2022-05-25, Wednesday - Energy 20% / Sleep 70% / Ache 30%
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11
Overall Ache Areas (mainly limbs): = 8. Severity: 25% Suppleness (vs. stiffness) 85%
Local Pain Areas (mainly spine): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+1 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: 0, Pain or cramps in lower abdomen: “1” out of 1
(simplifying those 3 from now on; my wife does say it’s all bringing my mood down.)
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above) Sinuses
Treatments overview
Self-treatments 2h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 9h, up 7x (1h50) 🧐/✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/3 🧐
cold shower (but hurt a bit afterwards) p0 Sleep 23:00-
0:35 5’ 80%/2 p0 st1 sip fw1’ very sore throat → long-sleeve on A4
1:50 5’ 70%/2 p0 st1 sip fw1’ air (sinuses) sore throat B1
3:10 15’+10’ 70%/2 p0 st1 sip fw10’ air stomach nauseous, slightly sore throat, cold - HWB. Then quickly overheated nauseously. gel.
4:15 20’ FCS + chamomile 70%/2 p0 st1 sip fw1’ air stomach nauseous ear plugs
4:50 50’ fw25’ Yo.Ni. 6. YoNi.
9:00 5’ 80%/2 p0 st1 sip fw1’ (nostrils) ear plugs. 1st stools OK. B2-4
-9:50
Sum: 1+9h50-(5+5+15+10+20+50+5=)1h50 = 10h50 - 1h50 = 9h, up 7x (1h50)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3
cycle 
“over the hill” and back, heavy duty, 2x10’ & 2.5h meetings/social 
incl. mask 
with lots of breaks Tuesday evening, using 5g ribose before ➔ 70-60%/3 
ACTIONS ➔ PAINS: neck: slightly stiff. GI: bit of ribose effect, but worth it , jaw
cycling: hands/wrists sometimes hurting a bit more recently, 2xp1-2 not today , but a few days ago . mask-talking OK , just the mask was newer so hurt one ear a bit.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger: Kept mask on “all” the time in the restaurant, so no eating.
Treatments
Docs:
Chinese Acupuncturist - #18 on 17th . (Sleep & +25% GABA helping.) #19 on 27th.
SELF-PHYSIO (click for details): Y. Nidra 20'... = 2h02
airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 3’, hunchback-pillow 25’, palpate 1’, belly 3’, back 12’, Y. Nidra 20’, plantar/calf stretch 5’, hair/nails 15’, neck 1+ 2’, workout 2’,
Combine: next? RR!!
facetime 2x1’, breath exercises 4’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom, yesterday 2 in the evening to eat some wholemeal organic cake. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:35 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:50 B1 “01:00” .6g GABA PF#4
/09:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/12:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/12:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/21:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
‘Research’ today:
But won’t UK GPs who just read the information sheets and the diagnostic worksheet now “blame everything on fibro” and put a stop to perhaps vital further testing? Weren’t the bits about further testing a big double achievement of the 2016 vs. the 2010/2011 criteria (worksheets)?: Quicker diagnosis, BUT further testing is still necessary. That’s what it says in the guidelines, but not in the summaries.
Apart from this I must say I am impressed by the clarity and detail of the guidelines as a whole. rcplondon.ac.uk/file/36246/…. Truly an interesting read.
Apparently out since March 17th?
Was it right for someone to call me a riddle-solving wizard?
Nay nay - alas, alack: an olde wizard, a mage 
I be not in a 100 years…
but aye - these 1000 riddles awake all ye knightly courage & curiosity I can summon as long as I breathe…
990 be Legends of Olde, turned a pastime, a game to play by ear - after learning my instruments in my sleep.
But ye last 10 stay stuck deep in The Stone that denies all normal effort - or rather budges a bit, but maybe only to tempt me,
if a Moment comes, however, I’ll be there ready & waiting faster than an eagle!
But if not I’ll calmly wait for maybe a Tournament of Naught: my patience & acceptance will win every waiting game all the same.
And should I ever forget - moments do come…: Please remind me! 
Lessons in self-care #315 2.5h of a get together: retiring every 30’ at the latest! Restaurant again, but this time no eating, cos 15 people and I didn’t want to take my mask off, I just went aside to drink some water and outside to eat some veggies.
Reasons to be cheerful #319 Hehe - a riddle-solving wizard… me…
Things I love about myself #14 I’m a tumbler.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…