JayCS’s Fibro Blog

JayCS · May 24, 2022, 12:47pm

2022-05-24, Tuesday - 20%. Sleep quality 95%, but long: 10h30! & not particularly restorative… cold and unwell… Ache 35%, short pains.

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11
Overall Ache Areas (mainly limbs): = 8. Severity: 30%. Suppleness (vs. stiffness) 75%
Local Pain Areas (mainly spine): = 3. 15%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 95%, but long: 10h30!)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)

Headaches: 0 out of 1 (Rare, mainly in the weeks after the jabs)
Pain or cramps in lower abdomen: 1 out of 1 (despite avoiding triggers: stomach & gut)
Depression: 0 out of 1 (No; seldom blue)

Feeling Well: sleep 80%, sleep breaks 80%, day 70%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above) Some sinuses & headache & nausea in the evening, also in the morning, despite 1 DAO.

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 10h30, up 3x (40') "✅", but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. So sleeping this long is GOOD? Hard to translate that into %. Interesting to see how that develops in the course of the day.

cold shower p0 Sleep 23:00-
02:30 15’ 80%/2 p0 st1 sip fw1’ air. itchy scalp. B1
06:30 3’ 80%/2 p0 st1 sip fw1’ air sinuses & stomach nauseous slightly ear plugs not necessary! (neighbour above not at home) → ear plugs
08:15 20’ 80%/2 p0 st1 sip fw1’ air nostrils & sinuses & stomach nauseous & sore throat alls slightly (ear plugs) fairly normal stools B2-4
-10:10
Sum: 1h+10h10-(15+5+20=)40’ = 11h10-40 = 10h30, up 3x (40’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 60%/3 (cold and unwell), TT 3:1, 60%/3 . Restaurant, resting, phoning a bit ➔ 70%/3.
ACTIONS ➔ PAINS: neck: hurting, altho flexible GI jaw . In this heat I’m able to take off my woolen socks, only 3 pairs, not 5. But Tuesday is colder, back to 4 or 5.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps the sinuses & headache from 5 to at least 11 weren’t (just?) from going out, but from bits of walnuts, soy coconut yogurt etc. all without DAO. Avoided cake today, cos I hadn’t taken DAO before. Hope the GABA in the evening takes the burning down a bit more.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #18 on 17th . (Sleep & +25% GABA helping.) #19 on 27th.

SELF-PHYSIO (click for details): 60'.

Combine: next? RR!! airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 1x1’, teeth 1x2’, HWB 3’, breath exercises 1’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, plantar/calf stretch 3’,
facetime 2x1’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:30 B1 “01:00” .6g GABA PF#4
/08:15 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:15 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/11:05 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/11:05 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/?15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:

New UK guidelines for fibro sound like good news: GPs can “now” make a diagnosis even quicker… without referrals. On detailed reading however they are based on the ACR criteria, but deliberately leaving out the bits about further testing quite apart from the fibro diagnosis!

This introductory page leads on at the bottom to a page with short summaries for patients and docs.

These “first UK guidelines for the condition” aren’t really new, they are just based on the ACR 2016 criteria and the “diagnostic worksheet” used is almost identical to the ACR 2016 modified criteria

BUT an important part of those - conspicuously left out by the UK version - are the following lines in the ACR criteria " The fibromyalgia diagnosis can now be made irrespective of other diagnoses (you do not need to rule out all other conditions that could explain the symptoms, if criteria 1-3 are all met). and " Fibromyalgia is diagnosed if you meet all 3 criteria 1-3, independent of whether other diagnoses contribute to these symptoms. This is new: FMS diagnosis used to require that there be no other diagnosis to explain the findings. "

As the Walton Centre article above says: " The new guidelines aim to support clinicians in the diagnosis of FMS, without the need for rheumatology referral, preventing unnecessary surgery, enable patients to be placed on the appropriate treatment pathway earlier and empower patients to be more knowledgeable about their condition ." Saving time … and money and bother… It will (try to) end the “diagnosis of exclusion” concept and further testing before and after the fibro diagnosis.

By the way - The “information sheet for patients” has in the third line “It is a condition that changes the way the nervous system processes sensory signals; pain can result from this”. Ironically, this is is based mainly on the “CSS hypothesis” (fibro caused by changes in the brain/spine, making it a central sensitisation syndrome), whilst Goebel (lead author here) had initiated a study published last summer which was touted as implying that fibromyalgia is mainly an autoimmune disorder.

Lessons in self-care #314 The waiter taking my order for a salad without any spices, tomatoes etc. kept shaking his head, cos he was so confused.
Things I love about myself #13 I almost always mean well. Even tho sometimes others seem to think I don’t. But that’s not my ‘fault’.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · May 25, 2022, 8:54pm

2022-05-25, Wednesday - Energy 20% / Sleep 70% / Ache 30%

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11
Overall Ache Areas (mainly limbs): = 8. Severity: 25% Suppleness (vs. stiffness) 85%
Local Pain Areas (mainly spine): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+1 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: 0, Pain or cramps in lower abdomen: “1” out of 1
(simplifying those 3 from now on; my wife does say it’s all bringing my mood down.)

Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above) Sinuses

Treatments overview

Self-treatments 2h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h, up 7x (1h50) 🧐/✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/3 🧐

cold shower (but hurt a bit afterwards) p0 Sleep 23:00-
0:35 5’ 80%/2 p0 st1 sip fw1’ very sore throat → long-sleeve on A4
1:50 5’ 70%/2 p0 st1 sip fw1’ air (sinuses) sore throat B1
3:10 15’+10’ 70%/2 p0 st1 sip fw10’ air stomach nauseous, slightly sore throat, cold - HWB. Then quickly overheated nauseously. gel.
4:15 20’ FCS + chamomile 70%/2 p0 st1 sip fw1’ air stomach nauseous ear plugs
4:50 50’ fw25’ Yo.Ni. 6. YoNi.
9:00 5’ 80%/2 p0 st1 sip fw1’ (nostrils) ear plugs. 1st stools OK. B2-4
-9:50
Sum: 1+9h50-(5+5+15+10+20+50+5=)1h50 = 10h50 - 1h50 = 9h, up 7x (1h50)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3
cycle “over the hill” and back, heavy duty, 2x10’ & 2.5h meetings/social incl. mask with lots of breaks Tuesday evening, using 5g ribose before ➔ 70-60%/3
ACTIONS ➔ PAINS: neck: slightly stiff. GI: bit of ribose effect, but worth it , jaw
cycling: hands/wrists sometimes hurting a bit more recently, 2xp1-2 not today , but a few days ago . mask-talking OK , just the mask was newer so hurt one ear a bit.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger: Kept mask on “all” the time in the restaurant, so no eating.

Treatments

Docs:
Chinese Acupuncturist - #18 on 17th . (Sleep & +25% GABA helping.) #19 on 27th.

SELF-PHYSIO (click for details): Y. Nidra 20'... = 2h02

airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 3’, hunchback-pillow 25’, palpate 1’, belly 3’, back 12’, Y. Nidra 20’, plantar/calf stretch 5’, hair/nails 15’, neck 1+ 2’, workout 2’,
Combine: next? RR!!
facetime 2x1’, breath exercises 4’, Timing, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom, yesterday 2 in the evening to eat some wholemeal organic cake. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:35 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:50 B1 “01:00” .6g GABA PF#4
/09:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/12:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/12:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/21:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
But won’t UK GPs who just read the information sheets and the diagnostic worksheet now “blame everything on fibro” and put a stop to perhaps vital further testing? Weren’t the bits about further testing a big double achievement of the 2016 vs. the 2010/2011 criteria (worksheets)?: Quicker diagnosis, BUT further testing is still necessary. That’s what it says in the guidelines, but not in the summaries.

Apart from this I must say I am impressed by the clarity and detail of the guidelines as a whole. rcplondon.ac.uk/file/36246/…. Truly an interesting read.

Apparently out since March 17th?

Was it right for someone to call me a riddle-solving wizard?
Nay nay - alas, alack: an olde wizard, a mage I be not in a 100 years…
but aye - these 1000 riddles awake all ye knightly courage & curiosity I can summon as long as I breathe…
990 be Legends of Olde, turned a pastime, a game to play by ear - after learning my instruments in my sleep.
But ye last 10 stay stuck deep in The Stone that denies all normal effort - or rather budges a bit, but maybe only to tempt me,
if a Moment comes, however, I’ll be there ready & waiting faster than an eagle!
But if not I’ll calmly wait for maybe a Tournament of Naught: my patience & acceptance will win every waiting game all the same.

And should I ever forget - moments do come…: Please remind me!

Lessons in self-care #315 2.5h of a get together: retiring every 30’ at the latest! Restaurant again, but this time no eating, cos 15 people and I didn’t want to take my mask off, I just went aside to drink some water and outside to eat some veggies.
Reasons to be cheerful #319 Hehe - a riddle-solving wizard… me…
Things I love about myself #14 I’m a tumbler.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

ModSupport · May 26, 2022, 8:53am

Hey Jay,
I just wanted to add my 10c worth to your statement below:

You state “UK GP’s”, but I’m sorry to say, it’s not just in UK. They often use what I call ‘The Book Theory’ ie 'The book says ‘X’. The answer must be ‘X’." This is REALLY common diagnosis for many people with rare and/or complex conditions. It had taken me years to ‘train’ my GP, just got to the point where he asked me for a diagnosis, then he’d examine and confirm, then he up and retired. I was handed over to a new young dr at the same practice and he was the most self pretentious, self important, arrogant man. He knew it all, only he didn’t and his arrogance landed me being rushed to hospital, needing surgery (I ended up making a formal complaint in the end).

Another more recent incident occurred when a govt recommendation regarding medications was changed. Now, I regulate my use of opiates really tightly, but opiates are now the BIG demon drug but opiates are what works for me. If there was something else that worked, I’d use it, but there’s nothing. I’ve been trialled on all sorts and what works are opiates. So I’ve been playing a game of ‘push and shove’ keeping me, the medicos and my pain within limits. But restricting the medications because of some criteria? NOPE. I won’t play that game.
Having to manage a rare condition for years, you and I know what we need, we know how to best manage for ourselves. We have no choice but to manage. If they used the worksheet as a ‘guideline’ rather than a ‘bible’ and (heaven forbid) listen to us, the patients, the whole system could be made much easier for all involved. We MUST listen to them, so why won’t they listen to us??? TSK.

I have been just SO tempted to make a halo out of a medical degree with some dr’s

Merl from the Modsupport Team

JayCS · May 26, 2022, 8:57am

2022-05-26, Thursday - Energy 15(-20?)% / Sleep 70% - “hangover” I spose I could call ‘overdoing’ it yesterday evening… but also cos ribose like alcohol is bad for the triglycerides… My ribose hangover

Re-considering ribose comes out negative: it does boost, but that causes a backlash, aside from slight GI problems, and IT IS A SIMPLE SUGAR - looking up ribose and lipids in pubmed I get D-ribose increases triglyceride via upregulation of DGAT in the liver - PubMed, full article here)
Alcohol may only be a problem for lipids with high consumption, but OK/better with low to moderate, but it’s still recommended preferably not to use it.
Not sure about my energy, maybe tiredness and fog prevented me from being able to use it properly…

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 + 3 + 1! = 12
Overall Ache Areas (mainly limbs): = 8. Severity: 30% Suppleness (vs. stiffness) 80%
Local Pain Areas (mainly spine): = 3 + 1 (left shoulder). 20%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15-?20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 75%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 70%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d (Yoga Nidra)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h15, up 6x (1h05), dozing 1.5h "✅", ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌

cold shower p0 Sleep 00:00- sinuses ear plugs
1:35 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs)
2:40 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs) clavicle → massage gun, gel
4.40 5’ 80%/2 p0 st1 sip fw1’ (stomach nauseous, sore throat & shoulder: HWB#2) gel (ear plugs)
6:30 15’ 80%/2 p0 st1 sip fw11’ air gel nostrils (ear plugs)
7:00 25’ 80%/2 p0 st1 sip fw22’ (ear plugs) Yo.Ni.
/8:50 10’ 80%/?2 p0 st1 sip fw1’ air cream gel nostrils sinuses stomach nauseous (ear plugs) dozing, wife too, making pains and body hurt.
-10.20
Sum: 10h20-(5+5+5+15+25+10=)1h05 = 9h15, up 6x (1h05), dozing 1.5h

ACTIVITIES (aim: 40% energy) ➔ ACHE: 60%/3
wasn’t able to meet the kids even for a short while
ACTIONS ➔ PAINS: neck: (stretching, massage gun) GI jaw
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Sinuses yesterday evening , nostrils at night.
Fibro & Touch: Wife tried dozing next to me in the morning, making pains come up (esp. neck) and body hurt.
Covid-danger: Scary yesterday in a restaurant with 15 friends (I kept my mask on and didn’t eat there and drank aside). Also annoying hearing people say how bad their one day of CoV infection was and glad that they got it and are thru with it.

Treatments

Docs:
Chinese Acupuncturist - #18 on 17th . (Sleep & +25% GABA helping.) #19 on 27th.

SELF-PHYSIO (click for details): Y. Nidra 20’, massage gun 5' 1h32

airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 3’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, massage gun 10’, twist-stretch 1’, Y. Nidra 20’, neck 1+ 2’, plantar/calf stretch 2’,
Combine: next? RR!!
facetime 2x1’, breath exercises 4’, horse stance 1’, aloe vera 1’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. 5g Ribose helped cope with the 2.5h meeting 6:30-9. So why not do a proper trial of it, weaning it in? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/23:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/00:00 Chamomile tea.
/00:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:35 B1 “01:00” .6g GABA PF#4
/08:50 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:50 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:05 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
So alcohol and ribose are both bad for triglycerides…
Re-considering ribose comes out negative: it does boost, but that causes a backlash, aside from slight GI problems, and IT IS A SIMPLE SUGAR - looking up ribose and lipids in pubmed I get D-ribose increases triglyceride via upregulation of DGAT in the liver - PubMed, full article here)
Alcohol may only be a problem for lipids with high consumption, but OK/better with low to moderate, but it’s still recommended preferably not to use it with hyperlipidemia.

Lessons in self-care #316 Careful does it. Overdoing / sugar = ribose hangover.
Reasons to be cheerful #320 Wow, a “hangover” ;-D.
Things I love about myself #15 I do like my style, altho it’s unusual and weird for some.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · May 26, 2022, 9:31am

Hi Merl - grateful for giving me your 10$ worth

Fully agreed that we generally everywhere seem to have the choice between a Rock and a Hard Place with many of our docs: As regards further testing, those who do a lot of it of their own accord usually don’t seem to believe in fibro or believe their testing will find something to dispel it. Those who don’t, usually blame everything on the fibro, off-handedly.

In this case though what I mean is that the 2022 UK guidelines have distorted the “American” ACR 2016 to read: “Check off quickly that it is fibro and then leave it at that.” This will IMO make UK docs even more likely to do so than before.

As you suggest it does seem even worse in Australia: I’m not sure what your docs are urged to use as diagnostic criteria, or which advisory board is responsible. Looking at what the “Australian Prescriber” / NPS says on that, it’s similar to the 2022 UK guidelines - diagnose quick, test less, using the ACR 2010/2011 criteria. Their Fibromyalgia survey questionnaire in Box 1 again blatantly omits the bits about further testing, which is confirmed by the only very casual mention of that possibility “Investigations are only needed to exclude treatable comorbidities and potential differential diagnoses, such as thyroid dysfunction.” This phrasing makes a reference to a Mayo article from 2011, implying they haven’t taken the 2016 modifications into consideration.

The above is also the case in Germany, as I said: Docs here are “allowed” to decide themselves even to still use the 1990 criteria with the tender points, or whatever criteria they want. So I’m definitely not saying this is new or only in the UK!

It just seems with this speedier fibro diagnosis they to find the baby (= fibro) in the bathwater = difficult diagnosis, so once they have quickly identified one baby, they are throwing away the bathwater, altho there may be several more in there.

By the way, regarding Australian experts: did you see me list Emma Guymer videos from Musculoskeletal Australia on my list of good talks? What do you think of her and the Fibromyalgia Clinic in Melbourne?

ModSupport · May 26, 2022, 2:02pm

Personally, I think Australia’s Medicare system use to work well. But the last yrs of government screwed the system by not increasing payments to Dr’s, so the Dr goes for the quickest/easiest, pushes you out the door, “Next patient please” more patients, more money. Those with more in-depth needs get referred to a specialist with more cost.

There’s a diagram called a Venn diagram, like this:

See where it says ‘Element One’, ‘Element Two’, ‘Element Three’, Those are symptoms. On a good day you may have 1, on a not so good day you could have 2 and a bad day you have 3 and they ALL interact with each other. You never know how much, nor by what degree. So you’ve got to be prepared to juggle all 3 and function and then the Dr says “Well, if you can juggle all of that I don’t know what your problem is… …I can’t see anything wrong…just slow down” AAARRRRGGgggg (BOOT “No, Your Honour, my foot just slipped. HONEST” )

The only time full blown symptoms show is in the very middle of the graph where all 3 bubbles interact. On the days all of my bubbles interact I need to hibernate in a DARK, silent room, not be tripping around seeing dr’s.

Now if you’re fortunate you only have 3 symptom bubbles, that overlap each other, to manage, some have 5 or more to juggle, even more things to be discredited on, especially when the worksheet says ‘X’ but you say ‘Y’. “Well, the worksheet MUST be right…” and around we go again…TSK

Ahh, them’s the joys of trying to manage a complex condition.

P.S. Those bubbles should be housed in a box, so that symptoms that don’t fit a bubble still get caught, cos we don’t all fit the same damn bubbles.
As for the clinic you mention, that’s about 1000km from me.

Merl from the Modsupport Team

JayCS · May 26, 2022, 3:50pm

Hehe, now that’s a intriguing suggestion to try to express overlap of symptoms in a Venn diagramm. As I have severe fibromyalgia plus severe MCAS-fatigue, I have a big overlap of all circles every day. The only circle that is OK-ish - I was meaning the left blue one - is the “local symptoms” which I have well under control. Like the criteria do, this would mean putting my % all negatively,
i.e. in % for today Ache 30%, stiff 20%, local pains 20%, fatigue 85% , insomnia 30%, fog 20%.

In “fibromyalgianess” points today, i.e. 12 of 15 WPI and 9 of 12 for SSS, +1 more than usual.

My preliminary conclusion: A Venn diagramm is perhaps only illustrative for light to moderate cases, nor if you have severe fibro-WPI+SSS fibromyalgia plus severe MCAS-fatigue every day of your life anyway.

But I’ll keep experimenting.

Ah, I see, the colours aren’t working. The % needs to be in shades of grey. And 85% is an almost black grey, between grey 8 and 9, and 30% would be grey 3 etc. What does that look like?

OK, better, but still not working. Gotta think about the theory of this I spose. Any ideas?

JayCS · May 27, 2022, 4:44am

2022-05-27, Friday - Sleep 60%, Energy 20% and rising to 25% from acupuncture! Used it (no TT partner) to overdo it by pretty much clearing out my workplace… And still energy afterwards, despite knowing it’s been too much.

…at 17:00 in 90’, which is liberating, but tidying up always churns up too, and it was way too long, plus commuting, partly used .
6:55 Just - couldn’t - sleep! OK, 2.5h(?!) break, should be able to now (with Yoga Nidra)

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 (of 15)
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness) 80%
Local Pain Areas (mainly spine): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 (of 12):
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 80%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80 → 90%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70%, day 80 → 90%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >2h/d (Yoga Nidra)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 10h45-3h45 = 7h?, up 7x (3h45) ❌, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌. Get into bed early tonight!!

cold shower p0 Sleep 23:35-
0:50 5’ 80%/2 p0 st1 sip fw1’
1:20 25’+5’ 80%/2 p0 st1 sip fw1’ air cream gel nostrils sinuses stomach nauseous sore throat ear plugs B1. YoNi
2:30 5’ 80%/2 p0 st1 sip fw1’ air toenails stingy-itchy: inconspicuous white stuff → tea tree oil. (itching slightly all over could be CNS oversensitivity CSS, for a change) Yo Ni ended 3:10
3:10 15’ 80%/2 p0 st1 sip fw1’ air (stomach nauseous) FCS YN
4:20 2h45 break?? -7:05 Yo.Ni with ear plugs
9:00 5’ 80%/2 p0 st1 sip fw1’ air stools OK, nostrils (ear plugs)
-10:20
Sum: 25+10h20-(5+25+5+5+15+2h45+5=)3h45 = 10h45-3h45 = 7h?

ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS: neck? GI? jaw?
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) It’s been stable at around 20% all this time and today was a considerable booster, which was perhaps right to use, altho it’s gonna be tricky not being able to cold shower tonight!!

SELF-PHYSIO (click for details): Actually checked bp / RR for POTs and it decreased considerably from 135/85 to 122 then 93 then 117 upon standing up, and my pulse went up from 63 to 67 bpm instead of increasing 30-40 which it would with POTs, so no danger at all, and I'm not doing RR tests any more. The biggest problem is probably smashed up nights. I'm also taking out some things that weren't necessary recently: loins, "cross"-legged, hand-exerciser & hair/nails, and re-ordering the rest.

The normal stuff plus lots of Yoga Nidra, together lets say >2h.
Combine: next?
airing x2’, cold shower x(10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 1’, Timing, hunchback-pillow 15’, Y. Nidra 20’, massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:30 B1 “01:00” .6g GABA PF#4
/09:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:

A small 2019 qualitative study showing that it annoys people how vague the diagnosis is… Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion - PubMed However this may be caused by lack of clarity of communication, not just by the fact of the diagnosis. Of course it is vague and of course it is annoying.
This small Italian review by Maffei clarifies " is a disorder that rather than diagnosis of exclusion requires positive diagnosis" Fibromyalgia: Recent Advances in Diagnosis, Classification, Pharmacotherapy and Alternative Remedies - PubMed.

BTW This observational study from 2021 states “exceptional overlap” between ME/CFS and fibro: Beyond bones: The relevance of variants of connective tissue (hypermobility) to fibromyalgia, ME/CFS and controversies surrounding diagnostic classification: an observational study - PubMed

Primary or secondary fibromyalgia? Is Your Fibromyalgia Primary or Secondary? points to Secondary Fibromyalgia which ends with “Because of the increasing realization that FM has associations with many other disorders, the question of the equivalency of primary and secondary FM is no longer germane, as most patients with “primary” FM will be found to have comorbidities.”

Just as reference as I just checked I no way have POTs:

Continuing trying to put my fibomyalgianess in a diagramm: This is
a) my WPI+SSS score (black) vs.
b) full points (black border) vs.
c) cutoff for dx (yellow lines).

I spose I could colour the boxes to the left of the yellow lines in a different not quite so dark colour? Like this?

Lessons in self-care #317 Well I spose 90’ could have been worse. And I commend myself for taking a taxi and not walking with all the bags, after I couldn’t get at my bike cos the key locks to get my bike out had been changed without me being told .
Reasons to be cheerful #321 Finished! Much more than I “expected”…
Things I love about myself #16 Motivated. Get things done.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · May 28, 2022, 6:59pm

2022-05-28, Saturday - Energy 25% / Sleep 60%. Cortisol from acupuncture enabling doing things despite getting shattered from finalizing clearing out my workplace another 30’ (plus commuting 2x30’)

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30%? Suppleness (vs. stiffness) 80%?
Local Pain Areas (mainly spine): = 3. 10%? Mainly neck, altho as ever fairly supple.

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 50-60%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above) Bit of sinuses

Treatments overview

Self-treatments >1h/d (Yoga Nidra)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h45, up 5x (3h20), >2h Yo.Ni/dozing (23:40-5:45, 7:55-11:45 = 6h+4h - 1h breaks & dozing/Yo.Ni). ✅/❌, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐, but very tired.

warm shower (after acupuncture) p0 Sleep 23:40-
0:00 5’ 80%/2 LBU → stretching → massage gun
2:55 15’ 80%/2 p0 st1 sip fw5’ air B1, sinuses → +A3 glutamine (forgotten!) Made & put GABA from A3 in B1, and in in A4 (forgotten), see if I can/need them later… Stools(!), OK.
3:25 15’ 80%/2 work-notes. YoNi with ear plugs cos of birds.
4:35 35’ 6 80%/2 p0 st1 sip fw5’ nostrils stomach nauseous: ate, (ear plugs) then doze.
5:35 Yo.Ni. -5:45 awake, but tired eyes. 2h10 B2-4
7:55- try again, after fw & mails.
-11.45
Sum: 20+11h45-(5+15+15+35-2h10=)3h20 = 12h05-3h20 = 8h45, up 5x (3h20), >2h Yo.Ni/dozing (23:40-5:45, 7:55-11:45 = 6h+4h - 1h breaks & dozing/Yo.Ni).

ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3, again 30’ at “workplace” to get clearing “out” done, instead of TT
➔ 80%/4 . Not really Ache of 4, it’s a strange fatigue mainly despite the so-called energy.
ACTIONS ➔ PAINS: neck: hurts . GI: stomach at night . jaw occasionally . Everything else OK.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Sinuses at night.
Fibro & Touch:
Covid-danger: Commuting was good today, much less people than expected.

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) #20 on 2nd. Definitely still the cortisol up, but not deeply enough and very slow.

SELF-PHYSIO (click for details):

airing 5x2’, no cold shower 0x(10’), cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 3’ at daytime, breath exercises 1’, Timing, hunchback-pillow 15’, Y. Nidra 2h, massage gun 5’, neck 1+ 2’,
Still to do I think!: palpate 1’, belly 3’, back 12’,
Combine: next?
neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): All wonky as often recently, left some GABA out, so no surprise if I get seizures or pains, esp. considering acupuncture - but haven't yet. Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. Running out of more and more stuff, gotta order. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/?21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/3:00 B1(& A3-GABA) “01:00” .6g GABA PF#4
/08:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/15:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/15:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/20:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No. Helping one of the forums transition to new software, beta-testing for loads of bugs.
Lessons in self-care #318 Made sense to finalize workplace.
Reasons to be cheerful #322 People are thinking of and praying for me, and I tell them to pray for my health, just for happiness.
Things I love about myself #17 Active.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · May 29, 2022, 9:25am

2022-05-29, Sunday - Energy 20% / Sleep 70% / Ache 40%

Under “Development” today

What “clearing out my workplace” means for me: simplifying.
How much worse was the 2nd jab was than the first: A lot!
pattern in acupuncture now: focus on sleep,
insomnia management: get up more instead of Yoga Nidra,
brilliant book recommendation “The Big Little Book of Resilience”,
which docs “own” fibromyalgia: All of them…

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 40 → 30% Suppleness (vs. stiffness) 85%
Local Pain Areas (mainly spine): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 70%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above).

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h10, up 3x (20') ) (+15' dozing) ✅, ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 70%/2 ❌, dead tired, sinuses burning. But maybe better to stay up to get my rhythm earlier again? Seemingly very helpful tonight wasn't necessarily the cold shower, but to stay up till i was thoroughly tired.

cold shower p0 Sleep 23:45- Nope, lying awake (20’?), so got up again, 6 1:55- B1
4:50 5’ 80%/2 p0 st1 sip fw1’ nostrils → ear plugs gel
8:05 10’ 80%/2 p0 st1 sip fw1’ air nostrils & sinuses (ear plugs) . Getting up seems to have worked out.
-10:05 5’ 80%/2 sinuses/headache, 10:25 B2-4
Sum: 10h05-1h55-(5+10+5=)20 = 8h10-20’+20’ = 8h10, up 3x (20’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/4
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS: neck GI: 1st stools pretty hard. jaw (?)
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Sinuses, maybe too little GABA or wonky sleep - no sleep till 2.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) #20 on 2nd. See development: Even more focus on sleep, praps just earlier.

SELF-PHYSIO (click for details): 95' (25' twist-stretching in service)

airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 4’, Timing, hunchback-pillow 15’, massage gun 5’, neck 1+ 2’, plantar/calf stretch 5’, palpate 1’, belly 3’, back 12’, aloe vera 1’, twist-stretch 25’,
Combine: next?
neck 2 1’, acupressure 2’, Y. Nidra 20’, workout 7’, horse stance 1’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:50 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:20 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:45 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:55 B1 “01:00” .6g GABA PF#4
/10:25 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/10:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/10:25 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/12:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/12:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:35 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:25 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

1. Clearing out my workplace.
Actually I am not clearing it out, I am thinning it out, taking a few things home, my colleagues can now find things for me quicker if I need anything. That simplifies it all so I can use my 20-25% much more effectively. Seeing as I can’t do that much about increasing that, simplifying makes sense.
2. Second jab much worse than the first.
72 days (2.5m) after the first jab I was stable at 30% energy from 10%. = +20% in 72 days. = 0.27%/d.
108 days (3.5m) after my 2nd jab I am unstable at 20-25% from 5-10%. = +15% in 108 days. = 0.14%/d. That’s half as quick.
Despite now having all the supps, diet and antihistamine right from the start, and now acupuncture. What does it make that: 3x as bad? 4x? Or infinitely worse if I never get to stable 30%?

3. Pattern in Acupuncture: Insomnia is maybe the main problem to tackle first
I just realized my pic was wrong, I’d put a row too much in for energy. Doesn’t change much tho.
Sleep has got really bad, and I still think that’s the downside of the cortisol increasing energy.
I think it’s also caused by not being able to cold shower the night after the acupunctures.
When first starting the spine needles 3x and then a break: first sleep, then energy increased.
After that energy 22 days at 20%, 11 days 25%, 9 days 30%, 9 days under 20%, avg. 22%.
I think I still need to fight for my sleep more, after having added GABA and passiflora again.
Special treats I’ve indulged in (1-2h socializing & gigs) due to the energy have depleted sleep.
So I need to develop every day so that I get to bed by 10 or before again.
The problem is probably that the cortisol and evening socializing is disturbing the rhythm & my brain.

4. Insomnia management
Trying too much Yoga Nidra, at the moment just getting up for a few hours seems better.

5. Books on Depression and Resilience by Matthew Johnstone
The “Black Dog” is a symbol for depression. Resilience is our ability to handle setbacks, incl. that, trauma, anxiety etc.
The “Black Dog” books and videos are by the Australian Matthew Johnstone, award winning and WHO-propagated.
Now I got his nicely illustrated book about Resilience too and it is equally brilliant, also at least twice as thick.
So I will be getting more, to hand them around, and might be trying his other books too, on Meditation and Mindfulness.
There seems to be a “Little Book of Resilience” as well as the “Big Little Book of Resilience”. Mine is the German version from 2015 saying it’s a translation of the Big Little Book… , 2015. The version “Little Book…” seems to be from 2022.
As regards videos there is a 3rd one on the Black Dog called “Depression and the Fire Fighter who Fought it”.

6. Which doctors “own” fibromyalgia?
My first rheum., who didn’t diagnose it, said this not about all doctors, but about rheumatologists: Why should they diagnose it, altho it is not a rheumatological disease?
To be fair, they are right, it isn’t .
To be even fairer, they are wrong , because fibromyalgia via seeming joint pain (actually tendon pain) mimics rheumatological as well as autoimmune diseases and these fall into the domain of rheumatology. Once they’ve ‘proven’ it’s not that, further tests still have to be done, in my case and I’d recommend everyone: neurological, endocrinological and orthopedic. Once these 4 areas are done, the last one of these or the GP / PCP is the one who should be diagnosing it. So fairest is:
The rheumatologist is right : No one owns this diagnosis, because it belongs to everyone, every doc and ourselves .
That’s why the new criteria are trying to empower all/any docs to diagnose it once the 4 main fields have been checked.

’Research’ today: No.
Lessons in self-care #319 Focus on sleep!
Lessons in self-care #320 Try not to bash myself up for my music mistakes only I can hear!
Reasons to be cheerful #323 Nice gig, just cajon was only physical stress, not that much mental!
Things I love about myself #18 Never tiring to improve things.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · May 30, 2022, 3:46pm

2022-05-30, Monday - Energy 20% / Sleep 70% / Ache 25%

TT was OK. “Development”: Supp adjustment to sleep pattern…

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 25% Suppleness (vs. stiffness) 90%
Local Pain Areas (mainly spine): = 3. 15% (neck at night)

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%?, sleep breaks 70%?, day 80%?
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h55, up 7x (55') ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 75%/2 🧐

cold shower p0 Sleep ?22:25- 30’ dozing with ear plugs tight trying to ignore the incredibly loud TV of our neighbour under us.
22:55 10’ Yo.Ni 80%/2 p0 st1 sip fw1’ neck hurts: arnica cream (ear plugs)
23:20 10’ 80%/2 p0 st1 fw1’ itchy foot: tea tree oil (ear plugs)
0:20 5’ 80%/2 p0 st1 sip fw1’ (ear plugs) A4
1:20 5’ 80%/2 p2 st1 sip fw1’ air nostrils (ear plugs) neck massage B1
2:50 10’ 70%/2 p0 st1 sip fw1’ air gel (nostrils) (ear plugs) neck, nose hurting.
3:20 10’ 70%/2 p0 st1 sip fw1’ air FCS for various hurts, aches & itches (ear plugs) Clumsily hurt myself >2x up to now.
6:30 5’ 80%/2 p0 st1 sip fw1’ air (nostrils) (stomach nauseous) (ear plugs) PF EARLIER?? zombified now, 3h after B1, after FCS 30’ to get back to sleep is I think normal.
-9:15 B2-4
Sum: 1h35+9h15-((30’doze+)10+10+5+5+10+10+5=)55’ = 10h50-55’ = 9h55, up 7x (55’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 75%/2-3, even during and after TT 3:1 (Ache increasing in the 3rd game, not the 2nd as usual), work ➔ 75%/2)
ACTIONS ➔ PAINS: neck massage gun. GI jaw .
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger:
Every time I get up, especially from the floor, where I have to spend most of the time, I not only have to “unravel” my limbs carefully, but the tops of my feet. If I don’t they

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) #20 on 2nd.

SELF-PHYSIO (click for details): 100'

airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 0x3’, breath exercises 3’, Timing, hunchback-pillow 15’, Y. Nidra 20’, massage gun 5’, neck 1+ 2’, neck 2 0’, plantar/calf stretch 2’, acupressure 0’, palpate 1’, belly 3’, back 12’,
Combine: next?
workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
22:00 Chamomile tea.
/0:20 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/1:20 B1 “01:00” .6g GABA PF#4
/09:15 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:15 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/?10:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/?10:15 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
16:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
->18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

As I’m regularly sleeping badly till the morning, but the last stint is deep, long and hard to wake up from, it’ll make sense to try increasing passiflora in the early evening.
Also to get to bed earlier, which would be good for me as well as my wife, I need to finish these blog entries off and prepare supps in the afternoon, not after it’s long time for the evening meal.

’Research’ today: Someone recommended Heather von Vorous’ resources. I can’t find anything new or helpful tho, except that soluble fibres are easier on the gut than insoluble, which I’m going to consider. Lots of things seem illogical:
I just had a quick look at her site and watched her 5’-video “The 10 Commandments for IBS”. Now I’m confused.
Perhaps someone can help me digest my thoughts or can see if they’re interesting…

I don’t understand why she keeps calling it “Tummy Care” - isn’t that short for stomach as opposed to gut (belly?)?
But if she were referring to stomach too, she wouldn’t be quite as quick to recommend all “herbs & spices”…

And hearing “commandments”, my stomach & gut obviously suffer from ODD - “oppositional defiant disorder”…
Her - let’s say - “recommendations”:

Start meals with “soluble fibres”,
minimize fats,
high fat only with soluble fibres,
eliminate the big triggers like dairy,
Careful with insoluble fibres: don’t start meals with them, split up insolubles, break them down mechanically,
eat small portions regularly & calmly,
Avoid if unsure,
make eating fun,
don’t let yourself be pressured to eat something,
improve how you eat: soy for cow milk, herbs & spices…

Why isn’t she distinguishing IBS-D from IBS-C here? Or unsaturated fats, simple carbs, unprocessed foods?

I’m not sure if this distinguishing “soluble fibres” from “insoluble” is going to help me, e.g. with raw green leafy salads.

If I go on her products, most contain peppermint: Really bad for me. Fennel is OK, but not exactly a new discovery.

What is most confusing for me is that she appears highly lauded, although I can’t find anything helpful for me.
Does that mean my tummy & belly problems aren’t really IBS? Or is she just forgetting to say:
Everyone’s different…

Lessons in self-care #321 I tried my best to eat earlier, but my wife had other plans. Have to talk.
Reasons to be cheerful #324 TT fun again!
Things I love about myself #19 Agreeable.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · May 31, 2022, 12:14pm

2022-05-31, Tuesday - Energy 25% / Sleep 75%

+1 passiflora = 5, taken at 20:00. “Good”… except 2h break…!
Development: Curb my/our workaholic-postponement of meals.

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 +1 = 12 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% (TT 30%) Suppleness (vs. stiffness) 90%
Local Pain Areas (mainly spine, 3): = 3 +1 (right clavicle). 20%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 25%)
Waking unrefreshed 3 out of 3 (Sleep quality 75%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 85%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 7x (2h35) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Too late eating again..

cold shower p2 Sleep 22:10- ear plugs
22:55 5’ 80%/2 p0 st1 sip fw1’ (ear plugs) A4
23:05 05’ 80%/2 p0 st1 sip fw1’ (ear plugs) (bladder not emptied?)
0:00 5’ 80%/2 p0 st1 sip fw1’ (ear plugs)
1:25 5’ 80%/2 p2 st1 sip fw1’ air (ear plugs)
2:05 2h05 80%/2 p0 st1 sip fw1’ dampened but racing thoughts. 2x 135/92 54! 3:10 186/115 62 (pee urge) 170/97 59 → ~130/83. 6. Body Pillow Anyone? - #4 by JayCS.
5:50 5’ 80%/2 p0 st1 sip fw1’ air cream gel nostrils sinuses stomach nauseous sore throat ear plugs
7:30 5’ 80%/2 p0 st1 sip fw1’ air cream gel nostrils sinuses stomach nauseous sore throat ear plugs
-9:20
Sum: 1h50+9h20-(5+5+5+5+2h05+5+5=)2h35 = 11h10 - 2h35 = 8h05, up 7x (2h35)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/2, better from deeper sleep. TT 2:2 from shoulder pain & distraction, fairly easy actually. ➔ 80%/3 , after resting back to ➔ 80%/2, bit feverish, praps due to less sleep.
ACTIONS ➔ PAINS: neck (and right shoulder) GI jaw 3xp2
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. No nostril or sinus problems since increasing passiflora, don’t understand that one…
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) #20 on 2nd.

SELF-PHYSIO (click for details): 73' - neck acupressure at night (see sleep details) worked, but got right shoulder pain during TT, so not sure what next. Maybe massage gun and shoulder acupressure undeterred.

airing 3x2’, cold shower 1x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 4’, Timing, hunchback-pillow 15’, Y. Nidra 0’, massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 4’, palpate 1’, belly 3’, back 12’ = 73’
Combine: next?
workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora +1 = 5, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 + 1 PF A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/22:00 Chamomile tea.
/23:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/09:20 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/09:20 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:20 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
/15:00-30 ->14:00! DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Aside from evenings earlier, all meals needs to be earlier, breakfast at 9, midday at 2, evening at 7. No messing.
Talk with wife about changing the evenings, as it’s our interaction, we both postpone due to doing other things. Procrastination is the wrong word, as we are working, talking about work, going for walks, doing housework etc., just not eating and getting to bed in time.
’Research’ today: No.
Lessons in self-care #322 Not (too much…) bashing myself for working or forum-working and forgetting to eat in time…
Reasons to be cheerful #325 Wonderful family video chat.
Things I love about myself #20 Like mainly talking deep, but also laughing around.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 1, 2022, 12:01pm

2022-06-01, Wednesday - Energy 25% / Sleep 85% / Ache 20% (45%)

In hindsight, Wednesday 22:00, I’ve increased the energy-% to 25%, as I’ve done 5-6x40’ stints with breaks: They hurt, but I wasn’t completely drained.
Positive summary:
Σ(+): NRG 25%, slp 80%, 0-Ache 80%(55%), 0-pain 80-90%, alert 85%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 +1 = 12 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% (45%) Suppleness (vs. stiffness) 90%
Local Pain Areas (mainly spine, 3): = 3 + 1. 20% → 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%, but unrefreshed)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70% → 60%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d (stretches)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 10h09, up 4x (51') ✅, but ➔ Feeling 80-60% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐. Yup, strange: sleeping deeply (first stint at least) and long stints as well as long altogether: Still not restorative, still feel sweaty tired...

cold shower p0 Sleep 22:00-
23:05 8’ 80%/2 p0 st1 sip fw2’ (ear plugs)
00:25’ 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs)
2:10 8’ 70%/2 2xp0 st1 sip fw1’ air slightly sweaty (sore throat) (ear plugs)
4:45 30’ 60%/2 p0 st1 sip fw1’ air and cooling down, cream sweaty stomach nauseous sore throat (ear plugs)
After that “short” break it felt like dozing most of the time
-9:00
Sum: 2+9-(8+5+8+30=)51’ = 11h-51’ = 10h09, up 4x (51’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 TT 2:2 → 80%/4-5 3x40’ meetings/social , work ➔ 80%/2-3
ACTIONS ➔ PAINS: neck GI: still , altho I thought there might be linseed in my gluten-free wholemeal “oat power” bread. Jaw , right clavicle : better from (twist-)stretching a lot , 1xp1-2 .
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . 20:40 itchy face, or is that “sleep lice / fleas” as we call it: What do you call an itchy face when you’re tired, esp. kids I can’t find an English expression anywhere?
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) #20 on 2nd.

SELF-PHYSIO (click for details): 92'

airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 3’, Timing, hunchback-pillow 25’, Y. Nidra 0’, massage gun 5’, neck 1+ 3’, neck 2 0’, plantar/calf stretch 4’, acupressure 5’, palpate 1’, belly 3’, back 12’, aloe vera 1’, twist-stretch 5’, yoga/stretching 13’,
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:20 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
21:30 Chamomile tea.
/23:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:10 B1 “01:00” .6g GABA PF#4
/10:20 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/10:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/10:20 B4 “07:00” 0xEGCg + Fev/MSM + Sily
09:35- C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
-10:50? C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:45 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Something I often don’t realize is that my body is crying a lot of the time. Even tho I’m not doing much at a piece, a lot is overdoing it.
Remembered that 10% energy means that I can’t be “bothered” to get up off the floor, but often prefer crawling thru the flat, easier than sitting, standing & walking, altho also very strenuous.

’Research’ today: No.
Lessons in self-care #323 No writing down supp times before I take them any more… (Keep forgetting them or confusing before and during meal supps)
Lessons in self-care #324 My body comes first, not the web (which seems to entangle me sometimes ).
Reasons to be cheerful #326 Nice spontaneous meeting with an old friend.
Things I love about myself #21 Caring.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 1, 2022, 8:15pm

2022-06-02, Thursday - Energy 25-28% / Sleep 60% / Ache 20%

Energy praps due to overdrive from less sleep plus acupuncture today
Sleep due praps mainly forgetting GABA, but praps also from 10h sleep yesterday…
Positive summary of symptom-%s:
Σ(+): NRG 25-28%, slp 60%, Ache-free 85%, pain-free 90%, alert 85%, GI 95%, feeling 85%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15%. Suppleness (vs. stiffness) 90%.
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 25-28%)
Waking unrefreshed 3 out of 3 (Sleep quality 60%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 85%.
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >>1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 5h52, up 4x (1h18) ❌ (4h and then bits 'n' bobs), but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Trying to get the sleep break times down didn't work, it keeps ending in long shallow dozing times. Adding magnesium malate in the evening didn't help either. But: FORGOT 3x GABA 21 23 and 1:00!!°

cold shower p2 Sleep 22:35-
00:40 8’ 80%/2 p0 st1 sip fw1’ air gel A4
2:30 5’ 70%/2 p0 st1 sip fw1’ air cream B1 ear plugs
3:17-3:57 40’ 80%/2 p0 st1 sip fw1’ air (ear plugs) doze
4:53-5:18 25’ 80%/2 (LBU) p0 st1 sip fw1’ (ear plugs)
5:45?-6:12… and longer 80%/2 p0 st1 sip fw1’ (ear plugs) Realized I’d forgotten 3xGABA! Took 1 now at 6:15… still not getting tired at 8:10, drat.
Then took B2-4 some time, dunno when.
-5:45
Sum: 1h25+5h45-(8+5+40+25=)78 = 7h10-1h18 = 5h52, up 4x (1h18)
OK, I’ll try lying down, as I’m not tired, but hurting.
sleep?: 8:12-

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, despite less sleep… - this is confusing me acupuncture, bit of cycling , meeting someone 30’, shop 5’ ➔ 90%/1 , TT 3:1 with loads of energy, meetings/social , work ➔ 80%/2 , only after a 25’ walk with my wife between TT and meeting with a mate took me down to ➔ 70%/2-3.
ACTIONS ➔ PAINS: neck better, but keeping it supple GI jaw 3xp1-2 in the afternoon, due to less GABA yesterday evening, so it can be a late reaction after all…
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist -#20 on 2nd. (Sleep & +25% GABA helping.) Boosted afterwards, but this time natural and relaxed, not feverish-cortisol-type. She was actually asking me whether I want to carry on and try another 10, so she does realize that it’s a struggle and doesn’t pretend it isn’t. We’ll continue once a week, sometimes 10 days - like this interval was.

SELF-PHYSIO (click for details): lots of calf-stretching - didn't realize I could do that much more, feels much better now. 96'

airing 3x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 3x2’, breath exercises 3’, Timing, hunchback-pillow 15’, neck 1+ 4’, plantar/calf stretch 5’, palpate 1’, belly 3’, back 12’, yoga/stretching 15’, twist-stretch 5’,
Combine: next?
HWB 3’, Y. Nidra 20’, massage gun 5’, neck 2 1’, acupressure 2’, workout 7’, horse stance 1’, aloe vera 1’,balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:20 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:00 without GABA A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/ Chamomile tea.
/00.40 without GABA A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:30 without GABA B1 “01:00” .6g GABA PF#4
GABA at 6:00??
/7:00? B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/7:00? B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/7:00? B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:15 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
-15:30 DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #325 A lovely talk with a good friend, but I had to after 75’ say: I’m breaking down…
Reasons to be cheerful #327 Having an energy boost plus less Ache is fun.
Things I love about myself #22 I enjoy multi-tasking.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 3, 2022, 2:28pm

2022-06-03, Friday - Energy 25-28% again! / Sleep 75%! / Ache 10-15%!

Positive summary of symptom-%s:
Σ(+): NRG 25-28%, slp 75%, Ache-free 85-90%, pain-free 90%, alert 90%, GI 95%, feeling 85%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 +1 = 12 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15% Suppleness (vs. stiffness) 90%
Local Pain Areas (mainly spine, 3): = 3 +1 (right clavicle during TT). 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 25-28%)
Waking unrefreshed 3 out of 3 (Sleep quality 75%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 90%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 85%, sleep breaks 70%, day 85%
MCAS / allergic 20% (except energy, subsumed under FM-fatigue above) Sinuses all night and till afternoon, maybe due to the basmati rice? Or what else?

Treatments overview

Self-treatments <<1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h35-35' = 8h, up 4x (35') ✅, but ➔ Feeling 80-60% well, Ache 2-3 of 7 🧐, getting up: 80%/2 ❌. If I ever feel it's vital to write something down instead of eating at a set time, I want to start making it a habit to eat first, write later.

warm shower p0 Sleep 22:40- A4 ear plugs
0:20 15’ 80%/2 p0 st1 sip fw11’ air (nostrils) (ear plugs) B1
2:15 10’ 60%/2-3/15% p0 st1 sip fw1’ air (ear plugs)
4:10 5’ 60%/2-3/15% p2 st1 sip fw1’ air cream (ear plugs)
6:50 5’ 60%/2-3/15% p0 st1 sip fw1’ air nostrils & sinuses (ear plugs)
-7:15
Sum: 1h20+7h15-(15+10+5+5=)35’ = 8h35-35’ = 8h, up 4x (35’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/1-2, cycling & shop OK, TT 4:1 easy, just a matter of dosing energy right (easier with less energy) ➔ 80%/2 rest & work, and even some gardenwork ➔ 80-90%/2-1
ACTIONS ➔ PAINS: neck: bad during TT, so need to massage it. GI jaw , but 3xp1-2, meaning I need to change the GABA, praps less again?? Clavicle also now influencing my sternum. Some people would think it’s magically “moving”, but of course it’s directly connected.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 22:20 Coughing fit due to 3 drops of tea tree oil on strange blemishes on my feet. But my wife did a bit too. Praps something for the allergologists / dermatologists on Tuesday.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Cardio: Wanted to phone her cos of my lipid and CoV-antibody-titre results before the allergologists/dermatologists. However closed till after.
GP: Wanted to discuss the acupuncture with him. But full today, so I’ll try Wednesday instead.
Allergologists/dermatologists: Tuesday 7th, best to take all my stuff with me incl. this blog etc.
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st.

SELF-PHYSIO (click for details): 33', forgot back and massaging, doing that this Friday evening.

airing 3x2’, cream fc/ey/hd/ft 1x1’, teeth 3x2’, Timing, hunchback-pillow 15’, neck 1+ 3’, aloe vera 2’,
Combine: next?
cold shower x(10’), HWB 3’, breath exercises 1’, Y. Nidra 20’, massage gun 5’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Whoops, I've been taking 5 passiflora & 5 GABA, now I've re-ordered. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/22:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/00:30 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/07:15 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:15 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/-10:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/-10:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/16:00 ?-15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: On ECT and the probiotic Lactobacillus rhamnosus for increasing GABA, both “no help”, and a few other bit’n’bobs from forums.
Lessons in self-care #326 (Sleep) supps too late due to wanting to having given myself a deadline to get some work done… Not a good idea.
Reasons to be cheerful #328 Still energy for some gardening.
Things I love about myself #23 Try to “know what I’m doing”… or admit that I don’t.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 4, 2022, 9:55am

2022-06-04, Saturday - Energy 20% & Ache 25% despite Sleep 90%

Σ(+): energy 20%, slp 90%, Acheless 75%, painless 90%, alert 85%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 +2 = 13 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 25%? Suppleness (vs. stiffness): 80%?
Local Pain Areas (mainly spine, 3): = 3 +2 (clavicles). 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 90%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 75%, day 80%
MCAS / allergic 10% (except energy, subsumed under FM-fatigue above) Nostrils/sinuses only slight and one-sided at night.

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

Got a focal seizure at our friends at around 15:00 while eating, after 45’ car trip and resting, I think it was still a lot, but also the 5x0.6 GABA could be increasing serotonin too much.

SLEEP (click for details): 8h57, up 4x (23') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/2 ❌

cold shower p0 Sleep 23:30-
01:00 5’ 80%/2/10% p0 st1 sip fw1’ air nostrils B1
02:55 5’ 80%/2/10% p0 st1 sip fw1’ (nostrils) sore throat.
04:45 8’ 80%/2/10% p0 st1 sip fw5’ cream (left nostril & sinus) (stomach nauseous)
6:50 5’ 80%/2/15% p0 st1 sip fw1’ right nostril & sinus, stomach nauseous B2-4
-8:50
Sum: 30+8h50-(5+5+8+5=)23’ = 9h20-23’ = 8h57, up 4x (23’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2, work ➔ 80%/2 TT 2:1 - points easy, but pain, fatigue, panting ➔ 70%/4, had to keep it short due to car trip & meeting today. meetings/social 3h - of that 1h30 breaks, esp. due to car trip 45’ there and 45’ back, most of that time with mask ➔ 70-80%/4 , work in between ➔ 80%/2 .
ACTIONS ➔ PAINS: neck/clavicles → working on them GI jaw . Sitting several times (even back home) not watching for how: . 2x45’ car trip: The way there was worse, I think probably due to my wife being fraughter (as usual when driving): expensive petrol, a bit later than intended, she drives fast and abrupt, incl. around bends, closes up, diversion looming up stresses, that also tenses me up, and I don’t ask for additional consideration, esp. when I know she’s doing 5 things anyway (windows open less, trying to keep calm, etc.). In both directions the radio news, the tone of the speaker and the volume stressed me, I got a bit of nausea in between, some bumps hurt me and my thighs hurt quite a bit, as I have to fairly lie rather than sit, twist-stretched out a bit, trying to keep my tailbone away from the seat, hard not being able to cock one leg like I can at home sitting on the floor.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Should’ve taken a DAO in the evening, as I put 3 fairly small bits of a really tasty hard herb cheese on my gluten-free wholemeal bread slices… hmmmm… nice… but let’s see what my sinuses say tonight… Ah: not too bad.
Fibro & Touch:
Covid-danger: - well I spose I surprised my wife that I kept my mask on when indoors with our friends, but I asked why I should make an exception here with people we hardly ever see whilst I wear my mask one-way (= the others don’t) even with people who I see often. A recent study confirmed that this is effective if it is real FFP2, whilst (K)N95 in the US are very likely bad quality or sham.

Treatments

Docs:
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st. Pity energy went down today, maybe it was just a short-term push by the acupuncture and curbed by doing a bit more.

SELF-PHYSIO (click for details): 80'...

aloe vera 1’, airing 1x2’, cold shower 1x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, breath exercises 1’, Timing, hunchback-pillow 15’, massage gun 5’, neck 1+ 7’, yoga/stretching 5’, palpate 1’, belly 3’, back 3+12’, twist-stretch 10’,
Combine: next?
HWB 3’, Y. Nidra 20’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 5 GABA. +1 magnesium malate in the evenings recently ✅ (praps the reason for improved sleep?), +1 magnesium glycinate in the mornings ✅. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
!/21:20 A1/2 “19:00” 2xPF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/23:30 Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:00 B1 “01:00” .6g GABA PF#4
/06:55 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/06:55 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:55 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Measles vaccinations are very important, I read in a study and a BBC article as measles cause(s?) immune amnesia, which deactivates a lot of the antibodies, which then have to be developed again. The measles paradox is that you are only immune to measles after it, not much else, incl. CoV, and that can kill.
Lessons in self-care #327 I made sure I kept resting & mask on.
Reasons to be cheerful #329 Good feedback to a bit of work is enticing.
Things I love about myself #24 There’s quite a lot things I love doing, get into a flow from.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 5, 2022, 7:13am

2022-06-05, Sunday - Energy 20-25% / Sleep 75%, so Ache 30-20%

Very relaxed muscles, so could play long, effortlessly and precisely (6:0), with almost no Ache, and I tried to walk similarly in the evening, over an hour was just about OK.

Positive summary of symptom-%s:
Σ(+): energy 20-25%, slp 75%, Acheless 70-80%, painless 90%, alert 85%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30% Suppleness (vs. stiffness): 90%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%?)
Waking unrefreshed 3 out of 3 (Sleep quality 75%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments =1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 7h, up 3x (35') ✅/❌, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p0 Sleep 23:50- ear plugs
1:45 25’ 80%/2/5% p0 st1 sip fw20’ air (ear plugs) B1: only PF.
5:45 5’ 80%/2/10% p0! (-1 GABA?) st1 sip fw1’ air (ear plugs)
7:05 5’ 80%/2/10% (neck burn) p0 st1 sip fw1’ cream (ear plugs) B2-4
-7:25
Sum: 10+7h25-(25+5+5=)35’ = 7h35-35’ = 7h, up 3x (35’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70-80%/3-2 TT 6:0! lots of laptop work all day, and a long 70’ walk in the summer rain in the evening ➔ 80%/2) .
ACTIONS ➔ PAINS: neck/clavicle: GI: jaw: 2x short, only 1xp1-2? (So reducing GABA has improved that and maybe everything!)
Sitting on chairs has been a big problem the last few days . Stiffness was so-so, walk was almost without pains - a bit right knee, then left knee, elbows, but relaxing legs more helped the knees and twist-stretching the arms a bit the elbows.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Hardly any sinus / nostril problems, so the GABA amount of 4 was still OK for that. DAO in the evening to eat a bit more cheese and some cow yogurt.
Fibro & Touch:
Covid-danger: They’ve stopped masking in our church - that makes me very nervous . My wife said we’ll continue to sit next to the open doors, come late and go early, and best explain to them.

Treatments

Docs:
Allergist on Tuesday - have to prepare all the papers I’ll need tomorrow.
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st.

SELF-PHYSIO (click for details): 61'

airing 3x2’, cold shower 1x(10’), cream fc/ey/hd/ft 1x1’, teeth 1x2’, (Timing,) hunchback-pillow 15’, = 34’ neck 1+ 2’, palpate 1’, belly 3’, back 12’, aloe vera 1’, twist-stretch 3’, yoga/stretching 5’,
Combine: next?
HWB 3’, breath exercises 1’, Y. Nidra 20’, massage gun 5’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA. But was wide awake at 7, meaning only 7 hours of sleep - which made me hurt first, so I thought I may need to continue the 5th GABA - but the pee pain was reduced, which was the aim of reducing the GABA, as that may have been a bit too much, and I didn't have another focal seizure (like yesterday). DAO in the evening so I could try more cheese. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:45 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/07:10 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Just wondering whether it’s fair to say that my cognitive symptoms are 2 of 3, altho I am 80-90% alert. The problem is that that’s only when I’m in peace at home, then I can do a lot. But actually I need quite a long time to write important things, and it’s not easy for me to write in a way that others understand.
’Research’ today: Relevance of all-cause mortality for statin assessment.
Lessons in self-care #328 Supp changes (+Mg & -GABA) successful!!
Reasons to be cheerful #330 Being relaxed & stressfree allowed energy!
Things I love about myself #25 Ardent.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 6, 2022, 7:47am

2022-06-06, Monday - Energy 20% / Sleep 85%

Hmm… yesterday deeply relaxed all day, after less sleep, today less energy and Achey
Positive summary of symptom-%s:
Σ(+): energy 20%, slp 85%, Acheless 75%, painless 90-80%, alert 75%, GI 95%, feeling 80-75%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30%? Suppleness (vs. stiffness): 80%?
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 75%?)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70%, day 80-70%
MCAS / allergic 10%? (except energy, subsumed under FM-fatigue above) Sinuses slightly night / early morning, foggy, something else I can’t remember.

Treatments overview

Self-treatments >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h50, up 4x (45') ✅, ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅

cold shower p0 Sleep 23:35- sore throat, ear plugs
1:30 5’ 70%/3/10% p0 st1 sip fw1’ air sore throat (ear plugs)
3:50 15’ 70%/2/10% p0 st1 sip fw7’ air, cream, burning tongue & dry mouth → gel (ear plugs)
5:25 20’ 70%/2/10% p0 st1 sip fw15’ air, stomach nauseous, very slight sore throat (ear plugs)
7:25 5’ 80%/2/?5% p0 st1 sip fw1’ stomach nauseous, sore throat (ear plugs)
-9:00
Sum: 35’+9h-(5+15+20+5=)45’ = 9h35-45’ = 8h50, up 4x (45’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, TT 3:1 ➔ 80%/3, so because of the trip to the university allergists tomorrow I didn’t try repeating yesterday’s 6 games, also I wasn’t deeply relaxed like yesterday, church service / mask , quite a bit of work work ➔ 75%/2-3 /.
ACTIONS ➔ PAINS: neck & clavicle /, still working on both. GI , jaw . standing & sitting, short walk, cycle, mask: /, 1xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch: Walking hand in hand for 5’ in a crowd at a train station was very stressful, I’d’ve preferred walking alone, slower.
Covid-danger: I only saw few people wearing masks in the train station, a bit more in the trains. Oh dear

Treatments

Docs:
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st.
My chart of acupuncture since May shows that it is increasing energy directly by about 5% for 2-3 days every time I get it. The average has continued stabilizing above 20%: Only 2 days under 20%, 21 at days ≥25%, 15 days at ≤20%. I’m now sure stress caused the drop for 1 week, then recovery 1-2 weeks mid-April: I was using the extra energy for 3! gigs around Easter, plus some tough cycling to an MRI and that was probably overdoing it physically and emotionally. Good Friday I had to pimp myself, I had some focal seizures on the 15th (day of a 2nd ‘big’ gig), trying to reduce supps on 18th. Touch from showering and needles bad as a result. So too much strain and supp reduction, which also made acupuncture tougher. Which shows however that using my full energy isn’t possible: If I have 25% I can only use 20% safely, or at least it depends how intensely I use it, how much I overdo what I do. That means that it isn’t comparable to the 35-40% I need to go to work, as those gigs were comparable to 1-2 of live work.

SELF-PHYSIO (click for details): 88'

airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 0x3’, breath exercises 3’, Timing, hunchback-pillow 15’, Y. Nidra 0’, massage gun 1’, neck 1+ 3’, neck 2 0’, plantar/calf stretch 1’, acupressure 2’, palpate 1’, belly 3’, back 12’, twist-stretch 12’, yoga/stretching 8’,
Combine: next?
workout 7’, horse stance 1’, aloe vera 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA. DAO seldom. I'm now taking the supps when I feel it's right, and writing down later, that's working a better than writing down and then forgetting. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:25 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:30 B1 “01:00” .6g GABA PF#4
/09:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/11:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/11:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:20 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:25 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:35 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Continuing the thoughts of the last days, I really noticed today that I was very concentrated on the inside, for work, bu couldn’t concentrate well on what people were telling me, my TT-mate and my wife.
’Research’ today: No.
Lessons in self-care #329 Curbed TT games, cos not fit and event tomorrow.
Reasons to be cheerful #331 Bit excited about the allergists tomorrow.
Things I love about myself #26 Straighforward. Try to be, at least…

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 7, 2022, 8:31am

2022-06-07, Tuesday - Energy 20-25-10% / Sleep 80% - Uni Clinic… strain

Positive summary of symptom-%s:
Σ(+): energy 20-25-10%, slp 85%, Acheless 85-50%, painless 90%, alert 80%, GI 90%, feeling 80-50%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15% Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20-25-10%)
Waking unrefreshed 3 out of 3 (Sleep quality 80%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1 Quite often slight headache from sinuses recently btw.
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 20% (except energy, subsumed under FM-fatigue above) Sinuses with slight nausea & headache night and till late morning.

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h07, up 5x (43'), last 20' Yoga Nidra. ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 23:30-
0:55 8’ 80%/2/15% p1 st1 sip fw5’ air (nostrils sinuses) (ear plugs) B1
2:20 5’ 80%/2/10% p0 st1 sip fw1’ (ear plugs)
4:20 10’ 80%/2/10% p0 st1 sip fw7’ sore throat: +1 socks (ear plugs)
6:45 15’ 80%/2/15% p0 st1 sip fw10’ air sinuses (slight headache & nausea), slight sore throat (ear plugs)
7:42 5’ 80%/2/15% p0 st1 sip fw1’ sinuses (slight headache & nausea), nauseous stomach pain, so eat. (ear plugs) B2-4 eye mask, 8:00 Yo.Ni.
-8:20
Sum: 30+8h20-(8+5+10+15+5=)43’ = 8h50-43’ = 8h07, up 5x (43’), last 20’ Yoga Nidra.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, train & bus to uni clinic strenuous, mask , shaking so I couldn’t fill in the questionnaire well at all, had to write big. Doc ➔ 70-60-50%/3-4-5)
ACTIONS ➔ PAINS: neck: still needs stretching GI: slightly looser . jaw: (only) seconds of stress . sitting .

Neck “interesting”: It was OK all day. I’d been doing a bit of stretching in between. But resting lying at home it hurt considerably every time I’d found a comfy position for 1 or 4 minutes…

(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Sinuses with slight nausea & headache part of the night. Burning in the evening after the uni clinic appointment.

After stressing my fatigue and listing my 25 MCAS-symptoms and how many of them are still there, I realized in the evening I’ve been missing something: The Ache is also increased. I used to have fibro-baseline 90%/1 before the jabs, now baseline is 80%/2, and increasing by the same amounts, e.g. before from 1 to 4 is now from 2 to 5.

Fibro & Touch: Yesterday evening my wife had stroked my back during the service and that was very soothing.
Covid-danger: Train & bus was by far not as dangerous as it seemed. In a smaller station many didn’t mask, but on the way and in the bigger station/city rules were strict, enforced and complied by even where not enforced (station and bus).

Treatments

Docs:

Uni clinic allergist today:

What happened: Not exciting. First it was, cos there was a long questionnaire which actually mentioned MCAS, for which I needed 1h to fill in. My waiting time was even slightly longer. But he didn’t look at it, asked me the same questions. He didn’t seem too familiar with either FM or MCAS. But he listened all the time. I could leave the questionnaire there tho, so I hope he’ll refer to it if I forgot something. What I told him was the important stuff anyway.
What I expect: They’ll be checking and not finding anything. The Prick-tests didn’t show anything abnormal to the most relevant substances in the Pfizer-jabs. And I bet the bloods won’t either. Some will take a few days, some up to 3 weeks. I’ll get a report then. I hope he’ll take my expectancy seriously to recommend going to an immunologist in the report. He didn’t know of one who knows about jab side effects though. But the immunologists will be unburdened by everything important allergical having been checked.
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st. My wife believes the energy levels down after Easter was mainly due to the pastor dissing me and not so much the 3 gigs plus rehearsals.

SELF-PHYSIO (click for details): 87'

airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, breath exercises 3’, Timing, hunchback-pillow 15’, Y. Nidra 20’, belly 2’, back 8’, aloe vera 1’, twist-stretch 6’, yoga/stretching 3’, neck 1+ 2’, plantar/calf stretch 5’,
Combine: next?
HWB 3’, massage gun 5’, neck 2 1’, acupressure 2’, palpate 1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/23:20 Chamomile tea.
/23:20 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:00 B1 “01:00” .6g GABA PF#4
/07:45 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:45 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #330 Spose the allergist’s gonna be worth it…?
Reasons to be cheerful #332 Maybe new ideas, probably not - at least checking.
Things I love about myself #27 I test the limits.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · June 8, 2022, 8:49pm

2022-06-08, Wednesday - Energy 15% / Sleep 90%

Positive summary of symptom-%s:
Σ(+): energy 15%, slp 90%, Acheless 50-70%, painless 90%, alert 75%, GI 95%, feeling 60%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30-50% Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+1+1+0 = 9+1=10 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 90%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 75%)
Headaches 1 & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80-70%?, day 75%
MCAS / allergic 5%? (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 5x (25') ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅

cold shower p0 Sleep 22:10- (bit worked up, but self-Yo.Ni did the trick.) ear plugs
23:30 5’ 80%/2/10% p0 st1 sip fw1’ (ear plugs) A4
0:30 5’ 80%/2/10% p0 st1 sip fw1’ (ear plugs) B1
1:55 5’ 70%/2/15% p0 st1 sip fw1’ air, right nostril, stomach nauseous (ear plugs)
3:45 5’ 70%/2/10% p0 st2 sip fw1’ air gel (stomach nauseous) (ear plugs)
6:10 5’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) B2-4
-6:40, 6:50 C1-3
Sum: 1h50+6h40-(5+5+5+5+5=)25’ = 8h30-25’ = 8h05, up 5x (25’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 50-70%/3 all day, despite rest, on the other hand lots of stressful work, incl. phoning
ACTIONS ➔ PAINS: neck GI jaw (or no time to think about it? , but headache most of the day. plus
sit & arms up & walk talk , if not partly .
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st. Wary of tomorrow, not feeling well at all today…

SELF-PHYSIO (click for details): 80'

airing 5x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 3’, breath exercises 5’, Timing, hunchback-pillow 25’, Y. Nidra 20’, aloe vera 1’,
Combine: next?
massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 5 GABA. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea, no, it’s been fennel tea the last few days.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/0:30 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/6:10 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/6:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/6:10 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/6:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/6:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #330 Wasn’t self-caring today, except when curbing someone who used a bit uptight words.
Reasons to be cheerful #333 Managed one heck of a lot. But backlash will come…
Things I love about myself #28 If I need to, I can power like mad.

My food
1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

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