JayCS’s Fibro Blog

2022-05-17, Tuesday - 25 Tired, despite making up for yesterday night…

Whoops, forgot the 23:00 supps, then all went askew due to not eating for the bloods in the morning…
Then an hour of body burning, maybe serotonin syndrome, due to taking too much GABA in one go, can’t reconstruct how what happened… :crazy_face:

Symptom overview based on the ACR 2016 criteria

Widespread pain (WPI): 8 +3 (+1) = 12
Overall Ache Areas (mainly limbs): = 8.
Severity: 30 → 20% Suppleness (vs. stiffness) 80 → 90%
Local Pain Areas (mainly spine): = 3 (+1 left shoulder >1h) (+ left jaw +0). 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+0+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3

(Energy 25%)
Waking unrefreshed 3 out of 3
(Sleep quality 80%.)
Cognitive symptoms 2 out of 3
(mainly fog; alertness 85%)

Headaches: 0 out of 1
Pain or cramps in lower abdomen: 0 out of 1

(some stomach ache etc., although avoiding triggers diligently)
Depression: 0 out of 1

Feeling Well: sleep 70%, sleep breaks 70%, day 80%
MCAS / allergic 15%
(except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments <1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h45, up 5x (25') ✅, but ➔ Feeling 70% well, Ache 2-3 of 7 ❌, so 2nd fast cold shower at 3:50, getting up: 70%/3 ❌

cold shower p0 Sleep 22:10- ear plugs
0:15 5’ 70%/2 p0 st1 sip fw1’ air, slightly nostrils, (ear plugs) B1.
1:45 5’ 70%/2 p0 st1 sip fw1’ stomach nauseous/achey itchy skin (ear plugs)
3:40 5’ 70%/3 p1 st1 sip fw1’ air gel (ear plugs) itchy burning skin
3:50 5’ FCS → 80%/2 fw1’ stomach nauseous (ear plugs)
5:50 5’ 70%/2 fw1’ nostrils (ear plugs)
-8:20
Sum: 1h50+8h20-(5+5+5+5+5=)25’ = 10h10-25’ = 9h45, up 5x (25’)

ACTIVITIES (aim: 40% energy)ACHE: 70 → 80%/3 → 2
TT :ping_pong: 4:0 ➔ 80%/3-4 for 1h :face_with_monocle:, then the ?serotonin problem for another.
ACTIONSPAINS: :white_check_mark: neck: hurt during acupuncture :x: GI :white_check_mark: jaw :face_with_monocle:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. itchy burning skin at night. :face_with_monocle:. Nostrils during acupuncture :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #17 on 10th :face_with_monocle:. (Sleep & +25% GABA helping.) Maybe the heat lamp for my back isn’t necessary in these warmer temperatures - and my nostrils close, maybe from that lamp.
Antibody-titre bloods drawn at cardio, and got given a rest of a Pfizer-jab to be given to the university allergists in 3 weeks, however that will help them.

SELF-PHYSIO (click for details): Forgot back in the morning.

:white_check_mark: airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 0x3’, breath exercises 4’, Timing, hunchback-pillow 25’, (palpate 1’, belly 3’, back 12’ evening) aloe vera 1’, neck 1+ 2’,
Combine: next? RR!!
:x: facetime 2x1’, horse stance 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. Drat getting an over-reaction at 15:55 heat/burning/tingling: Too much GABA? No, rather not enough? Nothing fits. But kept calm and rested, pretty much gone at 16:45. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 1x5ml, Mg Gly 50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:00 A1/2 “19:00” 1PF Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:10 A3 “21:00” 1PF#1 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/10:50 Forgot! GABA/glu, Ell → C4 A4 “23:00” 1PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/00:15 B1 “01:00” .6g GABA PF#4

/14:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/14:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/14:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/20:00 “19:00”
/22:20 “21:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

The thing about basing my symptom assessment on the criteria is that they are deliberately rough, for easy diagnosis, and not fine-tuned enough for my analyses.

’Research’ today: No, only forum bits, and bits of studies, not really anything new.
Lessons in self-care #307 Supps askew can be tough…
Reasons to be cheerful #311 Upward wind from acupuncture and music making.
Things I love about myself #6 Optimism.