4th game of TT :ping_pong: seemingly still so, but the 5th ending 18:20: ➔ 80%/5, really severe Ache :x:, but only for about an hour or so, really not worth mentioning ➔ 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: neck: Can’t recall. :white_check_mark: GI: wind and loose stools from the cauliflower Sunday and Monday afternoon & evening, but not too much bloating :white_check_mark: jaw: :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Showering pain.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - First slightly better :face_with_monocle: from #14 28th, but greatly improving after sleeping longer and adding GABA :white_check_mark:. Tomorrow 3rd: #15.

SELF-PHYSIO (click for details): Lots of Yoga Nidra to get to sleep after a 2h break. Bit of massage gun on my calves, to prevent plantar fasciitis coming up again.

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Apr 27th (~24): Supp costs:~277€/m (Apr 14th) CHANGED: 1 passiflora, 0 extra Ω3, theanine often 2 again now, but pine bark 1. Put on all other antihistamine supps again regularly, incl. for sleep luteolin and 1 passiflora. EGCg is out atm. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, P-5-P, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of Apr 27th (24): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, 0P5 27mg, Pf 1.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:45 A1/2 “19:00” 0PF Cr#1 0mal#1+2 0P5P (0Se) PQQ 0xΩ3 & Qc. Meal: DAO.
/0:50! A3 “21:00” 1PF#1 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
0:50 Chamomile tea.
/2:30 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/03:00 B1 “01:00” .6g GABA 0 PF#4
/09:50 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:50 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/12:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO
/12:10 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:25 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:25 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

No more antihistaminey stuff for a while! (Not changing this overview for a few days, until I’m sure it’s OK.)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #293 Looking after myself by sleeping as long as I need to but getting up if I’m wide awake. That seems to be working. And being up so long has become rare since MCAS, and not suprising considering the wonky but adapting neurotransmitters.
Reasons to be cheerful #297 Alertness and energy further on the increase, automatically got quite a bit of challenging stuff done. Downside the long sleep break, but I used that to carry on the song, “finished” today, next please, and some slightly annoying work.